NÖROLOJİK HASTALIĞI OLAN HASTA YAKINLARINDA BAKIM YÜKÜ: GÜVENİRLİK VE GEÇERLİLİK ÇALIŞMASI

Abstract

Amaç: Bu çalışmada Bakas Bakım Verme Etki Ölçeği'nin Türkçe (BCOS-Tr) versiyonunun güvenirliği ve geçerliliği yanında farklı nörolojik hastaların Türk bakıcılar üzerinde psikometrik özelliklerini değerlendirmek amaçlandı. Yöntem: Çalışmaya farklı nörolojik bozukluğa sahip hastalara bakım veren 92 birey (46,36±12,60 yıl) ve bakım vermeyen 80 birey (44,25±12,81 yıl) dahil edilmiştir. Bakım verenler, ölçeğin Türkçe versiyonu kullanılarak değerlendirilmiş ayrıca test-tekrar test güvenilirliği için 30 bakım veren bireye 15 gün arayla tekrar uygulanmıştır. Tüm bireyler için Beck Depresyon Ölçeği (BDÖ) ve Kısa Form-36 (KF-36) kullanılmıştır. Sonuçlar: BCOS-Tr’nin iç tutarlılığı Cronbach α =0,90, test-tekrar test güvenirlik katsayısı 0,96 olarak bulunmuştur (p<0.001). Türkçe ölçek orijinalindeki gibi tek boyutlu ve toplam varyansın %43,18’ini açıklamaktadır. Bakım verenlerin toplam puanı 51,06/105’tir. Ölçeğin total puanı ile KF-36 ve BDÖ arasındaki ilişki olduğu bulunmuştur (p<0,05). Tartışma: Bulgular, BCOS'un Türkçe versiyonunun nörolojik hastalara bakım verenler üzerindeki etkisini değerlendirmek için güvenilir ve geçerli bir araç olduğunu göstermektedir. Nörolojik hastalığı olan hastalara bakım vermek, bakım verenlerin yaşam kalitelerini olumsuz etkilemektedir bu nedenle bakıcı yükü dikkate alınmalıdır.

Keywords

• Bakas Bakım Verme Etki Ölçeği
• Bakım yükü
• Geçerlik
• Güvenirlik

Supporting Institution

Yoktur.

CAREGIVER BURDEN IN RELATIVES OF PATIENTS WITH NEUROLOGICAL DISEASE: A reliability and validity study

Abstract

Purpose: This study was aimed to evaluate the reliability and validity of the Turkish version of the Bakas Caregiving Impact Scale (BCOS-Tr) as well as its psychometric properties on Turkish caregivers of different neurological patients. Methods: Ninety two caregivers (46.36±12.60 years) who care for patients with different neurological disorders and 80 non-caregivers (44.25±12.81 years) were included. Caregivers were evaluated using the Turkish version of the scale, and reapplied to 30 caregivers with 15-day intervals for test-re-test reliability. Also Beck Depression Scale (BDI) and Short Form-36 (SF-36) were used for all individuals. Results: The internal consistency of the BCOS-Tr was Cronbach α =0.90, and the test-retest reliability coefficient was 0.96 (p<0.001). The Turkish scale is one-dimensional as in the original and explains 43.18% of the total variance. The total score of caregivers is 55.1/105 and a correlation was found between the total score of the scale and SF-36 and BDI (p<0.05). Conclusion: The findings indicate that BCOS-Tr is a reliable tool to assess the impact of caregiving on caregivers. Caregiving the patients with neurological disease affect negatively the quality of life of the caregivers. Therefore; caregiver burden should be considered.

Keywords

• Bakas Caregiving Outcomes Scale
• Caregiver burden
• Validity
• Reliability

Supporting Institution

Yoktur.

References

1. 1. GBD 2016 Neurology Collaborators Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study. 2016. Lancet Neurol. 2019;18(5):459-80
2. 2. Hong Y, Tang HR, Ma M, Chen N, Xie X, He L. Multiple sclerosis and stroke: a systematic review and meta-analysis. BMC Neurol 2019;19(1):139
3. 3. Rickards H. Depression in neurological disorders: Parkinson's disease, multiple sclerosis, and stroke. J Neurol Neurosurg Psychiatry 2005;76(1):i48-52
4. 4. Dunbar SB, Khanjou OA, Bakas T, Hunt G, Kirch RA, Leib AR. Projected costs of informal caregiving for cardiovascular disease: 2015 to 2035. Circulation 2018; 137(19):e558-e577.
5. 5. McLennon SM, Bakas T, Jessup NM, Habermann B, Weaver MT. Task difficulty and life changes among stroke family caregivers relationship to depressive symptoms. Arch Phys Med Rehabil 2014;95(12):2484-90
6. 6. Pucciarelli G, Vellone E, Savini S, Simeone S, Ausili D, Alvaro R et al. Roles of changing physical function and caregiver burden on quality of life in stroke a longitudinal dyadic analysis. Stroke 2017;48(3):733-39 7. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist 1980; 20:649-55
7. 8. Atagun MI, Blaban ÖD, Atagün Z, Özpolat AGY. Caregiver burden in chronic diseases, Psikiatride güncel yaklaşımlar 2011; :513-52
8. 9. Özdemir HNC, Senol S. Bakım yükü değerlendirme ölçeklerine sistematik bir bakış. İzmir Kâtip Çelebi Üniversitesi Sağlık Bilimleri Fakültesi Dergisi 2019; 4(2): 61-68

9. 10. Bakas T, Champion V. Development and psychometric testing of the Bakas Caregiving Outcomes Scale. Nurs Res 1999;48(5):250–259
10. 11. Bakas T, Champion V, Perkins SM, Farran CJ, Williams LS. Psychometric testing of the revised 15-item Bakas Caregiving Outcomes Scale. Nurs Res 2006;55(5):346–355
11. 12. Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manag 2003; 26(4):922–953
12. 13. Visser-Meily JM, Post MW, Riphagen II, Lindeman E. Measures used to assess burden among caregivers of stroke patients: a review. Clin Rehabil 2004;18(6):601–623
13. 14. Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer; 1984
14. 15. Bryman A, Cramer D. Quantitative data analysis with SPSS release 10 for Windows. London: Routledge Press 2001.
15. 16. Beaton DE., Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine, 2000;25(24): 3186-91.
16. 17. Ware JE, Sherboume CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992;30:473-83.
17. 18. Koçyiğit H, Aydemir Ö, Fisek G, Ölmez N, Memiş A. Validity and reliability of Turkish version of Short form 36: A study of a patients with romatoid disorder. Journal of Drug and Therapy (in Turkish) 1999;12:102-6.
18. 19. Beck AT. An inventory for measuring depression. Arch Gen Psychiatry, 1961;4:561-71.
19. 20. Hisli N. The validity and reliability of the Beck Depression Scale on university students. Journal of Psychology (in Turkish) 1989;7:3-13.
20. 21. Mahoney FI, Barthel DW. Functional evaluation: the Barthel Index. Md State Med J 1965;14:56-61.
21. 22. Kucukdeveci AA, Yavuzer G, Tennant A, Suldur N, Sonel B, Arasil T. Adaptation of the modified Barthel Index for use in physical medicine and rehabilitation in Turkey. Scand J Rehabil Med 2000; 32(2): 87-92.
22. 23. Gonzalez C, Bakas T. Factors associated with stroke survivor behaviors as identified by family caregivers. Rehabil Nurs 2013; 38(4): 202–211. doi: 10.1002/rnj.85
23. 24. Govina O, Kontronoulas G, Mystakidou K, Giannakopoulou M, Galanos A, Patirika E. Validation of the revised Bakas Caregiving Outcomes Scale in Greek caregivers of patients with advanced cancer receiving palliative radiotherapy. Support Care Cancer 2013;21(5):1395-404.
24. 25. Negarandeh R, Delkhosh M, Janani L, Samiei N, Ghasemi E. The relationship between perceived life changes and mental health in family caregivers of patients with heart failure who referred to rajaei cardiovascular medical and research center, Tehran. Int J Community Based Nurs Midwifery 2015;3(4):283-91.
25. 26. Costa TF, Pimenta CJL, Nóbrega MML, Fernandes MGM, Nogueira JA, Costa KNFM. Validation of Bakas Caregiving Outcome scale for Brazilian portuguese Rev. Latino-Am. Enfermagem 2020;28:e3249.
26. 27. Pishkhani MK, Ebadi A, Dalvandi A, Aroogh MD, Vosoghi N, Ghorbanzadeh K. Psychometric properties of Persian version of the Bakas caregiving outcomes scale. Iran J Nurs Midwifery Res 2022;27:134-8.
27. 28. Kaiser HF. An index of factorial simplicity. Psychometrika, 1974;39(1):31-6.
28. 29. Yükü KRHB, Derleme S. Caregiver burden in chronic mental illness: A systematic review. Journal of Psychiatric Nursing 2017; 8(3): 165-171.
29. 30. Cortina JM. What is coefficient alpha? An examination of theory and applications. Journal of applied psychology, 1993; 78(1): 98.
30. 31. Hyuncheol K. A Guide on the use of factor analysis in the assessment of construct validity. J Korean Acad Nurs 2013: 43587‑94.
31. 32. Han B, Haley WE. Family caregiving for patients with stroke: review and analysis. Stroke 1999;30:1478-85.
32. 33. Happe S, Berger K. The association between caregiver burden and sleep disturbances in partners of patients with Parkinson's disease. Age Ageing 2002;31(5):349-54.