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İnmeli Hastaların Ailelerinin, Bakım Verme Yeterliliğini Geliştirmek İçin Yapılan Girişimler: Sistematik Derleme

Year 2016, Volume: 10 Issue: 3, 0 - 0, 19.10.2016
https://doi.org/10.21763/tjfmpc.46799

Abstract

Interventions to Develop Caregivers Competence of Families Caregivers of Patients with Stroke: A Systematic Review 

Objective: It is to determine interventions performed to develop competence of family caregivers of patients with stroke in coping with caregiving and what are they of these interventions. Method: 20 randomized controlled studies, one of them meta-analysis, were evaluated in accordance with inclusion criteria. All studies were systematized and examined.  Results: Types of interventions made to the caregivers were consultancy via phone, e-mail, web aided training, home visits, and group education. The intervention provided to caregivers was found to be effective in 15 of 20 studies included in the study. In other five studies, there was no statistical difference in terms of a measured parameter; whereas, it was found useful for caregivers in at least one of the other measured parameters.  Conclusion: The fact that interventions for strengthening caregivers were highly effective points out the requirement of determining cost effective methods in future studies.

 

Key words: Stroke, family caregivers, caregivers competence, care burden, cope with stress, systematic review

 

İnmeli Hastaların Ailelerinin, Bakım Verme Yeterliliğini Geliştirmek İçin Yapılan Girişimler: Sistematik Derleme

Amaç: İnmeli hastaların, aile bakım vericilerinin, bakım vermede baş etme yeterliliklerini geliştirmek amacıyla yapılan girişimler ve bu girişimlerin neler olduğunun belirlenmesidir.  Yöntem: Dâhil edilme kriterlerine uygun olarak, biri meta analiz olmak üzere, 20 randomize kontrollü çalışma değerlendirilmiştir. Tüm çalışmalar sistematize edilerek incelenmiştir.  Bulgular: Bakım vericilere yapılan girişim türlerinin; telefonla danışmanlık, e-posta, web destekli eğitim, ev ziyaretleri ve grup eğitimi olduğu belirlenmiştir. Araştırma kapsamına alınan 20 araştırmanın, 15'inde bakım vericilere yapılan girişimin etkin olduğu belirlenmiştir. Diğer beş araştırmada ise, ölçülen bir parametrede istatistik açısından farklılık yok iken, ölçülen diğer parametrelerin en az birinde girişimin bakım verenler için faydalı olduğu belirlenmiştir.  Sonuç: Bakım vericileri güçlendirmeye yönelik girişimlerin büyük oranda etkin olması, gelecek çalışmalarda maliyet etkili yöntemlerin belirlenmesi gerektiğine işaret etmektedir.

 

Anahtar kelimeler: İnme, aile bakım verici, bakım verme yeterliliği, bakım yükü, stresle başa çıkma, sistematik derleme 



References

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  • Brereton L, Nolan M. 'Seeking': A key activity for new family carers of stroke survivors. Journal of J Clin Nurs 2002 Jan;11(1):22-31.
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  • Larson J, Franzén-Dahlin A, Billing E, Arbin M, Murray V, Wredling R. The impact ofa nurseled support and education programme for spouses of strokepatients: A randomized controlled trial. J ClinNurs 2005 Sep;14(8):995-1003.
  • Heuvel, ET, Witte LP, Stewart RE, Schure LM, Sanderman R, Meyboom-de Jong B. Long-term effects of a group support program and an individual support program for informal caregivers of stroke patients: Which caregivers benefit the most? Patient EducCouns 2002 Aug;47(4):291-9.
  • Heuvel ET, Witte LP, Nooyen-Haazen I, Sanderman R, Meyboom-de Jong B. Short-term effects of a group support program and an individual support program forcaregivers of strokepatients. Patient Educ Couns 2000 May;40(2):109-20.
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  • Mollaoğlu M, Özkan Tuncay F, Kars Fertelli T. Careburden of caregivers of strokepatients a related factors. DEUHFED 2011 4(3):125-130.
  • Tuna M, Olgun N. The role of perceived social support on strokepatients’ caregivers who have the burnout syndrome. Hacettepe University Faculty of Health Sciences NursingJournal 2010:41-52.
  • Centre for reviews and dissemination systematic reviews (CRD). Guidance for undertaking reviews in healthcare. Published by CRD, University of York. 2009. http://www.york.ac.uk/media/crd/Systematic_Reviews.pdf (Erişim tarihi: 31.12.2015).
  • Moher D, Liberati A, Tetzlaff J, Altman DG. PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Ann Inter Med 2009 Aug;18;151(4):264-9.
  • Cheng HY, Chair SY, Chau JP. The effectiveness of psychosocial interventions for stroke family caregivers and stroke survivors: A systematic review and meta-analysis. Patient Educ Couns 2014Apr;95(1):30-44
  • Smith GC, Egbert N, Dellman-Jenkins M, Nanna K, Palmieri PA. Reducing depression in stroke survivors and their informal caregivers: A randomized clinical trial of a web-based intervention. Rehabil Psychol 2012 Aug;57(3):196-206.
  • Pierce LL, Steiner VL, Khuder SA, Govoni AL, Horn LJ. The effect of a Web-based stroke intervention on carers' well-being and survivors' use of health care services. Disabil Rehabil 2009;31(20),1676-84.
  • Steiner V, Pierce L, Drahuschak S, Nofziger E, Buchman D, Szirony T. Emotional support, physical help, and health of caregivers of strokesurvivors. J Neurosci Nurs 2008 Feb; 40(1):48-54.
  • Tielemans NS, Visser-Meily JM, Schepers VP, Post MW, Wade DT, vanHeugten CM. Studyprotocol of the Restore4Stroke self-management study: a multicenter randomized controlled trial in strokepatients and their partners. Int J Stroke 2014 Aug;9(6):818-23.
  • Forster A, Dickerson J, Young J, Patel A, Kalra L, Nixon J, TRACS Trial Collaboration. A structured training programme for caregivers of in patients after stroke (TRACS): Acluster randomised controlled trial and cost-effectiveness analysis. Lancet 2013 Dec;21;382(9910):2069-76.
  • Franzén-Dahlin A, Larson J, Murray V, Wredling R, Billing E. A randomized controlled trial evaluating the effect of a support and education programme for spouses of people affected by stroke. Clin Rehabil 2008 Aug;22(8):722-30.
  • Draper B, Bowring G, Thompson C, Van Heyst J, Conroy P, Thompson J. Stress in caregivers of aphasic strokepatients: A randomized controlled trial. Clin Rehabil 2007 Feb;21(2):122-30.
  • Schure LM, Heuvel ET, Stewart RE, Sanderman R, Witte LP, Meyboom-de Jong B. Beyond stroke: Description and evaluation of an effective intervention to support family caregivers of strokepatients. Patient Educ Couns 2006 Jul;62(1):46-55.
  • Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M, et al. Training carers of stroke patients: randomised controlled trial. BMJ 2004 May;8;328(7448):1099.
  • Hartke RJ, King RB. Telephone group intervention for older stroke caregivers. Top Stroke Rehabil 2003 Winter;9(4):65-81.
  • Mant J, Winner S, Roche J, Wade DT. Familysupportforstroke: oneyearfollowup of a randomisedcontrolledtrial. J Neurol Neurosurg Psychiatry 2005 Jul;76(7):1006-8.
  • Mant J, Carter J, Wade DT, Winner S. Family support for stroke: A randomised controlled trial. Lancet 2000 Sep;2;356(9232):808-13.
  • Ostwald SK, Godwin KM, Cron SG, Kelley CP, Hersch G, Davis S. Home-based psycho educational and mailed information programs for stroke-caregiving dyads post-discharge: A randomized trial. Disabil Rehabil 2014 36(1):55-62.
  • Araújo O, Lage I, CabritaJ, Teixeira L. Intervention in informal caregivers whotakecare of older people after a stroke (InCARE): study protocol for a randomised trial. J Adv Nurs 2015 Oct;71(10):2435-43.
Year 2016, Volume: 10 Issue: 3, 0 - 0, 19.10.2016
https://doi.org/10.21763/tjfmpc.46799

Abstract

References

  • Aktaş A. İnme ile ilgili genel bilgiler. İnme sonrası bakım. 1.Baskı. İstanbul: Güneş Kitabevi; 2012. p. 3-16.
  • Akdemir N. Sinir sistemi hastalıkları ve hemşirelik bakımı. İç hastalıkları ve hemşirelik bakımı. 2.Baskı.Ankara: Sistem Ofset; 2005. p.783-858.
  • Sağlık Bakanlığı. Türkiye kalp ve damar hastalıklarını önleme ve kontrol programı birincil, ikincil, üçüncül korumaya yönelik stratejik plan ve eylem planı kitabı, 2010-2014 Sağlık Bakanlığı Yayın No: 812;2010 56-59.
  • Yörük S, Çalışkan T, Gündoğdu H. Balıkesir Devlet Hastanesi Evde Bakım Hizmet Birimi’nden hizmet alan 65 yaş ve üzeri yaşlı bireylerin bakım alma nedenleri ve sağlanan hizmetlerin belirlenmesi. Balikesir Saglik Bil Derg 2012 Nis;1(1):12-15.
  • Brereton L, Carroll C, Barnston S. Interventions for adult family carers of people who have had a stroke: A systematic review. Clin Rehabil 2007 Oct; 21(10): 867-84.
  • Brereton L, Nolan M. 'Seeking': A key activity for new family carers of stroke survivors. Journal of J Clin Nurs 2002 Jan;11(1):22-31.
  • Devlet Planlama Teşkilatı, Sosyal Sektörler ve Koordinasyon Genel Müdürlüğü. Türkiye’de yaşlıların durumu ve yaşlanma ulusal eylem planı. Yayın no dpt: 2741, 2007. http://eyh.aile.gov.tr/data/544f6b29369dc328a057d006/yaslanma_ulusal_eylem_plani.pdf (Erişim tarihi: 31.12.2015)
  • Tülek Z, Memiş S. İnme bakımında 2015 yılı hedefleri: Avrupa inme stratejileri (HelsinborgKonsensus Konferansı). Türk Serebrovasküler Hastalıklar Dergisi 2007 13(3):67-73.
  • Temizer H, Gözüm S. Impact of nursing care initiatives on the knowledge level and perception of caregiving difficulties of family members providing home care to stroke patients. Health MED 2012 6(8):2681-8.
  • King RB, Hartke RJ, Houle T, Lee J, Herring G, Alexander-Peterson BS, et al. A problem-solving early intervention for stroke caregivers: One-year follow-up. Rehabil Nurs 2012 Sep-Oct; 37(5):231-43.
  • Bakas T, Farran CJ, Austin JK, Given BA, Johnson EA, Williams LS. Stroke caregiver outcomes from the telephone assessment and skill-building kit (TASK). Top StrokeRehabil 2009 Mar-Apr;16(2):105-21.
  • Larson J, Franzén-Dahlin A, Billing E, Arbin M, Murray V, Wredling R. The impact ofa nurseled support and education programme for spouses of strokepatients: A randomized controlled trial. J ClinNurs 2005 Sep;14(8):995-1003.
  • Heuvel, ET, Witte LP, Stewart RE, Schure LM, Sanderman R, Meyboom-de Jong B. Long-term effects of a group support program and an individual support program for informal caregivers of stroke patients: Which caregivers benefit the most? Patient EducCouns 2002 Aug;47(4):291-9.
  • Heuvel ET, Witte LP, Nooyen-Haazen I, Sanderman R, Meyboom-de Jong B. Short-term effects of a group support program and an individual support program forcaregivers of strokepatients. Patient Educ Couns 2000 May;40(2):109-20.
  • Durna Z, Tülek Z. İnme ve bakım. Durna Z, editör. Kronik hastalıklar ve bakım. 1.Baskı.İstanbul: Nobel Tıp Kitabevi; 2012. p.239-260.
  • Yıldırım S, Engin E, Başkaya VA. The burden of caregivers of stroke patients and the factor saffecting the burden. Archives of Neuropsychiatry 2013 50:169-174.
  • Aşiret GD, Kapucu S. Burden of caregivers of strokepatients. Turkish Journal of Neurology 2013 19(1):5-10.
  • Mollaoğlu M, Özkan Tuncay F, Kars Fertelli T. Careburden of caregivers of strokepatients a related factors. DEUHFED 2011 4(3):125-130.
  • Tuna M, Olgun N. The role of perceived social support on strokepatients’ caregivers who have the burnout syndrome. Hacettepe University Faculty of Health Sciences NursingJournal 2010:41-52.
  • Centre for reviews and dissemination systematic reviews (CRD). Guidance for undertaking reviews in healthcare. Published by CRD, University of York. 2009. http://www.york.ac.uk/media/crd/Systematic_Reviews.pdf (Erişim tarihi: 31.12.2015).
  • Moher D, Liberati A, Tetzlaff J, Altman DG. PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Ann Inter Med 2009 Aug;18;151(4):264-9.
  • Cheng HY, Chair SY, Chau JP. The effectiveness of psychosocial interventions for stroke family caregivers and stroke survivors: A systematic review and meta-analysis. Patient Educ Couns 2014Apr;95(1):30-44
  • Smith GC, Egbert N, Dellman-Jenkins M, Nanna K, Palmieri PA. Reducing depression in stroke survivors and their informal caregivers: A randomized clinical trial of a web-based intervention. Rehabil Psychol 2012 Aug;57(3):196-206.
  • Pierce LL, Steiner VL, Khuder SA, Govoni AL, Horn LJ. The effect of a Web-based stroke intervention on carers' well-being and survivors' use of health care services. Disabil Rehabil 2009;31(20),1676-84.
  • Steiner V, Pierce L, Drahuschak S, Nofziger E, Buchman D, Szirony T. Emotional support, physical help, and health of caregivers of strokesurvivors. J Neurosci Nurs 2008 Feb; 40(1):48-54.
  • Tielemans NS, Visser-Meily JM, Schepers VP, Post MW, Wade DT, vanHeugten CM. Studyprotocol of the Restore4Stroke self-management study: a multicenter randomized controlled trial in strokepatients and their partners. Int J Stroke 2014 Aug;9(6):818-23.
  • Forster A, Dickerson J, Young J, Patel A, Kalra L, Nixon J, TRACS Trial Collaboration. A structured training programme for caregivers of in patients after stroke (TRACS): Acluster randomised controlled trial and cost-effectiveness analysis. Lancet 2013 Dec;21;382(9910):2069-76.
  • Franzén-Dahlin A, Larson J, Murray V, Wredling R, Billing E. A randomized controlled trial evaluating the effect of a support and education programme for spouses of people affected by stroke. Clin Rehabil 2008 Aug;22(8):722-30.
  • Draper B, Bowring G, Thompson C, Van Heyst J, Conroy P, Thompson J. Stress in caregivers of aphasic strokepatients: A randomized controlled trial. Clin Rehabil 2007 Feb;21(2):122-30.
  • Schure LM, Heuvel ET, Stewart RE, Sanderman R, Witte LP, Meyboom-de Jong B. Beyond stroke: Description and evaluation of an effective intervention to support family caregivers of strokepatients. Patient Educ Couns 2006 Jul;62(1):46-55.
  • Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M, et al. Training carers of stroke patients: randomised controlled trial. BMJ 2004 May;8;328(7448):1099.
  • Hartke RJ, King RB. Telephone group intervention for older stroke caregivers. Top Stroke Rehabil 2003 Winter;9(4):65-81.
  • Mant J, Winner S, Roche J, Wade DT. Familysupportforstroke: oneyearfollowup of a randomisedcontrolledtrial. J Neurol Neurosurg Psychiatry 2005 Jul;76(7):1006-8.
  • Mant J, Carter J, Wade DT, Winner S. Family support for stroke: A randomised controlled trial. Lancet 2000 Sep;2;356(9232):808-13.
  • Ostwald SK, Godwin KM, Cron SG, Kelley CP, Hersch G, Davis S. Home-based psycho educational and mailed information programs for stroke-caregiving dyads post-discharge: A randomized trial. Disabil Rehabil 2014 36(1):55-62.
  • Araújo O, Lage I, CabritaJ, Teixeira L. Intervention in informal caregivers whotakecare of older people after a stroke (InCARE): study protocol for a randomised trial. J Adv Nurs 2015 Oct;71(10):2435-43.
There are 36 citations in total.

Details

Journal Section Review
Authors

Yasemin Demir Avcı This is me

Sebahat Gözüm

Zeynep Özer

Publication Date October 19, 2016
Submission Date September 1, 2016
Published in Issue Year 2016 Volume: 10 Issue: 3

Cite

Vancouver Demir Avcı Y, Gözüm S, Özer Z. İnmeli Hastaların Ailelerinin, Bakım Verme Yeterliliğini Geliştirmek İçin Yapılan Girişimler: Sistematik Derleme. TJFMPC. 2016;10(3).

English or Turkish manuscripts from authors with new knowledge to contribute to understanding and improving health and primary care are welcome.