Research Article
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Year 2024, Volume: 14 Issue: 75, 576 - 587, 30.12.2024
https://doi.org/10.17066/tpdrd.1415811

Abstract

References

  • Abu-Bader, S., & Jones, T. V. (2021). Statistical mediation analysis using the sobel test and hayes SPSS process macro. International Journal of Quantitative and Qualitative Research Methods. 9(1), 42-61. https://ssrn.com/abstract=3799204
  • Alhuzimi, T. (2021). Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia. Research in Developmental Disabilities, 108, 103822.
  • Armstrong, M. I., Birnie-Lefcovitch, S., & Ungar, M. T. (2005). Pathways between social support, family well-being, quality of parenting, and child resilience: What we know. Journal of Child and Family Studies, 14, 269-281.
  • Arvidsdotter, T., Marklund, B., Kylén, S., Taft, C., & Ekman, I. (2016). Understanding persons with psychological distress in primary health care. Scandinavian Journal of Caring Sciences, 30(4), 687-694.
  • Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2021). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families?. Journal of Autism and Developmental Disorders, 51(5), 1772-1780.
  • Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41(12), 1675-1685.
  • Boztepe, H., Kerimoğlu Yıldız, G., Çınar, S., Ay, A. (2019) Çocuğu hastanede yatan ebeveynlerin aile merkezli bakım alma durumlarını etkileyen faktörlerin belirlenmesi. Acıbadem Üniversitesi Sağlık Bilimleri Dergisi, 4, 748–755.
  • Byrne, B. M. (2013). Structural equation modeling with Mplus: Basic concepts, applications, and programming. New York: Routledge.
  • Cameron, E. E., Joyce, K. M., Delaquis, C. P., Reynolds, K., Protudjer, J. L., & Roos, L. E. (2020). Maternal psychological distress & mental health service use during the COVID-19 pandemic. Journal of Affective Disorders, 276, 765-774. https://doi.org/10.1016/j.jad.2020.07.081.
  • Carlson, J. M., & Miller, P. A. (2017). Family burden, child disability, and the adjustment of mothers caring for children with epilepsy: Role of social support and coping. Epilepsy & Behavior, 68, 168-173.
  • Cetinbakis, G., Bastug, G., & Ozel-Kizil, E. T. (2020). Factors contributing to higher caregiving burden in Turkish mothers of children with autism spectrum disorders. International Journal of Developmental Disabilities, 66(1), 46-53.
  • Chafouleas, S. M., & Iovino, E. A. (2021). Comparing the initial impact of COVID-19 on burden and psychological distress among family caregivers of children with and without developmental disabilities. School Psychology, 36(5), 358-366. https://doi.org/10.1037/spq0000426.
  • Chen, S. Q., Chen, S. D., Li, X. K., & Ren, J. (2020). Mental health of parents of special needs children in China during the COVID-19 pandemic. International Journal of Environmental Research and Public Health, 17(24), 9519.
  • Cramm J. M. & Nieboer A. P. (2011). Psychological well-being of caregivers of children with intellectual disabilities: Using parental stress as a mediating factor. Journal of Intellectual Disabilities 15, 101–13.
  • Cummins R. A. (2000) Personal income and subjective well-being: a review. Journal of Happiness Studie,1,133–58.
  • Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291.
  • Dellve, L., Samuelsson, L., Tallborn, A., Fasth, A., & Hallberg, L. R. M. (2006). Stress and well‐being among parents of children with rare diseases: A prospective intervention study. Journal of Advanced Nursing, 53(4), 392-402.
  • Deniz, M. E., Dilmaç, B. ve Arıcak, O.T. (2009). Engelli çocuğa sahip olan ebeveynlerin durumluk-sürekli kaygı ve yaşam doyumlarının incelenmesi. Uluslararası İnsan Bilimleri Dergisi, 6(1), 953-968.
  • Dickinson, H., Smith, C., Yates, S., & Tani, M. (2023). The importance of social supports in education: survey findings from students with disability and their families during COVID-19. Disability & Society, 38(8), 1304-1326.
  • Diener, E., Lucas, R. E., & Oishi, S. (2002). Subjective well-being: The science of happiness and life satisfaction. Handbook of Positive Psychology, 2, 63-73.
  • Diener, E., Wirtz, D., Tov, W., Kim-Prieto, C., Choi, D., Oishi, S., & Biswas-Diener, R. (2010). New well-being measures: Short scales to assess flourishing and positive and negative feelings. Social Indicators Research, 97, 143–156.
  • Drogomyretska, K., Fox, R., & Colbert, D. (2020). Brief report: stress and perceived social support in parents of children with ASD. Journal of Autism and Developmental Disorders, 50(11), 4176-4182.
  • Duygun, T. & Sezgin, N., (2003). Zihinsel engelli ve sağlıklı çocuk annelerinde stres belirtileri, stresle başa çıkma tarzları ve algılanan sosyal desteğin tükenmişlik düzeyine olan etkisi. Türk Psikoloji Dergisi, 18 (52), 37–52.
  • Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274-1284.
  • Ellis, J. T., Luiselli, J. K., Amirault, D., Byrne, S., O'Malley-Cannon, B., Taras, M., ... & Sisson, R. W. (2002). Families of children with developmental disabilities: Assessment and comparison of self-reported needs in relation to situational variables. Journal of Developmental and Physical Disabilities, 14, 191-202.
  • Embregts, P., Heerkens, L., Frielink, N., Giesbers, S., Vromans, L., & Jahoda, A. (2021). Experiences of mothers caring for a child with an intellectual disability during the COVID-19 pandemic in the Netherlands. Journal of Intellectual Disability Research, 65(8), 760-771. https://doi.org/10.1111/jir.12859
  • Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain and Development, 35(2), 133-138.
  • Field, A. (2016). Discovering statistics using IBM SPSS Statistics. London: Sage.
  • Foody, C., James, J. E., & Leader, G. (2015). Parenting stress, salivary biomarkers, and ambulatory blood pressure: A comparison between mothers and fathers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(4), 1084- 1095.
  • Fraenkel, J. R., Wallen, N. E. & Hyun, H. H. (2015). How to design and evaluate research in education (9th edition). Mc Graw Hill Education.
  • Ghosh, S., & Greenberg, J. S. (2012). Gender difference in caregiving experience and the importance of social participation and marital satisfaction among aging mothers and fathers of adults with schizophrenia. Social Work in Mental Health, 10(2), 146-168.
  • Gobrial, E. (2018). The lived experiences of mothers of children with the autism spectrum disorders in Egypt. Social sciences, 7(8), 133.
  • Gönültaş, N. (2017). Zihinsel ve fiziksel engelli çocuğa sahip ebeveynlerde algılanan sosyal destek ile bakım verme yükü arasındaki ilişkinin incelenmesi (Yayınlanmamış yüksek lisans tezi). Sosyal Bilimler Enstitüsü.
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The Relations of Social Support and Well-Being in Mothers of Children with Special Needs During The COVID-19 Pandemic: The Mediating Role of Caregiving Burden

Year 2024, Volume: 14 Issue: 75, 576 - 587, 30.12.2024
https://doi.org/10.17066/tpdrd.1415811

Abstract

This study explores the relationship between social support and well-being in mothers of children with special needs during the COVID-19 pandemic with a specific focus on the mediating role of caregiving burden. The research investigates the challenges faced by families with special needs children, particularly mothers, due to the pandemic-related closure of schools and rehabilitation centers. The closure has intensified the caregiving burden on mothers, requiring full-time support for their children at home. Existing literature suggests a significant impact on the psychological well-being of families with special needs children, emphasizing the need for attention to this vulnerable group during the pandemic. The study formulates hypotheses related to the negative correlation between family support and caregiving burden, the negative correlation between caregiving burden and psychological well-being, and the positive correlation between family support and psychological well-being. Additionally, it hypothesizes that caregiving burden mediates the relationship between family support and psychological well-being. Using a relational research approach, the study employs a quantitative method to analyze data collected from 321 participants. The demographic information of the participants, including age, working condition, marital status, and the type of disability of their children, is presented. Data collection instruments include a Sociodemographic Information Form, Family Support Scale, Caregiving Burden Scale, and Psychological Well-being Scale. Results indicated a positive relationship between family support and psychological well-being, as well as a negative relationship between caregiving burden and psychological well-being. The mediation analysis confirmed that caregiving burden significantly mediates the relationship between family support and psychological well-being. The findings highlighted the crucial role of family support in enhancing the psychological well-being of mothers with special needs children. Additionally, the study emphasized the negative impact of increased caregiving burden on psychological well-being. These results contribute to the understanding of the challenges faced by families with special needs children during the COVID-19 pandemic and underscore the importance of targeted interventions to support this vulnerable group. Future research may explore strategies to involve fathers in the caregiving process and further enhance maternal mental health.

References

  • Abu-Bader, S., & Jones, T. V. (2021). Statistical mediation analysis using the sobel test and hayes SPSS process macro. International Journal of Quantitative and Qualitative Research Methods. 9(1), 42-61. https://ssrn.com/abstract=3799204
  • Alhuzimi, T. (2021). Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia. Research in Developmental Disabilities, 108, 103822.
  • Armstrong, M. I., Birnie-Lefcovitch, S., & Ungar, M. T. (2005). Pathways between social support, family well-being, quality of parenting, and child resilience: What we know. Journal of Child and Family Studies, 14, 269-281.
  • Arvidsdotter, T., Marklund, B., Kylén, S., Taft, C., & Ekman, I. (2016). Understanding persons with psychological distress in primary health care. Scandinavian Journal of Caring Sciences, 30(4), 687-694.
  • Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2021). How is COVID-19 affecting the mental health of children with special educational needs and disabilities and their families?. Journal of Autism and Developmental Disorders, 51(5), 1772-1780.
  • Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD: Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41(12), 1675-1685.
  • Boztepe, H., Kerimoğlu Yıldız, G., Çınar, S., Ay, A. (2019) Çocuğu hastanede yatan ebeveynlerin aile merkezli bakım alma durumlarını etkileyen faktörlerin belirlenmesi. Acıbadem Üniversitesi Sağlık Bilimleri Dergisi, 4, 748–755.
  • Byrne, B. M. (2013). Structural equation modeling with Mplus: Basic concepts, applications, and programming. New York: Routledge.
  • Cameron, E. E., Joyce, K. M., Delaquis, C. P., Reynolds, K., Protudjer, J. L., & Roos, L. E. (2020). Maternal psychological distress & mental health service use during the COVID-19 pandemic. Journal of Affective Disorders, 276, 765-774. https://doi.org/10.1016/j.jad.2020.07.081.
  • Carlson, J. M., & Miller, P. A. (2017). Family burden, child disability, and the adjustment of mothers caring for children with epilepsy: Role of social support and coping. Epilepsy & Behavior, 68, 168-173.
  • Cetinbakis, G., Bastug, G., & Ozel-Kizil, E. T. (2020). Factors contributing to higher caregiving burden in Turkish mothers of children with autism spectrum disorders. International Journal of Developmental Disabilities, 66(1), 46-53.
  • Chafouleas, S. M., & Iovino, E. A. (2021). Comparing the initial impact of COVID-19 on burden and psychological distress among family caregivers of children with and without developmental disabilities. School Psychology, 36(5), 358-366. https://doi.org/10.1037/spq0000426.
  • Chen, S. Q., Chen, S. D., Li, X. K., & Ren, J. (2020). Mental health of parents of special needs children in China during the COVID-19 pandemic. International Journal of Environmental Research and Public Health, 17(24), 9519.
  • Cramm J. M. & Nieboer A. P. (2011). Psychological well-being of caregivers of children with intellectual disabilities: Using parental stress as a mediating factor. Journal of Intellectual Disabilities 15, 101–13.
  • Cummins R. A. (2000) Personal income and subjective well-being: a review. Journal of Happiness Studie,1,133–58.
  • Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291.
  • Dellve, L., Samuelsson, L., Tallborn, A., Fasth, A., & Hallberg, L. R. M. (2006). Stress and well‐being among parents of children with rare diseases: A prospective intervention study. Journal of Advanced Nursing, 53(4), 392-402.
  • Deniz, M. E., Dilmaç, B. ve Arıcak, O.T. (2009). Engelli çocuğa sahip olan ebeveynlerin durumluk-sürekli kaygı ve yaşam doyumlarının incelenmesi. Uluslararası İnsan Bilimleri Dergisi, 6(1), 953-968.
  • Dickinson, H., Smith, C., Yates, S., & Tani, M. (2023). The importance of social supports in education: survey findings from students with disability and their families during COVID-19. Disability & Society, 38(8), 1304-1326.
  • Diener, E., Lucas, R. E., & Oishi, S. (2002). Subjective well-being: The science of happiness and life satisfaction. Handbook of Positive Psychology, 2, 63-73.
  • Diener, E., Wirtz, D., Tov, W., Kim-Prieto, C., Choi, D., Oishi, S., & Biswas-Diener, R. (2010). New well-being measures: Short scales to assess flourishing and positive and negative feelings. Social Indicators Research, 97, 143–156.
  • Drogomyretska, K., Fox, R., & Colbert, D. (2020). Brief report: stress and perceived social support in parents of children with ASD. Journal of Autism and Developmental Disorders, 50(11), 4176-4182.
  • Duygun, T. & Sezgin, N., (2003). Zihinsel engelli ve sağlıklı çocuk annelerinde stres belirtileri, stresle başa çıkma tarzları ve algılanan sosyal desteğin tükenmişlik düzeyine olan etkisi. Türk Psikoloji Dergisi, 18 (52), 37–52.
  • Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274-1284.
  • Ellis, J. T., Luiselli, J. K., Amirault, D., Byrne, S., O'Malley-Cannon, B., Taras, M., ... & Sisson, R. W. (2002). Families of children with developmental disabilities: Assessment and comparison of self-reported needs in relation to situational variables. Journal of Developmental and Physical Disabilities, 14, 191-202.
  • Embregts, P., Heerkens, L., Frielink, N., Giesbers, S., Vromans, L., & Jahoda, A. (2021). Experiences of mothers caring for a child with an intellectual disability during the COVID-19 pandemic in the Netherlands. Journal of Intellectual Disability Research, 65(8), 760-771. https://doi.org/10.1111/jir.12859
  • Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain and Development, 35(2), 133-138.
  • Field, A. (2016). Discovering statistics using IBM SPSS Statistics. London: Sage.
  • Foody, C., James, J. E., & Leader, G. (2015). Parenting stress, salivary biomarkers, and ambulatory blood pressure: A comparison between mothers and fathers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(4), 1084- 1095.
  • Fraenkel, J. R., Wallen, N. E. & Hyun, H. H. (2015). How to design and evaluate research in education (9th edition). Mc Graw Hill Education.
  • Ghosh, S., & Greenberg, J. S. (2012). Gender difference in caregiving experience and the importance of social participation and marital satisfaction among aging mothers and fathers of adults with schizophrenia. Social Work in Mental Health, 10(2), 146-168.
  • Gobrial, E. (2018). The lived experiences of mothers of children with the autism spectrum disorders in Egypt. Social sciences, 7(8), 133.
  • Gönültaş, N. (2017). Zihinsel ve fiziksel engelli çocuğa sahip ebeveynlerde algılanan sosyal destek ile bakım verme yükü arasındaki ilişkinin incelenmesi (Yayınlanmamış yüksek lisans tezi). Sosyal Bilimler Enstitüsü.
  • Grumi, S., Provenzi, L., Gardani, A., Aramini, V., Dargenio, E., Naboni, C., ... & Engaging with Families through On-line Rehabilitation for Children during the Emergency (EnFORCE) Group. (2021). Rehabilitation services lockdown during the COVID-19 emergency: The mental health response of caregivers of children with neurodevelopmental disabilities. Disability and Rehabilitation, 43(1), 27-32.
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There are 70 citations in total.

Details

Primary Language English
Subjects Psychological Counseling and Guidance (Other)
Journal Section Makaleler
Authors

Muharrem Koç 0000-0002-9138-2205

Özlem Haskan Avcı 0000-0003-4903-6584

Gülşah Elkaan 0000-0002-3661-8289

Sinem Kocadayı 0000-0002-5849-7289

Eyüp Sabır Erbiçer 0000-0001-8253-7212

Tolga Zencir 0000-0002-5434-9676

Publication Date December 30, 2024
Submission Date January 7, 2024
Acceptance Date April 22, 2024
Published in Issue Year 2024 Volume: 14 Issue: 75

Cite

APA Koç, M., Haskan Avcı, Ö., Elkaan, G., Kocadayı, S., et al. (2024). The Relations of Social Support and Well-Being in Mothers of Children with Special Needs During The COVID-19 Pandemic: The Mediating Role of Caregiving Burden. Turkish Psychological Counseling and Guidance Journal, 14(75), 576-587. https://doi.org/10.17066/tpdrd.1415811

!! From 30 November 2023, English language proofreading will be required for accepted articles to ensure language quality.