Research Article

Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water

Number: 11 October 28, 2026
  • Kaustabh Kashyap
  • Rakhee Kalita Moral *
EN TR

Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water

Abstract

This article examines Shahd Alshammari’s Head Above Water (2022) through the concept of autoimmune form, arguing that the memoir’s literary structure emerges through the aesthetic mediation of embodied experience, rather than merely representing illness as thematic content. Adopting new formalism’s attention to the relationship between literary form and corporeality as its primary theoretical framework, the article draws on phenomenology to examine bodily contingency and feminist disability studies to read embodied experiences through issues of gender, dependency, and relationality. Fragmented chapters, recursive temporality, diary insertions and polyphonic narration organize Alshammari’s representation of multiple sclerosis. Instead of suggesting that illness mechanically determines literary form, the article demonstrates how Alshammari translates fluctuations and uncertainties of living with chronic illness into formal strategies that unsettle ableist expectations of coherence, progression, productivity, and closure. It further examines how dependency, relationality, and collective storytelling challenge normative constructions of femininity and autonomous subjecthood, while tactile language foregrounds writing as an affective and material site. By proposing autoimmune form as a critical category specific to Alshammari’s writing, the article extends scholarship on disability memoir, corporeal narratology, and chronic illness narratives from representing embodiment towards its aesthetic organization, showing how distinct embodied experiences can engender new formal possibilities.

Keywords

References

  1. Alshammari, Shahd. Head Above Water: Reflections on Illness. Neem Tree Press, 2022.
  2. Barrett, Amy, Oyebimpe Olayinka-Amao, Tjalf Ziemssen, Trishna Bharadia, Christian Henke, and Paul Kamudoni. “Understanding the Symptoms and Impacts Experienced by People with Relapsing–Remitting MS: A Qualitative Investigation Using Semi-Structured Interviews.” Neurology and Therapy 13, no. 2 (2024): 449–64. https://pmc.ncbi.nlm.nih.gov/articles/PMC10951163/.
  3. Butler, Judith. Gender Trouble: Feminism and the Subversion of Identity. Routledge, 1990.
  4. Butler, Judith. Bodies That Matter: On the Discursive Limits of “Sex.” Routledge, 1993.
  5. Chen, Mel Y. “Chronic Illness, Slowness, and the Time of Writing.” In Crip Authorship: Disability as Method, edited by Mara Mills and Rebecca Sanchez, 33–37. New York University Press, 2023.
  6. Couser, G. Thomas. Signifying Bodies: Disability in Contemporary Life Writing. University of Michigan Press, 2009.
  7. Dobson, Ruth, and Gavin Giovannoni. “Multiple Sclerosis – a Review.” European Journal of Neurology 26, no. 1 (2019): 27–40. https://doi.org/10.1111/ene.13819.
  8. Ellis, JJJJJerome. “The Clearing: Music, Dysfluency, Blackness and Time.” Journal of Interdisciplinary Voice Studies 5, no. 2 (2020): 215–233. https://doi.org/10.1386/jivs_00026_1.

Details

Primary Language

English

Subjects

World Languages, Literature and Culture (Other), Literary Theory, Comparative and Transnational Literature, Literary Studies (Other)

Journal Section

Research Article

Authors

Kaustabh Kashyap This is me
0000-0001-8302-2296
India

Rakhee Kalita Moral * This is me
0000-0002-6190-9280
India

Publication Date

October 28, 2026

Submission Date

July 31, 2026

Acceptance Date

September 28, 2026

Published in Issue

Year 2026 Number: 11

APA
Kashyap, K., & Moral, R. K. (2026). Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water. Nesir: Edebiyat Araştırmaları Dergisi, 11, 197-219. https://doi.org/10.64957/nesir.2066188
AMA
1.Kashyap K, Moral RK. Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water. Nesir: Edebiyat Araştırmaları Dergisi. 2026;(11):197-219. doi:10.64957/nesir.2066188
Chicago
Kashyap, Kaustabh, and Rakhee Kalita Moral. 2026. “Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water”. Nesir: Edebiyat Araştırmaları Dergisi, nos. 11: 197-219. https://doi.org/10.64957/nesir.2066188.
EndNote
Kashyap K, Moral RK (October 1, 2026) Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water. Nesir: Edebiyat Araştırmaları Dergisi 11 197–219.
IEEE
[1]K. Kashyap and R. K. Moral, “Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water”, Nesir: Edebiyat Araştırmaları Dergisi, no. 11, pp. 197–219, Oct. 2026, doi: 10.64957/nesir.2066188.
ISNAD
Kashyap, Kaustabh - Moral, Rakhee Kalita. “Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water”. Nesir: Edebiyat Araştırmaları Dergisi. 11 (October 1, 2026): 197-219. https://doi.org/10.64957/nesir.2066188.
JAMA
1.Kashyap K, Moral RK. Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water. Nesir: Edebiyat Araştırmaları Dergisi. 2026;:197–219.
MLA
Kashyap, Kaustabh, and Rakhee Kalita Moral. “Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water”. Nesir: Edebiyat Araştırmaları Dergisi, no. 11, Oct. 2026, pp. 197-19, doi:10.64957/nesir.2066188.
Vancouver
1.Kaustabh Kashyap, Rakhee Kalita Moral. Writing the Body: Reading the Autoimmune Form in Shahd Alshammari’s Head Above Water. Nesir: Edebiyat Araştırmaları Dergisi. 2026 Oct. 1;(11):197-219. doi:10.64957/nesir.2066188

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