Determining the Views of Students with Chronic Kidney Disease about Online Learning Environment

Abstract

Our study was carried out to evaluate the educational experiences of students who are at risk due to the pandemic and who have chronic renal impairment, during the pandemic process. Our research is a phenomenological pattern study from qualitative research methods. The sample of our study consists of 5 students with chronic renal impairment between the ages of 13 and 16, registered in an organ transplant center, and studying at public schools affiliated with the Ministry of National Education in the 2020-2021 academic year. Our data was collected and analyzed through a semi-structured form. The majority of the participants stated that they could not go to school enough, their priority was education and health, they wanted face-to-face education, they had difficulty in understanding the lessons in face-to-face education, and they wanted to receive education at home and dialysis center. As a result, students in this group cannot get efficiency from distance education. Considering the dialysis days and hours of the students in this group, a new formal education program can be created and more efficient education can be provided.

Keywords

• Chronic kidney disease
• online learning environment
• distance learning

References

1. Ahmad, T., Haroon, Baig, M., & Hui, J. (2020). Coronavirus Disease 2019 (COVID-19) Pandemic and Economic Impact. Pakistan journal of medical sciences, 36(4), 73-78. https://doi.org/10.12669/pjms.36.COVID19-S4.2638
2. Al Wakeel, J., Al Harbi, A., Bayoumi, M., Al-Suwaida, K., Al Ghonaim, M., & Mishkiry, A. (2012). Quality of life in hemodialysis and peritoneal dialysis patients in Saudi Arabia. Annals of Saudi medicine, 32(6), 570-574. https://doi.org/10.5144/0256-4947.2012.570
3. Altıparmak, M., Kurt, İ. D., & Kapıdere, M. (2011). E-öğrenme ve uzaktan eğitimde açık kaynak kodlu öğrenme yönetim sistemleri. XI. Akademik Bilişim Kongresi. https://ab.org.tr/ab11/kitap/altiparmak_kurt_AB11.pdf
4. Baysal, B. (1996). Çocukluk çağındaki kronik hastaların psikososyal etkileri. Pediatri Dergisi, 5(3), 912-917.
5. Bessell, A. G. (2001). Children surviving cancer: Psychosocial adjustment, quality of life, and school experiences. Exceptional Children, 67(3), 345–59. https://doi.org/10.1177/001440290106700304
6. Bozkurt, A. (2020). Koronavirüs (Covid-19) pandemi süreci ve pandemi sonrası dünyada eğitime yönelik değerlendirmeler: Yeni normal ve yeni eğitim paradigması. Açıköğretim Uygulamaları ve Araştırmaları Dergisi, 6 (3) , 112-142. Retrieved from https://dergipark.org.tr/en/pub/auad/issue/56247/773769
7. Centers for Disease Control and Prevention. (2021, July 5). About Chronic Disease. https://www.cdc.gov/chronicdisease/about/index.htm#:~:text=Chronic%20diseases%20are%20defined%20broadly,disability%20in%20the%20United%20States
8. Çakın, M. & Külekçi Akyavuz, E. (2020). Covid-19 süreci ve eğitime yansıması: öğretmen görüşlerinin incelenmesi. International Journal of Social Sciences and Education Research, 6 (2) , 165-186. https://doi.org/10.24289/ijsser.747901

9. Çaydam, Ö. D., & Pakyüz, S. Ç. (2016). Chronic complications of hemodialysis and care. Journal of Nephrology Nursing, 11(1), 60-72. https://doi.org/10.14235/bas.galenos.2019.3546
10. Gan, L. L., Lum, A., Wakefield, C. E., Donnan, B. M., Marshall, G. M., Burns, M. A., ... & Fardell, J. E. (2018). The school experiences of siblings of children with chronic illness: Australian parents’ perceptions. The Educational and Developmental Psychologist, 35(1), 36-50. https://doi.org/10.1017/edp.2018.3
11. Gerasimoula, K., Lefkothea, L., Maria, L., Victoria, A., Paraskevi, T., & Maria, P. (2015). Quality of life in hemodialysis patients. Materia socio-medica, 27(5), 305–309. https://doi.org/10.5455/msm.2015.27.305-309
12. Goldstein, M., Carrillo, M., & Ghai, S. (2013). Continuous ambulatory peritoneal dialysis-a guide to imaging appearances and complications. Insights into imaging, 4(1), 85–92. https://doi.org/10.1007/s13244-012-0203-y
13. Gülay, T., Eler, Ç. Ö., Ökdem, Ş., & Çıtak, E. A. (2020). Investigation of comfort level in hemodialysis patients. Hacettepe University Faculty of Nursing Journal, 7(2), 122-129. https://doi.org/10.31125/hunhemsire.763155
14. Haas, S. A., & Fosse, N. E. (2008). Health and the educational attainment of adolescents: evidence from the NLSY97. Journal of health and social behavior, 49(2), 178–192. https://doi.org/10.1177/002214650804900205
15. Hedström, M., Ljungman, G., & von Essen, L. (2005). Perceptions of distress among adolescents recently diagnosed with cancer. Journal of pediatric hematology/oncology, 27(1),15–22. https://doi.org/10.1097/01.mph.0000151803.72219.ec
16. Jabbari, B., & Vaziri, N. D. (2018). The nature, consequences, and management of neurological disorders in chronic kidney disease. Hemodialysis international. International Symposium on Home Hemodialysis, 22(2), 150–160. https://doi.org/10.1111/hdi.12587
17. Johnson, S.D., Aragon, S.R., & Shaik, N. (2000). Comparative analysis of learner satisfaction and learning outcomes in online and face-to-face learning environments. Journal of Interactive Learning Research, 11(1), 29-49. Retrieved from https://www.learntechlib.org/primary/p/8371/.
18. Kaynar, H., Kurnaz, A., Doğrukök, B., & Barışık, C. Ş. (2020). Secondary School Students' Views on Distance Education. Electronic Turkish Studies, 15(7). http://dx.doi.org/10.7827/TurkishStudies.44486.
19. Khoo, E. J., & Lantos, J. D. (2020). Lessons learned from the COVID-19 pandemic. Acta paediatrica (Oslo, Norway : 1992), 109(7), 1323–1325. https://doi.org/10.1111/apa.15307
20. Levey, A. S., & Coresh, J. (2012). Chronic kidney disease. The lancet, 379(9811), 165-180. https://doi.org/10.1016/S0140-6736(11)60178-5.
21. Mahendran, A. O., & Barlow, A. D. (2014). Kidney transplantation. Surgery Oxford, 32(7), 364-370. https://doi.org/10.1016/j.mpsur.2014.04.010.
22. Martin, C., & Nisa, M. (1997). Chronic disease in children. A cross-sectional perspective based on an analysis of the Australian Morbidity and Treatment Survey (AMTS) 1990-1991. Australian family physician, 26(9), 1049-1054. PMID: 9382719. Retrieved from https://europepmc.org/article/med/9382719
23. McNabb, D. E. (2015). Research Methods For Political Science: Quantitative And Qualitative Methods. London: Routledge.
24. Megari K. (2013). Quality of Life in Chronic Disease Patients. Health psychology research, 1(3), e27. https://doi.org/10.4081/hpr.2013.e27.
25. Nicola, M., Alsafi, Z., Sohrabi, C., Kerwan, A., Al-Jabir, A., Iosifidis, C., ... & Agha, R. (2020). The socio-economic implications of the coronavirus pandemic (COVID-19): A review. International journal of surgery, 78, 185-193. https://doi.org/10.1016/j.ijsu.2020.04.018
26. Oh, E. (2006). Current practices in blended instruction. Unpublished Doctoral Dissertation. The University of Tennessee, Knoxville.
27. Özgöl, M., Sarikaya, İ., & Öztürk, M. (2017). Student and instructor evaluations on distance education practices in formal education. Journal of Higher Education and Science, 7(2), 294-304. http://dx.doi.org/10.5961/jhes.2017.208.
28. Park, J., Rhee, C. M., Sim, J. J., Kim, Y. L., Ricks, J., Streja, E., Vashistha, T., Tolouian, R., Kovesdy, C. P., & Kalantar-Zadeh, K. (2013). A comparative effectiveness research study of the change in blood pressure during hemodialysis treatment and survival. Kidney international, 84(4), 795–802. https://doi.org/10.1038/ki.2013.237.
29. Robson, C. (1993). Real world research. London: Oxford Blackwell Publisliers Ltd.
30. Romagnani, P., Remuzzi, G., Glassock, R., Levin, A., Jager, K. J., Tonelli, M., & Anders, H. J. (2017). Chronic kidney disease. Nature reviews Disease primers, 3(1), 1-24. https://doi.org/10.1038/nrdp.2017.88.
31. Sarı, T., & Nayır, F. (2020). Pandemi dönemi eğitim: sorunlar ve fırsatlar. Turkish Studies, 15(4), 959-975. https://dx.doi.org/10.7827/TurkishStudies.44335.
32. Sarkodie, S. A., & Owusu, P. A. (2021). Global assessment of environment, health and economic impact of the novel coronavirus (COVID-19). Environment, Development and Sustainability, 23, 5005-5015. https://doi.org/10.1007/s10668-020-00801-2
33. Shiu, S. (2001). Issues in the education of students with chronic illness. International Journal of Disability Development and Education, 48(3), 269–81.
34. Sut, H. K., & Kucukkaya, B. (2016). The views of nursing students on distance education/Hemsirelik bolumu ogrencilerinin uzaktan egitime iliskin gorusleri. Journal of Education and Research in Nursing, 13(3), 235+. https://link.gale.com/apps/doc/A503640219/AONE?u=anon~55f0d395&sid=googleScholar&xid=0f30f8de
35. Şen, B., Atasoy, F., & Aydın, N. (2010). Düşük maliyetli web tabanlı uzaktan eğitim sistemi uygulaması. XII. Akademik Bilişim Konferansı (pp.383-389). Muğla Üniversitesi.
36. Tay, M. (2016). The importance of tissue and organ transplantation in Turkey. Journal of Health Academics, 3(3), 106-110. https://doi.org/10.5455/sad.13-1477691139
37. Tekindal, M. & Uğuz Arsu, Ş. (2020). Nitel Araştırma Yöntemi Olarak Fenomenolojik Yaklaşımın Kapsamı ve Sürecine Yönelik Bir Derleme. Ufkun Ötesi Bilim Dergisi, 20(1), 153-172. Retrieved from https://dergipark.org.tr/en/pub/uobild/issue/58856/813813
38. Theofilou P. (2012). Quality of life and mental health in hemodialysis and peritoneal dialysis patients: the role of health beliefs. International urology and nephrology, 44(1), 245–253. https://doi.org/10.1007/s11255-011-9975-0.
39. Tomar, Ö. K., Ulusoy, Ş., Pulathan, Z., Kaynar, K., & Özkan, G. (2016). Kronik Böbrek Yetmezliği Hastalarında Hemodiyaliz Girişi için Oluşturulan Kalıcı Damar Yollarının Açık Kalma Sürelerinin Belirlenmesi ve Bu Süreye Etkisi Olan Faktörlerin Araştırılması. International Journal of Basic and Clinical Medicine, 4(3), 144-154. Retrieved from https://dergipark.org.tr/en/pub/ijbcm/issue/26979/283578
40. Toros, F., Tot, Ş., & Düzovalı, Ö. (2002). Kronik hastalığı olan çocuklar, anne ve babalarındaki depresyon ve anksiyete düzeyleri. Klinik Psikiyatri, 5(4), 240-247. Retrieved from https://jag.journalagent.com/kpd/pdfs/KPD_5_4_240_247.pdf
41. Tuna, D., Ovayolu, N., & Kes, D. (2018). Hemodiyaliz hastalarında sık karşılaşılan problemler ve çözüm önerileri. Nefroloji Hemşireliği Dergisi, 13(1), 17-25. Retrieved from https://dergipark.org.tr/tr/download/article-file/418873
42. Vicdan, A. K., & Karabacak, B. G. (2014). The use of patient education Roy Adaptation Model haemodialysis Roy Adaptasyon Modelinin hemodiyaliz hasta eğitiminde kullanımı. Journal of Human Sciences, 11(2), 209-220. https://www.j-humansciences.com/ojs/index.php/IJHS/article/view/2729
43. Wilkie, K. J. (2014). Concerned about their learning: mathematics students with chronic illness and their teachers at school. International journal of inclusive education, 18(2), 155-176. https://doi.org/10.1080/13603116.2012.760659.
44. Wolfe, R. A., Ashby, V. B., Milford, E. L., Ojo, A. O., Ettenger, R. E., Agodoa, L. Y., & Port, F. K. (1999). Comparison of mortality in all patients on dialysis, patients on dialysis awaiting transplantation, and recipients of a first cadaveric transplant. New England journal of medicine, 341(23), 1725-1730. https://doi.org/10.1056/NEJM199912023412303.
45. Wragg, E. C. (1994). Conducting and analysing interviewies. N. Bennett, R. Glatter, R. Levacic (Edt). Improving educational management through researcti and consultancv. The Open University: London.
46. Yıldız, T., & Karaaslan, E. (2019). Peritoneal Dialysis Application and Complications in Children. Online Turkish Journal of Health Sciences, 4(1), 105-111. https://doi.org/10.26453/otjhs.396434.