NÖROLOJİK HASTALIĞI OLMAYAN BİR GRUPTA KRONİK NÖROLOJİK HASTALIKLAR HAKKINDA FARKINDALIĞIN ARAŞTIRILMASI: KESİTSEL BİR ANKET ÇALIŞMASI

Year 2014, Volume: 18 Issue: 2, 12 - 17, 01.06.2014

Pınar Ortan Aslı Akın Feyza Demiralın Aka Ulu Trakyalı Reha Bilgin Esra Arpacı Muhteşem Gedizlioğlu

Abstract

Kronik hastalıklar hakkında farkındalık ve bilgilenme, erken tanı ve düzenli takip ile uzun vadedeki olumsuz sonuçların önlenmesinde ilk basamağı oluşturur. Bu çalışmada epilepsi, Parkinson hastalığı ve multipl sklerozun nörolojik hastalığı olmayan bir grupta ne denli tanındığı, bilgi düzeyinin yeterli olup olmadığı, yanlış bilgi ve inanışların ne düzeyde olduğu bir anket çalışması ile araştırıldı. Genel hastane ortamından rastgele alınan, 109’u kadın olan 18-85 yaş arası 230 bireye hastalığı tanıyıp tanımadıkları ve tanıyorlarsa neler bildikleri soruldu. Epilepsi oldukça iyi tanınan bir hastalıkken Parkinson hastalığı grubun yaklaşık yarısı, multipl skleroz 1/3’ü tarafından duyulmuştu. Bu bireylerin hastalık hakkında doğru bilgi sahibi olma oranları epilepsi ve multipl skleroz için %30’un altında, Parkinson hastalığı için ise % 80 bulundu. Anketi yanıtlayanlar en çok sağlık çalışanları ya da TV’den bilgilendiklerini ifade etmişlerdi. Anket grubunda en çok dikkati çeken bireylerin hastalıklar hakkında bilgili olduklarını düşünmelerine karşın birçok konuda kararsızlık ifade etmeleriydi. Sonuç olarak kronik nörolojik hastalıklar hakkında toplumsal bilgilendirme kampanyalarının artarak sürmesinin gerekli olduğu kanaatine varılmıştır

Keywords

Farkındalık, hastalık bilgisi, tutum, epilepsi, multipl skleroz, Parkinson hastalığı

THE EVALUATION OF AWARENESS OF CHRONIC NEUROLOGICAL DISEASES IN A GROUP WITHOUT ANY NEUROLOGICAL CONDITION: A CROSS-SECTIONAL QUESTIONNAIRE-BASED SURVEY

Abstract

Awareness and sufficient knowledge of chronic diseases constitute the first step for preventing the long term consequences with early diagnosis and intervention in addition to regular followups. In this study the awareness and level of knowledge, wrong information or beliefs about epilepsy, Parkinson’s disease and multiple sclerosis were evaluated in a group of subjects without any neurological condition by means of a semi-structured hundred thirty persons randomly picked in a general hospital ward, were inquired on whether they were familiar with these diseases, and if they do what they knew. They were 18-85 years of age and 109 were females. Epilepsy was a quite wellknown disease while Parkinson’s disease was heard by only the half and multiple sclerosis one third. The level of sufficient knowledge was less than 30% for epilepsy and multiple sclerosis, however 80% for Parkinson’s disease. The respondents declared to possess knowledge professionals or TV. The most intriguing point was the high level of uncertainty of the respondents although they felt themselves sufficiently informed. Conclusively the informative campaigns on chronic neurological diseases must increasingly survive in order to achieve a better disease management

Keywords

Awareness, knowledge of disease, attitude, epilepsy, multiple sclerosis, Parkinson’s disease

References

• ) Roche N, Perez T, Neukirch F, Carre P, Terrioux P, Pouchain D, et al. High prevalence of COPD symptoms in general population contrasting with the low awareness of the disease Revue des Maladies Respiratoires ;28:e58-e65. ) Socioeconomic characteristics, quality of life, and state of knowledge of patients with hepatitis C viral infection in Germany- socioeconomic aspects in hepatitis C Z Gastroenterol.2006;44:305-17.
• ) Niederau C, Fischer C, Kautz A. Socio- economical aspects, quality of life and state of knowledge in hepatitis B patients. Socio- economical aspects in hepatitis B. Z Gastroenterol. 2007;45:355-68.
• ) Thapa SS, Berg RVD, Khanal S, Paudyal I, Pandey P, Maharjan N, et al. Prevalence of visual impairment, cataract surgery and awareness of cataract and glaucoma in Bhaktapur district of Nepal: The Bhaktapur Glaucoma Study BMC Ophthalmology ;11:2. ) MJ, Helgerson SD, Gohdes D, Harwell TS. Impact of media on community awareness of stroke warning signs: a comparison study. J Stroke Cerebrovasc Dis. 2010;19:370-5.
• ) Maviş İ. Perspectives on public awareness of stroke and aphasia among Turkish patients in a neurology unit. Clinical Linguistics & Phonetics, 2007;21:55-70.
• ) Kelly-Irving M, Mulot S, Inamo J, Ruidavets J-B, Atallah A, Lang T. Improving Stroke Prevention in the French West Indies: Limits to Lay Knowledge of Risk Factors Stroke. 2010;41:2637-44.
• ) Payne GH, Fang J, Fogle CC, Oser CS, Wigand DA, Theisen V, et Stroke awareness: surveillance, educational campaigns, and public health practice. J Public Health Manag Pract. 2010;16:345-58.
• ) Ferrante JM, Winston DG, Chen P-H, de la Torre AN. Family Physicians’ Knowledge and Screening of Chronic Hepatitis and Liver Cancer. Fam Med. 2008;40:345-51.
• ) Sood A, Midha V, Awasthi G. Hepatitis C- knowledge & practices among the family physicians. Trop Gastroenterol 2002 ;23:198
• ) Bloom S, Ablin JN, Lebel D, Rath E, Faran Y, Daphna-Tekoah S, et al. Awareness of diagnostic and clinical features of fibromyalgia among orthopedic surgeons. Rheumatol Int. 2013;33:927-31.
• ) Tan J H. Singapore general practitioners’ awareness of atypical features in early Parkinson’s disease Singapore Med J 2007; :338.
• ) Herranz Fernández JL, Lastra Martínez LA, González González A, Capa García L, Granda Alonso C, Moustafa I, et al. Knowledge and attitude of professors concerning epilepsy. Evaluation of a survey conducted on 4,099 professors of Cantabria An Esp Pediatr. 1990;33:523-7.
• ) Dantas FG, Cariri GA, Cariri GA, Ribero Filho ARB. Knowledge and Attitude Toward Epilepsy among Primary, Secondary and Tertiary Level Teachers Arq Neuropsiquiatr ;59(3-B):712-6. ) Kankirawatana P.Epilepsy awareness among school teachers in Thailand. Epilepsia. 1999;40:497-501.
• ) Thacker AK, Verma AM, Ji R, Thacker P, Mishra P. Knowledge and awareness and attitude about epilepsy among schoolteachers in India. Seizure. 2008;17:684-90.
• ) Kaleyias J, Tzoufi M, Kotsalis C, Papavasiliou A, Diamantopoulos N. Knowledge and attitude of the Greek educational community toward epilepsy and the epileptic student. Epilepsy Behav. 2005; :179-86.
• ) Pandian JD, Santosh D, Kumar TS, Sarma PS, Radhakrishnan K. High school students’ knowledge, attitude, and practice with respect to epilepsy in Kerala, southern India. Epilepsy & Behavior 2006;9: 492–7.
• ) Bhattacharya AK, Saha SK, Roy SK. Epilepsy awareness among parents of school children--a municipal survey. J Indian Med Assoc. 2007;105:243-6.
• ) Mirnics Z, Czikora G, Závecz T, Halász P. Changes in public attitudes toward epilepsy in Hungary: results of surveys conducted in and 2000. Epilepsia 2001;42:86-93.
• ) Novotna I. Long-term development of public awareness of epilepsy and attitude to epileptic patients – 1981, 1998, and 2009 studies. P1292 EFNS, 2010, Geneva
• ) Vlahiotis A, Sedjo R, Cox ER, Burroughs TE, Rauchway A, Lich R, Gender Differences in Self-Reported Symptom Awareness and Perceived Ability to Manage Therapy with Disease-Modifying Medication Among Commercially Insured Multiple Sclerosis Patients JMCP 2010;16:210-6.
• ) Hofmann A, Stellmann JP, Kasper J, Ufer F, Elias WG, Pauly I, et al; MS Network Hamburg. Long-term treatment risks in multiple sclerosis: risk knowledge and risk perception in a large cohort of mitoxantrone- treated patients. Mult Scler 2013;19:920-5.
• ) Young GB, Derry P, Hutchinson I, John V, Matijevic S, Parrent L, et al. An epilepsy questionnaire study of knowledge and attitudes in Canadian college students. Epilepsia 2002;43:652–8. )
• Santhoskumat D. et al. Prevalence, knowledge, attitude and practice of epilepsy in Kerala, South India. Epilepsia 2000 ; :1027-35.
• ) Silver FL, Rubini F, Black D, Hodgson CS. Advertising Strategies to Increase Public Knowledge of the Warning Signs of Stroke Stroke. 2003;34:1965-9.
• ) Cheona S-M, Hab M-S, Parka MJ, Kima JW. Nonmotor symptoms of Parkinson’s disease: Prevalence and awareness of patients and families Parkinsonism and Related Disorders 2008;14: 286–90.
• Yazının alınma tarihi: 01.03.2014 Kabül tarihi: 21.04.2014 Online basım:24.04.2014