NÖROLOJİK HASTALIĞI OLAN HASTA YAKINLARINDA BAKIM YÜKÜ: GÜVENİRLİK VE GEÇERLİLİK ÇALIŞMASI

Öz

Amaç: Bu çalışmada Bakas Bakım Verme Etki Ölçeği'nin Türkçe (BCOS-Tr) versiyonunun güvenirliği ve geçerliliği yanında farklı nörolojik hastaların Türk bakıcılar üzerinde psikometrik özelliklerini değerlendirmek amaçlandı. Yöntem: Çalışmaya farklı nörolojik bozukluğa sahip hastalara bakım veren 92 birey (46,36±12,60 yıl) ve bakım vermeyen 80 birey (44,25±12,81 yıl) dahil edilmiştir. Bakım verenler, ölçeğin Türkçe versiyonu kullanılarak değerlendirilmiş ayrıca test-tekrar test güvenilirliği için 30 bakım veren bireye 15 gün arayla tekrar uygulanmıştır. Tüm bireyler için Beck Depresyon Ölçeği (BDÖ) ve Kısa Form-36 (KF-36) kullanılmıştır. Sonuçlar: BCOS-Tr’nin iç tutarlılığı Cronbach α =0,90, test-tekrar test güvenirlik katsayısı 0,96 olarak bulunmuştur (p<0.001). Türkçe ölçek orijinalindeki gibi tek boyutlu ve toplam varyansın %43,18’ini açıklamaktadır. Bakım verenlerin toplam puanı 51,06/105’tir. Ölçeğin total puanı ile KF-36 ve BDÖ arasındaki ilişki olduğu bulunmuştur (p<0,05). Tartışma: Bulgular, BCOS'un Türkçe versiyonunun nörolojik hastalara bakım verenler üzerindeki etkisini değerlendirmek için güvenilir ve geçerli bir araç olduğunu göstermektedir. Nörolojik hastalığı olan hastalara bakım vermek, bakım verenlerin yaşam kalitelerini olumsuz etkilemektedir bu nedenle bakıcı yükü dikkate alınmalıdır.

Anahtar Kelimeler

• Bakas Bakım Verme Etki Ölçeği
• Bakım yükü
• Geçerlik
• Güvenirlik

CAREGIVER BURDEN IN RELATIVES OF PATIENTS WITH NEUROLOGICAL DISEASE: A reliability and validity study

Öz

Purpose: This study was aimed to evaluate the reliability and validity of the Turkish version of the Bakas Caregiving Impact Scale (BCOS-Tr) as well as its psychometric properties on Turkish caregivers of different neurological patients. Methods: Ninety two caregivers (46.36±12.60 years) who care for patients with different neurological disorders and 80 non-caregivers (44.25±12.81 years) were included. Caregivers were evaluated using the Turkish version of the scale, and reapplied to 30 caregivers with 15-day intervals for test-re-test reliability. Also Beck Depression Scale (BDI) and Short Form-36 (SF-36) were used for all individuals. Results: The internal consistency of the BCOS-Tr was Cronbach α =0.90, and the test-retest reliability coefficient was 0.96 (p<0.001). The Turkish scale is one-dimensional as in the original and explains 43.18% of the total variance. The total score of caregivers is 55.1/105 and a correlation was found between the total score of the scale and SF-36 and BDI (p<0.05). Conclusion: The findings indicate that BCOS-Tr is a reliable tool to assess the impact of caregiving on caregivers. Caregiving the patients with neurological disease affect negatively the quality of life of the caregivers. Therefore; caregiver burden should be considered.

Anahtar Kelimeler

• Bakas Caregiving Outcomes Scale
• Caregiver burden
• Validity
• Reliability

Kaynakça

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