Tip 1 Diyabetli Çocuk Ve Ailelerinde Diyabet Eğitimi

Year 2022, Volume: 16 Issue: 2, 447 - 455, 20.06.2022

Gunay Demir , Nurdan Akcay

https://doi.org/10.21763/tjfmpc.936444

Abstract

Tip 1 diyabetli çocuk ve gençlerin sağlıklı bir birey olarak yaşamını sürdürmesi, diyabetli bireyin merkezi rol oynadığı, multidisipliner çocuk diyabet ekibi tarafından verilen diyabet eğitimine bağlıdır. Başarılı eğitim ile Tip 1 diyabetli bireyler ve aileleri problem çözebilmelidir. Kan şekerlerini kendi kendine yönetebilmelidir. Bilgi ve pratik becerileri kullanma konusunda güçlenmeli, motive olmalıdır. Çocuk ve ailenin diyabet eğitimine başlanmadan önce; sağlık inanç ve tutumları, temel diyabet bilgisi, kültürel durumu, özyönetim becerileri, öğrenmeye hazır olma durumu, genel ve sağlık okuryazarlığı, öğrenme stili, yeteneği, mali durumu, aile ve sosyal destek gibi bileşenleri değerlendirilmelidir. Diyabet eğitimi, diyabetli tüm bireylere ve ailelerine ilk tanı anında başlanmalıdır. Düzenli bir şekilde, yaş ve gelişimsel özelliklerine uygun olarak verilmelidir. Yılda bir kez veya daha sıklıkla tekrar edilmelidir. Başarılı eğitim sadece bilgi vermekle kalmamalı, yaşam kalitesini de iyileştirmelidir. Tanı anından başlayarak yaşam boyu devam etmelidir. Çocuklar ve aileleri yaşamlarının tüm noktalarında bağımsız, güçlü, fiziksel ve ruhsal açıdan iyilik halinde olabilmelidirler.

Keywords

Tip 1 diyabet, Diyabet eğitimi, yapılandırılmış eğitim

Supporting Institution

yok

Diabetes Education In Children With Type 1 Diabetes and Their Families

Abstract

The survival of children and young people with type 1 diabetes as a healthy individual depends on the diabetes education given by the multidisciplinary pediatric diabetes team, in which the diabetic individual plays a central role. With successful education, individuals with Type 1 diabetes and their families should be able to solve problems. It should be able to manage its blood sugar on its own. It should be strengthened and motivated to use knowledge and practical skills. Before starting the diabetes education of the child and family; components such as health beliefs and attitudes, basic diabetes knowledge, cultural status, self-management skills, readiness to learn, general and health literacy, learning style, ability, financial status, family and social support should be evaluated.Diabetes education should be started at the time of first diagnosis for all individuals with diabetes and their families. It should be given regularly, in accordance with age and developmental characteristics. It should be repeated once a year or more often. Successful education should not only provide information but also improve the quality of life. At the same time, starting from the moment of diagnosis, it should continue throughout life. Children and their families should be able to be independent, strong, and well-being physically and mentally at all points in their lives.

Keywords

type 1 diabetes, diabetes education, structured education

References

• 1. Sengbusch SV, Müller‐Godeffroy E, Häger S, Reintjes R, Hiort O, Wagner V. Mobile diabetes education and care: intervention for children and young people with Type 1 diabetes in rural areas of northern Germany. Diabetic Medicine. 2006;23(2):122-127. doi:https://doi.org/10.1111/j.1464-5491.2005.01754.x
• 2. Brink SJ, Miller M, Moltz KC. Education and multidisciplinary team care concepts for pediatric and adolescent diabetes mellitus. J Pediatr Endocrinol Metab. 2002;15(8):1113-1130. doi:10.1515/jpem.2002.15.8.1113
• 3. Phelan H, Lange K, Cengiz E, et al. ISPAD Clinical Practice Consensus Guidelines 2018: Diabetes education in children and adolescents. Pediatr Diabetes. 2018;19:75-83. doi:10.1111/pedi.12762
• 4. Powers MA, Bardsley J, Cypress M, et al. Diabetes Self-management Education and Support in Type 2 Diabetes: A Joint Position Statement of the American Diabetes Association, the American Association of Diabetes Educators, and the Academy of Nutrition and Dietetics. Diabetes Care. 2015;38(7):1372-1382. doi:10.2337/dc15-0730
• 5. Health (UK) NCC for W and C. Education for Children and Young People with Type 1 Diabetes. National Institute for Health and Care Excellence (UK); 2015. Accessed April 3, 2021. https://www.ncbi.nlm.nih.gov/books/NBK343411/
• 6. Alonso Martín DE, Roldán Martín MB, Álvarez Gómez MÁ, et al. Impact of diabetes education on type 1 diabetes mellitus control in children. Endocrinol Nutr. 2016;63(10):536-542. doi:10.1016/j.endoen.2016.08.012
• 7. Eigenmann C, Colagiuri R, National Diabetes Services Scheme (Australia), Diabetes Australia. Outcomes and Indicators for Diabetes Education: A National Consensus Position June, 2007. NDSS, National Diabetes Services Scheme, Diabetes Australia; 2007:3-6. https://www.diabetesaustralia.com.au/wp-content/uploads/Outcomes-and-Indicators-for-Diabetes-Education.pdf
• 8. Grey M, Boland EA, Davidson M, Yu C, Sullivan-Bolyai S, Tamborlane WV. Short-term Effects of Coping Skills Training as Adjunct to Intensive Therapy in Adolescents. Diabetes Care. 1998;21(6):902-908. doi:10.2337/diacare.21.6.902
• 9. Interventions to Promote Diabetes Self-Management: State of the Science - Sharon A. Brown, 1999. Accessed April 3, 2021. https://journals.sagepub.com/doi/abs/10.1177/014572179902500623?casa_token=rBgyZBsBAgUAAAAA:Igi4FgYnqNP6U46chE3c6BggZ4axQj_FNakmZxzxpD22nFxDspX6jZa-MIc60MyGiZRilMpoNv2C
• 10. National Standards for Diabetes Self-Management Education and Support - Linda Haas, Melinda Maryniuk, Joni Beck, Carla E. Cox, Paulina Duker, Laura Edwards, Ed Fisher, Lenita Hanson, Daniel Kent, Leslie Kolb, Sue McLaughlin, Eric Orzeck, John D. Piette, Andrew S. Rhinehart, Russell Rothman, Sara Sklaroff, Donna Tomky, Gretchen Youssef, 2012. Accessed April 3, 2021. https://journals.sagepub.com/doi/full/10.1177/0145721712455997?casa_token=PiKxyAuN9HwAAAAA%3ASTh6o2a66th9lrjcvbaikCwrL-MNkeg7kM3eCb9sqYLLBX4-GESs9y2cJlQqyF8STD8-puuVGUY3
• 11. Diabetes UK and Department of Health. Structured Patient Education in Diabetes. Report from the Patient Education Working Group. Diabetes UK and Department of Health, London, UK; 2005.
• 12. Martin D, Lange K, Sima A, et al. Recommendations for age-appropriate education of children and adolescents with diabetes and their parents in the European Union. Pediatr Diabetes. 2012;13 Suppl 16:20-28. doi:10.1111/j.1399-5448.2012.00909.x
• 13. Diabetes (Type 1 and Type 2) in Children and Young People: Diagnosis and Management. PubMed. Published August 2015. Accessed April 3, 2021. https://pubmed.ncbi.nlm.nih.gov/26334077/
• 14. Sundberg F, Barnard K, Cato A, et al. Managing diabetes in preschool children. Pediatr Diabetes. 2017;18(7):499-517. doi:10.1111/pedi.12554
• 15. ISPAD Clinical Practice Consensus Guidelines 2018: Diabetes in adolescence - Cameron - 2018 - Pediatric Diabetes - Wiley Online Library. Accessed April 20, 2021. https://onlinelibrary.wiley.com/doi/abs/10.1111/pedi.12702?af=R
• 16. Murphy HR, Wadham C, Rayman G, Skinner TC. Approaches to integrating paediatric diabetes care and structured education: experiences from the Families, Adolescents, and Children’s Teamwork Study (FACTS). Diabet Med. 2007;24(11):1261-1268. doi:10.1111/j.1464-5491.2007.02229.x
• 17. Delamater AM, Bubb J, Davis SG, et al. Randomized prospective study of self-management training with newly diagnosed diabetic children. Diabetes Care. 1990;13(5):492-498. doi:10.2337/diacare.13.5.492
• 18. Nordfeldt S, Ludvigsson J. Self-study material to prevent severe hypoglycaemia in children and adolescents with type 1 diabetes. A prospective intervention study. Practical Diabetes International. 2002;19(5):131-136. doi:https://doi.org/10.1002/pdi.363
• 19. Svoren BM, Butler D, Levine BS, Anderson BJ, Laffel LMB. Reducing acute adverse outcomes in youths with type 1 diabetes: a randomized, controlled trial. Pediatrics. 2003;112(4):914-922. doi:10.1542/peds.112.4.914
• 20. Pinsker JE, Nguyen C, Young S, Fredericks GJ, Chan D. A pilot project for improving paediatric diabetes outcomes using a website: the Pediatric Diabetes Education Portal. J Telemed Telecare. 2011;17(5):226-230. doi:10.1258/jtt.2010.100812
• 21. Grey M, Whittemore R, Jeon S, et al. Internet Psycho-Education Programs Improve Outcomes in Youth With Type 1 Diabetes. Diabetes Care. 2013;36(9):2475-2482. doi:10.2337/dc12-2199
• 22. Hermanns N, Kulzer B, Ehrmann D, Bergis-Jurgan N, Haak T. The effect of a diabetes education programme (PRIMAS) for people with type 1 diabetes: Results of a randomized trial. Diabetes Research and Clinical Practice. 2013;102(3):149-157. doi:10.1016/j.diabres.2013.10.009
• 23. Nicholas DB, Fellner KD, Frank M, et al. Evaluation of an online education and support intervention for adolescents with diabetes. Soc Work Health Care. 2012;51(9):815-827. doi:10.1080/00981389.2012.699507
• 24. Mulvaney SA, Rothman RL, Wallston KA, Lybarger C, Dietrich MS. An internet-based program to improve self-management in adolescents with type 1 diabetes. Diabetes Care. 2010;33(3):602-604. doi:10.2337/dc09-1881
• 25. Katz ML, Volkening LK, Butler DA, Anderson BJ, Laffel LM. Family-based psychoeducation and Care Ambassador intervention to improve glycemic control in youth with type 1 diabetes: a randomized trial. Pediatr Diabetes. 2014;15(2):142-150. doi:10.1111/pedi.12065
• 26. Bernier A, Fedele D, Guo Y, et al. New-Onset Diabetes Educator to Educate Children and Their Caregivers About Diabetes at the Time of Diagnosis: Usability Study. JMIR Diabetes. 2018;3(2):e10. doi:10.2196/diabetes.9202
• 27. Otis M, Zhu J, Mustafa-Kutana SN, et al. Testing Usability and Feasibility of a Mobile Educator Tool for Pediatric Diabetes Self-Management: Mixed Methods Pilot Study. JMIR Form Res. 2020;4(5):e16262. doi:10.2196/16262
• 28. Jaser SS, Whittemore R, Chao A, Jeon S, Faulkner MS, Grey M. Mediators of 12-month outcomes of two Internet interventions for youth with type 1 diabetes. J Pediatr Psychol. 2014;39(3):306-315. doi:10.1093/jpepsy/jst081
• 29. Christie D, Thompson R, Sawtell M, et al. Structured, intensive education maximising engagement, motivation and long-term change for children and young people with diabetes: a cluster randomised controlled trial with integral process and economic evaluation - the CASCADE study. Health Technol Assess. 2014;18(20):1-202. doi:10.3310/hta18200
• 30. Berndt RD, Takenga C, Preik P, et al. Impact of Information Technology on the Therapy of Type-1 Diabetes: A Case Study of Children and Adolescents in Germany. J Pers Med. 2014;4(2):200-217. doi:10.3390/jpm4020200
• 31. Bloomfield S, Calder JE, Chisholm V, et al. A project in diabetes education for children. Diabet Med. 1990;7(2):137-142. doi:10.1111/j.1464-5491.1990.tb01348.x
• 32. Galatzer A, Amir S, Gil R, Karp M, Laron Z. Crisis Intervention Program in Newly Diagnosed Diabetic Children. Diabetes Care. 1982;5(4):414-419. doi:10.2337/diacare.5.4.414
• 33. Brown SJ, Lieberman DA, Germeny BA, Fan YC, Wilson DM, Pasta DJ. Educational video game for juvenile diabetes: results of a controlled trial. Med Inform (Lond). 1997;22(1):77-89. doi:10.3109/14639239709089835
• 34. Howe CJ, Jawad AF, Tuttle AK, et al. Education and Telephone Case Management for Children With Type 1 Diabetes: A Randomized Controlled Trial. Journal of Pediatric Nursing. 2005;20(2):83-95. doi:10.1016/j.pedn.2004.12.010
• 35. Hanberger L, Ludvigsson J, Nordfeldt S. Use of a web 2.0 portal to improve education and communication in young patients with families: randomized controlled trial. J Med Internet Res. 2013;15(8):e175. doi:10.2196/jmir.2425
• 36. Newton KT, Ashley A. Pilot study of a web-based intervention for adolescents with type 1 diabetes. J Telemed Telecare. 2013;19(8):443-449. doi:10.1177/1357633X13512069