A View To Autism From The Caregiver Burden Window

Year 2017, , 19 - 21, 31.05.2017

Uğur Ceco , Nursu Çakın Memik

https://doi.org/10.30934/kusbed.312586

Abstract

The caregiver burden is a condition describes the various difficulties that the material and moral context undertakes treatment of the caregivers. During the
psychiatric rehabilitation period of autism, which is a serious mental disorder, the care giver burden has an important place in the course of treatment.
Generally, it is necessary to assess the perceived burden of caregiver in treatment process in terms of experience of the child and parent and the success of the
treatment. Although there are many studies on autism, the number of studies in which a multi-factorial assessment of the care giver burden are relatively small.
In this article, the burden caused by autism in caregivers has been examined and discussed.

Keywords

Autism, caregiver burden, psychiatric rehabilitation, family support

Bakım Verenin Yükü Penceresinden Otizme Bakış

Abstract

Bakım verenin yükü, tedavisi üstlenilen kişilerin bakım verenlerinin yaşadığı maddi ve manevi kapsamda çeşitli zorlanmalarını tarifleyen bir durumdur. Ciddi
ruhsal bozukluklardan olan otizmin iyileştirim sürecinde bakım verenin yükü tedavinin gidişatında önemli bir yere sahiptir. Genellikle bakım veren konumunda
olan ebeveynlerin tedavi sürecinde algıladıkları yükü, çocuğun ve ebeveynin yaşantısı ve tedavinin başarısı açısından değerlendirmek gerekmektedir. Otizmle
ilgili birçok çalışma olmasına rağmen bakım veren yükünün çok faktörlü incelemesinin yapıldığı çalışma sayısı oldukça az miktardadır. Bu yazıda, otizmin
bakım veren kişilerde oluşturduğu yük incelenmiş ve tartışılmıştır.

Keywords

Otizm, Bakım Veren Yükü, Ruhsal İyileştirim, Aile desteği

References

• Zarit SH, Reever K ve Bach-Peterson J. Relatives of the impaired elderly: Correlates of feeling of burden. Gerontologist. 1980; 20: 649-655.
• Schene AH. Objective and subjective dimensions of family burden: towards an integrative framework for research. Social Psychiatry and Psychiatric Epidemiology. 1990; 25: 289–297.
• Eicher PS, Batshaw ML. Cerebral palsy. Pediatr Clin North Am. 1993; 40: 537-551.
• Silver JH ve Wellman N. Family caregiver training is needed to improve outcomes for older adults using home care technologies. J Am Diet Assoc, 2002; 102: 831-836.
• Schene AH, van Wijngaarden B ve Koeter MWJ. Family caregiving in schizophrenia: domains and distress. Schizophr Bull. 1998; 24: 609-618.
• Zarit SH. Family care and burden at the end of life. CMAJ. 2004; 170: 1811-1812.
• van Steijn VDJ. The influence of parental and offspring ASD and ADHD symptoms on family functioning. Radboud University Nijmegen, Nijmegen, 2013.
• Hall HR, Graff JC. The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues Compr Pediatr Nurs. 2011; 34: 4–25.
• Söderqvist H, Kajsa E, Hedman B ve diğ. The caregivers’ perspectives of burden before and after an internet-based intervention of young persons with ADHD or autism spectrum disorder. Scandinavian Journal of Occupational Therapy. 2017; 1-10.
• Almansour MA, Alateeq MA, Alzahrani MK ve diğ. Depression and anxiety among parents and caregivers of autistic spectral disorder children. Neurosciences (Riyadh). 2013; 18(1): 58-63.
• Çetin FC. Çocuk ve Ergen Psikiyatrisi Temel Kitabı, Çocuk ve Gençlik Ruh Sağlığı Derneği, Ankara, 2008.
• Montes G ve Halterman JS. Association of childhood autism spectrum disorders and loss of family income. Pediatrics. 2008; 121(4): 821- 826.
• Khanna R, Madhavan SS, Smith MJ ve diğ. Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of autism and developmental disorders. 2011; 41(9): 1214-1227.
• Stuart M ve McGrew JH. Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 2009; 3(1), 86-97.
• Liu M, Lambert CE ve Lambert VA. Caregiver burden and coping patterns of Chinese parents of a child with a mental illness. International journal of mental health nursing. 2007; 16(2): 86-95.
• van Tongerloo MAMM, van Wijngaarden PJM, van der Gaag RJ ve diğ. Raising a child with an Autism Spectrum Disorder:‘If this were a partner relationship, I would have quit ages ago’. Family practice. 2015; 32(1): 88-93.
• Manor-Binyamini I. Mothers of children with developmental disorders in the Bedouin community in Israel: Family functioning, caregiver burden, and coping abilities. Journal of autism and developmental disorders. 2011; 41(5): 610-617.
• Cadman T, Eklund H, Howley D ve diğ. Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child & Adolescent Psychiatry. 2012; 51(9): 879-888.
• Lerthattasilp T, Charernboon T, Chunsuwan I ve diğ. Depression and burden among caregivers of children with autistic spectrum disorder. J Med Assoc Thai. 2015; 98(2): 45-52.
• Angold A, Messer SC, Stangl D ve diğ. Perceived parental burden and service use for child and adolescent psychiatric disorders. Am J Public Health. 1998; 88: 75-80.
• Karst JS ve van Hecke AV. Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical child and family psychology review. 2012; 15(3): 247-277.
• Bekhet AK, Johnson NL ve Zauszniewski JA. Effects on Resilience of Caregivers of Persons With Autism Spectrum Disorder The Role of Positive Cognitions. Journal of the American Psychiatric Nurses Association. 2012; 18(6): 337-344.
• Baker BL, Blacher J ve Olsson MB. Preschool children with and without developmental delay: behaviour problems, parents’ optimism and well‐being. Journal of Intellectual Disability Research. 2005; 49(8): 575-590.
• Phetrasuwan S ve Shandor Miles M. Parenting stress in mothers of children with autism spectrum disorders. Journal for specialists in pediatric nursing. 2009; 14(3): 157-165.
• Sales E. Family burden and quality of life. Quality of life research. 2003: 12, 33-41.
• Chappell NL ve Reid RC. Burden and well-being among caregivers: examining the distinction. The Gerontologist. 2002; 42(6): 772-780.
• Khanna R, Madhavan SS, Smith MJ ve diğ. Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. Autism. 2012; 16(2): 179-199.
• Ekas NV, Lickenbrock DM ve Whitman TL. Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of autism and developmental disorders. 2010; 40(10): 1274-1284.
• Thompson EH, Futterman AM, Gallagher-Thompson D ve diğ. Social support and caregiving burden in family caregivers of frail elders. Journal of Gerontology. 1993; 48(5): 245-254.
• Järbrink K, Fombonne E ve Knapp M. Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study. Journal of autism and developmental disorders. 2003; 33(4): 395-402.
• Lin LY. Factors associated with caregiving burden and maternal pessimism in mothers of adolescents with an autism spectrum disorder in Taiwan. Occupational therapy international. 2001; 18(2): 96-105.