EVALUATION OF THE QUALITY OF LIFE OF CHILDREN WITH SPECIAL NEEDS FROM THE PERSPECTIVE OF MOTHERS: A DESCRIPTIVE CROSS-SECTIONAL ANALYSIS STUDY

Abstract

This study aimed to examine quality of life in children with special needs and affecting factors from the perspective of mothers. A descriptive cross-sectional study was conducted with mothers (n=99) of children with special needs between the ages of 5-18 living in a province in the Eastern Black Sea Region of Türkiye. Personal Information Form and QI-Disability-Parent Form were used to collect data. A significant difference was found between children’s QI-Disability- Parent Form total scores and their diagnosis and verbal communication ability (p<0.05). Multiple linear regression analysis showed that verbal communication ability was a statistically significant negative predictor of QI-Disability-Parent Form scores, meeting personal needs of positive emotions, verbal communication ability of social interaction, and verbal communication ability and ability to use one’s hands of independence (p<0.01, p<0.05). Verbal communication ability was a particularly important factor affecting quality of life.

Keywords

• Child
• special needs
• quality of life

ÖZEL GEREKSİNİMLİ ÇOCUKLARIN YAŞAM KALİTESİNİN ANNE PERSPEKTİFİNDEN DEĞERLENDİRİLMESİ: TANIMLAYICI BİR KESİTSEL ANALİZ ÇALIŞMASI

Öz

Bu çalışma annelerin bakış açısından özel gereksinimi olan çocukların yaşam kaliteleri ve etkileyen faktörleri incelemeyi amaçlamıştır. Tanımlayıcı kesitsel tipteki çalışma, Türkiye’nin Doğu Karadeniz Bölgesi’nde bulunan bir ilde yaşayan 5-18 yaş arasındaki özel gereksinimli çocukların anneleri (n=99) ile yürütüldü. Veriler, Kişisel Bilgi Formu ve QI-Disability-Parent Form ile toplandı. QI-Disability-Parent Form toplam puanları ile çocuğun tanısı, sözlü iletişim durumu arasında anlamlı bir fark bulundu (p<0,05). Çoklu doğrusal regresyon analizi ile çocuğun sözlü iletişim durumunun QI-Disability-Parent Form, çocuğun kişisel ihtiyaçlarının karşılanması durumunun Pozitif duygular, çocuğun sözlü iletişim durumunun Sosyal etkileşim, çocuğun sözlü iletişim ve ellerini kullanabilme durumunun Bağımsızlık alt boyutlarını negatif yönde istatiksel olarak anlamlı yordadığı belirlendi (p<0,01, p<0,05). Özellikle çocuğun sözlü iletişim durumu yaşam kalitesini etkileyen önemli faktörlerden biriydi.

Anahtar Kelimeler

• Çocuk
• özel gereksinim
• yaşam kalitesi

Kaynakça

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