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Maintaining Dignity in End-of-Life Care

Year 2023, Volume: 8 Issue: 3, 590 - 598, 31.12.2023
https://doi.org/10.25279/sak.1150022

Abstract

Life is precious, unique, and special. Especially end-of-life patients need special rights and support due to the disease process, treatments, standards, and complex care needs. End-of-life patients have the right to say goodbye in their journey with protecting their dignity and honor, and supporting them in the spiritual and social environment. Patients deserve to receive the highest quality and comprehensive care service from the times. They're in contact with nurses mostly in end-of-life so nurses should have special knowledge, experience, and equipment. Everyone will taste death so these irreversible moments must be ended in a way human dignity. The aim of this study is to preserve dignity in the care that can be given to end-of-life patients. It's seen that the concept of honor can't be understood and it should be considered more deeply within the framework. lthough palliative services aim to provide these cares with the aim of the human dignity of caregivers and health personnel, there is little empirical data to guide how to achieve them. The Honor Model is a model that can be used as a pioneer in new scientific research. It manages to develop inventories validated in Turkish for the nurses.

Project Number

YOK

References

  • Anderberg, P., Lepp, M., Berglund, A.L., & Segesten, K. (2007). Preserving dignity in caring for older adults: A concept analysis. Journal of Advanced Nursing, 59 (6), 635-643.
  • Bağ, B. (2012). Hospis ve hospiste ölüme hazırlanma. Akad Geriatri, 4, 120-125.
  • Brozek, B., Fopka-Kowalczyk, M., Labus-Centek, M., Damps-Konstanska, I., Ratajska, A., Jassem, E., & Krajnik, M. (2019). Dignity therapy as an aid to coping for COPD patients at their end-of-life stage. Advances in respiratory medicine, 87(3), 135-145.
  • Chochinov, H.M. (2002). Dignity-conserving care: A new model for palliative care helping the patient feel valued. JAMA, 87, 2253-2260.
  • Chochinov, H.M., Hack, T., McClement, S., Harlos, M., & Kristjanson, L. (2002). Dignity in the terminally ill: A developing empirical model. Soc Sci Med, 54, 433–43.
  • Cuevas, P.E., Davidson, P., Mejilla, J., & Rodney, T. (2021). Dignity therapy for end-of-life care patients: A literature review. Journal of Patient Experience, 8, 1-12.
  • Franklin, L.L., & Ternestedt, B.M. (2006). Views on dignity of elderly nursing home residents. Nurs Ethics, 13, 130–46.
  • Gallagher, A., Li, S., Wainwright, P., Rees, J., & Lee, D. (2008). Dignity in the care of older people: A review of the theoretical and empirical literatüre. BMC Nursing, 7, 11.
  • Hall, S., Davies, J.M., Gao, W., & Higginson, J.I. (2014). Patterns of dignity-related distress at the end of life: A cross-sectional study of patients with advanced cancer and care home residents, Palliative Medicine, 28(9), 1118 –1127.
  • Ho, A. H. Y., Dai, A. A. N., Shu-hang, L., Wong, S. W. R., Tsui, A. L. M., Tang, J. C. S., & Lou, V. W. Q. (2016). Development and pilot evaluation of a novel dignity conserving end-of life (EoL) care model for nursing homes in Chinese societies. Gerontologist, 56, 578–589. doi:10.1093/geront/gnv037
  • International Council of Nurses, (2021). The ICN code of ethics for nurses. https://www.icn.ch/system/files/2021-10/ICN_Code-of-Ethics_EN_Web_0.pdf
  • Houmann, L.J., Chochinov, H.M., Kristjanson, L.J., Petersen, M.A., & Groenvold, M. (2014). A prospective evaluation of dignity therapy in advanced cancer patients admitted to palliative care. Palliat Med, 28(5), 448-58. doi: 10.1177/0269216313514883
  • Jo, K.H., & Doorenbos, A. (2009). Understanding the meaning of human dignity in Korea: A content analysis. Int J Palliat Nurs, 15, 178–185.
  • Johnston, B., Papadopoulou, C., Östlund, U., Hunter, K., Andrew, J., Buchanan, D. (2017). What's dignity got to do with it? Patients experience of the dignity care intervention: A qualitative evaluation study. SAGE Open Nurs, 3, 1–12.
  • Lothian, K., & Philp, L. (2002). Care of older people maintaining the dignity and autonomy of older people in the healthcare setting. BMJ, 322, 668–70.
  • McIlfatrick, S., Connolly, M., Collins, R., Murphy, T., Johnston, B., & Larkin, P. (2017). Evaluating a dignity care intervention for palliative care in the community setting: Community nurses perspectives. J Clin Nurs, 26, 4300–12.
  • Meier, D.E., Emmons, C.A., Wallenstein, S., Quill, T., Morrison, S., & Cassel, C.K. (1998). A national survey of physician-assisted suicide and euthanasia in the United States. N Engl J Med, 338,1193–1201.
  • Meier, E.A., Gallegos, J.V., Thomas, L.P., Depp, C.A., Irwin, S.A., & Jeste, D.V. (2016). Defining a good death (Successful dying): Literature review and a call for research and public dialogue. J Geriatr Psychiatry. 24(4), 261-71. doi: 10.1016/j.jagp.2016.01.135.
  • NHS. (2008). Living and dying well- a national plan for palliative and end of life care in scotland. http://www.scotland.gov.uk/Publications/2008/10/01091608/0
  • Östlund, U., Brown, H., & Johnston, B. (2012). Dignity conserving care at end-of-life: A narrative review, European Journal of Oncology Nursing, 16, 353-367.
  • Özçelik, H. (2017). Palyatif bakım ve ölmekte olan hastaya yaklaşım. Türkiye Klinikleri J Anest Reanim Special Topics, 10(1), 87-93.
  • Parandeh, A., Khaghanizade, M., Mohammadi, E., & Mokhtari-Nouri, J.(2016). Nurses human dignity in education and practice: An integrated literature review. Iranian J Nursing Midwifery Res, 21,1-8.
  • Pleschberger, S. (2007). Dignity and the challenge of dying in nursing homes: The residents view. Age Ageing, 36, 197–202.
  • Pollock, K., & Seymour, J. (2018). Reappraising ‘the good death’ for populations in the age of ageing. Age and Ageing, 47(3), 328–330. https://doi.org/10.1093/ageing/afy008
  • Roos, C., Silen, M., Skytt, B., & Engström, M. (2016). An intervention targeting fundamental values among caregivers at residential facilities: Effects of a clusterrandomized controlled trial on residents self-reported empowerment, person-centered climate and life satisfaction. BMC Geriatrics 16(130), 1–16. doi:10.1186/s12877-016-0306-2
  • Sezer, S., & Saya, P. (2009). Gelişimsel açıdan ölüm kavramı. Dicle Üniversitesi Ziya Gökalp Eğitim Fakültesi Dergisi, 13(2009), 151-165.
  • Staats, K., Grov, E.K., Husebo, B.S., & Tranvag, O. (2020). Dignity and loss of dignity: Experiences of older women living with incurable cancer at home, Health Care for Women International, 41(9), 1036-1058. doi: 10.1080/07399332.2020.1797035
  • Türk Dil Kurumu Sözlükleri. (2021). İnternet eki. Türk Dil Kurumu Sözlükleri. Erişim Tarihi Mayıs 18, 2023, https://sozluk.gov.tr/
  • Türk Hemşireler Derneği. (2015). Hemşireler için etik ilke ve sorumluluklar. Erişim Tarihi Ocak 10, 2023, http://www.turkhemsirelerdernegi.org.tr/files/tr/thd/meslegi-etigi/hemsireler-icin-etik-ilke-ve-sorumluluklar/hemsire%20brosur.pdf
  • Valentine, N., Darby, C., & Bonsel, G.J. (2008). Which aspects of quality of care are most important? Results from WHO’s general population surveys of ‘health system responsiveness’ in 41 countries. Soc Sci Med, 66, 1939–1950
  • WHO. (1994). Declaration on the promotion of patients rights in Europe. http://www.nurs.uoa.gr/fileadmin/nurs.uoa.gr/uploads/Nomothesia_Nosilefton/Evropaika_keimen a/eu_declaration1994_1_.pdf
  • Wilson, K.G., Curran, D., & McPherson, C.J. A (2005). Burden to others: A common source of distress for the terminally ill. Cogn Behav Ther, 34, 115–123.
  • Yalden, B.J., & McCormack, B. (2010). Constructions of dignity: A pre‑requisite for flourishing in the workplace? Int J Older People Nurs, 5,137‑47.
  • Council of Europe. (2015). Yaşamın son dönemine tıbbi tedavide karar verme sürecine ilişkin kılavuz. https://www.coe.int/t/dg3/healthbioethic/Activities/09_End%20of%20Life/Guide/Guide%20FDV%20turc.pdf

Yaşam Sonu Bakımda Onurun Korunması

Year 2023, Volume: 8 Issue: 3, 590 - 598, 31.12.2023
https://doi.org/10.25279/sak.1150022

Abstract

Yaşam her döneminde değerli, biricik ve özeldir. Özellikle son dönem hastalarının hastalık süreci, tedaviler, semptomlar ve kompleks bakım ihtiyacı doyasıyla özel haklara ve desteğe ihtiyaç duymaktadır. Son dönem hastalarının haklarının başında ölüme uğurlanırken haysiyetini ve onurunu koruyarak, bedensel manevi ve sosyal bütünlüğünü destekleyerek veda etme hakkı gelmektedir. Hastalar aldıkları sağlık hizmeti içinde en sık temasta bulundukları hemşirelerden en kaliteli ve en kapsamlı bakım hizmetini almayı hak etmekte ve hemşireler bu anlamada özel bilgi, deneyim ve donanıma sahip olmalıdır. Ölüm her canlının tadacağı bir süreçtir ve geri döndürülemez bu anlar insan onuruna yakışır şekilde noktalanmalıdır. Bu makalenin amacı son dönem hastalarının son ana kadar onuruna yakışır şekilde bakım almasını sürdürmektir. Onur kavramının anlaşılamadığı, sosyal politika, felsefi veya dini düşünceler çerçevesinde üzerinde daha derin düşünülmesi gerektiği görülmektedir. Bu sebeple, birçok palyatif bakım hizmeti veren kurum ve sağlık personelinin insan onurunu korumaya yönelik bakım sunmayı amaçlamasına rağmen nasıl ulaşılacağı hakkında bir rehber olan çok az ampirik veri bulunmaktadır. Onur Modeli yeni bilimsel araştırmalara öncü olarak kullanılabilir bir modeldir. Hemşirelerin de bu alana yönelik Türkçe geçerliği yapılmış envanterler geliştirerek alana katkı sağlaması önerilmektedir.

Supporting Institution

YOK

Project Number

YOK

References

  • Anderberg, P., Lepp, M., Berglund, A.L., & Segesten, K. (2007). Preserving dignity in caring for older adults: A concept analysis. Journal of Advanced Nursing, 59 (6), 635-643.
  • Bağ, B. (2012). Hospis ve hospiste ölüme hazırlanma. Akad Geriatri, 4, 120-125.
  • Brozek, B., Fopka-Kowalczyk, M., Labus-Centek, M., Damps-Konstanska, I., Ratajska, A., Jassem, E., & Krajnik, M. (2019). Dignity therapy as an aid to coping for COPD patients at their end-of-life stage. Advances in respiratory medicine, 87(3), 135-145.
  • Chochinov, H.M. (2002). Dignity-conserving care: A new model for palliative care helping the patient feel valued. JAMA, 87, 2253-2260.
  • Chochinov, H.M., Hack, T., McClement, S., Harlos, M., & Kristjanson, L. (2002). Dignity in the terminally ill: A developing empirical model. Soc Sci Med, 54, 433–43.
  • Cuevas, P.E., Davidson, P., Mejilla, J., & Rodney, T. (2021). Dignity therapy for end-of-life care patients: A literature review. Journal of Patient Experience, 8, 1-12.
  • Franklin, L.L., & Ternestedt, B.M. (2006). Views on dignity of elderly nursing home residents. Nurs Ethics, 13, 130–46.
  • Gallagher, A., Li, S., Wainwright, P., Rees, J., & Lee, D. (2008). Dignity in the care of older people: A review of the theoretical and empirical literatüre. BMC Nursing, 7, 11.
  • Hall, S., Davies, J.M., Gao, W., & Higginson, J.I. (2014). Patterns of dignity-related distress at the end of life: A cross-sectional study of patients with advanced cancer and care home residents, Palliative Medicine, 28(9), 1118 –1127.
  • Ho, A. H. Y., Dai, A. A. N., Shu-hang, L., Wong, S. W. R., Tsui, A. L. M., Tang, J. C. S., & Lou, V. W. Q. (2016). Development and pilot evaluation of a novel dignity conserving end-of life (EoL) care model for nursing homes in Chinese societies. Gerontologist, 56, 578–589. doi:10.1093/geront/gnv037
  • International Council of Nurses, (2021). The ICN code of ethics for nurses. https://www.icn.ch/system/files/2021-10/ICN_Code-of-Ethics_EN_Web_0.pdf
  • Houmann, L.J., Chochinov, H.M., Kristjanson, L.J., Petersen, M.A., & Groenvold, M. (2014). A prospective evaluation of dignity therapy in advanced cancer patients admitted to palliative care. Palliat Med, 28(5), 448-58. doi: 10.1177/0269216313514883
  • Jo, K.H., & Doorenbos, A. (2009). Understanding the meaning of human dignity in Korea: A content analysis. Int J Palliat Nurs, 15, 178–185.
  • Johnston, B., Papadopoulou, C., Östlund, U., Hunter, K., Andrew, J., Buchanan, D. (2017). What's dignity got to do with it? Patients experience of the dignity care intervention: A qualitative evaluation study. SAGE Open Nurs, 3, 1–12.
  • Lothian, K., & Philp, L. (2002). Care of older people maintaining the dignity and autonomy of older people in the healthcare setting. BMJ, 322, 668–70.
  • McIlfatrick, S., Connolly, M., Collins, R., Murphy, T., Johnston, B., & Larkin, P. (2017). Evaluating a dignity care intervention for palliative care in the community setting: Community nurses perspectives. J Clin Nurs, 26, 4300–12.
  • Meier, D.E., Emmons, C.A., Wallenstein, S., Quill, T., Morrison, S., & Cassel, C.K. (1998). A national survey of physician-assisted suicide and euthanasia in the United States. N Engl J Med, 338,1193–1201.
  • Meier, E.A., Gallegos, J.V., Thomas, L.P., Depp, C.A., Irwin, S.A., & Jeste, D.V. (2016). Defining a good death (Successful dying): Literature review and a call for research and public dialogue. J Geriatr Psychiatry. 24(4), 261-71. doi: 10.1016/j.jagp.2016.01.135.
  • NHS. (2008). Living and dying well- a national plan for palliative and end of life care in scotland. http://www.scotland.gov.uk/Publications/2008/10/01091608/0
  • Östlund, U., Brown, H., & Johnston, B. (2012). Dignity conserving care at end-of-life: A narrative review, European Journal of Oncology Nursing, 16, 353-367.
  • Özçelik, H. (2017). Palyatif bakım ve ölmekte olan hastaya yaklaşım. Türkiye Klinikleri J Anest Reanim Special Topics, 10(1), 87-93.
  • Parandeh, A., Khaghanizade, M., Mohammadi, E., & Mokhtari-Nouri, J.(2016). Nurses human dignity in education and practice: An integrated literature review. Iranian J Nursing Midwifery Res, 21,1-8.
  • Pleschberger, S. (2007). Dignity and the challenge of dying in nursing homes: The residents view. Age Ageing, 36, 197–202.
  • Pollock, K., & Seymour, J. (2018). Reappraising ‘the good death’ for populations in the age of ageing. Age and Ageing, 47(3), 328–330. https://doi.org/10.1093/ageing/afy008
  • Roos, C., Silen, M., Skytt, B., & Engström, M. (2016). An intervention targeting fundamental values among caregivers at residential facilities: Effects of a clusterrandomized controlled trial on residents self-reported empowerment, person-centered climate and life satisfaction. BMC Geriatrics 16(130), 1–16. doi:10.1186/s12877-016-0306-2
  • Sezer, S., & Saya, P. (2009). Gelişimsel açıdan ölüm kavramı. Dicle Üniversitesi Ziya Gökalp Eğitim Fakültesi Dergisi, 13(2009), 151-165.
  • Staats, K., Grov, E.K., Husebo, B.S., & Tranvag, O. (2020). Dignity and loss of dignity: Experiences of older women living with incurable cancer at home, Health Care for Women International, 41(9), 1036-1058. doi: 10.1080/07399332.2020.1797035
  • Türk Dil Kurumu Sözlükleri. (2021). İnternet eki. Türk Dil Kurumu Sözlükleri. Erişim Tarihi Mayıs 18, 2023, https://sozluk.gov.tr/
  • Türk Hemşireler Derneği. (2015). Hemşireler için etik ilke ve sorumluluklar. Erişim Tarihi Ocak 10, 2023, http://www.turkhemsirelerdernegi.org.tr/files/tr/thd/meslegi-etigi/hemsireler-icin-etik-ilke-ve-sorumluluklar/hemsire%20brosur.pdf
  • Valentine, N., Darby, C., & Bonsel, G.J. (2008). Which aspects of quality of care are most important? Results from WHO’s general population surveys of ‘health system responsiveness’ in 41 countries. Soc Sci Med, 66, 1939–1950
  • WHO. (1994). Declaration on the promotion of patients rights in Europe. http://www.nurs.uoa.gr/fileadmin/nurs.uoa.gr/uploads/Nomothesia_Nosilefton/Evropaika_keimen a/eu_declaration1994_1_.pdf
  • Wilson, K.G., Curran, D., & McPherson, C.J. A (2005). Burden to others: A common source of distress for the terminally ill. Cogn Behav Ther, 34, 115–123.
  • Yalden, B.J., & McCormack, B. (2010). Constructions of dignity: A pre‑requisite for flourishing in the workplace? Int J Older People Nurs, 5,137‑47.
  • Council of Europe. (2015). Yaşamın son dönemine tıbbi tedavide karar verme sürecine ilişkin kılavuz. https://www.coe.int/t/dg3/healthbioethic/Activities/09_End%20of%20Life/Guide/Guide%20FDV%20turc.pdf
There are 34 citations in total.

Details

Primary Language Turkish
Subjects Nursing
Journal Section reviews
Authors

Gönül Düzgün 0000-0003-3584-8354

Gülendam Hakverdioğlu Yönt 0000-0003-3257-2102

Gökşen Polat 0000-0001-9575-2325

Project Number YOK
Early Pub Date January 4, 2024
Publication Date December 31, 2023
Submission Date July 28, 2022
Acceptance Date May 9, 2023
Published in Issue Year 2023 Volume: 8 Issue: 3

Cite

APA Düzgün, G., Hakverdioğlu Yönt, G., & Polat, G. (2023). Yaşam Sonu Bakımda Onurun Korunması. Sağlık Akademisi Kastamonu, 8(3), 590-598. https://doi.org/10.25279/sak.1150022

Health Academy Kastamonu is included in the class of 1-b journals (journals scanned in international indexes other than SCI, SSCI, SCI-expanded, ESCI) according to UAK associate professorship criteria. HEALTH ACADEMY KASTAMONU Journal cover is registered by the Turkish Patent Institute.