Kronik Hastalık Tanısıyla İzlenen Çocukların Okuldaki Gereksinimleri: Ebeveyn ve Öğretmen Perspektifinden

Year 2025, Volume: 8 Issue: 1, 184 - 195

Gizem Çakır , Naime Altay

https://doi.org/10.38108/ouhcd.1330888

Abstract

Amaç: Araştırma Türkiye’de kronik hastalığı olan ilkokul çocuklarının ebeveynlerine ve öğretmenlerine göre okuldaki gereksinimlerinin belirlenmesi amacıyla gerçekleştirilmiştir.
Yöntem: Tanımlayıcı bir araştırmadır. Araştırma, Ankara’da bulunan 10 okulda, 02.05.2018-06.06.2018 tarihleri arasında yürütülmüştür. Araştırmanın örneklemini 69 ebeveyn ve 69 öğretmen oluşturmuştur. Verilerin toplanmasında, ’Ebeveyn ve Çocuk Tanımlayıcı Bilgiler Formu’, ’Öğretmen Tanımlayıcı Bilgiler Formu’, ’Kronik Hastalığı Olan İlkokul Çocuklarının Okuldaki Gereksinimlerini Belirleme Formu’ ve ‘Okul Tanımlayıcı Bilgiler Formu’ kullanılmıştır.
Bulgular: Kronik hastalık tanısıyla izlenen çocukların ortalama tedavi süresi (yıl) 4.63 ± 2.84’tür. Ebeveynlerin %50,7'si ve öğretmenlerin %75,4'ü çocuğun kronik hastalığını okulda yönetmek için kendilerini yeterli hissetmediklerini belirtmiştir. Ebeveynler okulda kan şekeri takibi yapan tüm çocukların takip konusunda yardıma ihtiyaç duyduğunu belirtirken, öğretmenlerin %71,4'ü çocukların kan şekeri takip ihtiyaçları konusunda bilgi sahibi olmadıklarını ifade etmiştir. Öğretmenlerin %17,4'ü çocukların öğretmenleriyle sorun yaşadığını belirtirken, bu sorunu dile getiren velilerin oranı %7,2'dir.
Sonuç: Sonuç olarak, kronik hastalığı olan çocukların okuldaki gereksinimlerini belirlemede ebeveynler ve öğretmenler arasında farklılıkların olduğu görülmektedir. Okul sağlığı hizmetlerinde ebeveynler ve öğretmenler arasındaki işbirliğinin çocukların gereksinimlerinin karşılanmasını sağlayacağı düşünülmektedir.

Keywords

çocuk, kronik hastalık, ebeveyn, okul gereksinimleri, öğretmen

The Needs of Primary School Children with Chronic Disease: Parents’ and Teachers’ Perceptions

Abstract

Objective: The study was conducted in Türkiye to determine the needs of primary school children with chronic diseases as reported by their parents and teachers.
Methods: This is a descriptive study. The study was conducted in 10 schools in Ankara between 02.05.2018-06.06.2018. The study sample consisted of 69 parents and 69 teachers of children with chronic diseases. The Parent and Child Descriptive Information Form, Teacher Descriptive Information Form and Determining the Needs of the Primary School Children with Chronic Disease Form were used to collect data.
Results: Children had been treated for an average of 4.63 ± 2.84 years with a diagnosis of chronic disease. 50.7% of parents and 75.4% of teachers stated that they did not feel sufficient to manage the child's chronic disease at school. Parents stated that all children who monitored blood glucose at school needed help with monitoring, and 71.4% of teachers stated that they did not have information about the blood glucose monitoring needs of children. While 17.4% of the teachers stated that children had problems with their teachers, the rate of parents who expressed this problem was 7.2%.
Conclusions: In conclusion, differences exist between parents and teachers when identifying the needs of children with chronic diseases in a school environment. Collaboration between parents and teachers is believed to help address children's needs at school.

Keywords

child, chronic disease, parent, school needs, teacher

Thanks

We thank the members of the jury (Professor Ebru K. Toruner and Professor Deniz Tanyer) for their contributions and review of the study. We thank also the experts (Prof. Sultan Ayaz Alkaya, Prof. Filiz Hisar, Prof. Melahat Akgun Kostak, Prof. Turkan Turan, Asst. Prof. Rabiye Guney, Asst. Prof. Zubeyde Korkmaz) for providing their expert opinions and for all children, their parents, and teachers for participating in the study.

References

• Al Aloola NA, Nissen L, Alewairdhi HA, Al Faryan N, Saini B. (2017). Parents' asthma information needs and preferences for school-based asthma support. Journal of Asthma, 54(9), 946-956. https://doi.org/10.1080/02770903.2017.1281296
• American Academy of Pediatrics [AAP]. (2014). Committee on psychosocial aspects of child and family health. Access date: 12.08.2018, https://www.healthychildren.org/English/health-issues/conditions/chronic/Pages/Coping-With-Chronic-Illness.aspx
• American Academy of Pediatrics Council on School Health (AAP). (2016). Role of the school nurse in providing school health services. Pediatrics, 137, 1-8.
• American Diabetes Assosiation. (2009). Diabetes care in the school and day care setting. Diabetes Care, 32, 68-72. https://doi.org/10.2337%2Fdc10-S070
• Amillategui B, Mora E, Calle JR, Giralt P. (2009). Special needs of children with type 1 diabetes at primary school: Perceptions from parents, children, and teachers. Pediatric Diabetes, 10, 67–73. https://doi.org/10.1111/j.1399-5448.2008.00457.x
• Baker DL, Hebbeler K, Davis-Alldritt L, Anderson LS, Knauer H. (2015). School health services for children with special health care needs in California. The Journal of School Nursing, 31, 318-325. https://doi.org/10.1177/1059840515578753
• Beacham BL, Deatrick JA. (2016). Children with chronic conditions: Perspectives on condition mangement. Journal of Pediatric Nursing, 30(1), 25-35. https://doi.org/10.1016/j.pedn.2014.10.011
• Bell MF, Bayliss DM, Glauert R, Harrison A, Ohan JL. (2016). Chronic illness and developmental vulnerability at school entry. Pediatrics, 137(5), 1-9.
• Berry JG, Ash AS, Cohen E, Fareesa H, Feudtner C, Hall M. (2017). Contributions of children with multiple chronic conditions to pediatric hospitalizations in the United States: A retrospective cohort analysis. Hospital Pediatrics, 7(7), 365-372. https://doi.org/10.1542/hpeds.2016-0179
• Best NC, Nichols AO, Waller AE, Zomorodi M, Pierre-Louis B, Oppewal S, Travers D. (2012). Impact of school nurse ratios and health services on selected student health and education outcomes: North Carolina, 2011‐2016. Journal of School Health, 91(6), 473-481.
• Centers for Diseases Control and Prevention National Center for Health Statistics [CDC]. Managing Chronic Health Conditions, 2021. Access date: 25.02.2023, https://www.cdc.gov/healthyschools /chronicconditions.htm
• Davis D, Maughan ED, White KA, Slota M. (2021). School nursing for the 21st century: Assessing scope of practice in the current workforce. The Journal of School Nursing, 37(5), 374-386.
• Davis LL. (1992). Instrument review: Getting the most from a panel of experts. Applied Nursing Research, 5, 194-197.
• Forrest CB, Bevans KB, Riley AW, Crespo R, Louis TA. (2011). School outcomes of children with special health care needs. Pediatrics, 128(2), 303-312.
• He L, Zhai Y, Engelgau M, et al. (2014). Association of children’s eating behaviors with parental education, and teachers’ health awareness, attitudes and behaviors: A national school-based survey in China. Europen Journal of Public Health, 24(6), 880–887. https://doi.org/10.1093/eurpub/ckt177
• Kiliś-Pstrusińska K, Medyńska A, Adamczyk P, Bałasz-Chmielewska I, Grenda R, Kluska-Jóźwiak A, et al. (2014). Disease-related social situation in family of children with chronic kidney disease – parents` assessment. Annals of Agricultural and Environmental Medicine, 21(4), 876–881.
• Laurens KR, Green MJ, Dean K, Tzoumakis S, Harris F, Islam F, et al. (2019). Chronic physical health conditions, mental health, and sources of support in a longitudinal Australian child population cohort. Journal of Pediatric Psychology, jsz048. https://doi.org/10.1093/jpepsy/jsz048
• Lum A., Wakefield CE, Donnan B, Burns MA, Fardel JE., Marshall GM. (2017). Understanding the school experiences of children and adolescents with serious chronic illness: A systematic meta-review. Child: Care, Health and Development, 43(5), 645-662. https://doi.org/10.1111/cch.12475
• Lum A, Wakefield CE, Donnan B, Burns MA, Fardell JE, Jaffe A, Kasparian NA, Kennedy SE, Leach ST, Lemberg DA,
• Marshall GM. (2019). School students with chronic illness have unmet academic, social, and emotional school needs. Journal of School Psychology, 34(6), 627-636. https://doi.org/ 10.1037/spq000031 PMID: 31697148
• Mardiyan M, Mkrtchyan S, Shukuryan A, Chopikyan A, Dunamalyan R, Danielyan L. (2017). Peculiarities of situational and personal anxiety degree in the school children with ENT chronic diseases. Health and Quality of Life Outcomes, 15(1), 1-8. https://doi.org/10.1186/s12955-017-0741-6
• McClanahan R, Weismuller PC. (2015). School nurses and care coordination for children with complex needs: an integrative review. The Journal of School Nursing, 31(1), 34-43. https://doi.org/10.1177/ 1059840514550484
• McElfresh PB, Merck TT. (2011). Family-centered care of the child with chronic illness or disability. Hockenberry MJ, Wilson D, editors. Wong’s Nursing Care of Infants and Children. Canada: Elsevier Mosby, p. 844-57.
• Miller GF, Coffield E, Leroy Z, Wallin R. (2016). Prevelance and costs of 5 chronic conditions in children. The Journal of School Nursing, 32(5), 357-364. https://doi.org/10.1177/1059840516641190
• National Center for Health Statistics (CDC). 2023. Health, United States, 2020–2021: Annual Perspective. Hyattsville, Maryland. 2023. Access date: 25.07.2023, https://dx.doi.org/10.15620 /cdc:122044
• Nieto-Eugenio I, Ventura-Puertos PE, Rich-Ruiz M. (2020). S.O.S! My Child is at School: A Hermeneutic of the Experience of Living a Chronic Disease in the School Environment. Journal of Pediatric Nursing, 53, 171-178. https://doi.org/10.1016/j.pedn .2020.03.016
• O’Connor M, Rosema S, Quach J, Kvalsvig A, Goldfeld S. (2016). Parent and teacher perceptions of emerging special health care needs. Journal of Paediatrics and Child Health, 52(10), 950–956. https://doi.org/10.1111/jpc.13188
• Quach LL, John RM. (2018). Psychosocial of impact growing up with food allergies. The Journal of Nurse Practitoners, 14(6), 477-483. https://doi.org/10.1016/j.nurpra.2018.03.017
• Sevilla MA. (2017). Nutritional considerations in pediatric chronic disease. Pediatrics in Review, 38(8), 343-352. https://doi.org/10.1542/pir.2016-0030
• Shorey S, Ng ED. (2020). The Lived Experiences of Children and Adolescents with Non-Communicable Disease: A Systematic Review of Qualitative Studies. Journal of Pediatric Nursing,51,75-84. https://doi.org/ 10.1016/j.pedn.2019.12.013 PMID: 31926405.
• Smith FJ, Taylor KM, Newbould J, Keady S. (2008). Medicines for chronic illness at school: experiences and concerns of young people and their parents. Journal of Clinical Pharmacy and Therapeutics, 33(5), 537-44. https://doi.org/10.1111/j.1365-2710.2008.00 944.x
• Word Health Organization [WHO]. Noncommunicable Diseases. 2023. Access date: 25.02.2023, https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases