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Turkish Relıability and Validity Study of Pediatric Quality of Life InventoryTM 3.0 Diabetes Module by Parental Perspective

Yıl 2015, Cilt: 17 Sayı: 2/3, 1 - 9, 01.12.2015

Öz

Objective:Quality of life is defined as the self-perception of an individual in a cultural and intellectual context.In Turkey, there is no diabetes-specific life quality scale which can assess the life quality of 8-12 year-old children with type 1 diabetes by parental perspective.This study was methodologically performed in order to test the Turkish validity and reliability of the Pediatric Quality of Life InventoryTM 3.0 Diabetes Module-Parental Form which can evaluate the life quality of 8-12 year-old children with type 1 diabetes by parental perspective.Method:The study group was composed of 111 parents who had 8-12 years-old children with type 1 diabetes registered in İzmir Dokuz Eylül University, Ege University Children’s Hospital, Behçet Uz Children’s Hospital and Pediatric Endocrinology Clinic of Tepecik Hospital. In order to analyze the data, number/percentage, Chronbach’s alpha, and exploratory and confirmatory factor analyses were used. Results:The Chronbach’s alpha value of the scale was 0.86.Kaiser–Meyer–Olkin coefficient was found as 0.80 χ2=1527.5 p

Kaynakça

  • Craig ME, Jefferies C, Dabelea D, Balde N, Seth A, Donaghue KC. Definition, epidemiology, and classification of diabetes in children and adolescents. Pediatr Diabetes 2014; 15 (20): 4–17.
  • International Diabetes Federation: Diabetes Atlas, Introduction [Online]. Available from: file:///C:/Downloads/IDF_Atlas%202015_UK.pdf (Accessed; 2016 March 23).
  • Okulda Diyabet Eğitim Programı: Programın Amaçları [School DiabetesEducation Program: Objectives of program] [Online].Availablefrom: http://www.okuldadiyabet.org/files/odp_program.pdf(Accessed 2016March 23).
  • American Diabetes Association (ADA). Standards of medical care in diabetes: Children and adolescents. Diabetes care, 2016:39 (1), 86-93.
  • Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, et al. Multidimensional study on quality of life in children with type 1 diabetes. Eur Rev Med Pharmacol Sci 2007; 11(4): 249-255.
  • Wagner VM, Müller-Godeffroy E, vonSengbusch S, Häger S, Thyen U. Age, metabolic control and type of insülin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus. Eur J Pediatr 2005; 164(8): 491-496.
  • Harding L. Children's quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 2001; 8(2): 79–96.
  • Nansel TR, Weisberg-Benchell J, Wysocki T, Laffel L, and Anderson B. Quality of Life in children with type 1 diabetes: A Comparison of general anddiabetes-specific measures, and support for a unitary diabetes qualityof life construct. Diabet Med 2008; 25(11): 1316–1323.
  • Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001; 84(3):205- 211.
  • Ronen GM, Streiner DL, Rosenbaum P. Health-related quality of life in children with epilepsy: Development and
  • validation of self-report and parent proxy measures. Epilepsia 2003; 44(4): 598-612.
  • Özçelik ÇÇ, Aktaş E. The Reliability and Validity of the Pediatrics Quality of Life InventoryTM (PedsQL) Diabetes Module 3.0 for Turkish Adolescents with Type 1 Diabetes. Int J Diabetes Dev Ctries 2015; 35(2): 109-116.
  • Tanır Kürtüncü M, Kuğuoğlu S. Pediatrik Yaşam Kalitesi Envanteri (PedsQL) Sağlık Bakım Memnuniyeti
  • Hematoloji/Onkoloji Modülü Ebeveyn Formu Geçerlik-Güvenirliliği. Ankara Sağlık Hizmetleri Dergisi 2012; 11(2): 13-24.
  • Varni JW, Burwinkle TM,Jacobs JR, Gottschalk M, et al.ThePedsQL in Type 1 and Type 2 diabetes: reliability and validity
  • of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care 2003; 26(3):631–637.
  • Brown AT. Confirmatory factor analysis for applied research. New York: Guilford Publications, 2006; 412-413.
  • De Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJBJ, Snoek FJ.Monitoring health related quality of life in
  • adolescents with diabetes: a review of measures. Arch Dis Child 2007; 92(5): 434-439.
  • Wasserman JD, Bracken BA. Psychometric characteristics of assessment procedure. InGraham JR, Maglieri JA, Weiner IB.
  • Hoboken, NJ (Eds.), Handbook of Psychometric. John Wiley&Sons, 2003; 43-65.
  • Polit DF, Beck CT. Measurement and Data Collection. Nursing research principles and methods. (7th ed.). Philadelphia
  • Lippinoott Williams &Wilkins, 2004;315-420.
  • Tappen RM. Advanced nursing research from theory to practice. Canada: Jones Barlett Learning, 2011; 123-136.
  • Schinka JA, Velice WF. Factoranalysis. edition. Handbook of Psychology, Research Method in Psychology. John
  • Wiley&Sons, 2003; 162.
  • Polit DF, Beck CT. Assessing measurement quality in quantitative studies. Nursing research generating and assessing
  • evidence for nursing practice. (8th ed.). Philadelphia: Lippincott Williams &Wilkins, 2008; 459.
  • Lukacs A, Varga B, Barotfi S,Toth EK, Barkai L. Health related quality of life youths with type 1 diabetes: reliability and
  • validity of the hungarian version of the PedsQL 3.0 diabetes module. J Diabetes Metab 2012; 3(4):2-6.
  • Sand P, Kljajić M, Schaller J, Forsander G. The reliability of the health related quality of life questionnaire PedsQL 3.0
  • Diabetes Module™ for Swedish children with type 1 diabetes. Acta Paediatr 2012;101(8): 344-349.
  • Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S. Quality of life of children and adolescents
  • with diabetes of Northern Greek origin. Hippokratia 2008; 12(3):168-175.
  • Jafari P, Forouzandeh E, Bagheri Z, Karamizadeh Z, Shalileh K. Health related quality of life of Iranian children with type 1
  • diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health Qual Life Outcomes 2011; 9(104):1-11.

Ebeveyn Perspektifiyle Pediatrik Yaşam Kalitesi Envanteri Diyabet Modülünün Türkçe GeçerlikGüvenirlik Çalışması

Yıl 2015, Cilt: 17 Sayı: 2/3, 1 - 9, 01.12.2015

Öz

Amaç: Yaşam kalitesi, kültürel ve entellektüel bağlamda kişinin öz-algı durumu olarak tanımlanır.Türkiye'de, 812 yaş tip 1 diyabetli çocukların yaşam kalitesini ebeveyn perspektifi ile değerlendiren diyabete özgü yaşam kalitesi ölçeği bulunmamaktadır. Bu çalışma, 8-12 yaş aralığındaki diyabetli çocukların yaşam kalitesini ebeveyn perspektifi ile değerlendiren Pediyatrik Yaşam Kalitesi EnvanteriTM 3.0 Diyabet Modülü-Ebeveyn Formu’nun geçerlik ve güvenirliğini test etmek amacıyla metodolojik olarak yapılmıştır.Yöntem: Bu çalışmanın örneklemi İzmir Dokuz Eylül Üniversitesi, Ege Üniversitesi Çocuk Hastanesi, Behçet Uz Çocuk Hastanesi ve Tepecik Hastanesi Çocuk Endokronolji Polikliniğine kayıtlı 8-12 yaş aralığında Tip 1 diyabetli çocuğu olan 111 ebeveynden oluşmuştur.Verilerin değerlendirilmesinde sayı/yüzde, Cronbach α analizi, açıklayıcı ve doğrulayıcı faktör analizi kullanılmıştır.Bulgular: Ölçeğin Cronbach’s alpha değeri 0,86’dır. Kaiser–Meyer–Olkin katsayısı 0,80 χ2=1527,5 p

Kaynakça

  • Craig ME, Jefferies C, Dabelea D, Balde N, Seth A, Donaghue KC. Definition, epidemiology, and classification of diabetes in children and adolescents. Pediatr Diabetes 2014; 15 (20): 4–17.
  • International Diabetes Federation: Diabetes Atlas, Introduction [Online]. Available from: file:///C:/Downloads/IDF_Atlas%202015_UK.pdf (Accessed; 2016 March 23).
  • Okulda Diyabet Eğitim Programı: Programın Amaçları [School DiabetesEducation Program: Objectives of program] [Online].Availablefrom: http://www.okuldadiyabet.org/files/odp_program.pdf(Accessed 2016March 23).
  • American Diabetes Association (ADA). Standards of medical care in diabetes: Children and adolescents. Diabetes care, 2016:39 (1), 86-93.
  • Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, et al. Multidimensional study on quality of life in children with type 1 diabetes. Eur Rev Med Pharmacol Sci 2007; 11(4): 249-255.
  • Wagner VM, Müller-Godeffroy E, vonSengbusch S, Häger S, Thyen U. Age, metabolic control and type of insülin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus. Eur J Pediatr 2005; 164(8): 491-496.
  • Harding L. Children's quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother 2001; 8(2): 79–96.
  • Nansel TR, Weisberg-Benchell J, Wysocki T, Laffel L, and Anderson B. Quality of Life in children with type 1 diabetes: A Comparison of general anddiabetes-specific measures, and support for a unitary diabetes qualityof life construct. Diabet Med 2008; 25(11): 1316–1323.
  • Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001; 84(3):205- 211.
  • Ronen GM, Streiner DL, Rosenbaum P. Health-related quality of life in children with epilepsy: Development and
  • validation of self-report and parent proxy measures. Epilepsia 2003; 44(4): 598-612.
  • Özçelik ÇÇ, Aktaş E. The Reliability and Validity of the Pediatrics Quality of Life InventoryTM (PedsQL) Diabetes Module 3.0 for Turkish Adolescents with Type 1 Diabetes. Int J Diabetes Dev Ctries 2015; 35(2): 109-116.
  • Tanır Kürtüncü M, Kuğuoğlu S. Pediatrik Yaşam Kalitesi Envanteri (PedsQL) Sağlık Bakım Memnuniyeti
  • Hematoloji/Onkoloji Modülü Ebeveyn Formu Geçerlik-Güvenirliliği. Ankara Sağlık Hizmetleri Dergisi 2012; 11(2): 13-24.
  • Varni JW, Burwinkle TM,Jacobs JR, Gottschalk M, et al.ThePedsQL in Type 1 and Type 2 diabetes: reliability and validity
  • of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care 2003; 26(3):631–637.
  • Brown AT. Confirmatory factor analysis for applied research. New York: Guilford Publications, 2006; 412-413.
  • De Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJBJ, Snoek FJ.Monitoring health related quality of life in
  • adolescents with diabetes: a review of measures. Arch Dis Child 2007; 92(5): 434-439.
  • Wasserman JD, Bracken BA. Psychometric characteristics of assessment procedure. InGraham JR, Maglieri JA, Weiner IB.
  • Hoboken, NJ (Eds.), Handbook of Psychometric. John Wiley&Sons, 2003; 43-65.
  • Polit DF, Beck CT. Measurement and Data Collection. Nursing research principles and methods. (7th ed.). Philadelphia
  • Lippinoott Williams &Wilkins, 2004;315-420.
  • Tappen RM. Advanced nursing research from theory to practice. Canada: Jones Barlett Learning, 2011; 123-136.
  • Schinka JA, Velice WF. Factoranalysis. edition. Handbook of Psychology, Research Method in Psychology. John
  • Wiley&Sons, 2003; 162.
  • Polit DF, Beck CT. Assessing measurement quality in quantitative studies. Nursing research generating and assessing
  • evidence for nursing practice. (8th ed.). Philadelphia: Lippincott Williams &Wilkins, 2008; 459.
  • Lukacs A, Varga B, Barotfi S,Toth EK, Barkai L. Health related quality of life youths with type 1 diabetes: reliability and
  • validity of the hungarian version of the PedsQL 3.0 diabetes module. J Diabetes Metab 2012; 3(4):2-6.
  • Sand P, Kljajić M, Schaller J, Forsander G. The reliability of the health related quality of life questionnaire PedsQL 3.0
  • Diabetes Module™ for Swedish children with type 1 diabetes. Acta Paediatr 2012;101(8): 344-349.
  • Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S. Quality of life of children and adolescents
  • with diabetes of Northern Greek origin. Hippokratia 2008; 12(3):168-175.
  • Jafari P, Forouzandeh E, Bagheri Z, Karamizadeh Z, Shalileh K. Health related quality of life of Iranian children with type 1
  • diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health Qual Life Outcomes 2011; 9(104):1-11.
Toplam 36 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Bölüm Research Article
Yazarlar

Dijle Ayar Bu kişi benim

Candan Öztürk Bu kişi benim

Yayımlanma Tarihi 1 Aralık 2015
Yayımlandığı Sayı Yıl 2015 Cilt: 17 Sayı: 2/3

Kaynak Göster

APA Ayar, D., & Öztürk, C. (2015). Ebeveyn Perspektifiyle Pediatrik Yaşam Kalitesi Envanteri Diyabet Modülünün Türkçe GeçerlikGüvenirlik Çalışması. Hemşirelikte Araştırma Geliştirme Dergisi, 17(2/3), 1-9.