Assessment of Quality of Life in Caregivers of the Patients with Hematologic Neoplasms

Year 2019, Volume: 13 Issue: 3, 265 - 272, 20.09.2019

Çiğdem Gereklioğlu , Aslı Korur , Süheyl Asma Nurhilal Büyükkurt Soner Solmaz , Can Boğa , Hakan Özdoğu

https://doi.org/10.21763/tjfmpc.610806

Cited By: 4

Abstract

Aim/Background: Malignant diseases impair not only the quality of life
of the patient but also the caregivers. The present study aims to investigate
the quality of life in caregivers of the patients with hematologic neoplasms
and determine the relationship between the subscales of quality of life (QOL)
and socio-demographic characteristics of caregivers. Methods: One hundred consecutive caregivers of the patients who
were hospitalized at Bone Marrow Transplant Unit and Hematology Department
between 01 May 2015 and 30 June 2015 were included in this prospective, single
center, cross-sectional study. Socio-demographic data of the patients and the
caregivers were collected using a questionnaire form, QOL was evaluated using
short-form 36. Results: Quality of
life was found to be impaired in 46% of the caregivers. Given that a score of
100 defines full health status, bodily pain (31.3) and mental role (35.9)
subscale scores were found to be the most affected subscales and physical
functioning (71.8) subscale was found to be the least affected. There was a
statistically significant difference between the age of the caregiver and
physical role. Physical role and social functioning were better in caregivers
who have economic support. There was a difference between employed and unemployed
caregivers with regard to physical role and pain subscales. Overall health
perception subscale score was higher for the caregivers of male patients.
Graduates of the university were found to experience less pain. Conclusions: Cancer impairs not only the
life quality of the patient but also the caregiver. So, the patient and the
caregiver should be evaluated together and family physicians should take place
in the center of and coordinate the interventions required for improving the
quality of life of the caregivers.

 

Giriş ve Amaç: Malign hastalıklar sadece
hastanın değil, ailenin de yaşam kalitesini etkiler. Bu çalışmada hematolojik
neoplazmı olan hastaların bakım verenlerinin yaşam kalitesinin araştırılması ve
yaşam kalitesi alt ölçekleri ile bakım verenlerin sosyo-demografik özellikleri
arasındaki ilişkinin belirlenmesi amaçlanmıştır. Yöntem: Bu prospektif, tek merkez, kesitsel çalışmaya 01 Mayıs 2015
ile 30 Haziran 2015 tarihleri arasında Başkent Üniversitesi Kemik İliği Nakli
Ünitesi ve Hematoloji Bölümü’nde yatırılan yüz ardışık hastanın bakım verenleri
alınmıştır. Hastaların ve bakım verenlerin sosyo-demografik verileri anket
formu kullanılarak toplanmıştır, yaşam kalitesi ise kısa-form 36 ile
toplanmıştır. Bulgular: Bakım
verenlerin %46’sında yaşam kalitesinin bozulduğu bulunmuştur. Tam sağlık
durumunu belirten skorun 100 olduğu düşünüldüğünde, vücut ağrısı (31.3) ve
mental rol (35.9) en fazla etkilenen alt ölçekler iken fiziksel işlevselliğin
(71.8) en az etkilendiği bulunmuştur. Bakım verenin yaşı ile fiziksel rol
arasında istatistiksel olarak anlamlı fark vardı. Ekonomik desteği olan bakım
verenlerin fiziksel rol ve sosyal işlev alt ölçekleri daha iyiydi. Çalışan ve
çalışmayan bakım verenler arasında fiziksel rol ve ağrı alt ölçekleri
bakımından fark vardı. Genel sağlık algısı alt ölçeği skoru erkek hastaların
bakım verenlerinde daha yüksekti. Üniversite mezunlarının daha az ağrı
yaşadıkları bulunmuştur. Sonuç:
Kanser sadece hastanın değil, aynı zamanda bakım vericinin de yaşam kalitesini
etkiler. Bu nedenle hasta ve bakım vericisi birlikte değerlendirilmeli, aile
hekimleri bakım vericilerin yaşam kalitesinin artırılması için gereken
girişimlerde merkezde olarak koordinasyon sağlamalıdır.

Keywords

Hematologic neoplasms, quality of life, caregivers, family practice

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