The Quality of Life in Children with Congenital Heart Disease Who Underwent an Intervention

Year 2024, Volume: 11 Issue: 2, 125 - 131, 31.08.2024

Havva Yazıcı , Timur Meşe

https://doi.org/10.47572/muskutd.1416896

Abstract

Congenital heart disease (CHD) is one of the most common chronic pediatric conditions, exerting a substantial impact on the lives of children and families. The assessment of children’s quality of life gained prominence in the 1980s and is now widely used in clinical practice for comparing treatment options and evaluating their efficacy. We applied the Congenital Heart Disease Quality of Life (ConQol) questionnaire, age-appropriate and disease-specific, to 52 children aged 8–16 years with CHD who underwent intervention at the Pediatric Cardiology Unit of Dr. Behcet Uz Children’s Diseases and Surgery Training and Research Hospital. A control group of 52 healthy individuals without CHD was also included. The 8–11 age group consisted of 27 patients and 26 healthy controls. There were 25 patients and 26 healthy controls in the 12–16 age group. There were significant differences in specific areas such as being able to run about, being allowed to do sports and exercise, and being able to do keep up with friends in 8–11-year-old patient group compared to the control group. The ConQol Index Score was statistically significantly different between 12–16-year-old patient and control groups, about being allowed to do sports and exercise, being able to do keep up with friends, and being able to take part in clubs / do activities outside of school. Our findings underscore the impact of CHD on the quality of life in children with CHD, particularly manifesting in reduced physical activity.

Keywords

Child, ConQol, Congenital Heart Disease, Quality of Life

Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi

Abstract

Konjenital kalp hastalıkları çocukların ve ailelerin hayatlarını etkileyen en yaygın kronik çocukluk çağı hastalıklarından birisidir. Çocukların hayat kalitesinin değerlendirilmesi 1980’lerde kullanılmaya başlanmış olup son zamanlarda tedavi seçeneklerinin karşılaştırılmasında ve etkinliklerinin değerlendirilmesinde ve klinik uygulamada yaygın olarak kullanılmaktadır. Çalışmamızda Dr. Behçet Uz Çocuk Sağlığı ve Hastalıkları Eğitim ve Araştırma Hastanesi Çocuk Kardiyoloji Biriminde konjenital kalp hastalığı tanılı ve girişim uygulanmış olan 8-16 yaşları arasındaki 52 hastaya yaş grubuna özgü ve sağlıkla ilgili yaşam kalitesi ölçeği olan Konjenital Kalp Hastalıkları Yaşam Kalitesi (ConQol) anketi uygulanmıştır. 8-11 yaş grubu 27 hasta ve 26 sağlıklı kontrolden oluşuyordu. 12-16 yaş grubunda 25 hasta ve 26 sağlıklı kontrol vardı. 8–11 yaş grubunda koşuşturabilme, spor ve egzersiz yapılmasına izin verilmesi ve arkadaşlara ayak uydurabilme sorularında kontrol grubuna göre anlamlı bir fark olduğu saptanmıştır. 12–16 yaş grubunda spor ve egzersiz yapılmasına izin verilmesi, arkadaşlara ayak uydurabilme ve kulübe gitme veya okul dışında aktivitelere katılma sorularında kontrol grubuna göre anlamlı bir fark olduğu saptanmıştır. Konjenital kalp hastalıklı çocuklarda yaşam kalitesi özellikle fiziksel aktivite kısıtlanmasından etkilenmektedir.

Keywords

Çocuk, ConQol, Konjenital Kalp Hastalığı, Yaşam Kalitesi

Ethical Statement

The research related to human use has been compliedwith all the relevant national regulations, institutional policies and in accordance the tenets of the Helsinki Declaration, and has been approved by the local İzmir Dr. Behçet Uz Children’s Diseases and Surgery Training and Research Hospital Ethics Committee (Number: 2012/11).

Supporting Institution

None

Thanks

The authors are grateful to patients and their parents.

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