Abstract
Amaç: Bu nitel çalışmanın amacı; tip 1 diyabetli çocukların insulin pompa deneyimlerini derinlemesine inceleyerek ortaya koymaktır.
Yöntem: Niteliksel araştırma kapsamında amaçlı örnekleme tekniği kullanılarak tip 1 Diyabetli 14 çocukta gerçekleştirilmiştir. Çalışmaya 12-14 yaşlarında insulin pompası kullananlar dahil edildi. Yarı yapılandırılmış görüşme tekniği kullanılmıştır. Bu insülin ile bireylerin görüş ve deneyimleri belirlenmiştir. Elde edilen veriler tematik analiz yöntemiyle, bilgisayar destekli nitel veri analizi MAXQDA 2022 programıyla analiz edilmiştir.
Bulgular: Bu çalışmada; ‘çocuklar için pompanın tanımı ve anlamı’, ‘çocukların insulin pompası ile deneyimleri’, ‘pompanın çocuklara hissettirdiği’, ‘pompa sonrası çocukların hayatındaki değişiklikler’ ve ‘beklentiler, hayaller ve diyabetle ilgili öneriler’ ana temaları bulunmuştur. Çocuklar için insulin pompası hayat, rahatlık, normallik, özgürlük, umut kavramları ile ilişkilendirilmiştir.
Sonuç: İnsülin pompasının çocuklar için anlamı; sürekli yanlarında taşımak zorunda oldukları, organ fonksiyonlarını yerine getirmek için bağlı oldukları bir cihazdır. İnsülin pompası olmadan yaşamın zor ve düzensiz olduğunu, pompanın günlük yaşamı kolaylaştırdığını ifade ettiler. Ayrıca pompa sayesinde günlük yaşamlarında bağımsız olduklarını ancak zaman zaman cihazda boyut, tıkanma sorunu gibi sorunlar yaşadıklarını, okulda damgalanmaya maruz kaldıklarını aktardılar.
Keywords
References
- Alsairafi ZK, Smith FJ, Taylor KMG, Alsaleh F, Alattar AT. (2018). A qualitative study exploring patients’ experiences regarding insulin pump use. Saudi Pharmaceutical Journal, 26(4), 487-495.
- Alsaleh FM, Smith FJ, Thompson R, Al-Saleh MA, Taylor KM. (2014). Insulin pump therapy: impact on the lives of children/young people with diabetes mellitus and their parents. International journal of clinical pharmacy, 36, 1023-1030.
- Alsaleh FM, Smith FJ, Taylor KM. (2012). Experiences of children/young people and their parents, using insulin pump therapy for the management of type 1 diabetes: qualitative review. Journal of clinical pharmacy and therapeutics, 37(2), 140-147.
- Altundağ S. (2018). The effect of education and social support on the adjustment of children with type 1 diabetes. Pamukkale Medical Journal, 11(2),137-144. doi:10.5505/ptd.2017.90958
- Buğrul F, Yuca SA, Şen Y, Cimbek EA. (2016). Tip 1 diabetes mellitus tanılı olguda insülin pompası kullanımı. Türkiye Klinikleri Journal of Case Reports, 24(2), 60-62.
- de Wit M, Trief PM, Huber JW, Willaing I. (2020). State of the art: understanding and integration of the social context in diabetes care. Diabetic Medicine, 37(3), 473-482. https://doi.org/10.1111/dme.14226
- Doğan Y. (2007). İlköğretim çağındaki 10-14 yaş grubu öğrencilerinin gelişim özellikleri. Uludağ Üniversitesi Fen-Edebiyat Fakültesi Sosyal Bilimler Dergisi, 8(13), 155-187.
- International Diabetes Federation (IDF). Diabetes Atlas: 10nd ed. 2021. Erişim Adresi: https://diabetesatlas. org
- Grose DN, O'Brien CL, Bongetti EK, Corcoran HM, Loh MM, Ward GM, Castle DJ. (2018). Living with type 1 diabetes and an insulin pump: a qualitative insight. Practical diabetes, 35(5), 171-177a.
- Grose DN, O'Brien CL, Castle DJ. (2017). Type 1 diabetes and an insulin pump: an iterative review of qualitative literature. Practical Diabetes, 34(8), 281-287c.
- Hood DG, Duke G. (2015). The nature and meaning of insulin pump use in emerging adults with type 1 diabetes. Diabetes Spectrum, 28(2), 75-81.
- Katsarou A, Gudbjörnsdottir S, Rawshani A, Dabelea D, Bonifacio E, Anderson BJ, Jacobsen LM, Schatz D, Lernmark Å. (2017). Type 1 diabetes mellitus. Nature reviews Disease primers, 3(1), 1-17. doi: 10.1038/nrdp.2017.16.
- Low KG, Massa L, Lehman D, Olshan JS. (2005). Insulin pump use in young adolescents with type 1 diabetes: a descriptive study. Pediatric Diabetes, 6, 22-31.https://doi.org/10.1111/j.1399-543X.2005. 00089.x.
- Szypowska A, Schwandt A, Svensson J, Shalitin S, Cardona-Hernandez R, Forsander G, ve ark. (2016). Insulin pump therapy in children with type 1 diabetes: analysis of data from the SWEET registry. Pediatr Diabetes, 17 (23), 38–45. https://doi.org/10.1111/ pedi.12416
- Tekindal M, Attepe Özden S, Gedik TE, Ege A, Erim F, Tekindal MA. (2021). Standards for reporting qualitative research: Turkish version of the SRQR Checklist. OPUS – International Journal of Society Studies, 18(42), 5425-5443. https://doi.org/10.26466/ opus.882177
- Tekindal M, Uğuz Arsu Ş. (2020). A review of the scope and process of the phenomenological approach as a qualitative research method. Journal of Beyond the Horizon Science, 20 (1), 153- 182.
- Tosun Ö, Kadiroğlu T. (2016). Model use in solving ınsulin pump compliance problems of adolescents with type 1 diabetes mellitus: Roy adaptation model. Journal of Health Sciences, 25 (3), 165-169.
- Yeşilkaya E, Cinaz P, Andıran N, Bideci A, Hatun Ş, Sarı E, ve ark. (2017). First report on the nationwide incidence and prevalence of Type 1 diabetes among children in Turkey. Diabetic Medicine, 34(3), 405-10. https://doi.org/10.1111/dme.13063
Abstract
Objective: The purpose of this qualitative study is to reveal the insulin pump experiences of children with Type 1 Diabetes by examining them in depth.
Methods: Within qualitative research, using the technique of purposive sampling in 14 children with Type 1 Diabetes. Use of an insulin pump at the age of 12-14 was included in the study. Interview technology was used with semi-interviews. The views and lives that can be achieved with this technique have been determined. The obtained data thematic analysis method, computer-aided qualitative data analysis MAXQDA 2022 were analyzed by the program.
Results: In this study; the main themes were 'the definition and meaning of the pump for children', 'children's experiences with the insulin pump', 'what the pump makes children feel', 'changes in children's lives after the pump' and 'expectations, dreams and suggestions about diabetes'. For children, the insulin pump is associated with the concepts of life, comfort, normality, freedom and hope.
Conclusions: What the insulin pump means for children: It is a device that they have to carry with them at all times and depend on to perform their organ functions. They stated that life was difficult and irregular without an insulin pump, and that the pump made daily life easier. They also stated that thanks to the pump, they became independent in their daily lives, but from time to time they experienced problems such as size and clogging problems with the device, and that they were subjected to stigmatization at school.
References
- Alsairafi ZK, Smith FJ, Taylor KMG, Alsaleh F, Alattar AT. (2018). A qualitative study exploring patients’ experiences regarding insulin pump use. Saudi Pharmaceutical Journal, 26(4), 487-495.
- Alsaleh FM, Smith FJ, Thompson R, Al-Saleh MA, Taylor KM. (2014). Insulin pump therapy: impact on the lives of children/young people with diabetes mellitus and their parents. International journal of clinical pharmacy, 36, 1023-1030.
- Alsaleh FM, Smith FJ, Taylor KM. (2012). Experiences of children/young people and their parents, using insulin pump therapy for the management of type 1 diabetes: qualitative review. Journal of clinical pharmacy and therapeutics, 37(2), 140-147.
- Altundağ S. (2018). The effect of education and social support on the adjustment of children with type 1 diabetes. Pamukkale Medical Journal, 11(2),137-144. doi:10.5505/ptd.2017.90958
- Buğrul F, Yuca SA, Şen Y, Cimbek EA. (2016). Tip 1 diabetes mellitus tanılı olguda insülin pompası kullanımı. Türkiye Klinikleri Journal of Case Reports, 24(2), 60-62.
- de Wit M, Trief PM, Huber JW, Willaing I. (2020). State of the art: understanding and integration of the social context in diabetes care. Diabetic Medicine, 37(3), 473-482. https://doi.org/10.1111/dme.14226
- Doğan Y. (2007). İlköğretim çağındaki 10-14 yaş grubu öğrencilerinin gelişim özellikleri. Uludağ Üniversitesi Fen-Edebiyat Fakültesi Sosyal Bilimler Dergisi, 8(13), 155-187.
- International Diabetes Federation (IDF). Diabetes Atlas: 10nd ed. 2021. Erişim Adresi: https://diabetesatlas. org
- Grose DN, O'Brien CL, Bongetti EK, Corcoran HM, Loh MM, Ward GM, Castle DJ. (2018). Living with type 1 diabetes and an insulin pump: a qualitative insight. Practical diabetes, 35(5), 171-177a.
- Grose DN, O'Brien CL, Castle DJ. (2017). Type 1 diabetes and an insulin pump: an iterative review of qualitative literature. Practical Diabetes, 34(8), 281-287c.
- Hood DG, Duke G. (2015). The nature and meaning of insulin pump use in emerging adults with type 1 diabetes. Diabetes Spectrum, 28(2), 75-81.
- Katsarou A, Gudbjörnsdottir S, Rawshani A, Dabelea D, Bonifacio E, Anderson BJ, Jacobsen LM, Schatz D, Lernmark Å. (2017). Type 1 diabetes mellitus. Nature reviews Disease primers, 3(1), 1-17. doi: 10.1038/nrdp.2017.16.
- Low KG, Massa L, Lehman D, Olshan JS. (2005). Insulin pump use in young adolescents with type 1 diabetes: a descriptive study. Pediatric Diabetes, 6, 22-31.https://doi.org/10.1111/j.1399-543X.2005. 00089.x.
- Szypowska A, Schwandt A, Svensson J, Shalitin S, Cardona-Hernandez R, Forsander G, ve ark. (2016). Insulin pump therapy in children with type 1 diabetes: analysis of data from the SWEET registry. Pediatr Diabetes, 17 (23), 38–45. https://doi.org/10.1111/ pedi.12416
- Tekindal M, Attepe Özden S, Gedik TE, Ege A, Erim F, Tekindal MA. (2021). Standards for reporting qualitative research: Turkish version of the SRQR Checklist. OPUS – International Journal of Society Studies, 18(42), 5425-5443. https://doi.org/10.26466/ opus.882177
- Tekindal M, Uğuz Arsu Ş. (2020). A review of the scope and process of the phenomenological approach as a qualitative research method. Journal of Beyond the Horizon Science, 20 (1), 153- 182.
- Tosun Ö, Kadiroğlu T. (2016). Model use in solving ınsulin pump compliance problems of adolescents with type 1 diabetes mellitus: Roy adaptation model. Journal of Health Sciences, 25 (3), 165-169.
- Yeşilkaya E, Cinaz P, Andıran N, Bideci A, Hatun Ş, Sarı E, ve ark. (2017). First report on the nationwide incidence and prevalence of Type 1 diabetes among children in Turkey. Diabetic Medicine, 34(3), 405-10. https://doi.org/10.1111/dme.13063
Details
| Primary Language | English |
|---|---|
| Subjects | Internal Diseases Nursing |
| Journal Section | Araştırma |
| Authors | |
| Early Pub Date | June 4, 2024 |
| Publication Date | August 30, 2024 |
| Submission Date | September 13, 2023 |
| Published in Issue | Year 2024 |