A Systematic Analysis of Transition Readiness Assessment Tools Used for Adolescents with Chronic Health Problems

Year 2024, , 891 - 902, 01.12.2024

Evrim Kızıler , Dilek Yıldız

https://doi.org/10.38108/ouhcd.1252672

Abstract

Objective: Efforts to ensure an effective and smooth transition from pediatric care to adult services are increasing worldwide. However the World Health Organization (WHO) reports that the transition policies and practices are still not at the desired level. For an effective transition, it’s recommended that adolescents' transition readiness be evaluated throughout the transition period. This study was conducted to examine the transition readiness assessment tools used for adolescents with chronic health problems and to raise awareness about the transition process.
Methods: The study population was determined by searching CINAHL, Ovid aMedline, PubMed, and Google Scholar databases between June and November 2021 using the keywords "adolescent", "transition from pediatrics to adult care," and "evaluation of readiness for transition."
Results: The search resulted in, 12 assessment tools., most of which focused on adolescent disease knowledge, drug management, communication with health professionals, and self-management as criteria for transition readiness in 39 studies. Seven of these were used in all chronic diseases and five were developed for kidney diseases, sickle cell anemia, epilepsy, psychiatric diseases and AIDS.
Conclusion: Considering the strengths and weaknesses of the determined scales, it was determined that the most preferred tool was the TRAQ 5.0since it is based on a theory and can be used in all chronic diseases. However, there is still a need for tools created on the basis of a certain theory, which can be easily used in patients under the age of 16, and enable the participation of more than one stakeholder (adolescents, parents, professionals).

Keywords

Adolescent, Choronic diseases, Transition readiness, Systematic review

Kronik Sağlık Sorunları Olan Adölesanlarda Kullanılan Geçişe Hazır Oluşu Değerlendirme Araçlarının Sistematik İncelenmesi

Abstract

Amaç: Tüm dünyada kronik sağlık sorunları olan adölesanların pediatrik bakımdan erişkin servislere etkili ve sorunsuz geçiş çabaları artmakla birlikte Dünya Sağlık Örgütü (DSÖ) uygulanan geçiş politika ve uygulamalarının henüz istenilen düzeyde olmadığını bildirmektedir. Sorunsuz bir geçiş için adölesanların geçişe hazır oluş durumunun 14 yaş itibariyle sık sık değerlendirilmesi önerilmektedir. Bu çalışma, kronik sağlık sorunları olan adölesanların erişkin servislere geçişe hazır oluşunu değerlendirmede kullanılan araçların incelenmesi ve ülkemizde geçiş sürecine yönelik farkındalığın artırılması amacıyla yapılmıştır.
Yöntem: Çalışmanın evrenini Haziran-Kasım 2021 tarihleri arasında “adölesan", “pediatriden erişkin bakıma geçiş” ve "geçişe hazır oluşu değerlendirme” anahtar kelime kullanılarak CINAHL, Ovid medline, PubMed ve Google Scholar veri tabanlarının taranması ile elde edilen çalışmalar oluşturmuştur.
Bulgular: Araştırma sonucunda dahil edilme kriterlerini karşılayan 39 çalışmada geçişe hazır oluş kriterleri olarak çoğu adolesan hastalığı bilgisi, ilaç yönetimi, sağlık profesyonelleri ile iletişim ve özyönetim üzerine odaklanan 12 değerlendirme aracı bulunmuştur. Bu araçlardan yedisi tüm kronik hastalıklarda, beşi ise böbrek hastalıkları, orak hücreli anemi, epilepsi, psikiyatrik hastalıklar ve AIDS gibi belli bir hastalık grubuna özgü geliştirilmiştir. Belirlenen ölçeklerin güçlü ve zayıf yönleri göz önüne alındığında, bir kurama dayanması ve tüm kronik hastalıklarda kullanılabilmesi nedeniyle en fazla tercih edilen aracın Geçişe Hazır Oluşu Değerlendirme Ölçeği (TRAQ 5.0) olduğu saptanmıştır.
Sonuç: Halen belli bir teori temelinde oluşturulan, 16 yaşın altındaki hastalarda rahatlıkla kullanılabilen ve birden fazla paydaşın (adölesanlar, ebeveynler, sağlık profesyonelleri) katılımını sağlayan araçlara ihtiyaç bulunmaktadır.

Keywords

Adölesan, Kronik hastalık, Geçişe hazır oluş, Sistematik derleme

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