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Otizmli ve Down Sendromlu Kişilerin Turizm Deneyimlerinin Karşılaştırmalı Analizi

Year 2025, Volume: 10 Issue: 3, 347 - 358
https://doi.org/10.31822/jomat.2025-10-3-8

Abstract

Bu çalışma, ileri düzeyde otizm spektrum bozukluğu olan bireyler ile Down sendromlu bireylerin turizm deneyimlerini, iki odak grup görüşmesi aracılığıyla karşılaştırmaktadır. Otizmli ve Down sendromlu bireylerin ebeveynleriyle yapılan odak grup mülakatlarında dört tema belirlenmiştir: konaklama temelli deneyimler, seyahat temelli deneyimler, duygusal deneyimler ve destinasyon temelli deneyimler. Bu temalar QDA Miner yazılımı kullanılarak analiz edilmiştir. Bulgular, her iki grup arasında hem benzerlikler hem de farklılıklar olduğunu ortaya koymuştur. Grup 1 (ağır otizmi olan bireyler), daha fazla duygusal zorluk yaşamış, ancak hikâye anlatımı tekniklerini kaygıyı azaltmada etkili bulmuştur. Turizm deneyimlerinde alışılmış satın alma (davranışı) kalıpları ve adaptif (uyumlu) karar alma davranışları sergilemişlerdir. Grup 2 (Down sendromlu bireyler) ise daha az zorluk yaşamış ve turizm aktivitelerine Grup 1'e kıyasla daha kolay katılım sağlamıştır. Bu çalışma, turizm alanı ve ilgili disiplinler için değerli içgörüler sunmakta, bu grupların özgün ihtiyaçlarının anlaşılmasını geliştirmektedir.

Project Number

-

References

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A comparative analysis of tourism experiences between persons with autism and down syndrome

Year 2025, Volume: 10 Issue: 3, 347 - 358
https://doi.org/10.31822/jomat.2025-10-3-8

Abstract

This study compares the tourism experiences of adolescents and adults with severe autism and those with Down syndrome by comparing the tourism experiences of these two groups through two focus group interviews. Focus group interviews with parents of persons with autism and Down syndrome identified four themes: accommodation-based experiences, travel-based experiences, emotional experiences, and destination-based experiences, which were analyzed using QDA Miner software. The findings revealed both similarities and differences. Group 1 (with severe autism) faced more emotional challenges but found storytelling techniques effective in reducing anxiety. In tourism experiences, they displayed habitual buying patterns and adaptive decision-making behavior. Group 2 (with Down syndrome) encountered fewer difficulties and engaged more easily in tourism activities than Group 1. This study provides valuable insights for the tourism field and related disciplines, advancing the understanding of the unique needs of these groups.

Ethical Statement

This research was conducted by the Declaration of Helsinki, and ethics committee approval for the study was obtained from Muğla Sıtkı Koçman University in 2024. Participants were informed that the anonymized findings would only be used for scientific purposes and that participation was voluntary.

Supporting Institution

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Project Number

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Thanks

We extend our gratitude to parents who participate in the interviews and contribute to the study with their comments. Special thanks to Cihan Bulut for proofreading this study.

References

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  • Asperger, H. (1944). Die “autistischen psychopathen” im Kindesalter. Archiv für Psychiatrie und Nervenkrankheiten, 117, 76–136.
  • Attwood, A., Frith, U., & Hermelin, B. (1988). The understanding and use of interpersonal gestures by autistic and Down’s syndrome children. Journal of Autism and Developmental Disorders, 18(2), 241–257.
  • Baş, M. (2016). Engellilik ve turizm. Nobel Academic Publishing House.
  • Bennett, A. E. (2017). Autism’s clinical companions: Frequent comorbidities with ASD. Children’s Hospital of Philadelphia. https://www.chop.edu/news/autism-s-clinical-companions-frequent-comorbidities-asd
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  • Centers for Disease Control and Prevention. (2023, April 4). Data & statistics on autism spectrum disorder. https://www.cdc.gov/ncbddd/autism/data.html
  • Chang, S., & Gibson, H. J. (2011). Physically active leisure and tourism connection: Leisure involvement and choice of tourism activities among paddlers. Leisure Sciences, 33(2), 162–181.
  • Chen, C. P., Chen, C. Y., Chern, S. R., Wu, P. S., Chen, S. W., Wu, F. T., Chen, Y. Y., & Wang, W. (2020). Perinatal cytogenetic discrepancy in a fetus with low-level mosaicism for trisomy 21 and a favorable outcome. Taiwanese Journal of Obstetrics and Gynecology, 59(3), 440–442.
  • Chioncel, N. E., Veen, R. V. D., Wildemeersch, D., & Jarvis, P. (2003). The validity and reliability of focus groups as a research method in adult education. International Journal of Lifelong Education, 22(5), 495–517.
  • Chiscano, M. C. (2021). Autism spectrum disorder (ASD) and the family inclusive airport design experience. International Journal of Environmental Research and Public Health, 18(13), 7206. https://doi.org/10.3390/ijerph18137206
  • Conde, A. R., Caldeira, S., Rego, I., Botelho, T., Silva, O., de Sousa, Á. T., & Mota, P. (2023). Inclusive tourism and children with a diagnosis of autism spectrum disorders: Systematic review of the literature. European Journal of Tourism Research, 35, 3502–3502.
  • Connolly, B. H. (2024). Issues in aging in persons with lifelong disabilities. In Therapeutic exercise for children with developmental disabilities (pp. 491–516). Routledge.
  • Çayhan, S., Özdemir, G., & Özdemir, H. (2023). 8–20 yaş Down sendromlu kız bireylerin antropometrik bir yaklaşımla temel beden kalıplarının oluşturulması. Elektronik Sosyal Bilimler Dergisi, 22(88), 2014–2032.
  • Darcy, S., McKercher, B., & Schweinsberg, S. (2020). From tourism and disability to accessible tourism: A perspective article. Tourism Review, 75(1), 140–144.
  • Dattolo, A., Luccio, F. L., & Pirone, E. (2016). Web accessibility recommendations for the design of tourism websites for people with autism spectrum disorders. International Journal on Advances in Life Sciences, 8(3–4), 297–308.
  • Dawson, G., Jones, E. J., Merkle, K., Venema, K., Lowy, R., Faja, S., Kamara, D., Murias, M., Greenson, J., Winter, J., & Smith, M. (2012). Early behavioral intervention is associated with normalized brain activity in young children with autism. Journal of the American Academy of Child & Adolescent Psychiatry, 51(11), 1150–1159.
  • Delany, D. R., Gaydos, S. S., Romeo, D. A., Henderson, H. T., Fogg, K. L., McKeta, A. S., & Costello, J. M. (2021). Down syndrome and congenital heart disease: Perioperative planning and management. Journal of Congenital Cardiology, 5(1), 7.
  • Dempsey, R., Healy, O., Lundy, E., Banks, J., & Lawler, M. (2021). Air travel experiences of autistic children/young people. Annals of Tourism Research Empirical Insights, 2(2), 100026. https://doi.org/10.1016/j.annale.2021.100026
  • Doğan, İ., Doğan, N., & Doğan, T. (2021). İkili veriler için benzerlik katsayılarının değerlendirilmesi: Bir benzetim çalışması. Türkiye Klinikleri Biyoistatistik, 13(3), 282–292.
  • Down Syndrome International. (2023). Myths and facts. https://www.ds-int.org/myths-and-facts
  • Dykens, E. M. (2007). Psychiatric and behavioral disorders in persons with Down syndrome. Mental Retardation and Developmental Disabilities Research Reviews, 13(3), 272–278.
  • Engel, J. F., Blackwell, R. D., & Miniard, P. W. (1995). Consumer behaviour (8th ed.). The Dryden Press.
  • Freund, D., Cerdan Chiscano, M., Hernandez-Maskivker, G., Guix, M., Iñesta, A., & Castelló, M. (2019). Enhancing the hospitality customer experience of families with children on the autism spectrum disorder. International Journal of Tourism Research, 21(5), 606–614. https://doi.org/10.1002/jtr.2284
  • Ghaziuddin, M. (2000). Autism in mental retardation. Current Opinion in Psychiatry, 13(5), 481–484.
  • Gillovic, B., McIntosh, A., Cockburn-Wootten, C., & Darcy, S. (2021). Experiences of tourists with intellectual disabilities: A phenomenological approach. Journal of Hospitality and Tourism Management, 48, 155–162.
  • Gillovic, B., McIntosh, A., Cockburn-Wootten, C., & Darcy, S. (2024). Intellectual disability and care during travel. Annals of Tourism Research, 105, 103694.
  • Gomot, M., Giard, M. H., Adrien, J. L., Barthelemy, C., & Bruneau, N. (2002). Hypersensitivity to acoustic change in children with autism: Electrophysiological evidence of left frontal cortex dysfunctioning. Psychophysiology, 39(5), 577–584.
  • Gürbüz, S., & Şahin, F. (2018). Sosyal bilimlerde araştırma yöntemleri. Seçkin Yayıncılık. ISBN: 978-975-02-5127-6
  • Hamed, H. M. (2013). Tourism and autism: An initiative study for how travel companies can plan tourism trips for autistic people. American Journal of Tourism Management, 2(1), 1–14. https://doi.org/10.5923/j.tourism.20130201.01
  • Hamner, T., Hepburn, S., Zhang, F., Fidler, D., Rosenberg, C. R., Robins, D. L., & Lee, N. R. (2020). Cognitive profiles and autism symptoms in comorbid Down syndrome and autism spectrum disorder. Journal of Developmental & Behavioral Pediatrics, 41(3), 172–179.
  • Helverschou, S. B., Ludvigsen, L. B., Hove, O., & Kildahl, A. N. (2021). Psychometric properties of the Psychopathology in Autism Checklist (PAC). International Journal of Developmental Disabilities, 67(5), 318–326.
  • Hodges, H., Fealko, C., & Soares, N. (2020). Autism spectrum disorder: Definition, epidemiology, causes, and clinical evaluation. Translational Pediatrics, 9(Suppl 1), S55–S65.
  • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687
  • Ijezie, O. A., Healy, J., Davies, P., Balaguer-Ballester, E., & Heaslip, V. (2023). Quality of life in adults with Down syndrome: A mixed methods systematic review. PLOS ONE, 18(5), e0280014.
  • Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2(3), 217–250.
  • Karakul, A., Kıratlı, D., Akgül, E. A., & Çelik, T. (2022). The experiences of parents of children in pediatric palliative care: A qualitative study. Journal of Pediatric Nursing, 67, 107–115.
  • Kitzinger, J. (1994). The methodology of focus groups: The importance of interaction between research participants. Sociology of Health & Illness, 16(1), 103–121.
  • Krueger, R. A. (1994). Focus groups: A practical guide for applied research. Sage.
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There are 76 citations in total.

Details

Primary Language English
Subjects Tourism (Other)
Journal Section Contents
Authors

Merve Bulut 0000-0001-6694-095X

Project Number -
Early Pub Date September 15, 2025
Publication Date October 15, 2025
Submission Date February 3, 2025
Acceptance Date September 14, 2025
Published in Issue Year 2025 Volume: 10 Issue: 3

Cite

APA Bulut, M. (2025). A comparative analysis of tourism experiences between persons with autism and down syndrome. Journal of Multidisciplinary Academic Tourism, 10(3), 347-358. https://doi.org/10.31822/jomat.2025-10-3-8



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