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Otizm ve Diyet Uygulamaları: Ebeveyn Deneyimlerinin İncelenmesi

Year 2025, Issue: 65, 188 - 210, 19.09.2025
https://doi.org/10.9779/pauefd.1513958

Abstract

Araştırmanın amacı, bir süre (en az altı ay) diyet yapmış ve/veya halen diyet yapmaya devam eden otizmli çocukların ebeveynlerinin diyet yapma süreci ve sonuçlarına ilişkin görüş ve deneyimlerini belirlemektir. Araştırma nitel araştırma yöntemlerinden fenomenoloji deseni ile yürütülmüştür. Çalışmaya dokuz ebeveyn katılmıştır. Veriler, fenomenoloji desenine uygun olarak katılımcıların bir fenomene ilişkin deneyimlerini anlamlandırmak amacıyla yarı yapılandırılmış görüşmeler yoluyla toplanmıştır. Ebeveynler diyet uygulamalarını otizmli çocukları için faydalı bulmuş, diyet uygulamaları ile uyku bozukluklarında ve davranış problemlerinde azalma gözlemlemiş ve diyet uygulamalarını sağlıklı bir beslenme düzeni olarak algılamışlardır. Kullanılan besinlerin maliyeti, öğünlerin planlanması ve hazırlanması, tüm aile bireylerinin diyetini değiştirmenin zorluğu ve sosyal çevrenin tepkileri gibi zorluklarla karşılaşmışlardır. Ebeveynlerin otizmli çocuklarla diyet gibi alternatif uygulamalara yer verdikleri ancak eğitimi tüm uygulamaların üzerinde tuttukları tespit edilmiştir. Araştırma bulguları otizmli çocuğu olan ebeveynlerin bilimsel dayanağı olmadığını bilmelerine rağmen diyet uygulamalarına devam ettiklerini göstermektedir. Buna dayalı olarak bilimsel dayanıklı uygulamalara ilişkin ebeveynlerin bilgi gereksinimlerinin devam ettiği düşünülmektedir. Ayrıca araştırma sonuçları diyet uygulamaların fizyolojik ve davranışsal etkilerini incelemeyi amaçlayan araştırmalara duyulan gereksinimi vurgulamaktadır

Ethical Statement

Bu araştırma, Anadolu Üniversitesi Bilimsel Araştırma ve Yayın Etiği Sosyal ve Beşeri Bilimler kurulunun 25/03/2022 tarihli 271262 sayılı kararı ile alınan izinle yürütülmüştür.

References

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Autism and Dietary Practices: A Study on Parents' Experiences

Year 2025, Issue: 65, 188 - 210, 19.09.2025
https://doi.org/10.9779/pauefd.1513958

Abstract

The aim of the study is to reveal the perspectives and experiences of parents of children with autism who have been on a diet for a period of time (at least six months) and/or are still on a diet regarding the dieting process and its results. The study was conducted with phenomenology design, one of the qualitative research methods. Nine parents participated in the study. Data were collected through semi-structured interviews in order to make sense of the participants' experiences of a phenomenon in accordance with the phenomenology design. The parents found dietary practices beneficial for their children with autism, observed a decrease in sleep disorders and behavioral problems with dietary practices, and perceived dietary practices as a healthy eating pattern. They encountered challenges such as the cost of the foods used, planning and preparation of meals, the difficulty of changing the diet of all family members, and the reactions of the social environment. It was found that parents included alternative practices such as diet with children with autism but prioritized education above all practices. The findings of the study show that parents with children with autism continue dietary practices even though they know that they have no scientific basis. Based on this, it is thought that parents continue to need information about scientifically sound practices. In addition, the results of the study emphasize the need for studies aiming to examine the physiological and behavioral effects of dietary practices.

Ethical Statement

This research was conducted with the permission of Anadolu University Scientific Research and Publication Ethics Social Sciences and Humanities Committee with the decision dated 25/03/2022 and numbered E-271262.

References

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  • Alamri, E. S. (2020). Efficacy of gluten- and casein-free diets on autism spectrum disorders in children. Saudi Medical Journal, 41(10), 1041-1046. https://doi.org/10.15537/smj.2020.10.25308
  • Anwar, M. S., Tahir, M., Nusrat, K., & Khan, M. Z. U. (2018). Knowledge, awareness, and perceptions regarding autism among parents in Karachi, Pakistan. Cureus. https://doi.org/10.7759/cureus.3299
  • Baspinar, B., & Yardimci, H. (2020). Gluten-free casein-free diet for autism spectrum disorders: Can it be effective in solving behavioural and gastrointestinal problems? The Eurasian Journal of Medicine, 52(3), 292-297. https://doi.org/10.5152/eurasianjmed.2020.19230
  • Batarseh, H., AbuMweis, S., Almakanin, H. A., & Anderson, C. (2022). Gluten-free and casein-free diet for children with autism spectrum disorder: A systematic review. Advances in Neurodevelopmental Disorders, 6(3), 280-289. https://doi.org/10.1007/s41252-022-00268-4
  • Bonis, S. (2016). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153-163. https://doi.org/10.3109/01612840.2015.1116030
  • Bradley, L., Noble, N., & Hendricks, B. (2022). DSM-5-TR: Salient changes. The Family Journal, 30(1), 5-10. https://doi.org/10.1177/10664807221123558
  • Breaks, A., Bloch, S., & Smith, C. (2022). Determinants in parents' decision to use blended diets with gastrostomy-fed children and young people: A mixed methods study. Clinical Nutrition ESPEN, 51, 288-294. https://doi.org/10.1016/j.clnesp.2022.08.013
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  • Creswell, J. W., Hanson, W. E., Clark Plano, V. L., & Morales, A. (2007). Qualitative research designs: Selection and implementation. The Counseling Psychologist, 35(2), 236-264.
  • Darvill, L., McCaughey, E., & Wootton, S. (2010). Quality of diet and eating behaviours in children with autism. Proceedings of the Nutrition Society, 69(OCE1), 89-104. https://doi.org/10.1017/s0029665109991911
  • Dosman, C., Adams, D., Wudel, B., Vogels, L., Turner, J., & Vohra, S. (2013). Complementary, holistic, and integrative medicine: Autism spectrum disorder and gluten- and casein-free diet. Pediatrics in Review, 34(10), e36-e41. https://doi.org/10.1542/pir.34-10-e36
  • Demir, A. C., & Ozcan, O. (2022). The nutritional behavior of children with autism spectrum disorder, parental feeding styles, and anthropometric measurements. Nordic Journal of Psychiatry, 76(1), 64-70. https://doi.org/10.1080/08039488.2021.1934109
  • Doenyas, C. (2018). Dietary interventions for autism spectrum disorder: New perspectives from the gut-brain axis. Physiology & Behavior, 194(13), 577-582. https://doi.org/10.1016/j.physbeh.2018.07.014
  • Dukes, S. (1984). Phenomenological methodology in the human sciences. Journal of Religion and Health, 23(3), 197-203. https://doi.org/10.1007/BF00990785
  • Eaton, R. J. (2019). Caregivers' perceptions of diet intervention for children with autism spectrum disorder (Publication No. 13885019) [Master’s thesis, D'Youville College]. ProQuest Dissertations and Theses Global.
  • Elder, J. H. (2008). The gluten‐free, casein‐free diet in autism: An overview with clinical implications. Nutrition in Clinical Practice, 23(6), 583-588. https://doi.org/10.1177/0884533608326061
  • Elder, J. H., Brasher, S., & Alexander, B. (2016). Identifying the barriers to early diagnosis and treatment in underserved individuals with autism spectrum disorders (ASD) and their families: A qualitative study. Issues in Mental Health Nursing, 37(6), 412-420. https://doi.org/10.3109/01612840.2016.1153174
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There are 67 citations in total.

Details

Primary Language Turkish
Subjects Education for Autistic Children, Special Education and Disability (Other)
Journal Section Articles
Authors

Erkan Kurnaz 0000-0001-8905-8011

Hilal Atlar Yıldırım 0000-0001-7272-1462

Tezcan Çavuşoğlu 0000-0002-2225-6651

Bora Görgün 0000-0002-9080-5667

Early Pub Date September 15, 2025
Publication Date September 19, 2025
Submission Date July 10, 2024
Acceptance Date July 28, 2025
Published in Issue Year 2025 Issue: 65

Cite

APA Kurnaz, E., Atlar Yıldırım, H., Çavuşoğlu, T., Görgün, B. (2025). Otizm ve Diyet Uygulamaları: Ebeveyn Deneyimlerinin İncelenmesi. Pamukkale Üniversitesi Eğitim Fakültesi Dergisi(65), 188-210. https://doi.org/10.9779/pauefd.1513958