Childhood Cancers and Health Literacy

Yıl 2018, Cilt: 16 Sayı: 3, 117 - 132, 03.12.2018

Leyla Muslu , Rahşan Kolutek

Öz

The purpose of this review is to discuss the level and importance of health literacy for children and their parents with childhood cancers, based on current literature. Childhood cancers, nowadays defined as chronic diseases, are diseases that have difficulties for both these children and their parents. The health literacy level of these children and their parents has a special precaution in the processes related to these diseases. In the introductory part of the review, health literacy and childhood  cancers are discussed, explaining why this group's level of health literacy is important. Then the scales used to measure the level of health literacy are evaluated. In addition, scales that can be used to assess the level of health literacy of this group are particularly noted. Finally, there are recommendations for raising health literacy levels of children and their parents with childhood cancers.

Anahtar Kelimeler

Childhood, Cancers, Health Literacy

Çocukluk Çağı Kanserleri ve Sağlık Okuryazarlığı

Öz

Bu
derlemenin amacı, çocukluk çağı kanserleri olan çocukların ve ebeveynlerinin
sağlık okuryazarlığı düzeyi ve önemini güncel literatüre dayanarak
tartışmaktır. Günümüzde kronik hastalıklar olarak tanımlanan çocukluk çağı
kanserleri, hem bu çocuklar ve hem de ebeveynleri için zor süreçleri olan
hastalıklardır. Bu çocuklar ve ebeveynlerinin sağlık okuryazarlığı düzeyi, bu
hastalıklarla ilgili süreçlerde özel bir öneme sahiptir. Derlemenin giriş
bölümünde, sağlık okuryazarlığı ve çocukluk çağı kanserleri ele alınarak, bu
grubun sağlık okuryazarlığı düzeyinin neden önemli olduğu açıklanmaktadır.
Ardından sağlık okuryazarlığı düzeyini ölçmek için kullanılan ölçekler
değerlendirilmektedir. Ayrıca, özellikle bu grubun sağlık okuryazarlığı düzeyinin
değerlendirilmesi için kullanılabilecek ölçekler gözden geçirilmektedir. Son
olarak, çocukluk çağı kanserleri olan çocukların ve ebeveynlerinin sağlık
okuryazarlığı düzeylerinin yükseltilmesi için önerilere yer verilmektedir.

Anahtar Kelimeler

Çocukluk Çağı, Kanserler, Sağlık Okuryazarlığı

Kaynakça

• 1. WHO [World Health Organization]. International Childhood Cancer Day: Questions & Answers. [cited 2018 February 22]. Available from: http://www.who.int/cancer/ media/news/ Childhood _cancer_day/en/
• 2. Childhood Cancer International [CCI]. Childhood cancer facts [cited 2018 February 01]. Available from: http://childhoodcancerinternational.org/
• 3. National cancer Institue [NIH] [Internet]. Childhood cancers [cited 2018 February 22]. Available from:https://www.cancer.gov/types/childhood-cancers.
• 4. Nair M, Paul LT, Latha PT, Parukkutty K. Parents' knowledge and attitude regarding their child's cancer and effectiveness of initial disease counseling in pediatric oncology patients. Indian Journal of Palliative Care 2017; 23: 393-398. doi:10.4103/IJPC.IJPC_83_17
• 5. Simonds SK. Health education as social policy. Health Education Monograph 1974;2:1-25
• 6. Berens E, Vogt D, Messer M, Hurrelmann K, Schaeffer D. Health literacy among different age groups in Germany: results of a cross-sectional survey. BMC Public Health 2016; 16:1151. doi:10.1186/s12889-016-3810-6
• 7. Carden MA, Newlin J, Smith W, Sisler I. Health literacy and disease-specific knowledge of caregivers for children with sickle cell disease. Pediatric Hematology & Oncology 2016; 33: 121-133. doi:10.3109/08880018.2016.1147108
• 8. Morrison A, Morrison AK, Brousseau DC, Schapira MM, Hoffmann RG. Measuring health literacy in caregivers of children: a comparison of the newest vital sign and s-tofhla. Clinical Pediatrics 2014; 53: 1264-1270.
• 9. Weiss BD. Removing barriers to better, safer care Health literacy and patient safety: Help patients understand. 2nd ed. MD. Chicago: American Medical Association Foundation; 2012.
• 10. Rothman RL, Yin HS, Mulvaney S, Co JP, Homer C, Lannon C. Health literacy and quality: focus on chronic illness care and patient safety. Pediatrics 2009;124: S315–S326.
• 11.Nielson-Bohlman L, Panzer A, Kindig D, (eds.) Health Literacy: A prescription to end confusion. Washington DC: Institute of Medicine, National Academies Press; 2004.
• 12. Baker DW. The meaning and the measure of health literacy. J Gen Intern Med. 2006; 21: 878 - 883.
• 13. Schonlau M, Martin L, Haas A, Derose KP, Rud R. Patient’s literacys kills: more than just reading ability. Journal of Health Communication 2011; 16: 1046-1054.
• 14.Kutner M, Greenberg E, Jin Y, Paulsen C. The HealthLiteracy of America’s Adults: Results From the 2003 National Assessment of Adult Literacy (NCES 2006–483). U.S. Department of Education. Washington DC: National Center for Education Statistics; 2006.
• 15. WHO [World Health Organization]. Health literacy The solid facts in: Kickbusch I, Pelikan JM, Apfel F, Agis D (eds:). UN City: Marmorvej DK-2100 Copenhagen Denmark: WHO Regional Office for Europe; 2013.
• 16. Okyay P, Abacıgil F. Türkiye sağlık okuryazarlığı ölçeklerinin geçerlik ve güvenirlik çalışması, Sağlık Bakanlığı Yayın No: 1025. Ankara: Anıl Reklam Matbaa, Ltd. Şti.; 2016.
• 17.Koay K, Schofield P, Jefford M. Importance of health literacy in oncology. Asia-Pacific Journal of Clinical Oncology 2012; 8: 14-23. doi:10.1111/j.1743-7563.2012.01522.x
• 18.Nutbeam D. The evolving concept of health literacy. Social Science & Medicine 2008;67: 2072-2078. doi:10.1016/j.socscimed.2008.09.050
• 19. Sansom-Daly UM, Lin M, Robertson EG, Wakefield CE, McGill BC, Girgis A, et al. Health literacy in adolescents and young adults: an updated review. Journal of Adolescent & Young Adult Oncology 2016; 5: 106-118. doi:10.1089/jayao.2015.0059
• 20.Halverson JL, Martinez-Donate AP, Palta M, Leal T, Lubner S, Walsh MC, et al. Health literacy and health-related quality of life among a population-based sample of cancer patients. J Health Commun.2015;20: 1320–9.
• 21.Bahadır A, Kurucu N. Kanserli çocukların annelerinde psiko-sosyal durumunun değerlendirilmesi. F.Ü. Sağ. Bil. Tıp Derg. 2015; 29: 131-134
• 22.Reisi-Dehkordi N, Baratian H, Zargham-Boroujeni A. Challenges of children with cancer and their mothers: A qualitative research. Iranian Journal of Nursing & MidwiferyResearch 2014; 19: 334-339.
• 23.Kim M, Yi J. Life after cancer: How does public stigma increase psychological distress of childhood cancer survivors? International Journal of Nursing Studies 2014;51: 1605-1614.
• 24. DeWalt DA, Hink A. Health literacy and child health outcomes: a systematic review of the literature. Pediatrics 2009;124: S265–S274.
• 25. Abrams MA, Klass P, Dreyer BP. Health literacy and children: introduction. Pediatrics 2009;124: 262 - 264.
• 26. Sanders LM, Federico S, Klass P, Abrams MA, Dreyer B. Literacy and child health: a systematic review. Arch Pediatr Adolesc Med. 2009; 163:131–40.
• 27. Yin HS, Johnson M, Mendelsohn AL, Abrams MA, Sanders LM, Dreyer BP. The health literacy of parents in the United States: a nationally representative study. Pediatrics 2009;124: S289–S298.
• 28. Nagler RH, Puleo E, Sprunck-Harrild K, Viswanath K, Emmons KM. Health media use among childhood and young adult cancer survivors who smoke. Supportive Care in Cancer 2014; 9:2497. doi:10.1007/s00520-014-2236-x
• 29. Sheridan SL, Halpern DJ, Viera AJ, Berkman ND, Donahue KE, Crotty K. Interventions for individuals with low health literacy: a systematic review. Journal of Health Communication: International Perspectives 2011;16: 30-54. doi:10.1080/10810730.2011.604391
• 30. Hassan K, Heptulla RA. Glycemic control in pediatric type 1 diabetes: role of caregiver literacy. Pediatrics 2010; 125:1104 - 8.
• 31. Freedman R, Jones S, Lin A, Robin A, Muir K. Influence of parental health literacy and dosing responsibility on pediatric glaucoma medication adherence. Arch Ophthalmol. 2008; 28:4439–48.
• 32. Keim-Malpass J, Letzkus LC, Kennedy C. Parent/caregiver health literacy among children with special health care needs: a systematic review of the literature. BMC Pediatrics 2015.doi:10.1186/s12887-015-0412-x
• 33. Morrison AK, Myrvik MP, Brousseau DC, Hoffmann RG, Stanley RM. The relationship between parent health literacy and pediatric emergency department utilization: a systematic review. Academic Pediatrics 2013;13: 421-429.
• 34. Maniaci MJ, Heckman MG, Dawson NL. Functional health literacy and understanding of medications at discharge. Mayo Clinic Proceedings 2008; 83: 554-558. doi:10.4065/83.5.554
• 35.Sezer A, Kadıoğlu H. Yetişkin sağlık okuryazarlığı ölçeğinin geliştirilmesi, Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi 2014;17:3.
• 36. Yılmaz M, Tiraki Z. Sağlık Okuryazarlığı Nedir? Nasıl Ölçülür? DEUHFED 2016; 9: 142-147.
• 37. Morris NS, MacLean CD, Chew LD, Littenberg B. The single item literacy screener: evaluation of a brief instrument to identify limited reading ability. BMC Family Practice 2006;7:1-7.
• 38. Garcia M, Mosby T, Day SW, Chismark EA. (n.d). Development and validation of a nutritional education pamphlet for low literacy pediatric oncology caregivers in central America. Journal of Cancer Education 2010; 25: 512-517.
• 39. McDonald FE, Patterson P, Costa DS, Shepherd HL. Validation of a health literacy measure for adolescents and young adults diagnosed with cancer. Journal of Adolescent & Young Adult Oncology 2016; 5: 69 -75. doi:10.1089/jayao.2014.0043
• 40.United States [U.S.] Department of Health and Human Services, Office of Disease prevention and Health Promotion. National Action Plan to Improve Health Literacy. Washington, DC: Office of Disease Prevention and Health Promotion; 2010.p.
• 41.Yıldırım F, Keser A. Sağlık okuryazarlığı. Ankara: Ankara Üniversitesi Basımevi; 2015.
• 42. Jefford M, Moore R. Improvement of informed consent and the quality of consent documents. Lancet Oncol.2008; 9: 485–93.