Adolesan İdyopatik Skolyoz Tanılı Çocukların Ebeveynlerine Yönelik Yapılan Tele-Bilgilendirmenin Etkinliğinin İncelenmesi
Year 2025,
Volume: 6 Issue: 3, 140 - 150, 31.12.2025
Elif Yağmur Özger
,
Tuğba Çivi Karaaslan
,
Turgut Akgül
,
Yaşar Samet Gökçeoğlu
Abstract
Çalışmada, Adolesan İdyopatik Skolyoz (AİS) tanılı çocukların ebeveynlerine yönelik yapılan tele-bilgilendirmenin etkinliğinin incelenmesi amaçlanmıştır. Kesitsel prospektif çalışmaya 10-18 yaş aralığında, AİS tanılı çocuğa sahip ebeveynler dahil edildi. Ebeveynlere skolyoz ve tedavi yaklaşımları, sanal gerçekliğin rehabilitasyon alanındaki kullanımı hakkında broşür ve videolar yoluyla 6 haftalık tele-bilgilendirme programı uygulandı. Tele-bilgilendirme öncesinde ve sonrasında ebeveynler Skolyoza Yönelik Eğitim Alan Ebeveynler için Bilgi Değerlendirme Formu ile değerlendirildi. Altı haftanın sonunda ebeveynler Memnuniyet Anketi ile de değerlendirildi. Tele-bilgilendirme programı 12’si anne 8’i baba olmak üzere 20 ebeveyne uygulandı. Ailelerin tele-bilgilendirme programı öncesi ve sonrası anket toplam skorlarının ortalaması sırasıyla 71 ± 21,10 ve 78,50 ± 18,70 (p <0,001) idi. Ebeveynlerin yapılan uygulamadan memnuniyetlerine bakıldığında 15 ebeveyn tele-bilgilendirme programından çok memnun kaldığını, 17 ebeveyn tele-bilgilendirmeyi başkalarına önereceğini bildirdi. Çalışmanın sonucunda AİS tanılı çocuğa sahip ebeveynlerin hastalık hakkında yeterli bilgiye sahip olmadığı görülmektedir. Elde edilen veriler tele-bilgilendirme programının ebeveynlerde skolyoz ile ilgili bilgiler ve sanal gerçekliğin rehabilitasyon alanındaki kullanımı hakkındaki farkındalığı artıracağını düşündürmektedir.
Ethical Statement
Çalışmaya başlamadan önce, araştırmaya dahil edilme kriterlerini taşıyan çocukların ebeveynlerine, çalışma örneklemine dahil edilecek üniversitelerin yönetimlerinden yazılı izinler alındı. Yazarın bağlı olduğu İstanbul Üniversitesi-Cerrahpaşa Girişimsel Olmayan Etik Kurulu'ndan yazılı onay alındı (Tarih: 07.12.2022, Onay no: 74555795-050.01.04-626201). Çalışma Helsinki Bildirgesi'ne uygun olarak yürütüldü.
Supporting Institution
İstanbul Üniversitesi- Cerrahpaşa
Thanks
Yazarlar, çalışma boyunca verdiği destek ve katkılarından ötürü Burak ÖZGER’e ve çalışmaya dahil olmayı kabul eden tüm hastalara, ebeveynlerine en içten teşekkürlerini sunarlar.
References
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Beauséjour, M., Aubin, D., Fortin, C., N’dongo Sangaré, M., Carignan, M., Roy-Beaudry, M., Martinez, C., Bourassa, N., Jourdain, N., & Labelle, P. (2022). Parents can reliably and accurately detect trunk asymmetry using an inclinometer smartphone app. BMC Musculoskeletal Disorders, 23(1), 752. https://doi.org/10.1186/s12891-022-05611-3
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Berdishevsky, H., Lebel, V. A., Bettany-Saltikov, J., Rigo, M., Lebel, A., Hennes, A., Romano, M., Białek, M., M’hango, A., Betts, T., de Mauroy, J. C., & Durmala, J. (2016). Physiotherapy scoliosis-specific exercises: A comprehensive review of seven major schools. Scoliosis and Spinal Disorders, 11, 20. https://doi.org/10.1186/s13013-016-0076-9
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Bray, L., Wilkinson, C., Bruce, C., Davidson, N., Satchwell, C., & Carter, B. (2023). “It’s my back…”; developing the coming to spinal clinic resource to improve the health literacy of young people with adolescent idiopathic scoliosis and their parents. Journal of Child Health Care, 27(4), 628–642. https://doi.org/10.1177/13674935221083767
-
Bull, J., & Grogan, S. (2010). Children having spinal surgery to correct scoliosis: A qualitative study of parents’ experiences. Journal of Health Psychology, 15(2), 299–309. https://doi.org/10.1177/1359105309351607
-
de Groot, C., Heemskerk, J. L., Willigenburg, N. W., Altena, M. C., & Kempen, D. H. (2022). Educating parents improves their ability to recognize adolescent idiopathic scoliosis: A diagnostic accuracy study. Children, 9(4), 563. https://doi.org/10.3390/children9040563
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Hesse, B. W., Nelson, D. E., Kreps, G. L., Croyle, R. T., Arora, N. K., Rimer, B. K., & Viswanath, K. (2005). Trust and sources of health information: The impact of the internet and its implications for health care providers: Findings from the first Health Information National Trends Survey. Archives of Internal Medicine, 165(22), 2618–2624.
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Hines, T., Roland, S., Nguyen, D., Kennard, B., Richard, H., Hughes, C. W., McClintock, S. M., Ramo, B., & Herring, T. (2015). School scoliosis screenings: Family experiences and potential anxiety after orthopaedic referral. Spine, 40(21), E1135–E1143. https://doi.org/10.1097/BRS.0000000000001040
-
Huang, Y., Liu, F., Gao, D., & Wang, H. (2022). Family functioning affected by adolescent idiopathic scoliosis in China: A cross-sectional study. Frontiers in Pediatrics, 10, 880360. https://doi.org/10.3389/fped.2022.880360
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Janicki, J. A., & Alman, B. (2007). Scoliosis: Review of diagnosis and treatment. Paediatrics & Child Health, 12(9), 771–776. https://doi.org/10.1093/pch/12.9.771
-
Kwan, M. K., Chiu, C. K., Gan, C. C., & Chan, C. Y. W. (2016). Can intraoperative text messages reduce parental anxiety of children undergoing posterior spinal fusion surgery for adolescent idiopathic scoliosis? Spine, 41(4), E225–E230. https://doi.org/10.1097/BRS.0000000000001199
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LaMontagne, L. L., Hepworth, J. T., & Salisbury, M. H. (2001). Anxiety and postoperative pain in children who undergo major orthopedic surgery. Applied Nursing Research, 14(3), 119–124. https://doi.org/10.1053/apnr.2001.24410
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Lee, W.-H., Kang, H., & Kim, S. Y. (2017). Discrepancy between self-awareness and actual diagnosis and treatment of the conditions among adolescent with scoliosis in middle-school age. Journal of Physical Therapy Science, 29(4), 567–571. https://doi.org/10.1589/jpts.29.567
-
Lysenko, M., Law, P., Jarvis, J., & Wright, J. G. (2016). Improving education and coping of scoliosis patients undergoing surgery, and their families, using e-health. Journal of Children’s Orthopaedics, 10(6), 673–683. https://doi.org/10.1007/s11832-016-0772
-
Motyer, G., Dooley, B., Kiely, P., & Fitzgerald, A. (2021). Parents’ information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review. Patient Education and Counseling, 104(6), 1347–1355. https://doi.org/10.1016/j.pec.2020.11.023
-
Norman, G. R., Stratford, P., & Regehr, G. (1997). Methodological problems in the retrospective computation of responsiveness to change: The lesson of Cronbach. Journal of Clinical Epidemiology, 50(8), 869–879. https://doi.org/10.1016/S0895-4356(97)00097-8
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O, H. (2012). Research and statistical methods in health sciences. Nobel Medical Bookstore Press.
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Oğuz, G. (2021). Investigation of the effects of scoliosis education given to adolescent idiopathic scoliosis individuals and their parents [Master’s thesis, Pamukkale University Health Sciences Institute].
Otman, A. S., & K. N. (2015). Basic evaluation principles in treatment movements. Volume 7, 27–32.
-
Pastora-Bernal, J. M., Martín-Valero, R., Barón-López, F. J., & Estebanez-Pérez, M. J. (2017). Evidence of benefit of telerehabilitation after orthopedic surgery: A systematic review. Journal of Medical Internet Research, 19(4), e142.
Investigation of the Effectiveness Tele-Informing for Parents of Children Diagnosed with Adolescent Idiopathic Scoliosis
Year 2025,
Volume: 6 Issue: 3, 140 - 150, 31.12.2025
Elif Yağmur Özger
,
Tuğba Çivi Karaaslan
,
Turgut Akgül
,
Yaşar Samet Gökçeoğlu
Abstract
The aim of this study was to investigate the effectiveness of tele-information provided to parents of children diagnosed with Adolescent Idiopathic Scoliosis (AIS). Parents of children diagnosed with AIS between the ages of 10-18 were included in this cross-sectional prospective study. A 6-week tele-information program was applied to the parents via brochures and videos about scoliosis and treatment approaches and the use of virtual reality in rehabilitation. Before and after the tele-information, the parents were evaluated with the Evaluation Form For Parents Receiving Education on Scoliosis . At the end of the six weeks, the parents were also evaluated with the Satisfaction Questionnaire. The tele-information program was applied to 20 parents, 12 of whom were mothers and 8 were fathers. The mean total survey scores of the parents before and after the tele-information program were 71 ± 21.10 and 78.50 ± 18.70, respectively (p <0.001). When looking at the satisfaction of the parents with the application, 15 parents reported that they were very satisfied with the tele-information program, and 17 parents reported that they would recommend tele-information to others. As a result of the study, it is seen that parents of children diagnosed with AIS do not have sufficient information about the disease. The data obtained suggest that the tele-information program will increase awareness among parents about scoliosis-related information and the use of virtual reality in the field of rehabilitation.
Ethical Statement
Before starting the study, written permissions were obtained from the administrations of the universities to be included in the study sample to the parents of children with inclusion criteria. Written approval was obtained from the author’s Istanbul University-Cerrahpasa Non-Interventional Ethics Committee (Date: 07.12.2022, Approval no: 74555795-050.01.04-626201). The study was conducted in accordance with the Declaration of Helsinki.
Supporting Institution
Istanbul University-Cerrahpasa
Thanks
The authors would like to express their sincere gratitude to Burak ÖZGER for his support and contributions throughout the study and to all patients and their parents who agreed to participate in the study.
References
-
Beauséjour, M., Aubin, D., Fortin, C., N’dongo Sangaré, M., Carignan, M., Roy-Beaudry, M., Martinez, C., Bourassa, N., Jourdain, N., & Labelle, P. (2022). Parents can reliably and accurately detect trunk asymmetry using an inclinometer smartphone app. BMC Musculoskeletal Disorders, 23(1), 752. https://doi.org/10.1186/s12891-022-05611-3
-
Berdishevsky, H., Lebel, V. A., Bettany-Saltikov, J., Rigo, M., Lebel, A., Hennes, A., Romano, M., Białek, M., M’hango, A., Betts, T., de Mauroy, J. C., & Durmala, J. (2016). Physiotherapy scoliosis-specific exercises: A comprehensive review of seven major schools. Scoliosis and Spinal Disorders, 11, 20. https://doi.org/10.1186/s13013-016-0076-9
-
Bray, L., Wilkinson, C., Bruce, C., Davidson, N., Satchwell, C., & Carter, B. (2023). “It’s my back…”; developing the coming to spinal clinic resource to improve the health literacy of young people with adolescent idiopathic scoliosis and their parents. Journal of Child Health Care, 27(4), 628–642. https://doi.org/10.1177/13674935221083767
-
Bull, J., & Grogan, S. (2010). Children having spinal surgery to correct scoliosis: A qualitative study of parents’ experiences. Journal of Health Psychology, 15(2), 299–309. https://doi.org/10.1177/1359105309351607
-
de Groot, C., Heemskerk, J. L., Willigenburg, N. W., Altena, M. C., & Kempen, D. H. (2022). Educating parents improves their ability to recognize adolescent idiopathic scoliosis: A diagnostic accuracy study. Children, 9(4), 563. https://doi.org/10.3390/children9040563
-
Hesse, B. W., Nelson, D. E., Kreps, G. L., Croyle, R. T., Arora, N. K., Rimer, B. K., & Viswanath, K. (2005). Trust and sources of health information: The impact of the internet and its implications for health care providers: Findings from the first Health Information National Trends Survey. Archives of Internal Medicine, 165(22), 2618–2624.
-
Hines, T., Roland, S., Nguyen, D., Kennard, B., Richard, H., Hughes, C. W., McClintock, S. M., Ramo, B., & Herring, T. (2015). School scoliosis screenings: Family experiences and potential anxiety after orthopaedic referral. Spine, 40(21), E1135–E1143. https://doi.org/10.1097/BRS.0000000000001040
-
Huang, Y., Liu, F., Gao, D., & Wang, H. (2022). Family functioning affected by adolescent idiopathic scoliosis in China: A cross-sectional study. Frontiers in Pediatrics, 10, 880360. https://doi.org/10.3389/fped.2022.880360
-
Janicki, J. A., & Alman, B. (2007). Scoliosis: Review of diagnosis and treatment. Paediatrics & Child Health, 12(9), 771–776. https://doi.org/10.1093/pch/12.9.771
-
Kwan, M. K., Chiu, C. K., Gan, C. C., & Chan, C. Y. W. (2016). Can intraoperative text messages reduce parental anxiety of children undergoing posterior spinal fusion surgery for adolescent idiopathic scoliosis? Spine, 41(4), E225–E230. https://doi.org/10.1097/BRS.0000000000001199
-
LaMontagne, L. L., Hepworth, J. T., & Salisbury, M. H. (2001). Anxiety and postoperative pain in children who undergo major orthopedic surgery. Applied Nursing Research, 14(3), 119–124. https://doi.org/10.1053/apnr.2001.24410
-
Lee, W.-H., Kang, H., & Kim, S. Y. (2017). Discrepancy between self-awareness and actual diagnosis and treatment of the conditions among adolescent with scoliosis in middle-school age. Journal of Physical Therapy Science, 29(4), 567–571. https://doi.org/10.1589/jpts.29.567
-
Lysenko, M., Law, P., Jarvis, J., & Wright, J. G. (2016). Improving education and coping of scoliosis patients undergoing surgery, and their families, using e-health. Journal of Children’s Orthopaedics, 10(6), 673–683. https://doi.org/10.1007/s11832-016-0772
-
Motyer, G., Dooley, B., Kiely, P., & Fitzgerald, A. (2021). Parents’ information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review. Patient Education and Counseling, 104(6), 1347–1355. https://doi.org/10.1016/j.pec.2020.11.023
-
Norman, G. R., Stratford, P., & Regehr, G. (1997). Methodological problems in the retrospective computation of responsiveness to change: The lesson of Cronbach. Journal of Clinical Epidemiology, 50(8), 869–879. https://doi.org/10.1016/S0895-4356(97)00097-8
-
O, H. (2012). Research and statistical methods in health sciences. Nobel Medical Bookstore Press.
-
Oğuz, G. (2021). Investigation of the effects of scoliosis education given to adolescent idiopathic scoliosis individuals and their parents [Master’s thesis, Pamukkale University Health Sciences Institute].
Otman, A. S., & K. N. (2015). Basic evaluation principles in treatment movements. Volume 7, 27–32.
-
Pastora-Bernal, J. M., Martín-Valero, R., Barón-López, F. J., & Estebanez-Pérez, M. J. (2017). Evidence of benefit of telerehabilitation after orthopedic surgery: A systematic review. Journal of Medical Internet Research, 19(4), e142.