Şizofreni Hastalarının Bakım Verenleri

Year 2013, Volume: 5 Issue: 4, 461 - 478, 01.12.2013

Kerime Bademli Zekiye Çetinkaya Duman

https://doi.org/10.5455/cap.20130529

Abstract

Şizofreni hastalarının çoğu aileleri ile birlikte yaşamaktadır bu nedenle şizofreni hastalığı hastanın olduğu kadar ailenin de yaşamını olumsuz etkilemektedir. Şizofreni hastalarının aileleri bakım verme rollerini yerine getirmede çeşitli güçlükler yaşamaktadırlar. Aileler anksiyete, depresyon, utanç, suçluluk, korku, çaresizlik, zorlanma, endişe, umutsuzluk, öfke ve kayıp gibi duygular yaşamaktadırlar. Aileler çoğu zaman yaşadıkları bu güçlükler ile kendi başlarına mücadele etmektedirler. Bazen ailede bakım verenler yaşadıkları güçlükler ile etkili baş edememekte ve ruhsal sağlıklarında bozulma olabilmektedir. Ailelerin yaşadıkları güçlüklerin tanımlanması ve etkili müdahalelerin uygulanması önemlidir

Keywords

Şizofreni, bakım veren, ruhsal sağlık, baş etme

Caregivers of Schizophrenia Patients

Abstract

Most schizophrenia patients live with their families and therefore the mental illnesses adversely affects family members as well as the patients. Family members often experience a number of challenges in providing care. They have been reported to have certain emotional difficulties such as anxiety, depression, shame, sense of guilt, fear, helplessness, uneasiness, distress, despair, anger and sense of loss. Family members have to cope with such complications on their own in most cases. However, in some cases, family members may fail to deal with such emotional strains and experience psychological problems. It is considered to be highly important to identify challenges anddifficulties that family members may encounter and implement effective measures.

Keywords

Schizophrenia, caregiver, mental health, coping

References

• Saunders J. Families living with severe mental illness: a literature review. Issues Ment Health Nurs 2003; 24:175-198.
• Duman ZÇ, Kuşçu MK, Özgün S. Şizofreni hastalarına bakım verenlerin duygu ifadelerini belirlemede Camberwell Aile Görüşmesi ile Duygu İfadesi Ölçeğinin karşılaştırılması. Nöropsikiyatri Arşivi 2013; 50:301-305.
• Sadock BJ, Sadock VA, Ruiz P. Kaplan and Sadock's Comprehensive Textbook of Psychiatry, 9th edition. Philadelphia, Lippincott Williams&Wilkins, 2009.
• Binbay T, Ulaş H, Elbi H, Alptekin K. Türkiye’de psikoz epidemiyolojisi: yaygınlık tahminleri ve başvuru oranları üzerine sistematik bir gözden geçirme. Turk Psikiyatri Derg 2011;22:40-52.
• Eskin M. Aile terapileri: temel ilke, kavram ve seçilmiş modeller. In Psikiyatri Temel Kitabı, 2. Baskı (Eds E Köroğlu, C Güleç). Ankara, Hekimler Yayın Birliği 2007.
• Öztürk, O. Ruh Sağlığı ve Bozuklukları. Sekizinci Basım. Ankara, Feryal Matbaası 200 Terschinsky U. Living with schizophrenia:the family illness experience. Issues Ment Health Nurs 2000; 21:387-396.
• Saunders JC, Byrne MM. A thematic analysis of families living with schizophrenia. Arch Psychiatr Nurs 2002; 16:217-213.
• Gülseren L. Şizofreni ve aile: güçlükler, yükler, duygular, gereksinimler. Turk Psikiyatri Derg 2002; 13:143-151.
• Soygür H. Şizofreni tedavisinde aileye yaklaşım. Psikiyatri Psikoloji ve Psikofarmakoloji Dergisi 1993; 1:117-127.
• Soygür H. Şizofreni tedavisine genel bir bakış. Psikiyatri Dünyası 1999; 3:83-90.
• Üçok A. Şizofreni: damga, mitler ve gerçekler. Psikiyatri Dünyası 1999; 3:67-71.
• Kıvırcık ABB, Alptekin K, Topkaya ŞÖ, Belkiz B, Nazlı E, Özsin E et al. Gençlerde şizofreniyi damgalama düzeyi. Yeni Symposium 2004; 42:113-117.
• Atagün Mİ, Balaban ÖD, Atagün Z, Elagöz M, Özpolat AY. Kronik hastalıklarda bakım veren yükü. Psikiyatride Güncel Yaklaşımlar-Current Approaches in Psychiatry 2011; 3:513-552.
• Urizar AC, Maldonado JG, Castillo CM. Quality of life in caregiversi of patients with schizophrenia: a literature review. Health Qual Life Outcomes 2009; 7:84:1-5.
• McCaan TV, Lubman DI, Clark E. First time primary caregivers experience of caring for young adults with first episode psychosis. Schizophr Bull 2009; 37:381-388.
• Schulze B, Rössler W. Caregiver burden in mental illness: review of measurement, findings and interventions in 2004-2005. Curr Opin Psychiatry 2005; 18:684-691. Arslantaş H, Adana F. Şizofreninin Bakım Verenlere Yükü Psikiyatride Güncel Yaklaşımlar - Current Approaches in Psychiatry 2011; 3:251-277.
• Reay-Young R. Support groups for relatives of people living with a serious mental illness: an overview. International Journal of Psychosocial Rehabilitation 2001; 5:56
• Magliano L, Marasco C, Fiorillo A, Malangone C, Guarneri M, Maj M. The impact of professional and social network support on the burden of families of patients with schizophrenia in Italy. Acta Psychiatr Scand 2002; 106:291-298.
• Gülseren L, Çam B, Karakoç B, Yiğit T, Danacı AE, Çubukçuoğlu Z et al. Şizofrenide ailenin yükünü etkileyen etmenler. Turk Psikiyatri Derg 2010; 21:203
• Schene AH, Wijngaarden B, Koeter MWJ. Family caregiving in schizophrenia: domains and distress. Schizophr Bull 1998; 24:609-618.
• Kuşcu MK. Rehabilitasyon süreci ve bakım vericilik: Zedeleyen mi yoksa iyileyen mi? Psikiyatri Psikoloji Psikofarmakoloji Dergisi 2000; 8:30-34
• Maldonado G, Caqueo U, Kavanagh J. Burden of care and general health in families of patients with schizophrenia. Soc Psychiatry Psychiatr Epidemiol. 2005; 40:89990
• Doornbos MM. Predicting family health ın families of young adults with severe mental ıllness. J Fam Nurs 2002; 8:241-263.
• Madianos M, Economou O, Dafni E, Koukia A. Palli A, Rogakou E. Family disruption, economic hardship and psychological distress in schizophrenia: can they be measured? Eur Psychiatry 2004; 19:408–414.
• Tucker C, Barker A, Gregoire A. Living with schizophrenia: caring for a person with a severe mental illness. Soc. Psychiatry Psychiatric Epidemiology 1998; 33:305-309. Tennakoon L, Fannon D, Doku V, O'Ceallaigh S, Soni W, Santamaria M et al. Experience of caregiving: relatives of people experiencing a first episode of psychosis. Br J Psychiatry 2000; 177:529-533.
• Martens L, Addington J. The psychological well-being of family members of individuals with schizophrenia. Soc Psychiatry Psychiatric Epidemiol 2001; 36:1281
• Chang KH, Horrocks S. Lived experiences of family caregivers of mentally ill relatives. J Adv Nurs 2006; 53:435-443.
• Falloon IR, Graham-Hole V, Woodroffe R. Stress and health of informal carers of people with chronic mental disorders. J Ment Health 1993; 2:165-173.
• Magana SM, Garcia JIM, Hernandez MG, Cortez R. Psychological distress among Latino family caregivers of adults with schizophrenia:the roles of burden and stigma. Psychiatr Serv 2007; 58: 378-384.
• Perlick DA, Rosenheck RA, Miklowitz DJ, Chessick C, Wolff N, Kaczynski R et al. Prevelance and correlates of burden among caregivers of patients with bipolar disorder enrolled in the systematic treatment enhancement program for bipolar disorder. Bipolar Disord 2007; 9:262-273.
• Barrowclough C, Tarrier N. The family questionaire (FQ): A scale for measuring symptom apprasial in relatives of schizophrenic patients. Acta Psychiatr Scand 2003; 108:290-296
• Laidlaw TM, Coverdale JH, Falloon IRH, Kydd RR. Caregivers stresses when living together or apart from patients with chronic schizophrenia. Community Ment Health J 2002; 38:303-310.
• Boye B, Bentsen H, Ulstein I, Notland TH. Relatives’distress and patients’ symptoms and behaviours: a prospective study of patients with schizophrenia and their relatives. Acta Psychiatr Scand. 2001; 104:42-50.
• Lazarus RS, Folkman S. Stress Appraisal and Coping. New York, Springer Publishing Company, 1984.
• Chambers M, Ryan AA, Connor SL . Exploring the emotional support needs and coping strategies of family carers. J Psychiatr Ment Health Nurs 2001; 8:99-106.
• Hall MJ, Docherty NM. Parent coping styles and schizophrenic patient behaviour as predictors of expressed emotion. Fam Process 2000; 39:435-444.
• Chien WT, Chan S, Morrussey J, Thompson D. Effectiveness of a mutual support group for families of patients with schizophrenia. J Adv Nurs. 2005; 51:595-608.
• Fortune DG, Smith JV, Garvey K. Perceptions pf psychosis, coping, appraisals and psychological distress in the relatives of patients with schizophrenia: an exploration using self regulation theory. Br J Psychol 2005; 44:319-331.
• Scazufca M, Kuipers E. Coping strategies in relatives of people with schizophrenia before and after psychiatric admission. Br J Psychol 1999; 174:154-158.
• Huang XY, Sun FK, Yen WJ, Fu CM. The coping experiences of carers who live with someone who has schizophrenia. J Clin Nurs 2008; 17:817-826.
• Doherty KY, Doherty DT. Coping strategies and styles of family carers of persons with enduring mental illness: a mixed method analysis. Scand J Caring Sci 2008; 22:19-28.
• Nehra R, Chakrabarti S, Kulhara P, Sharma R. Caregiver coping in bipolar disorder and schizophrenia. Soc Psychiatry Psychiatr Epidemiol 2005; 40:329-336.
• Tuck I, Mont P, Evans G, Shupe J. The experience of caring for an adult child with schizophrenia. Arch Psychiatr Nurs 1997; 11:118-125.
• Magliano L, Fadden G, Madianos M, de Almeida JM, Held T, Guarneri M et al. Burden on the families of patients with schizophrenia: result of the BIOMED I study. Soc Psychiatry Psychiatr Epidemiol 1998; 33:405-412.
• Chen F, Greenberg JS. A positive aspect of caregiving: the influence of social support on caregiving gains for family members of relatives with schizophrenia. Community Ment Health J 2004; 40:423-435.
• Winefield HR, Harvey EJ. Needs of family caregivers in chronic schizophrenia. Schizophr Bull 1994; 20:557-566.
• Chien WT, Norman I. Educational needs of families caring for Chienese patients with schizophrenia. J Adv Nurs 2003:44(5); 490-498.
• Gümüş AB. Şizofreni hastalarının ve yakınlarının sağlık eğitimi gereksinimleri. Anadolu Psikiyatri Dergisi 2006; 7:33-42.
• Yıldız M, Yazıcı A, Çetinkaya Ö, Bilici R, Elçim R. Şizofreni hastalarının yakınlarının hastalıkla ilgili bilgi ve görüşleri. Turk Psikiyatri Derg 2010; 21:105-113.
• Doornbos, MM. Family caregiving for young adults with severe and persistent mental illness. J Fam Nurs 2001; 7: 328-344.
• Solomon P. Interventions for families of individuals with schizophrenia maximising outcomes for their relatives. Dis Manage Health Outcomes 2000; 8:211-221.
• Maldonado GJ, Urizar AC. Effectiveness of psycho-educational intervention for reducing burden in latin american families of patients with schizophrenia. Qual Life Res 2007; 16: 739-747.
• Chien WT. Effectiveness of psychoeducation and mutual support group program for family caregivers of chinese people with schizophrenia. Open Nurs J 2008; 2:28-39. Barbato A, D’Avanzo B. Family interventions in schizophrenia and related disorders: a critical review of clinical trials. Acta Psychiatr Scand 2000; 102:81-97.
• Doğan O. Şizofrenik bozukluklarda psikososyal yaklaşımlar. Anadolu Psikiyatri Dergisi 2002; 3:240-248.
• Mohr KW. Partnering with families. J Psychosoc Nurs Ment Health Serv 2000; 38:15-22.
• Ebrinç S, Çetin M, Başoğlu C, Ağargün MY, Seçil M, Can S ve ark. Şizofren hasta ve ailelerinde aile işlevselliği, sosyal destek ve duygu dışa vurumunun incelenmesi. Anadolu Psikiyatri Dergisi 2001; 2:5-14.
• Addington J, McCleery A, Addington D. Three-year outcome of family work in an early psychosis program. Schizophr Res 2005;79:107-116.
• Dixon L, McFarlane WR, Lefley H, Lucksted A, Cohen M, Falloon I et al. Evidencebased practices for services to families of people with psychiatric disabilities. Psychiatr Serv 2001; 52:903-910.
• Glynn SM, Cohen AN, Dixon LB, Niv N. The potential impact of the recovery movement on family interventions for schizophrenia:opportunities and obstacles. Schizophr Bull 2006; 32:451-463.
• Pharoah F, Mari J, Rathbone J, Wong W. Family intervention for schizophrenia. Cochrane Database Syst Rev. 2010; (12):CD000088.
• Fung C, Fry A. The role of community mental health nurses in educating clients and families about schizophrenia. Austr N Z J Ment Health Nurs 1999; 8:162-175.
• Li Z, Arthur D. Family education for people with schizophrenia in Beijing, China. Br J Psychiatry 2005; 187: 339-345.
• Lincoln TM, Wilhelm K, Nestoriuc Y. Effectiveness of psychoeducation for relapse, symptoms, knowledge, adherence and functioning in psychotic disorders:a metaanalysis. Schizophr Res 2007;96: 232-245.
• Rose LE, Mallinson KR, Walton MB. Barriers to family care in psychiatric settings. J Nurs Scholarsh 2004; 36:39-47.
• Rummel CB, Hansen PW, Helbig A, Pitschel-Walz G, Kissling W. Peer to peer psychoeducation in schizophrenia: a new approach. J Clin Psychiatry 2005; 66:158015
• Schenk PSA, Bennett C, Cook JA, Steigman P, Lippincott R, Villagracia I et al. Changes in caregiving satisfaction and information needs among relatives of adults with mental illness: results of a randomized evaluation of a family-led education. Am J Orthopsychiatry 2006; 76:545-553.
• Chinman M O’Connell, Davidson L. Services providers views of psychiatric mutual support groups . J Community Psychol 2002; 30:349-366.
• Davidson L, Chinman M, Sells D, Rowe M. Peer support among adults with serious mental illness: a report from the field. Schizophr Bull 2006; 32:443-450.
• Mead S, Macneil C. Peer support: what makes it unique? International Journal of Psychosocial Rehabilitation 2006; 10:29-37.
• Çetinkaya Duman Z, Bademli K. Kronik psikiyatri hastalarının aileleri: sistematik bir inceleme Psikiyatride Güncel Yaklaşımlar-Current Approaches in Psychiatry 2013; 5:78Kerime Bademli, Dr., Akdeniz Üniv. Antalya Sağlık Y.O, Antalya; Zekiye Çetinkaya Duman, Prof. Dr., Dokuz Eylül Üniv. Hemşirelik Fakültesi, İzmir.
• Yazışma Adresi/Correspondence: Kerime Bademli, Akdeniz Üniv. Antalya Sağlık Y.O., Antalya, Turkey. E-mail: [e-mail] Yazarlar bu makale ile ilgili herhangi bir çıkar çatışması bildirmemişlerdir. The authors reported no conflict of interest related to this article. Çevrimiçi adresi / Available online at: www.cappsy.org/archives/vol5/no4/ Çevrimiçi yayım / Published online 29 Aralık/December 29, 2013; doi:10.5455/cap.20130529