Araştırma Makalesi
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The Burden of Care and Coping Strategies of Caregivers of Elderly Patients

Yıl 2021, Cilt: 3 Sayı: 1, 19 - 32, 31.01.2021

Öz

This descriptive and comparative study was conducted to determine the relationship between the burden of care experienced by caregivers of elderly patients in the palliative care unit and internal medicine clinic and their coping strategies. The study sample consisted of 80 caregivers of the elderly hospitalized in the Palliative Care Unit and Internal Medicine Clinic in a city hospital between April and June 2017. The Personal Information Form, the Zarit Caregiver Burden Interview Scale (ZCBI Scale) and Coping Strategies Inventory-Short Form (CSI Short Form) were used in this study. The total score obtained by the caregivers from the ZCBI Scale was 50.37 ± 10.93 in the palliative care unit and 32.72 ± 8.72 in the internal medicine clinic. A significant difference was found between the two groups in terms of the subscales “Planning” and “Searching Social Support-Instrumental” of the CSI Short Form and the total score of ZCBI Scale.

Kaynakça

  • Aires, M., Mocellin, D., Fengler, F. L., Rosset, I., Santos, N. O., Machado, Day, C. B., Paskulin, L. M G. (2017). Association between filial responsibility when caring for parents and the caregivers overload. Rev Bras Enferm [Internet].70(4):767-74.
  • Ateş, E., Bilgili, N. (2013). Coping with stress and social support in caregivers of individuals with spinal cord injuries. Hemşirelikte Araştırma Geliştirme Dergisi, 15(3): 1-12.
  • Bacanlı, H., Sürücü, M., İlhan, T. (2013). Examination of psychometric properties of short form of coping styles scale (CSL-SF). Kuram ve Uygulamada Eğitim Bilimleri, 13(1), 81-96.
  • British Medical Association BMA (2016) Growing older in the UK. http://www.bgs.org.uk/pdfs/2016bma_growing_older_in_uk.pdf 2016.
  • Eslami, A. A., Rabiei, L., Abedi, HA., Shirani, M., Masoudi, R. (2016). Coping skills of iranian family caregivers’ in care taking of patients undergoing haemodialysis: a qualitative study. Journal Of Renal Care, 42(3),162–171.
  • Hagell, P., Alvariza, A., Westergren, A., Restedt, K.A. (2017). Assessment of burden among family caregivers of people with parkinson’s disease using the Zarit Burden Interview. J Pain Symptom Manage, 53(2), 272-278.
  • Hsu, T., Loscalzo, M., Ramanı, R., Forman, S., Popplewell, L., Clark, K., Katheria, V., Strowbridge, R., Rinehart, R., Smith, D., Matthews, K., Dillehunt, J., Feng, T., Smith, D., Sun, C., Hurria, A. (2017). Are disagreements in caregiver and patient assessment of patient health associated with increased caregiver burden in caregivers of older adults with cancer. The Oncologist, 22(11):1383-1391.
  • Kalinkara, V., Kalayci, I. (2017). Life satisfaction, care burden and burnout in elderly home care persons. Elderly Issues Research Journal, 10(2):19-39.
  • Küçükgüçlü, Ö., Esen, A., Yener, G. (2009). To examine the validity and reliability of Caregivers' Burden Inventory for Turkish society. Journal of Neurological Sciences, 26(1): 060-073.
  • Liu, J. F., Lu, M. C., Fang, T. P., Yu, H. R., Lin, H. L., Fang, D. L. (2017). Burden on caregivers of ventilator-dependent patients: a cross-sectional study. Medicine, 96(27):e7396.
  • Macneil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., Decoster, J., Williamson, G. M. (2010). Caregiver mental health and potentially harmful caregiving behavior: the central role of caregiver anger. Gerontologist, 50(1):76-86.
  • Mollica, M. A., Litzelman, K., Rowland, J. H., Kent, E. E. (2017). The role of medical/nursing skills training in caregiver confidence and burden: a CanCORS study. Cancer, 15;123(22):4481-4487.
  • Naef, R., Hediger, H., Imhof, L., Mahrer-Imhof, R. (2017). Variances in family carers' quality of life based on selected relationship and caregiving indicators: A quantitative secondary analysis. Int J Older People Nurs, 12(2). doi: 10.1111/opn.12138.
  • Orak, S.O., Sezgin, S. (2015). Caregiver Burden in Family Members of Cancer Patients. Journal of Psychiatric Nursing, 6(1):33-39. doi: 10.5505/phd.2015.02986.
  • Özlü, A., Yıldız, M., Aker, T. (2009). A Reliability and Validity Study on the Zarit Caregiver Burden Scale. Archives of Neuropsychiatry, 46: 38-42.
  • Parker, D., Clifton, K., Tuckett, A., Walker, H., Reymond, E., Prior, T., McAnelly, K., Jenkin, P., Israel, F., Greeve, K., Glaetzer, K. (2016). Palliative care case conferences in longterm care: views of family members. International Journal of Older People Nursing, 11:140–148. doi: 10.1111/opn.12105.
  • Pérez-Cruz, M., Mu˜noz-Martínez, M. A., Parra-Anguita, L., Del-Pino-Casado, R. (2017). Coping and subjective burden in primary caregivers of dependent elderly relatives in Andalusia. Spain, Aten Primaria, 49(7):381-388.
  • Perez-Ordòñez, F., Frìas-Osuna, A., Romero-Rodrìguez, Y., Del-Pino-Casado, R. (2016). Coping strategies and anxiety in caregivers of palliative cancer patients. European Journal Of Cancer Care 25, 25(4):600-7.
  • Polat, Ü. (2011). Caregivers’ roles and support necessities in symptom management for patients with cancer advanced . Türk Onkoloji Dergisi, 26(4):193-198. doi: 10.5505/tjoncol.2011.461.
  • Richardson, A. E., Morton, R. P., Broadbent, E. A. (2016) Illness perceptions and coping predict post-traumatic stress in caregivers of patients with head and neck cancer. Support Care Cancer, 24:4443–4450.
  • Schulz, R., Beach, S. (1999). Caregiving as a risk factor for mortality. Jama, 15;282(23):2215-9.
  • Spatuzzi, R., Giulietti, M. V., Ricciuti, M., Merico, F., Meloni, C., Fabbietti, P., Ottaviani, M., Violani, C., Cormio, C., Vespa, A. (2017). Quality of life and burden in family caregivers of patients with advanced cancer in active treatment settings and hospice care: a comparative study. Death Stud, 41(5):276-283.
  • Tarı Selçuk, K, Avcı, D. (2016). The Care Burden of caregivers caring for elderly with chronic diseases and affecting factors. Süleyman Demirel Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi, 7(1):1-9.
  • Terakye, G. (2011). Interaction with the patient and his relatives. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Dergisi, 4(2):78–82.
  • Uzelli Yılmaz, D., Sarı, D. (2017). The ınvestigation of the relationship between the sleep quality and fatigue levels of caregivers whose patients with chronic disease. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi, 20(2): 90-99.
  • Vahidi, M., Mahdavi, N., Asghari, E., Ebrahimi, H., Eivazi Ziaei, J., Hosseinzadeh, M., Areshtanab, H. N., Kermani, I. A. (2016). Other side of breast cancer: factors associated with caregiver burden. Asian Nursing Research, 10, 10(3):201-206.
  • Veloso, V. I., Tripodoro, V. A. (2016) Caregivers burden in palliative care patients: a problem to tackle. Curr Opin Support Palliat Care.10(4):330-335.
  • Vitorino, L. M., Marins, L. S., Granero Lucchetti, A.L., Oliveira Santos, A. E., Cruz, J. P., Oliveira Cortez, P. J., and Lucchetti, G. (2018) Spiritual/religious coping and depressive symptoms in informal caregivers of hospitalized older adults. Geriatr Nurs. 39(1):48-53.
  • Walczak, A., Butow P. N., Tattersall, M. H., Davidson P. M., Young, J., Epstein, R. M., Costa, D. S. J., Clayton, J. M. (2017) Encouraging early discussion of life expectancy and end-of-life care: A randomised controlled trial of a nurseled communication support program for patients and caregivers. Int J Nurs Stud. 67:31-40.
  • Weissman, D. E, Meier, D. E. (2011). Identifying patients in need of a palliative care assessment in the hospital setting: a consensus report from the center to advance palliative care. J Palliat Med,14:17-23.
  • World Health organization WHO (2012) Definition of palliative care. http://www.who.int/cancer/palliative/definition/en/.
  • World Health Organization WHO (2018) Definition of an Older or Elderly Person. Available at: http://www.who.int/healthinfo/survey/ageingdefnolder/en/ .
  • Yildirim, S., Engin E., Baskaya B.A. (2013). The burden of caregivers of stroke patients and the factors affecting the burden. Archives of Neuropsychiatry, 50: 169-174. doi: 10.4274/npa.y6505.
Yıl 2021, Cilt: 3 Sayı: 1, 19 - 32, 31.01.2021

Öz

Kaynakça

  • Aires, M., Mocellin, D., Fengler, F. L., Rosset, I., Santos, N. O., Machado, Day, C. B., Paskulin, L. M G. (2017). Association between filial responsibility when caring for parents and the caregivers overload. Rev Bras Enferm [Internet].70(4):767-74.
  • Ateş, E., Bilgili, N. (2013). Coping with stress and social support in caregivers of individuals with spinal cord injuries. Hemşirelikte Araştırma Geliştirme Dergisi, 15(3): 1-12.
  • Bacanlı, H., Sürücü, M., İlhan, T. (2013). Examination of psychometric properties of short form of coping styles scale (CSL-SF). Kuram ve Uygulamada Eğitim Bilimleri, 13(1), 81-96.
  • British Medical Association BMA (2016) Growing older in the UK. http://www.bgs.org.uk/pdfs/2016bma_growing_older_in_uk.pdf 2016.
  • Eslami, A. A., Rabiei, L., Abedi, HA., Shirani, M., Masoudi, R. (2016). Coping skills of iranian family caregivers’ in care taking of patients undergoing haemodialysis: a qualitative study. Journal Of Renal Care, 42(3),162–171.
  • Hagell, P., Alvariza, A., Westergren, A., Restedt, K.A. (2017). Assessment of burden among family caregivers of people with parkinson’s disease using the Zarit Burden Interview. J Pain Symptom Manage, 53(2), 272-278.
  • Hsu, T., Loscalzo, M., Ramanı, R., Forman, S., Popplewell, L., Clark, K., Katheria, V., Strowbridge, R., Rinehart, R., Smith, D., Matthews, K., Dillehunt, J., Feng, T., Smith, D., Sun, C., Hurria, A. (2017). Are disagreements in caregiver and patient assessment of patient health associated with increased caregiver burden in caregivers of older adults with cancer. The Oncologist, 22(11):1383-1391.
  • Kalinkara, V., Kalayci, I. (2017). Life satisfaction, care burden and burnout in elderly home care persons. Elderly Issues Research Journal, 10(2):19-39.
  • Küçükgüçlü, Ö., Esen, A., Yener, G. (2009). To examine the validity and reliability of Caregivers' Burden Inventory for Turkish society. Journal of Neurological Sciences, 26(1): 060-073.
  • Liu, J. F., Lu, M. C., Fang, T. P., Yu, H. R., Lin, H. L., Fang, D. L. (2017). Burden on caregivers of ventilator-dependent patients: a cross-sectional study. Medicine, 96(27):e7396.
  • Macneil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., Decoster, J., Williamson, G. M. (2010). Caregiver mental health and potentially harmful caregiving behavior: the central role of caregiver anger. Gerontologist, 50(1):76-86.
  • Mollica, M. A., Litzelman, K., Rowland, J. H., Kent, E. E. (2017). The role of medical/nursing skills training in caregiver confidence and burden: a CanCORS study. Cancer, 15;123(22):4481-4487.
  • Naef, R., Hediger, H., Imhof, L., Mahrer-Imhof, R. (2017). Variances in family carers' quality of life based on selected relationship and caregiving indicators: A quantitative secondary analysis. Int J Older People Nurs, 12(2). doi: 10.1111/opn.12138.
  • Orak, S.O., Sezgin, S. (2015). Caregiver Burden in Family Members of Cancer Patients. Journal of Psychiatric Nursing, 6(1):33-39. doi: 10.5505/phd.2015.02986.
  • Özlü, A., Yıldız, M., Aker, T. (2009). A Reliability and Validity Study on the Zarit Caregiver Burden Scale. Archives of Neuropsychiatry, 46: 38-42.
  • Parker, D., Clifton, K., Tuckett, A., Walker, H., Reymond, E., Prior, T., McAnelly, K., Jenkin, P., Israel, F., Greeve, K., Glaetzer, K. (2016). Palliative care case conferences in longterm care: views of family members. International Journal of Older People Nursing, 11:140–148. doi: 10.1111/opn.12105.
  • Pérez-Cruz, M., Mu˜noz-Martínez, M. A., Parra-Anguita, L., Del-Pino-Casado, R. (2017). Coping and subjective burden in primary caregivers of dependent elderly relatives in Andalusia. Spain, Aten Primaria, 49(7):381-388.
  • Perez-Ordòñez, F., Frìas-Osuna, A., Romero-Rodrìguez, Y., Del-Pino-Casado, R. (2016). Coping strategies and anxiety in caregivers of palliative cancer patients. European Journal Of Cancer Care 25, 25(4):600-7.
  • Polat, Ü. (2011). Caregivers’ roles and support necessities in symptom management for patients with cancer advanced . Türk Onkoloji Dergisi, 26(4):193-198. doi: 10.5505/tjoncol.2011.461.
  • Richardson, A. E., Morton, R. P., Broadbent, E. A. (2016) Illness perceptions and coping predict post-traumatic stress in caregivers of patients with head and neck cancer. Support Care Cancer, 24:4443–4450.
  • Schulz, R., Beach, S. (1999). Caregiving as a risk factor for mortality. Jama, 15;282(23):2215-9.
  • Spatuzzi, R., Giulietti, M. V., Ricciuti, M., Merico, F., Meloni, C., Fabbietti, P., Ottaviani, M., Violani, C., Cormio, C., Vespa, A. (2017). Quality of life and burden in family caregivers of patients with advanced cancer in active treatment settings and hospice care: a comparative study. Death Stud, 41(5):276-283.
  • Tarı Selçuk, K, Avcı, D. (2016). The Care Burden of caregivers caring for elderly with chronic diseases and affecting factors. Süleyman Demirel Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi, 7(1):1-9.
  • Terakye, G. (2011). Interaction with the patient and his relatives. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Dergisi, 4(2):78–82.
  • Uzelli Yılmaz, D., Sarı, D. (2017). The ınvestigation of the relationship between the sleep quality and fatigue levels of caregivers whose patients with chronic disease. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi, 20(2): 90-99.
  • Vahidi, M., Mahdavi, N., Asghari, E., Ebrahimi, H., Eivazi Ziaei, J., Hosseinzadeh, M., Areshtanab, H. N., Kermani, I. A. (2016). Other side of breast cancer: factors associated with caregiver burden. Asian Nursing Research, 10, 10(3):201-206.
  • Veloso, V. I., Tripodoro, V. A. (2016) Caregivers burden in palliative care patients: a problem to tackle. Curr Opin Support Palliat Care.10(4):330-335.
  • Vitorino, L. M., Marins, L. S., Granero Lucchetti, A.L., Oliveira Santos, A. E., Cruz, J. P., Oliveira Cortez, P. J., and Lucchetti, G. (2018) Spiritual/religious coping and depressive symptoms in informal caregivers of hospitalized older adults. Geriatr Nurs. 39(1):48-53.
  • Walczak, A., Butow P. N., Tattersall, M. H., Davidson P. M., Young, J., Epstein, R. M., Costa, D. S. J., Clayton, J. M. (2017) Encouraging early discussion of life expectancy and end-of-life care: A randomised controlled trial of a nurseled communication support program for patients and caregivers. Int J Nurs Stud. 67:31-40.
  • Weissman, D. E, Meier, D. E. (2011). Identifying patients in need of a palliative care assessment in the hospital setting: a consensus report from the center to advance palliative care. J Palliat Med,14:17-23.
  • World Health organization WHO (2012) Definition of palliative care. http://www.who.int/cancer/palliative/definition/en/.
  • World Health Organization WHO (2018) Definition of an Older or Elderly Person. Available at: http://www.who.int/healthinfo/survey/ageingdefnolder/en/ .
  • Yildirim, S., Engin E., Baskaya B.A. (2013). The burden of caregivers of stroke patients and the factors affecting the burden. Archives of Neuropsychiatry, 50: 169-174. doi: 10.4274/npa.y6505.
Toplam 33 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Sağlık Kurumları Yönetimi
Bölüm Research Article
Yazarlar

Şerife Köleoğlu 0000-0002-6280-8318

Sevgin Samancıoglu 0000-0002-0166-8294

Yayımlanma Tarihi 31 Ocak 2021
Kabul Tarihi 12 Mayıs 2021
Yayımlandığı Sayı Yıl 2021 Cilt: 3 Sayı: 1

Kaynak Göster

APA Köleoğlu, Ş., & Samancıoglu, S. (2021). The Burden of Care and Coping Strategies of Caregivers of Elderly Patients. Aurum Journal of Health Sciences, 3(1), 19-32.