Family Caregivers' Difficulties in Caring for Bedridden Stroke Patients

Year 2009, Volume: 16 Issue: 3, 17 - 31, 01.09.2009

Yard. Doç. Dr. Sevgisun Kapucu Yard. Doç. Dr. Sevinç Kutlu Türkan Prof. Dr. Hatice Fesci

Abstract

Objective: The aim of this study was to determine the difficulties experienced by bedridden CVA patients' caregivers at home and suggest some solve advice for problems. Methods: This is a descriptive study designed to identify difficulties experienced by bedridden CVA patients' caregivers at home and suggest some solve advice for problems. The sample group consisted of 38 relatives of CVA patients. The patients had been discharged from one of three health centers: the Hacettepe University Neurology Ward, Ankara University's Ibn-i Sina Hospital, or Ankara Numune Hospital. Using questions form that contained open-ended questions, we interviewed 38 caregivers of stroke survivors to identify their characteristics and their difficulties experienced. Data were given as numbers and percentages. Results: The results of the study indicate that family caregivers need information about the disease (CVA), and about patients' care, medications, diet, excretory system function and sleep schedule. The results also indicate that the caregivers commonly face psychosocial problems, fatigue, and insomnia. Caregivers reported financial problems in purchasing medicines and medical care. They also stated that because of limited family resources, they tend to hospitalize their patients in government-funded facilities. Conclusion: Caregivers of CVA patients encounter a variety of informational, psycho-social and financial problems and many of these can be solved successfully by education-based intervention.

Keywords

Home care, cerebrovascular accident, family caregiver, nursing

Yatağa Bağımlı İnmeli Hastalara Bakım Veren Hasta Yakınlarının Yaşadıkları Güçlükler

Abstract

Amaç: Bu çalışmanın amacı yatağa bağımlı inmeli hastalara evde bakım veren hasta yakınlarının yaşadıkları güçlükleri belirlemek ve sorunların çözümünde yardımcı olmaktır. Gereç-Yöntem: Araştırma yatağa bağımlı inmeli hastalara evde bakım veren hasta yakınlarının yaşadıkları güçlükleri belirlemek ve sorunların çözümünde yardımcı olmak amacıyla tanımlayıcı olarak yapılmıştır. Araştırmanın örneklemini Hacettepe Üniversitesi Erişkin hastanesi, Ankara Üniversitesi İbni Sina Hastanesi ve Sağlık Bakanlığı Ankara Numune hastanesinin Nöroloji servislerinden SVO tanısı ile taburcu olan 38 hasta yakını oluşturmuştur. Araştırmada hasta yakınlarının demografik özelliklerini ve yaşadıkları güçleri belirlenmek amacıyla oluşturulan açık ve kapalı uçlu soruları içeren soru formu kullanılmıştır. Veriler sayı ve yüzdelik olarak verilmiştir. Sonuçlar: Çalışma sonucunda hasta yakınlarının hastalığa, kullandıkları ilaçlara, konstipasyon ve diyare gibi boşaltım sorunlarına ve beslenmeye ilişkin bilgi gereksimi olduğu saptanmıştır. Aynı zamanda hasta yakınlarının yaygın bir şekilde psiko-sosyal, yorgunluk ve uykusuzluk sorunları yaşadıkları saptanmıştır. Çalışmada, inmeli hasta yakınlarına ekonomik, psiko-sosyal ve çeşitli konularda eğitim verildi, verilen eğitimlerle sorunların çoğu başarıyla çözümlendi.

Keywords

Evde bakım, serebro-vasküler olay, bakım vericiler, hemşirelik, güçlükler

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