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Juvenil İdiyopatik Artritte Hemşirelik Tanıları ve Bakım Yaklaşımları

Year 2023, Volume: 6 Issue: 1, 226 - 237, 17.04.2023

Dilek Yıldız

https://doi.org/10.38108/ouhcd.935614

Abstract

Juvenil idiyopatik artrit en sık görülen kronik pediatrik hastalıklardandır. Tedavi, immünosüpresan, steroidal olmayan anti-enflamatuvar ilaç ve biyolojik tedavileri içermektedir. Çocukları ve aileleri olumsuz etkileyen, psikososyal, fiziksel ve spiritüel sorunlara yol açan bu hastalığın hemşirelik bakımında semptomların yönetimi ve holistik yaklaşımın önemli bir yeri vardır. Çalışmanın amacı, juvenil idiyopatik artrit tanısı alan çocuklarda uygulanması gereken hemşirelik bakımının Kuzey Amerika Hemşirelik Tanıları Birliği tanıları ile ele alınmasıdır. Bu makalede juvenil idiyopatik artrit tanısı olan çocuklara yönelik, belirlenmiş sekiz hemşirelik tanısı için beklenen hasta sonuçları, planlanan girişimler belirlenmiş ve sonuç olarak juvenil idiyopatik artrite yönelik bütüncül bir hemşirelik bakımı sunulmasını sağlamak hedeflenmiştir.

Keywords

Juvenil idiyopatik artrit romatoloji hemşirelik hemşirelik tanıları

Supporting Institution

Destekleyen kurum bulunmamaktadır

References

  • Akay A. (2005). Juvenil idiopatik artritli çocuklarda psikososyal özellikler. DEÜ Tıp Fakültesi Dergisi, 19, 121-126.
  • April KT, Feldman DE, Zunzunegui MV, Descarreaux M, Malleso P, Duffy CM. (2009). Longitudinal analysis of complementary and alternative health care use in children with Juvenile idiopathic arthritis. Complimentary Therapies in Women, 17, 208-215. https://doi.org/10.1016/j.ctim.2009.03.003
  • Arthritis Foundation. (2022). Living with juvenile arthritis. Erişim Tarihi: 12.4.2022, https://www.arthritis.org/health-wellness/healthy-living/nutrition/healthy-eating/healthy-eating-for-juvenile-arthritis
  • Ball JW, Bindler RC, Cowen KJ. (2014). Child health nursing, partnering with children and families. 3rd Edition, Pearson, p. 888-892.
  • Bilginer Y. (2019). Juvenil idiopatik artrit. Türkiye Çocuk Hastalıkları Dergisi, 13, 221. https://doi.org/10.12956/tchd.603315
  • Cousino MK, Hazen RA. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of Pediatric Psychology, 38, 809-828. https://doi.org/10.1093/jpepsy/jst049
  • Çavuşoğlu H. (2019). Kronik hastalığı olan çocuk. Çocuk Sağlığı Hemşireliği, 13. Baskı, Ankara, Sistem Ofset Matbaacılık, s.113-128.
  • Daltroy LH. (1992). Psychosocial adjustment in juvenil arthritis. Journal of Pediatric Psychology, 17, 277-289. https://doi.org/10.1093/jpepsy/17.3.277
  • David J. (1994). The functional and psychological outcomes of juvenile chronic arthritis in young adulthood. The British Journal of Rheumatology, 33, 876-881. https://doi.org/10.1093/rheumatology /33.9. 876
  • Denham SA, Looman WS. (2010). Families with chronic illness. Editors: Kaakinen Gedaley-Duff V, Cohelo DP, Hanson SMH. Family health care nursing: Theory, practice and research. 4th edition, Philadelphia PA: FA Davis Company, p.235-272.
  • Ergin D, Turan T, Çetinkaya B. (2013). Çocuklarda bağ doku hastalıkları ve hemşirelik bakımı, Editörler: Conk Z, Başbakkal Z., Bal Yılmaz H, Bolışık B, Pediatri Hemşireliği, I. Baskı, Akademisyen Kitabevi, s.565-580.
  • Fidanci BE, Demirkaya E, Acikel C, Fidanci K, Karaman D, Yildiz D, Konukbay D, Polat A, Basbozkurt G, Topaloglu R, Cimaz R, Ravelli A, Ozen S. (2014). The invisible part of the iceberg: qualitative aspects of childhood vasculitis. Clinical and Experimental Rheumatology, 32, 122-127.
  • Gerhardt CA, Vannatta K, McKellop JM, Zeller M, Taylor J, Passo M, et al. (2003). Comparing parental distress, family functioning, and the role of social support for caregivers with and without a child with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 28, 5-15. https://doi.org/10.1093/jpepsy /28.1.5
  • Giancane G, Consolaro A, Lanni S, Davi S, Schiappapietra B, Ravelli A. (2016). Juvenile idiopathic arthritis: Diagnosis and treatment. Rheumatol Ther. 3, 187–207. https://doi.org/10.1007 /s40744-016-0040-4
  • Giancanea G, Rupertoa N. (2019). Treatment of juvenile idiopathic arthritis: what’s new?. Current Opinion in Rheumatology, 31, 428-435. https://doi.org/10.1097/ BOR.0000000000000632.
  • Goldzweig, O, Hashkes, PJ. (2011). Abatacept in the treatment of polyarticular JIA: Development, clinical utility, and place in therapy. Drug Design, Development and Therapy, 5, 61-70. https://doi.org/10.2147/DDDT.S16489
  • Hartley B, Fuller CC. (1997). Juvenile arthritis: a nursing perspective. Journal of Pediatric Nursing, 12, 100-109. https://doi.org/10.1016/S0882-5963(97)80030-9
  • Horneff G. (2013). Update on biologicals for treatment of juvenile idiopathic arthritis. Expert Opinion: Biologic Therapies, 13, 361-376. https://doi.org/10.1517/ 14712598.2013.735657
  • Huygen ACJ, Kuis W, Sinnema G. (2000). Psychological, behavioural, and social adjustment in children and adolescents with juvenile chronic arthritis. Annals of the Rheumatic Disease, 59, 276–82. https://doi.org/10.1136/ard.59.4.276
  • Kasapçopur Ö, Arısoy N. (2011). Ergenlik çağında bağ dokusu hastalıkları. Türk Pediatri Arşivi, 46, 118-127. https://doi.org/10.4274/tpa.46.51
  • Lee YC. (2013). Effect and treatment of chronic pain in infl ammatory arthritis. Current Rheumatology Reports, 15, 300. https://doi.org/10.1007/s11926-012-0300-4
  • McKeever A, Kelly MM. (2015). Growing up with Juvenile Idiopathic arthritis. MCN, 40, 8-15. https://doi.org/10.1097/NMC.0000000000000096.
  • Merkes M. (2010). Mindfulness-based stress reduction for people with chronic diseases. Australian Journal of Primary Health, 16, 200-210. https://doi.org/ 10.1071/PY09063
  • Özen S, Karaaslan Y, Ozdemir O, Saatci U, Bakkaloglu A, Koroglu E, Tezcan S. (1998). Prevalence of JIA and familial mediterranean fever in Turkey: A field study. J Rheumatol, 25, 2445-244
  • Petty RE, Laxer RM, Lucy R, Wedderburn LR. (2016). Juvenile Idiopathic Arthritis. In: Petty RE, Laxer RM, Lindsey CB, Wedderburn LR (eds). Textbook of Pediatric Rheumatology (7th ed). Philadelphia: Elsevier, 188-204.
  • Phelps LL, Ralph SS, Taylor CM. (2019). Çocuk sağlığı (Kısım III), Çeviri editörleri: Karahan A., Kav S. Sparks&Taylor’ın Hemşirelik tanı referans el kitabı, 10. Baskı, Güneş Tıp Kitapevleri, s.437-519.
  • Prakken B, Albani S, Martini A. (2011). Juvenile idiopathic arthritis. The Lancet, 377, 2138-2149. https://doi.org/10.1016/S0140-6736(11)60244-4
  • Rangel L. Garralda ME, Hall A, Woodham S. (2003). Psychiatric adjustment in chronic fatigue syndrome of childhood and in juvenile idiopathic arthritis. Psychological Medicine, 33, 289-297. https://doi.org/ 10.1017/s0033291702006529
  • Ravelli A. (2019). Management of patients with juvenile idiopathic arthritis (Chapter 7), Handbook of juvenile ıdiopathic arthritis, Springer International Publishing Switzerland, 87-115. https://doi.org/10.1007/978-3-319-08102-1_7
  • Ricci SS, Kyle T, Carman S. (2017). Nursing care of the child with an alteration in immunity or immunologic disorder-juvenile idiopathic arthritis. Editors: Ricci SS, Kyle T, Carman S. Maternity and pediatric nursing, 3rd edition, Philadelphia: Wolter Kluwer. p.1863-1864.
  • Rigante D, Bosco A, Esposito S. (2015). The etiology of juvenile idiopathic arthritis. Clinical Reviews Allergy & Immunology, 49, 253-261. https://doi.org/ 10.1007/s12016-014-8460-9
  • Thierry S, Fautrel B, Lemelle I, Guillemin F. (2014). Prevalence and incidence of juvenile idiopathic arthritis: A systematic review. Joint Bone Spine, 81, 112-117. https://doi.org/10.1016/j.jbspin.2013.09.003
  • Thon, A, Ullrich, G (2008). Information needs in parents of children with a rheumatic disease. Child: Care, Health and Development 35, 41–47. https://doi.org// 10.1111/j.1365-2214.2008.00870.x
  • Torres-Made MD, Ballestas IP, Rodriguez FG, Trevino1 AVV, Reyna BJ, Cavazos ME, Perez NR. (2020). Development and validation of the CAREGIVERS questionnaire: multi-assessing the impact of juvenile idiopathic arthritis on caregivers. Pediatric Rheumatology, 18, 1-8. https://doi.org/10.1186/s 12969-020-0400-z
  • Tucker LB. (2000). Outcome measures in childhood rheumatic diseases. Current Rheumatology Reports, 2, 349-354. https://doi.org/10.1007/s11926-000-0074 -y
  • Wang C. (2012). Role of Tai Chi in the treatment of rheumatologic diseases. Current Rheumatology Reports, 14, 598-603. https://doi.org/10.1007/s 11926-012-0294-y.
  • Ward L, Stebbings S, Cherkin D, Baxter GD. (2013). Yoga for functional ability, pain and psychosocial outcomes in musculoskeletal conditions: A systematic review and meta-analysis. Musculoskeletal Care, 11, 203-217. https://doi.org/10.1002/msc.1042
  • Yuwen W, Lewis FM. Walker AJ, Ward TM. (2017). Struggling in the dark to help my child: parents' experience in caring for a young child with juvenile idiopathic arthritis. Journal of Pediatric Nursing, 37, e23-e29. https://doi.org/10.1016/j.pedn.2017.07.007

Nursing Diagnosis and Care Approaches In Juvenile Idiopathic Arthritis

Year 2023, Volume: 6 Issue: 1, 226 - 237, 17.04.2023

Dilek Yıldız

https://doi.org/10.38108/ouhcd.935614

Abstract

Juvenile idiopathic arthritis is one of the most common chronic pediatric diseases. Treatment includes immunosuppressant therapy, non-steroidal anti-inflammatory drugs, and biological therapies. Symptom management and holistic approach have an important place in the nursing care of this disorder that affects children and families and causes psychosocial, physical, and spiritual problems. The aim of the study is to address the nursing care that should be applied to children with juvenile idiopathic arthritis with the diagnoses of the North American Association of Nursing Diagnoses. In this article expected patient outcomes and planned interventions for eight specified nursing diagnoses for children with juvenile idiopathic arthritis were determined, and thus, it was aimed to provide holistic nursing care for juvenile idiopathic arthritis.

Keywords

juvenile idiopathic arthritis rheumatology nursing nursing diagnoses

References

  • Akay A. (2005). Juvenil idiopatik artritli çocuklarda psikososyal özellikler. DEÜ Tıp Fakültesi Dergisi, 19, 121-126.
  • April KT, Feldman DE, Zunzunegui MV, Descarreaux M, Malleso P, Duffy CM. (2009). Longitudinal analysis of complementary and alternative health care use in children with Juvenile idiopathic arthritis. Complimentary Therapies in Women, 17, 208-215. https://doi.org/10.1016/j.ctim.2009.03.003
  • Arthritis Foundation. (2022). Living with juvenile arthritis. Erişim Tarihi: 12.4.2022, https://www.arthritis.org/health-wellness/healthy-living/nutrition/healthy-eating/healthy-eating-for-juvenile-arthritis
  • Ball JW, Bindler RC, Cowen KJ. (2014). Child health nursing, partnering with children and families. 3rd Edition, Pearson, p. 888-892.
  • Bilginer Y. (2019). Juvenil idiopatik artrit. Türkiye Çocuk Hastalıkları Dergisi, 13, 221. https://doi.org/10.12956/tchd.603315
  • Cousino MK, Hazen RA. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of Pediatric Psychology, 38, 809-828. https://doi.org/10.1093/jpepsy/jst049
  • Çavuşoğlu H. (2019). Kronik hastalığı olan çocuk. Çocuk Sağlığı Hemşireliği, 13. Baskı, Ankara, Sistem Ofset Matbaacılık, s.113-128.
  • Daltroy LH. (1992). Psychosocial adjustment in juvenil arthritis. Journal of Pediatric Psychology, 17, 277-289. https://doi.org/10.1093/jpepsy/17.3.277
  • David J. (1994). The functional and psychological outcomes of juvenile chronic arthritis in young adulthood. The British Journal of Rheumatology, 33, 876-881. https://doi.org/10.1093/rheumatology /33.9. 876
  • Denham SA, Looman WS. (2010). Families with chronic illness. Editors: Kaakinen Gedaley-Duff V, Cohelo DP, Hanson SMH. Family health care nursing: Theory, practice and research. 4th edition, Philadelphia PA: FA Davis Company, p.235-272.
  • Ergin D, Turan T, Çetinkaya B. (2013). Çocuklarda bağ doku hastalıkları ve hemşirelik bakımı, Editörler: Conk Z, Başbakkal Z., Bal Yılmaz H, Bolışık B, Pediatri Hemşireliği, I. Baskı, Akademisyen Kitabevi, s.565-580.
  • Fidanci BE, Demirkaya E, Acikel C, Fidanci K, Karaman D, Yildiz D, Konukbay D, Polat A, Basbozkurt G, Topaloglu R, Cimaz R, Ravelli A, Ozen S. (2014). The invisible part of the iceberg: qualitative aspects of childhood vasculitis. Clinical and Experimental Rheumatology, 32, 122-127.
  • Gerhardt CA, Vannatta K, McKellop JM, Zeller M, Taylor J, Passo M, et al. (2003). Comparing parental distress, family functioning, and the role of social support for caregivers with and without a child with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 28, 5-15. https://doi.org/10.1093/jpepsy /28.1.5
  • Giancane G, Consolaro A, Lanni S, Davi S, Schiappapietra B, Ravelli A. (2016). Juvenile idiopathic arthritis: Diagnosis and treatment. Rheumatol Ther. 3, 187–207. https://doi.org/10.1007 /s40744-016-0040-4
  • Giancanea G, Rupertoa N. (2019). Treatment of juvenile idiopathic arthritis: what’s new?. Current Opinion in Rheumatology, 31, 428-435. https://doi.org/10.1097/ BOR.0000000000000632.
  • Goldzweig, O, Hashkes, PJ. (2011). Abatacept in the treatment of polyarticular JIA: Development, clinical utility, and place in therapy. Drug Design, Development and Therapy, 5, 61-70. https://doi.org/10.2147/DDDT.S16489
  • Hartley B, Fuller CC. (1997). Juvenile arthritis: a nursing perspective. Journal of Pediatric Nursing, 12, 100-109. https://doi.org/10.1016/S0882-5963(97)80030-9
  • Horneff G. (2013). Update on biologicals for treatment of juvenile idiopathic arthritis. Expert Opinion: Biologic Therapies, 13, 361-376. https://doi.org/10.1517/ 14712598.2013.735657
  • Huygen ACJ, Kuis W, Sinnema G. (2000). Psychological, behavioural, and social adjustment in children and adolescents with juvenile chronic arthritis. Annals of the Rheumatic Disease, 59, 276–82. https://doi.org/10.1136/ard.59.4.276
  • Kasapçopur Ö, Arısoy N. (2011). Ergenlik çağında bağ dokusu hastalıkları. Türk Pediatri Arşivi, 46, 118-127. https://doi.org/10.4274/tpa.46.51
  • Lee YC. (2013). Effect and treatment of chronic pain in infl ammatory arthritis. Current Rheumatology Reports, 15, 300. https://doi.org/10.1007/s11926-012-0300-4
  • McKeever A, Kelly MM. (2015). Growing up with Juvenile Idiopathic arthritis. MCN, 40, 8-15. https://doi.org/10.1097/NMC.0000000000000096.
  • Merkes M. (2010). Mindfulness-based stress reduction for people with chronic diseases. Australian Journal of Primary Health, 16, 200-210. https://doi.org/ 10.1071/PY09063
  • Özen S, Karaaslan Y, Ozdemir O, Saatci U, Bakkaloglu A, Koroglu E, Tezcan S. (1998). Prevalence of JIA and familial mediterranean fever in Turkey: A field study. J Rheumatol, 25, 2445-244
  • Petty RE, Laxer RM, Lucy R, Wedderburn LR. (2016). Juvenile Idiopathic Arthritis. In: Petty RE, Laxer RM, Lindsey CB, Wedderburn LR (eds). Textbook of Pediatric Rheumatology (7th ed). Philadelphia: Elsevier, 188-204.
  • Phelps LL, Ralph SS, Taylor CM. (2019). Çocuk sağlığı (Kısım III), Çeviri editörleri: Karahan A., Kav S. Sparks&Taylor’ın Hemşirelik tanı referans el kitabı, 10. Baskı, Güneş Tıp Kitapevleri, s.437-519.
  • Prakken B, Albani S, Martini A. (2011). Juvenile idiopathic arthritis. The Lancet, 377, 2138-2149. https://doi.org/10.1016/S0140-6736(11)60244-4
  • Rangel L. Garralda ME, Hall A, Woodham S. (2003). Psychiatric adjustment in chronic fatigue syndrome of childhood and in juvenile idiopathic arthritis. Psychological Medicine, 33, 289-297. https://doi.org/ 10.1017/s0033291702006529
  • Ravelli A. (2019). Management of patients with juvenile idiopathic arthritis (Chapter 7), Handbook of juvenile ıdiopathic arthritis, Springer International Publishing Switzerland, 87-115. https://doi.org/10.1007/978-3-319-08102-1_7
  • Ricci SS, Kyle T, Carman S. (2017). Nursing care of the child with an alteration in immunity or immunologic disorder-juvenile idiopathic arthritis. Editors: Ricci SS, Kyle T, Carman S. Maternity and pediatric nursing, 3rd edition, Philadelphia: Wolter Kluwer. p.1863-1864.
  • Rigante D, Bosco A, Esposito S. (2015). The etiology of juvenile idiopathic arthritis. Clinical Reviews Allergy & Immunology, 49, 253-261. https://doi.org/ 10.1007/s12016-014-8460-9
  • Thierry S, Fautrel B, Lemelle I, Guillemin F. (2014). Prevalence and incidence of juvenile idiopathic arthritis: A systematic review. Joint Bone Spine, 81, 112-117. https://doi.org/10.1016/j.jbspin.2013.09.003
  • Thon, A, Ullrich, G (2008). Information needs in parents of children with a rheumatic disease. Child: Care, Health and Development 35, 41–47. https://doi.org// 10.1111/j.1365-2214.2008.00870.x
  • Torres-Made MD, Ballestas IP, Rodriguez FG, Trevino1 AVV, Reyna BJ, Cavazos ME, Perez NR. (2020). Development and validation of the CAREGIVERS questionnaire: multi-assessing the impact of juvenile idiopathic arthritis on caregivers. Pediatric Rheumatology, 18, 1-8. https://doi.org/10.1186/s 12969-020-0400-z
  • Tucker LB. (2000). Outcome measures in childhood rheumatic diseases. Current Rheumatology Reports, 2, 349-354. https://doi.org/10.1007/s11926-000-0074 -y
  • Wang C. (2012). Role of Tai Chi in the treatment of rheumatologic diseases. Current Rheumatology Reports, 14, 598-603. https://doi.org/10.1007/s 11926-012-0294-y.
  • Ward L, Stebbings S, Cherkin D, Baxter GD. (2013). Yoga for functional ability, pain and psychosocial outcomes in musculoskeletal conditions: A systematic review and meta-analysis. Musculoskeletal Care, 11, 203-217. https://doi.org/10.1002/msc.1042
  • Yuwen W, Lewis FM. Walker AJ, Ward TM. (2017). Struggling in the dark to help my child: parents' experience in caring for a young child with juvenile idiopathic arthritis. Journal of Pediatric Nursing, 37, e23-e29. https://doi.org/10.1016/j.pedn.2017.07.007
There are 38 citations in total.

Details

Primary Language Turkish
Subjects Nursing
Journal Section Review
Authors

Dilek Yıldız 0000-0001-8757-4493

Early Pub Date April 17, 2023
Publication Date April 17, 2023
Submission Date May 10, 2021
Published in Issue Year 2023 Volume: 6 Issue: 1

Cite

APA Yıldız, D. (2023). Juvenil İdiyopatik Artritte Hemşirelik Tanıları ve Bakım Yaklaşımları. Ordu Üniversitesi Hemşirelik Çalışmaları Dergisi, 6(1), 226-237. https://doi.org/10.38108/ouhcd.935614
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