BibTex RIS Kaynak Göster

Childhood Cancers and Quality of Life

Yıl 2015, Cilt: 24 Sayı: 3, 368 - 389, 14.09.2015
https://doi.org/10.17827/aktd.44778

Öz

With the improvement of survival rates in childhood cancer, attempts are made to develop less toxic treatment modalities and priority is given to the studies about this subject. Health related quality of life is defined as a multidimensional concept involving physical, emotional, mental and social well being as well as perception of the effects caused by disease and its treatment. In this review, we evaluated health related quality of life and the factors affecting it both in patients receiving cancer treatment and childhood cancer survivors. Furthermore, an emphasize was made to the necessity of parent attendance, parent psychopathology and ways of coping evaluation in the assesment of quality of life in children

Kaynakça

  • Linabery AM, Ross JA. Childhood and adolescent cancer survival in the US by race and ethnicity for the diagnostic period 1975-1999. Cancer. 2008;113:2575-96.
  • Pickard AS, Topfer LA, Feeny DH. A structured review of studies on health-related quality of life and economic evaluation in pediatric acute lymphoblastic leukemia. J Natl Cancer Inst Monogr. 2004;33:102-25.
  • WHOQOL Group. The World Health Organization Quality of Life Assessment (WHOQOL): Position paper from the World Health Organization. Soc Sci Med. 1995;41:1403–9.
  • Üneri Ö, Memik NÇ. Çocuklarda yaşam kalitesi kavrami ve yaşam kalitesi ölçeklerinin gözden geçirilmesi. Çocuk ve Gençlik Ruh Sağlığı Dergisi. 2007;14:48-56.
  • Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment. 2001;5:1-156.
  • Eiser C. Children’s quality of life measures. Arch Dis Child. 2001;77:35-354.
  • Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the Pediatric Quality of Life Inventory. Medical Care. 1999;37:126-39.
  • WHOQOL Group. The world health organization quality of life assessment (WHOQOL): development and general psychometric properties. Soci Sci Med. 1998;46:1569–85.
  • Aydemir Ö. Kronik hastalığı olan çocuk ve yaşam kalitesi. In Çocuk Hastalıklarında Biyopsikososyal Yaklaşım. (Editörler : D. Ü. Tüzün, S. Hergüner): 61-78. İstanbul, Epsilon Yayıncılık, 2007.
  • Lindstrom B, Koehler L. Youth, disability and quality of life. Pediatrician. 1998;18:121–8.
  • Bradlyn AS, Ritchey AK, Harris CV, Moore IM, O’Brien RT , Parsons SK et al. Quality of life research in pediatric oncology. Research methods and barriers. Cancer. 1996;78:1333-9.
  • Bradlyn AS. Health-related quality of life in pediatric oncology: current status and future challenges. J Pediatr Oncol Nurs. 2004;21:137-40.
  • Clarke SA, Eiser C. The measurement of health related quality of life in pediatric clinical trials: a systematic review. Health Qual Life Outcomes. 2004;2:66.
  • Bergner M. Quality of life, health status and clinical research. Medical Care. 1989;27:148–56.
  • Herndon DN, LeMaster J, Beard S, Bernstein N, Lewis SR, Rutan TC et al. The quality of life after major thermal injury in cildren: ananalysis of 12 survivors with greater than or equal to 80% total body, 70% third-degree burns. J Trauma. 1986;26:609-19.
  • Ditesheim JA, Templeton JMJ. Short-term vs long term quality of life in children following repair of high imperforate anus. J Pediatr Surg. 1987;22:581-7.
  • Henning P, Tomlinson L, Rigden SPA, Haycock GB, Chantler C. Long-term outcome of treatment of end stage renal failure. Arch Dis Child. 1988;63:35-40.
  • Lansky LL, List MA, Lansky SB, Cohen ME, Sinks LF. Toward the development of a play performance scale for children (PPSC). Cancer. 1985;56:1837–40.
  • Lansky SB, List MA, Lansky LL, Ritter-Sterr C, Miller D. The measurement of performance in childhood cancer patients. Cancer. 1987;60:1651–6.
  • Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care. 1989;27:123–7.
  • Guyatt GH, Deyo RA, Charlson M, Levine MN, Mitchell A. Responsiveness and validity in health status measurement: a clarification. J Clin Epidemiol. 1989;42:403–8.
  • KazakAE. Families of chronically ill children: a systems and social-ecological model of adaption and challenge. J Consult Clin Psychol.1989;57:25–30.
  • Harbeck C, Peterson L. Elephants dancing in my head – a developmental approach to children’s concepts of specific pains. Child Dev. 1992;63:138–49.
  • Eiser C, Jenney MM. Measuring symptomatic benefit and quality of life in paediatric oncology. Br J Cancer. 1996;73:1313–6.
  • Ware JE, Sherbourne CD. The MOS 36-item shortform health survey (SF-36): conceptual framework and items selection. Medical Care. 1992;30:473–83.
  • Juniper EF, Guyatt GH, Ferrie PJ, Griffith LE. Measuring quality of life in asthma. Am Rev Respir Dis. 1993;147:832–38.
  • Landgraf JM, Abetz LN. Functional status and well-being of children representing three cultural groups: initial self-reports using the CHQ-CF87. Psychol Health. 1997;12:839–54.
  • Spirito A, deLawyer DD, Stark LJ. Peer relations and social adjustment of chronically ill children and adolescents. Clin Psychol Rev. 1991;11:539–64.
  • Bernt TJ, Hoyle SG. Stability and change in child and adolescent friendships. Dev Psychol. 1985;21:1007–15.
  • Noeke-Hoeksema S, Girgus JS. The emergence of gender differences in depression during adolescence. Psychol Bull. 1994;115:424–43.
  • Rovet JF, Ehrlich RM, Hoppe M. Intellectual deficits associated with early onset of insulin dependent diabetes mellitus in children. Diabetes Care. 1987;10:510–5.
  • Blount RL, Landolf-Fritshe B, Powers SW, Sturges JW. Differences between high and low coping children and between parent and staff behaviors during painful medical procedures. J Pediatr Psychol. 1991;16:795–809.
  • Manne SL, Jacobsen PB, Gorfinkle K, Gerstein F, Redd WH. Treatment adherence difficulties among children with cancer: the role of parenting style. J Pediatr Psychol. 1993;18:47–62.
  • Meeske KA, Patel SK, Palmer SN, Nelson MB, Parow AM. Factors associated with health-related quality of life in pediatric cancer survivors. Pediatr Blood Cancer. 2002;49:298-305.
  • Landolt MA, Vollrath M, Niggli FK, Gnehm HE, Sennhauser FH. Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study. Health Qual Life Outcomes.2006;20;4:63.
  • Maurice-Stam H, Grootenhuis MA, Brons PP, Caron HN, Last BF. Psychosocial indicators of health- related quality of life in children with cancer 2 months after end of successful treatment. J Pediatr Hematol Oncol. 2007;29:540-50.
  • Stam H, Grootenhuis MA, Last BF. Social and emotional adjustment in young survivors of childhood cancer. Support Care Cancer. 2001;9:489-513.
  • Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16:297– 334.
  • Cronbach LJ, Meehl PE. Construct validity in psychological tests. Psychol Bull. 1955;52: 281–302.
  • Erol N, Şimşek Z, Munir KM. Çocuk ve ergen ruh sağlığı epidemiyolojisi. Çocuk ve Ergen Psikiyatrisi Temel Kitabı (Ed. FÇ Çetin):.782-3. Ankara, Hekimler Yayın Birliği, 2008
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  • Eser E, Yüksel H, Baydur H. KIDDOKINDL (KINDL ergen formu) yaşam kalitesi ölçeği Türkçe sürümü geçerlik ve güvenirlik sonuçları. 1. Sağlıkta Yaşam Kalitesi Sempozyumu Program ve Özet Kitabı. 2004:78.
  • Landgraf JM, Abetz LN. Functional status and well-being of children representing three cultural groups: initial self-reports using the CHQ-CF87. Psychol Health. 1997;12:839-54.
  • Özdoğan H, Ruperto N, Kasapçopur O, Bakkaloglu A, Arisoy N, Ozen S ve ark. The Turkish version of the Childhood Health Assesment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001;19:158-62.
  • Üneri ÖŞ. Çocuklar İçin Yaşam Kalitesi Ölçeği'nin 2-7 yaşlarındaki Türk çocuklarında geçerlik ve güvenirliği. (Uzmanlık Tezi), Kocaeli, Kocaeli Üniversitesi, 2005.
  • Çakın Memik N. Çocuklar İçin Yaşam Kalitesi Ölçeği geçerlik ve güvenirlik çalışması. (Uzmanlık Tezi), Kocaeli, Kocaeli Üniversitesi, 2005.
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  • Correspondence Address / Yazışma Adresi Serhan Küpeli
  • Çukurova Üniversitesi Tıp Fakültesi
  • Çocuk Sağlığı ve Hastalıkları Anabilim Dalı
  • Pediatrik Onkoloji ve Pediatrik Kemik İliği Transplantasyonu Üniteleri Adana,Turkey
  • e-mail: serhankupeli@cu.edu.tr

Çocukluk Çağı Kanserleri ve Yaşam Kalitesi

Yıl 2015, Cilt: 24 Sayı: 3, 368 - 389, 14.09.2015
https://doi.org/10.17827/aktd.44778

Öz

Çocukluk çağı kanserlerinde genel yaşam hızlarının artmasıyla birlikte, geç yan etkilerin azaltılması hedeflenmekte ve bu konudaki çalışmalara öncelik verilmektedir. Sağlık ilişkili yaşam kalitesi hastanın fiziksel, duygusal, mental ve sosyal davranışlar bakımından iyilik halini kapsayan çok boyutlu bir kavram olup, bir hastalığın ve tedavisinin yarattığı etkilerin hasta tarafından algılanışı olarak tanımlanmaktadır. Bu derlemede kanser tanısı ile tedavi verilen ve/veya tedavisi kesildikten sonra hastalıksız olarak izlenen çocuklarda sağlık ilişkili yaşam kalitesi ve bunu etkileyen faktörlerin gözden geçirilmiştir. Ayrıca, çocukların yaşam kalitesi değerlendirilirken ebeveynlerdeki psikopatolojilerin ve stresle başa çıkma yollarının da mutlaka değerlendirilmesi gerektiğini vurgulamıştır.

Kaynakça

  • Linabery AM, Ross JA. Childhood and adolescent cancer survival in the US by race and ethnicity for the diagnostic period 1975-1999. Cancer. 2008;113:2575-96.
  • Pickard AS, Topfer LA, Feeny DH. A structured review of studies on health-related quality of life and economic evaluation in pediatric acute lymphoblastic leukemia. J Natl Cancer Inst Monogr. 2004;33:102-25.
  • WHOQOL Group. The World Health Organization Quality of Life Assessment (WHOQOL): Position paper from the World Health Organization. Soc Sci Med. 1995;41:1403–9.
  • Üneri Ö, Memik NÇ. Çocuklarda yaşam kalitesi kavrami ve yaşam kalitesi ölçeklerinin gözden geçirilmesi. Çocuk ve Gençlik Ruh Sağlığı Dergisi. 2007;14:48-56.
  • Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment. 2001;5:1-156.
  • Eiser C. Children’s quality of life measures. Arch Dis Child. 2001;77:35-354.
  • Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the Pediatric Quality of Life Inventory. Medical Care. 1999;37:126-39.
  • WHOQOL Group. The world health organization quality of life assessment (WHOQOL): development and general psychometric properties. Soci Sci Med. 1998;46:1569–85.
  • Aydemir Ö. Kronik hastalığı olan çocuk ve yaşam kalitesi. In Çocuk Hastalıklarında Biyopsikososyal Yaklaşım. (Editörler : D. Ü. Tüzün, S. Hergüner): 61-78. İstanbul, Epsilon Yayıncılık, 2007.
  • Lindstrom B, Koehler L. Youth, disability and quality of life. Pediatrician. 1998;18:121–8.
  • Bradlyn AS, Ritchey AK, Harris CV, Moore IM, O’Brien RT , Parsons SK et al. Quality of life research in pediatric oncology. Research methods and barriers. Cancer. 1996;78:1333-9.
  • Bradlyn AS. Health-related quality of life in pediatric oncology: current status and future challenges. J Pediatr Oncol Nurs. 2004;21:137-40.
  • Clarke SA, Eiser C. The measurement of health related quality of life in pediatric clinical trials: a systematic review. Health Qual Life Outcomes. 2004;2:66.
  • Bergner M. Quality of life, health status and clinical research. Medical Care. 1989;27:148–56.
  • Herndon DN, LeMaster J, Beard S, Bernstein N, Lewis SR, Rutan TC et al. The quality of life after major thermal injury in cildren: ananalysis of 12 survivors with greater than or equal to 80% total body, 70% third-degree burns. J Trauma. 1986;26:609-19.
  • Ditesheim JA, Templeton JMJ. Short-term vs long term quality of life in children following repair of high imperforate anus. J Pediatr Surg. 1987;22:581-7.
  • Henning P, Tomlinson L, Rigden SPA, Haycock GB, Chantler C. Long-term outcome of treatment of end stage renal failure. Arch Dis Child. 1988;63:35-40.
  • Lansky LL, List MA, Lansky SB, Cohen ME, Sinks LF. Toward the development of a play performance scale for children (PPSC). Cancer. 1985;56:1837–40.
  • Lansky SB, List MA, Lansky LL, Ritter-Sterr C, Miller D. The measurement of performance in childhood cancer patients. Cancer. 1987;60:1651–6.
  • Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care. 1989;27:123–7.
  • Guyatt GH, Deyo RA, Charlson M, Levine MN, Mitchell A. Responsiveness and validity in health status measurement: a clarification. J Clin Epidemiol. 1989;42:403–8.
  • KazakAE. Families of chronically ill children: a systems and social-ecological model of adaption and challenge. J Consult Clin Psychol.1989;57:25–30.
  • Harbeck C, Peterson L. Elephants dancing in my head – a developmental approach to children’s concepts of specific pains. Child Dev. 1992;63:138–49.
  • Eiser C, Jenney MM. Measuring symptomatic benefit and quality of life in paediatric oncology. Br J Cancer. 1996;73:1313–6.
  • Ware JE, Sherbourne CD. The MOS 36-item shortform health survey (SF-36): conceptual framework and items selection. Medical Care. 1992;30:473–83.
  • Juniper EF, Guyatt GH, Ferrie PJ, Griffith LE. Measuring quality of life in asthma. Am Rev Respir Dis. 1993;147:832–38.
  • Landgraf JM, Abetz LN. Functional status and well-being of children representing three cultural groups: initial self-reports using the CHQ-CF87. Psychol Health. 1997;12:839–54.
  • Spirito A, deLawyer DD, Stark LJ. Peer relations and social adjustment of chronically ill children and adolescents. Clin Psychol Rev. 1991;11:539–64.
  • Bernt TJ, Hoyle SG. Stability and change in child and adolescent friendships. Dev Psychol. 1985;21:1007–15.
  • Noeke-Hoeksema S, Girgus JS. The emergence of gender differences in depression during adolescence. Psychol Bull. 1994;115:424–43.
  • Rovet JF, Ehrlich RM, Hoppe M. Intellectual deficits associated with early onset of insulin dependent diabetes mellitus in children. Diabetes Care. 1987;10:510–5.
  • Blount RL, Landolf-Fritshe B, Powers SW, Sturges JW. Differences between high and low coping children and between parent and staff behaviors during painful medical procedures. J Pediatr Psychol. 1991;16:795–809.
  • Manne SL, Jacobsen PB, Gorfinkle K, Gerstein F, Redd WH. Treatment adherence difficulties among children with cancer: the role of parenting style. J Pediatr Psychol. 1993;18:47–62.
  • Meeske KA, Patel SK, Palmer SN, Nelson MB, Parow AM. Factors associated with health-related quality of life in pediatric cancer survivors. Pediatr Blood Cancer. 2002;49:298-305.
  • Landolt MA, Vollrath M, Niggli FK, Gnehm HE, Sennhauser FH. Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study. Health Qual Life Outcomes.2006;20;4:63.
  • Maurice-Stam H, Grootenhuis MA, Brons PP, Caron HN, Last BF. Psychosocial indicators of health- related quality of life in children with cancer 2 months after end of successful treatment. J Pediatr Hematol Oncol. 2007;29:540-50.
  • Stam H, Grootenhuis MA, Last BF. Social and emotional adjustment in young survivors of childhood cancer. Support Care Cancer. 2001;9:489-513.
  • Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16:297– 334.
  • Cronbach LJ, Meehl PE. Construct validity in psychological tests. Psychol Bull. 1955;52: 281–302.
  • Erol N, Şimşek Z, Munir KM. Çocuk ve ergen ruh sağlığı epidemiyolojisi. Çocuk ve Ergen Psikiyatrisi Temel Kitabı (Ed. FÇ Çetin):.782-3. Ankara, Hekimler Yayın Birliği, 2008
  • Ravens-Sieberer U, Bullinger M. Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytic results. Qual Life Res. 1998;7:399-407.
  • Eser E, Yüksel H, Baydur H, Erhart M, Saatli G, Özyurt BC et al. Çocuklar İçin Genel Amaçlı Sağlıkla İlgili Yaşam Kalitesi Ölçeği (Kid-KINDL) Türkçe sürümünün psikometrik özellikleri. Turk Psikiyatri Derg. 2008;19:409-17.
  • Eser E, Yüksel H, Baydur H. KIDDOKINDL (KINDL ergen formu) yaşam kalitesi ölçeği Türkçe sürümü geçerlik ve güvenirlik sonuçları. 1. Sağlıkta Yaşam Kalitesi Sempozyumu Program ve Özet Kitabı. 2004:78.
  • Landgraf JM, Abetz LN. Functional status and well-being of children representing three cultural groups: initial self-reports using the CHQ-CF87. Psychol Health. 1997;12:839-54.
  • Özdoğan H, Ruperto N, Kasapçopur O, Bakkaloglu A, Arisoy N, Ozen S ve ark. The Turkish version of the Childhood Health Assesment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001;19:158-62.
  • Üneri ÖŞ. Çocuklar İçin Yaşam Kalitesi Ölçeği'nin 2-7 yaşlarındaki Türk çocuklarında geçerlik ve güvenirliği. (Uzmanlık Tezi), Kocaeli, Kocaeli Üniversitesi, 2005.
  • Çakın Memik N. Çocuklar İçin Yaşam Kalitesi Ölçeği geçerlik ve güvenirlik çalışması. (Uzmanlık Tezi), Kocaeli, Kocaeli Üniversitesi, 2005.
  • Stein REK, Jessop DJ. Functional Status II(R): A measure of child health status. Med Care. 1990;28:1041-55.
  • Starfield B, Bergner M, Ensminger M, Riley A, Ryan S, Green B et al. Adolescent health status measurement: development of the child health and illness profile. Pediatrics. 1993;91:430-5.
  • Lindström B, Eriksson B. Quality of life among children in Nordic countries. Qual Life Res. 1993;2:23-32.
  • Graham P, Stevenson J, Flynn D. A new measure of health-related quality of life for children: preliminary findings. Psychol Health. 1997;12:655-65.
  • Vogels T, Verrips GH, Verloove-Vanhorick SP, Fekkes M, Kamphuis RP, Koopman HM et al. Measuring health-related quality of life in children: the development of the TACQOL parent form. Qual Life Res. 1998;7:457-65.
  • Manificat S, Dazord A, Langue J. A new instrument to evaluate infant quality of life. Quality of Life News. 1999;23:8-9.
  • Eiser C, Cotter I, Oades P Seamark D, Smith R. Health-related quality of life measures for children. Int J Cancer. 1999;12:87-90.
  • Colliger J, MacKinlay D, Philips D. Norm values for the generic children's quality of life measure from large school-based sample. Qual Life Res. 2000;9:617-23.
  • Bruil J. Development of quality of life instrument for children with chronic illness. Health Psychol. 1999;95-141.
  • Simeoni MC, Auquier P, Antoniotti S. Validation of a French health-related quality of life instrument for adolescents: The VSP-A. Qual Life Res. 2000;9:393-403.
  • Fekkes M, Theunissen NCM, Brugman E. Development and psychometric evaluation of the TAPQOL: A health-realited quality of life instrument for 1-5 year old children. Qual Life Res.
  • Kolsteren M, Koopman HM, Schalekamp G. Quality of life in children with celiac disease. J Pediatr. 2001;138:593-5.
  • Christie MJ, French D, Sowden A, West A. Development of child-centered disease-specific questionnaires for living with asthma. Psychosom Med. 1993;73:321-6.
  • Juniper EF, Buist AS, Cox FM Ferrie PJ, King DR. Validation of a standardized version of the Asthma Quality of Life Questionnaire. Chest. 1999;115:1265-70.
  • Yüksel H, Eser E, Çelik C Akıncı G, Eser S, Fidaner C, ve arkadaşları. Çocukluk Çağı için Astım Yaşam Kalitesi Ölçeği (PAQLQ) Türkçe çevirisinin geçerliği ve güvenirliği. 1.Sağlıkta Yaşam Kalitesi Sempozyumu Program ve Özet Kitabı s.77. 2004.
  • Mishoe SC, Baker RR, Poole S, Harrell LM, Arant CB, Rupp NT. Development of an instrument to assess stress levels and quality of life children with astma. J Asthma. 1998;35:553-63.
  • Varni JW, Katz ER, Seid M, Quiggins DJ, Friedman-Bender A. The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32): I. Reliability and validity. Cancer. 1998;82:1184-96.
  • Goodwin DA, Boggs SR, Graham-Pole J. Development and validation of the Pediatric Oncology Quality of Life Scale. Psychol Assess. 1994;6:321-8.
  • Cramer JA, Westbrook L, Devinsky O. Development of quality of life inventory for adolescents: the QOLIE-AD-48. Epilepsia. 1999;40:1114-21.
  • Dolgun G, Savaşer S. Dikkat eksikliği hiperaktivite bozukluğu olan 8-12 yaş grubu çocuklarda yaşam kalitesi ölçeğinin geliştirilmesi 1. Sağlıkta Yaşam Kalitesi Sempozyumu Program ve Özet Kitabı. 2004:84.
  • Lewis-Jones MS, Finlay AY. The Children's Dermatology Life Quality Index (CDLQI): initial validation and practical use. Br J Dermatol. 1995;132: 942-9.
  • Ingersoll GM, Marrero DG. A modified quality-of life measure for youths: psychometric properties. Diabetes Educ. 1991;17:114-8.
  • Duffy CM, Arsenault L, Duffy KN. The Juvenile Arthritis Quality of Life Questionnaire-development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides. J Rheumatol. 1997;24:738-46.
  • Reid DT, Renwick RM. Preliminary validation of a new instrument to measure life satisfaction in adolescents with neuromuscular disorders. Int J Rehabil Res. 1994;17:184-8.
  • Eiser C, Havermans T, Craft A, Kernahan J. Development of a measure to assess the perceived illness experience after treatment for cancer. Arch Dis Child. 1995;72:302–7.
  • Czyzewski DI, Mariotto MJ, Bartholomew LK, LeCompte SH, Sockrider MM. Measurement of quality of well being in a child and adolescent cystic fibrosis population. Med Care. 1994;32:965– 72.
  • Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL™ in pediatric cancer reliability and validity of the pediatric quality of life inventory™ generic core scales, multidimensional fatigue scale, and cancer module. Cancer. 2002;94:2090–106.
  • Bhat SR, Goodwin TL, Burwinkle TM, Lansdale MF, Dahl GV, Huhn SL,et al. Profile of daily life in children with brain tumors: an assessment of health-related quality of life. J Clin Oncol. 2005;23:5493-500.
  • Matziou V, Perdikaris P, Feloni D, Moshovi M, Tsoumakas K, Merkouris A. Cancer in childhood: children's and parents' aspects for quality of life. Eur J Oncol Nurs. 2008;12:209-16.
  • Gurney JG, Tersak JM, Ness KK, Landier W, Matthay KK, Schmidt ML; Children's Oncology Group. Hearing loss, quality of life, and academic problems in long-term neuroblastoma survivors: a report from the Children's Oncology Group. Pediatrics. 2007;120:e1229-36.
  • Servitzoglou M, Papadatou D, Tsiantis I, Vasilatou-Kosmidis H. Psychosocial functioning of young adolescent and adult survivors of childhood cancer. Support Care Cancer. 2008;16:29-36.
  • Houtzager BA, Grootenhuis MA, Caron HN, Last BF. Sibling self-report, parental proxies, and quality of life: the importance of multiple informants for siblings of a critically ill child. Pediatr Hematol Oncol. 2005;22:25-40.
  • List MA, Lee Rutherford J, Stracks J, Haraf D, Kies MS, Vokes EE. An exploration of the pretreatment coping strategies of patients with carcinoma of the head and neck. Cancer. 2002;95:98-104.
  • Armstrong GT, Liu Q, Yasui Y, Huang S, Ness KK, Leisenring W et al. Long-Term Outcomes Among Adult Survivors of Childhood Central Nervous System Malignancies in the Childhood Cancer Survivor Study. J Natl Cancer Inst. 2009;101:946-58.
  • Cardarelli C, Cereda C, Masiero L, Viscardi E, Faggin R, Laverda A et al. Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor. Pediatr Blood Cancer. 2006;46:637-44.
  • Anderson DM, Rennie KM, Ziegler RS, Neglia JP, Robison LR, Gurney JG. Medical and neurocognitive late effects among survivors of childhood central nervous system tumors. Cancer. 2006;92:2709–19.
  • Packer RJ, Gurney JG, Punyko JA, Donaldson SS, Inskip PD, Stovall M et al. Long-term neurologic and neurosensory sequelae in adult survivors of a childhood brain tumor: Childhood cancer survivor study. J Clin Oncol. 2003;17:3255–61.
  • Reeve BB, Potosky AL, Smith AW, Han PK, Hays RD, Davis WW et al. Impact of cancer on health- related quality of life of older Americans. J Natl Cancer Inst. 2009;101:860-8.
  • Yağci-Küpeli B, Akyüz C, Küpeli S, Büyükpamukçu M. Health-related quality of life in pediatric cancer survivors: a multifactorial assessment including parental factors. J Pediatr Hematol Oncol.
  • Correspondence Address / Yazışma Adresi Serhan Küpeli
  • Çukurova Üniversitesi Tıp Fakültesi
  • Çocuk Sağlığı ve Hastalıkları Anabilim Dalı
  • Pediatrik Onkoloji ve Pediatrik Kemik İliği Transplantasyonu Üniteleri Adana,Turkey
  • e-mail: serhankupeli@cu.edu.tr
Toplam 91 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Bölüm Derleme
Yazarlar

Begül Küpeli Bu kişi benim

Serhan Küpeli

Yayımlanma Tarihi 14 Eylül 2015
Yayımlandığı Sayı Yıl 2015 Cilt: 24 Sayı: 3

Kaynak Göster

AMA Küpeli B, Küpeli S. Childhood Cancers and Quality of Life. aktd. Eylül 2015;24(3):368-389. doi:10.17827/aktd.44778