Family Relationship and Attitude towards Children with Disability among Households with Children living with Disability in Southeast Nigeria: Implication to Sustainable Development

Year 2024, Volume: 14 Issue: 73, 228 - 240, 29.06.2024

Onyedikachi Nnamchi Samuel Okafor Peace Adubi Samuel Kalu Ogechi Ikem

https://doi.org/10.17066/tpdrd.1340703_7

Abstract

Disability has come to stay with humanity and now placing demand on our technological, scientific, spirituality and humanitarian management prowess and capability in adapting and managing it as global community. However, there are different levels and contexts at which people living with disability are highlighted and practically require our cooperation and assistance, which included family setting. In sub-Saharan Africa and other developing nations, families with children living with disability have found it a difficult task to meet the needs of these ones especially the children. This study investigated the relationship challenges faced by children living with disability among their siblings in southeast Nigeria among households with children living with disability. The study applied cross-sectional survey design; one hundred and eighteen (118) adolescent participants that have at least one sibling with any form of physical disability took part in the study, while attitude towards disabled sibling scale developed by the researchers using some adaptations from the Attitude Scale of Parents towards their mentally retarded children (Govender, 2002). A 2 x 3 x 2 Analysis of Variance (Three-way ANOVA) technique from unequal sample size was used to analyze the data. According to the major findings, there is significant interaction of birth order and Parental level of Education (PLoE) on attitude of siblings towards their physically disabled brother/sister, F(1,108)=7.568, p<.05. Participants who are firstborns with less educated parents 64.40 (SD=7.82), midborns with educated parents71.87 (SD=6.39) and lastborns with less educated parents 59.20 (SD=11.30) all have significantly lower positive attitude towards their physically disabled brother/sister. In conclusion, the study raises some concern about the institutionalization of social stigma against the people living with disability in southeast Nigeria as the product of the families and households relationship with the children living with disability.

Keywords

Children living with disability, Family relationship, Inclusive society, Siblings relationship, Sustainable development

References

• Alghamdi, S. & Alsaigh, R. (2023). Determinants of physical activity among children with disabilities. Healthcare (Basel). 11(4):494 https://doi.org/10.3390/healthcare11040494
• Babik, I., & Gardner, E. S. (2021). Factors affecting the perception of disability: A developmental perspective. Frontiers in psychology, 12, 702166. https://doi.org/10.3389/fpsyg.2021.702166
• Barnett, K. (2022) If ever there was someone to keep me at home: theorizing screen representations of siblinghood through a case study of into the wild (2007). Quarterly Review of Film and Video, 39(4), 842-866. https://doi.org/10.1080/10509208.2021.1886823
• Begum, G., &Blacher, J. (2011). The siblings relationship of adolescents with and without intellectual disabilities.Researchindevelopmentaldisabilities, 32(5),1580–1588. https://doi.org/10.1016/j.ridd.2011.01.056
• Bones, U. O., Bates, J., Finlay, J. & Campbell, A. (2022). Parental involvement during COVID-19: experiences from the special school. European Journal of Special Needs Education, 37(6), 936-949, https://doi.org/10.1080/08856257.2021.1967297
• Burbidge, J., & Minnes, P. (2014). Relationship quality in adult siblings with and without developmental disabilities. Family Relations, 63(1), 148–162. http://www.jstor.org/stable/43695337
• Burke, P. (2010). Brothers and sisters of disabled children: the experience of disability by association. The British Journal of Social Work, 40(6), 1681–1699. http://www.jstor.org/stable/43687565
• Caliendo, M., Lanzara, V., Vetri, L., Roccella, M., Marotta, R., Carotenuto, M., Russo, D., Cerroni, F., &Precenzano, F. (2020). Emotional-behavioral disorders in healthy siblings of children with neuro developmental disorders. Medicina (Kaunas, Lithuania), 56(10),491. https://doi.org/10.3390/medicina56100491
• David, M., Dieterich, K., Billette de Villemeur, A., Jouk, P. S., Counillon, J., Larroque, B., Bloch, J., & Cans, C. (2014). Prevalence and characteristics of children with mild intellectual disability in a French county. Journal of intellectual disability research:JIDR, 58(7), 591–602. https://doi.org/10.1111/jir.12057
• Devkota, H. R., Kett, M. &Groce, N. (2019). Societal attitude and behaviours towards womenwithdisabilities in rural Nepal: Pregnancy, childbirth and motherhood. BMC PregnancyChildbirth, 19, 20. https://doi.org/10.1186/s12884-019-2171-4
• Downey, T. N. (2016). Children with Special Needs and the Effect on the Family (Dissertation no: 2518)[Masters Dissertation, Eastern Illinois University].Eastern Illinois University Repository.https://thekeep.eiu.edu/theses/2518
• Fernando, H. & Botelho, F. (2021). Childhood and assistive technology: growing with opportunity,developingwithtechnology. AssistiveTechnology, 33(1), 87- 93, https://doi.org/10.1080/10400435.2021.1971330
• Gettings, S., Franco, F. & Santosh, P. J. (2015). Facilitating support groups for siblings of children with neuro developmental disorders using audio-conferencing: a longitudinal feasibility study. Child Adolesc Psychiatry Ment Health, 9, 8. https://doi.org/10.1186/s13034-015-0041-z
• Hanvey, I., Malovic, A. & Ntontis, E. (2022). Glass children: The lived experiences of siblings of people with a disability or chronic illness.Journal of Community and Applied Social Psychology 32(5), 936-948 https://doi.org/10.1002/casp.2602
• Hayden, N. K., Hastings, R. P., Kassa, C. & Frances, D. (2023). Subjective poverty moderatesthe association between carer status and psychological outcomes of adult siblings of people with intellectual and developmental disabilities. J Autism Dev Disord, 53, 987–999. https://doi.org/10.1007/s10803-022- 05520-3
• Hayden, N. K., Hastings, R. P., Totsika, V. & Langley, E. (2019). A population-based study of the behavioral and emotional adjustment of older siblings of children with and without intellectualdisability. J Abnorm Child Psychol 47, 1409–1419. https://doi.org/10.1007/s10802-018-00510-5
• Hayden, N. K., Hastings, R. P. & Bailey, T. (2023). Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality.Journal of Intellectual Disability Research, 67(4), 310-322. https://doi.org/10.1111/jir.13006
• Hovland, W. & Hean, S. (2021). The quality and developmental pathways in sibling relationships: A qualitative study of Norwegian children admitted to child welfare service care. Child and family social work, 26(4),559-571. https://doi.org/10.1111/cfs.12838.
• Jajodia, P., & Roy, P. (2022). SiblingIssues in Disability: A Thematic Analysis of Sibling, Parent&ExpertPerspectives. International Journal of Disability, Development andEducation, 70(7), 1392–1409. https://doi.org/10.1080/1034912X.2022.2060948
• Jensen A. C., Whiteman S. D. &Fingerman K. L. (2018). Can’t live with or without them: transitions and young adults’ perceptions of sibling relationships. J. Fam. Psychol.32, 385–395. https://doi.org/10.1037/fam0000361 Junaidi, A. R & Dewantoro, D. A. (2020). Parents’ perceptions of children with disabilities. Advances in Social Science, Education and Humanities Research, 508, 14-19.
• Katz, C., &Hamama, L. (2018). The sibling relationship in the context of child maltreatment: what do we know? What are the directions for the future? Trauma, Violence & Abuse, 19(3), 343–351. https://www.jstor.org/stable/26638205
• Kim D. H. & Han J. H. (2016). A study on the psychological phenomenon of the non-disabledsiblings with intellectually disabled brother. Korea J. Couns. 17, 357–375.
• Krejčová K, Chýlová H,&Rymešová P (2023) Analysis of siblings’ relationship and parenting styleusing structuremodellingapproach.PLoS ONE, 18(2), e0281266. https://doi.org/10.1371/journal.pone.0281266
• Luijkx, J., van der Putten, A. J. &Vlaskamp, C. (2016). I love my sister, but sometimes I don't: A qualitative study into the experiences of siblings of a child with profound intellectualandmultiple disabilities. Journalof Intellectual & Developmental Disability, 41(4), 279-288, https://doi.org/10.3109/13668250.2016.1224333
• Manomano, T. & Kumalo, S.E.E. (2016). Discovering the child’s disability: challenges with parenting and implications for social work practice in South Africa. J Sociology SocAnth, 7(4), 202-206
• Mc Adams, A. (2016). The experiences of siblings of individuals with disabilities: A holistic view[Doctoral Dissertation, Chapman University].Chapman UniversityRepository. https://doi.org/10.36837/chapman.000024
• Meltzer, A., & Kramer, J. (2016). Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities. Disability & Society, 31(1), 17–32. http://doi.org/10.1080/09687599.2015.1127212
• Modula, M. J. (2022). The support needs of families raising children with intellectual disability.African Journal of Disability, 11(0), a952. https://doi.org/10.4102/ajod.v11i0.952
• Olusanya, B. O., Wright, S. M., Nair, M. K. C., Boo, N. Y., Halpern, R., Kuper, H., Abubakar, A. A., Almasri, N. A., Arabloo, J., Arora, N. K., Backhaus, S., Berman, B. D., Breinbauer, C., Carr, G., de Vries, P. J., Del Castillo-Hegyi, C., Eftekhari, A., Gladstone, M. J., Hoekstra, R. A., Kancherla, V. & Global Research on Developmental Disabilities
• Collaborators (GRDDC) (2020). Global burden of childhood epilepsy, intellectual disability, and sensory impairments. Pediatrics, 146(1), e20192623. https://doi.org/10.1542/peds.2019-2623
• Okafor, S. O., Onu, J. C. &Nwaeze, V. C. (2021). Rural small-scale women farmers and preference for familysize in south-east Nigeria.Comparative Population Studies, 46, 35-68
• Packingham, K. A. (2016). Raising a child with a severe disability: The impact on parents and siblings. Culminating Projects in Special Education. 10. https://repository.stcloudstate.edu/sped_etds/10
• Park, S., Ryu, W., & Yang, H. (2021). A Study on the life experiences of adolescents who grew up with younger siblings with developmental disabilities: Focusing on phenomenologicalanalysis methods. Brain sciences, 11(6), 798. https://doi.org/10.3390/brainsci11060798
• Paul, A. M., Hussey, M. M., Woodman, A. C, Smith, A. L. & Shriver, T. P. (2021). Experiencesof siblings of people with intellectual disabilities: Multiregional perspectives. Family RelationsInterdisciplinary Journal of Applied Family Science, 71(2),671-685.https://doi.org/10.1111/fare.12608
• Selda, F. & Soysa, Ö. (2016). A study on sibling relationships, life satisfaction and loneliness level of adolescents. Journal of Education and Training Studies, 4(4), 58-67.
• Seligman, M. (1999). Childhood disability and the family. In: Schwean, V.L., Saklofske, D.H. (eds) Handbook of psychosocial characteristics of exceptional children. Springer Series onHumanExceptionality. Springer, Boston, MA. https://doi.org/10.1007/978-1-4757- 5375-2_5
• Shields, N. &Synnot, A. (2016). Perceived barriers and facilitators to participation in physical activity for childrenwithdisability: A qualitativestudy. BMCPediatr, 16(9). https://doi.org/10.1186/s12887-016-0544-7
• Siminghalam M, Aubi K, Hajian A. &Alibakhshi H. (2018). The quality of life of siblings of children with severe developmental disabilities children. IranianRehabilitation Journal. 16(3), 233-238. http://dx.doi.org/10.32598/irj.16.3.233
• Tataryn, M., Polack, S., Chokotho, L., Mulwafu, W., Kayange, P.,Banks, L. M., Noe, C., Lavy, C., & Kuper, H. (2017). Childhood disability in Malawi: A population based assessment using the key informant method. BMC Pediatr, 17, 198. https://doi.org/10.1186/s12887-017-0948-z
• Tigere, B., &Makhubele, J. C. (2019). The experiences of parents of children living with disabilities at Lehlaba Protective Workshop in Sekhukhune district of Limpopo province. African journal of disability, 8(0), 528. https://doi.org/10.4102/ajod.v8i0.528
• Volkom, M. V., Guerguis, A. J. & Kramer, A. (2017). Sibling relationships, birth order, and personality among emerging adults. Journal of Psychology and Behavioral Science,5(2), 21-28
• Wang, Z., Xu, X., Han, Q., Chen, Y., Jiang, J. & Ni, G. (2021). Factors associated with publicattitudes towards persons with disabilities: A systematic review. BMCPublic Health, 21, 1058. https://doi.org/10.1186/s12889-021-11139-3
• Watson, L., Hanna, P. & Jones, C. J. (2021). A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clinical Child Psychology and Psychiatry,26(3), 734-749. https://doi.org/10.1177/13591045211007921
• Wondemu, M. Y., Joranger, P., Hermansen, A. & Brekke, I. (2022). Impact of child disability on parental employment and labour income: a quasi-experimental study of parents of children with disabilities in Norway. BMC Public Health, 22, 1813. https://doi.org/10.1186/s12889-022-14195-5
• Yadwinder, K. (2010). Family support model for the management of disabled children. Studies on Home and Community Science, 4(3), 179-184. https://doi.org/10.1080/09737189.2010.11885320
• Zhong, X., Zhao, X., Liu, Z., Guo, Y. & Ma, L. (2020). Childhood disability and its associated perinatal characteristics in Bao’an district of Shenzhen, China. BMCPublicHealth, 20, 1540. https://doi.org/10.1186/s12889-020-09623-3