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Turkish Relıability and Validity Study of Pediatric Quality of Life InventoryTM 3.0 Diabetes Module by Parental Perspective

Year 2015, Volume: 17 Issue: 2/3, 1 - 9, 01.12.2015

Abstract

Objective:Quality of life is defined as the self-perception of an individual in a cultural and intellectual context.In Turkey, there is no diabetes-specific life quality scale which can assess the life quality of 8-12 year-old children with type 1 diabetes by parental perspective.This study was methodologically performed in order to test the Turkish validity and reliability of the Pediatric Quality of Life InventoryTM 3.0 Diabetes Module-Parental Form which can evaluate the life quality of 8-12 year-old children with type 1 diabetes by parental perspective.Method:The study group was composed of 111 parents who had 8-12 years-old children with type 1 diabetes registered in İzmir Dokuz Eylül University, Ege University Children’s Hospital, Behçet Uz Children’s Hospital and Pediatric Endocrinology Clinic of Tepecik Hospital. In order to analyze the data, number/percentage, Chronbach’s alpha, and exploratory and confirmatory factor analyses were used. Results:The Chronbach’s alpha value of the scale was 0.86.Kaiser–Meyer–Olkin coefficient was found as 0.80 χ2=1527.5 p

References

  • Craig ME, Jefferies C, Dabelea D, Balde N, Seth A, Donaghue KC. Definition, epidemiology, and classification of diabetes in children and adolescents. Pediatr Diabetes 2014; 15 (20): 4–17.
  • International Diabetes Federation: Diabetes Atlas, Introduction [Online]. Available from: file:///C:/Downloads/IDF_Atlas%202015_UK.pdf (Accessed; 2016 March 23).
  • Okulda Diyabet Eğitim Programı: Programın Amaçları [School DiabetesEducation Program: Objectives of program] [Online].Availablefrom: http://www.okuldadiyabet.org/files/odp_program.pdf(Accessed 2016March 23).
  • American Diabetes Association (ADA). Standards of medical care in diabetes: Children and adolescents. Diabetes care, 2016:39 (1), 86-93.
  • Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, et al. Multidimensional study on quality of life in children with type 1 diabetes. Eur Rev Med Pharmacol Sci 2007; 11(4): 249-255.
  • Wagner VM, Müller-Godeffroy E, vonSengbusch S, Häger S, Thyen U. Age, metabolic control and type of insülin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus. Eur J Pediatr 2005; 164(8): 491-496.
  • Harding L. Children's quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 2001; 8(2): 79–96.
  • Nansel TR, Weisberg-Benchell J, Wysocki T, Laffel L, and Anderson B. Quality of Life in children with type 1 diabetes: A Comparison of general anddiabetes-specific measures, and support for a unitary diabetes qualityof life construct. Diabet Med 2008; 25(11): 1316–1323.
  • Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001; 84(3):205- 211.
  • Ronen GM, Streiner DL, Rosenbaum P. Health-related quality of life in children with epilepsy: Development and
  • validation of self-report and parent proxy measures. Epilepsia 2003; 44(4): 598-612.
  • Özçelik ÇÇ, Aktaş E. The Reliability and Validity of the Pediatrics Quality of Life InventoryTM (PedsQL) Diabetes Module 3.0 for Turkish Adolescents with Type 1 Diabetes. Int J Diabetes Dev Ctries 2015; 35(2): 109-116.
  • Tanır Kürtüncü M, Kuğuoğlu S. Pediatrik Yaşam Kalitesi Envanteri (PedsQL) Sağlık Bakım Memnuniyeti
  • Hematoloji/Onkoloji Modülü Ebeveyn Formu Geçerlik-Güvenirliliği. Ankara Sağlık Hizmetleri Dergisi 2012; 11(2): 13-24.
  • Varni JW, Burwinkle TM,Jacobs JR, Gottschalk M, et al.ThePedsQL in Type 1 and Type 2 diabetes: reliability and validity
  • of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care 2003; 26(3):631–637.
  • Brown AT. Confirmatory factor analysis for applied research. New York: Guilford Publications, 2006; 412-413.
  • De Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJBJ, Snoek FJ.Monitoring health related quality of life in
  • adolescents with diabetes: a review of measures. Arch Dis Child 2007; 92(5): 434-439.
  • Wasserman JD, Bracken BA. Psychometric characteristics of assessment procedure. InGraham JR, Maglieri JA, Weiner IB.
  • Hoboken, NJ (Eds.), Handbook of Psychometric. John Wiley&Sons, 2003; 43-65.
  • Polit DF, Beck CT. Measurement and Data Collection. Nursing research principles and methods. (7th ed.). Philadelphia
  • Lippinoott Williams &Wilkins, 2004;315-420.
  • Tappen RM. Advanced nursing research from theory to practice. Canada: Jones Barlett Learning, 2011; 123-136.
  • Schinka JA, Velice WF. Factoranalysis. edition. Handbook of Psychology, Research Method in Psychology. John
  • Wiley&Sons, 2003; 162.
  • Polit DF, Beck CT. Assessing measurement quality in quantitative studies. Nursing research generating and assessing
  • evidence for nursing practice. (8th ed.). Philadelphia: Lippincott Williams &Wilkins, 2008; 459.
  • Lukacs A, Varga B, Barotfi S,Toth EK, Barkai L. Health related quality of life youths with type 1 diabetes: reliability and
  • validity of the hungarian version of the PedsQL 3.0 diabetes module. J Diabetes Metab 2012; 3(4):2-6.
  • Sand P, Kljajić M, Schaller J, Forsander G. The reliability of the health related quality of life questionnaire PedsQL 3.0
  • Diabetes Module™ for Swedish children with type 1 diabetes. Acta Paediatr 2012;101(8): 344-349.
  • Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S. Quality of life of children and adolescents
  • with diabetes of Northern Greek origin. Hippokratia 2008; 12(3):168-175.
  • Jafari P, Forouzandeh E, Bagheri Z, Karamizadeh Z, Shalileh K. Health related quality of life of Iranian children with type 1
  • diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health Qual Life Outcomes 2011; 9(104):1-11.

Ebeveyn Perspektifiyle Pediatrik Yaşam Kalitesi Envanteri Diyabet Modülünün Türkçe GeçerlikGüvenirlik Çalışması

Year 2015, Volume: 17 Issue: 2/3, 1 - 9, 01.12.2015

Abstract

Amaç: Yaşam kalitesi, kültürel ve entellektüel bağlamda kişinin öz-algı durumu olarak tanımlanır.Türkiye'de, 812 yaş tip 1 diyabetli çocukların yaşam kalitesini ebeveyn perspektifi ile değerlendiren diyabete özgü yaşam kalitesi ölçeği bulunmamaktadır. Bu çalışma, 8-12 yaş aralığındaki diyabetli çocukların yaşam kalitesini ebeveyn perspektifi ile değerlendiren Pediyatrik Yaşam Kalitesi EnvanteriTM 3.0 Diyabet Modülü-Ebeveyn Formu’nun geçerlik ve güvenirliğini test etmek amacıyla metodolojik olarak yapılmıştır.Yöntem: Bu çalışmanın örneklemi İzmir Dokuz Eylül Üniversitesi, Ege Üniversitesi Çocuk Hastanesi, Behçet Uz Çocuk Hastanesi ve Tepecik Hastanesi Çocuk Endokronolji Polikliniğine kayıtlı 8-12 yaş aralığında Tip 1 diyabetli çocuğu olan 111 ebeveynden oluşmuştur.Verilerin değerlendirilmesinde sayı/yüzde, Cronbach α analizi, açıklayıcı ve doğrulayıcı faktör analizi kullanılmıştır.Bulgular: Ölçeğin Cronbach’s alpha değeri 0,86’dır. Kaiser–Meyer–Olkin katsayısı 0,80 χ2=1527,5 p

References

  • Craig ME, Jefferies C, Dabelea D, Balde N, Seth A, Donaghue KC. Definition, epidemiology, and classification of diabetes in children and adolescents. Pediatr Diabetes 2014; 15 (20): 4–17.
  • International Diabetes Federation: Diabetes Atlas, Introduction [Online]. Available from: file:///C:/Downloads/IDF_Atlas%202015_UK.pdf (Accessed; 2016 March 23).
  • Okulda Diyabet Eğitim Programı: Programın Amaçları [School DiabetesEducation Program: Objectives of program] [Online].Availablefrom: http://www.okuldadiyabet.org/files/odp_program.pdf(Accessed 2016March 23).
  • American Diabetes Association (ADA). Standards of medical care in diabetes: Children and adolescents. Diabetes care, 2016:39 (1), 86-93.
  • Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, et al. Multidimensional study on quality of life in children with type 1 diabetes. Eur Rev Med Pharmacol Sci 2007; 11(4): 249-255.
  • Wagner VM, Müller-Godeffroy E, vonSengbusch S, Häger S, Thyen U. Age, metabolic control and type of insülin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus. Eur J Pediatr 2005; 164(8): 491-496.
  • Harding L. Children's quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 2001; 8(2): 79–96.
  • Nansel TR, Weisberg-Benchell J, Wysocki T, Laffel L, and Anderson B. Quality of Life in children with type 1 diabetes: A Comparison of general anddiabetes-specific measures, and support for a unitary diabetes qualityof life construct. Diabet Med 2008; 25(11): 1316–1323.
  • Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001; 84(3):205- 211.
  • Ronen GM, Streiner DL, Rosenbaum P. Health-related quality of life in children with epilepsy: Development and
  • validation of self-report and parent proxy measures. Epilepsia 2003; 44(4): 598-612.
  • Özçelik ÇÇ, Aktaş E. The Reliability and Validity of the Pediatrics Quality of Life InventoryTM (PedsQL) Diabetes Module 3.0 for Turkish Adolescents with Type 1 Diabetes. Int J Diabetes Dev Ctries 2015; 35(2): 109-116.
  • Tanır Kürtüncü M, Kuğuoğlu S. Pediatrik Yaşam Kalitesi Envanteri (PedsQL) Sağlık Bakım Memnuniyeti
  • Hematoloji/Onkoloji Modülü Ebeveyn Formu Geçerlik-Güvenirliliği. Ankara Sağlık Hizmetleri Dergisi 2012; 11(2): 13-24.
  • Varni JW, Burwinkle TM,Jacobs JR, Gottschalk M, et al.ThePedsQL in Type 1 and Type 2 diabetes: reliability and validity
  • of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care 2003; 26(3):631–637.
  • Brown AT. Confirmatory factor analysis for applied research. New York: Guilford Publications, 2006; 412-413.
  • De Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJBJ, Snoek FJ.Monitoring health related quality of life in
  • adolescents with diabetes: a review of measures. Arch Dis Child 2007; 92(5): 434-439.
  • Wasserman JD, Bracken BA. Psychometric characteristics of assessment procedure. InGraham JR, Maglieri JA, Weiner IB.
  • Hoboken, NJ (Eds.), Handbook of Psychometric. John Wiley&Sons, 2003; 43-65.
  • Polit DF, Beck CT. Measurement and Data Collection. Nursing research principles and methods. (7th ed.). Philadelphia
  • Lippinoott Williams &Wilkins, 2004;315-420.
  • Tappen RM. Advanced nursing research from theory to practice. Canada: Jones Barlett Learning, 2011; 123-136.
  • Schinka JA, Velice WF. Factoranalysis. edition. Handbook of Psychology, Research Method in Psychology. John
  • Wiley&Sons, 2003; 162.
  • Polit DF, Beck CT. Assessing measurement quality in quantitative studies. Nursing research generating and assessing
  • evidence for nursing practice. (8th ed.). Philadelphia: Lippincott Williams &Wilkins, 2008; 459.
  • Lukacs A, Varga B, Barotfi S,Toth EK, Barkai L. Health related quality of life youths with type 1 diabetes: reliability and
  • validity of the hungarian version of the PedsQL 3.0 diabetes module. J Diabetes Metab 2012; 3(4):2-6.
  • Sand P, Kljajić M, Schaller J, Forsander G. The reliability of the health related quality of life questionnaire PedsQL 3.0
  • Diabetes Module™ for Swedish children with type 1 diabetes. Acta Paediatr 2012;101(8): 344-349.
  • Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S. Quality of life of children and adolescents
  • with diabetes of Northern Greek origin. Hippokratia 2008; 12(3):168-175.
  • Jafari P, Forouzandeh E, Bagheri Z, Karamizadeh Z, Shalileh K. Health related quality of life of Iranian children with type 1
  • diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health Qual Life Outcomes 2011; 9(104):1-11.
There are 36 citations in total.

Details

Primary Language Turkish
Journal Section Research Article
Authors

Dijle Ayar This is me

Candan Öztürk This is me

Publication Date December 1, 2015
Published in Issue Year 2015 Volume: 17 Issue: 2/3

Cite

APA Ayar, D., & Öztürk, C. (2015). Ebeveyn Perspektifiyle Pediatrik Yaşam Kalitesi Envanteri Diyabet Modülünün Türkçe GeçerlikGüvenirlik Çalışması. Hemşirelikte Araştırma Geliştirme Dergisi, 17(2/3), 1-9.