Araştırma Makalesi
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Kişisel deneyimleri ışığında osteoartrit tanısı alan hastalarda hastalık algısı: karma yöntem araştırması

Yıl 2026, Cilt: 6 Sayı: 1, 21 - 30, 27.02.2026
https://doi.org/10.54270/atljm.2026.105
https://izlik.org/JA23DA54MB

Öz

Bu çalışma, osteoartrit tanısı almış ve diz protezi ameliyatı planlanan bireylerin hastalık algılarını, kişisel deneyimleri ışığında değerlendirmeyi amaçlamaktadır. Araştırma, karma yöntem desenine göre yürütülmüştür. Nicel aşamada 50 hasta yer alırken, nitel aşamada 10 hasta ile derinlemesine bireysel görüşmeler gerçekleştirilmiştir. Veriler; Kişisel Bilgi Formu, Hastalık Algısı Ölçeği ve Yarı Yapılandırılmış Görüşme Formu aracılığıyla toplanmıştır. Nicel veriler SPSS 21.0 programı ile Mann-Whitney U ve Kruskal-Wallis testleri kullanılarak analiz edilmiş; nitel veriler ise Colaizzi’nin fenomenolojik analiz yöntemiyle değerlendirilmiştir. Analiz sonucunda dört ana tema belirlenmiştir: Hastalık Algısı, Hastalığın Etkileri, Tedavi ve Hastalığın Doğası. Katılımcıların en sık bildirdiği semptomlar; ağrı (%96), eklem sertliği (%96), yorgunluk (%94) ve güç kaybı (%86) olmuştur. Görüşmelerde, osteoartritin sıklıkla yaşlılıkla ilişkilendirildiği, bireylerin sosyal yaşamlarında ciddi kısıtlamalar yaşadığı ve mevcut tedavi yaklaşımlarının genellikle yetersiz bulunduğu belirlenmiştir. Osteoartrit tanısı alan bireylerin hastalık algıları; tedaviye uyum, yaşam kalitesi ve cerrahiye yönelik kararları doğrudan etkilemektedir. Bu nedenle hemşirelerin, hastalık algısına yönelik değerlendirme ve müdahale planlarını multidisipliner ekip içerisinde geliştirmeleri kritik öneme sahiptir.

Etik Beyan

Çalışma, Yeditepe Üniversitesi Klinik Araştırmalar Etik Kurulu’nun onayı ile yürütülmüştür (Karar No: 770, Tarih: 07.12.2017). Aydınlatılmış Onam: Araştırma, Helsinki Bildirgesi ilkelerine uygun olarak gerçekleştirilmiştir. Çalışmanın amacı, yöntemi ve gizlilik ilkeleri tüm katılımcılara açıklanmış, her bir katılımcıdan yazılı aydınlatılmış onam alınmıştır.

Destekleyen Kurum

Bu çalışma herhangi bir kurum, kuruluş veya fon tarafından maddi olarak desteklenmemiştir.

Teşekkür

Araştırmaya gönüllü olarak katılan tüm hastalara katkılarından dolayı içten teşekkür ederiz.

Kaynakça

  • Neogi, T. The epidemiology and impact of pain in osteoarthritis. Osteoarthr. Cartil.2013;21(9), 1145–53.
  • Zhang Y, Jordan JM. Epidemiology of osteoarthritis. Clin Geriatr Med. 2010;26(3):355–69.
  • World Health Organization. Osteoarthritis fact sheet [Internet]. Geneva: WHO; 2023 [cited 2025 Jul 10]. Available from: https://www.who.int/news-room/fact-sheets/detail/osteoarthritis.
  • Tschon M, Contartese D, Pagani S, Borsari V, Fini M. Gender and sex are key determinants in osteoarthritis, not only confounding variables: a systematic review of clinical data. J Clin Med. 2021;10(14):3178.
  • Leventhal H, Brissette I, Leventhal EA. The common-sense model of self-regulation of health and illness. In: Cameron LD, Leventhal H, editors. The self-regulation of health and illness behaviour. London: Routledge; 2003. p. 42–65.
  • Hagger MS, Orbell S. A meta-analytic review of the common-sense model of illness representations. Psychol Health. 2003;18(2):141–84.
  • Leventhal H, Phillips LA, Burns E. The Common-Sense Model of Self-Regulation (CSM): A dynamic framework for understanding illness self-management. J Behav Med. 2016;39(6):935–46.
  • Broadbent E, Petrie KJ, Main J, Weinman J. The brief illness perception questionnaire. J Psychosom Res. 2006;60(6):631–7.
  • Ginnerup-Nielsen, E., Christensen, R., Heitmann, B. L., Altman, R. D., March, L., Woolf, A., ... & Henriksen, M. Estimating the prevalence of knee pain and the association between illness perception profiles and self-management strategies in the Frederiksberg cohort of elderly individuals with knee pain: a cross-sectional study. J. Clin. Med. 2021;10(4):668.
  • Xie, X., Kaewthummanukul, T., Mesukko, J., & Lirtmunlikaporn, S. Factors Influencing Care-Seeking Behavior among Chinese Older Adults with Knee Osteoarthritis: A Mixed Methods Study. Pac. Rim Int. J. Nurs. Res. 2025;29(3):573-90.
  • Carmona-Terés, V., Moix-Queraltó, J., Pujol-Ribera, E., Lumillo-Gutiérrez, I., Mas, X., Batlle-Gualda, E., ... & Berenguera, A. Understanding knee osteoarthritis from the patients’ perspective: a qualitative study. BMC Musculoskelet. Disord. 2017; 18(1), 225.
  • Jinks, C., Ong, B. N., & Richardson, J. A mixed methods study to investigate needs assessment for knee pain and disability: population and individual perspectives. BMC Musculoskelet. Disord. 2007 8(1), 59.
  • Pouli N, Nair RD, Lincoln NB, Walsh D. The experience of living with knee osteoarthritis: exploring illness and treatment beliefs through thematic analysis. Disabil Rehabil. 2014;36(7):600–7.
  • Tsianakas, V., Maben, J., Wiseman, T., Robert, G., Richardson, A., Madden, P., ... & Davies, E. A. Using patients’ experiences to identify priorities for quality improvement in breast cancer care: patient narratives, surveys or both?. BMC health services research. 2012;12(1), 271.
  • Hou SX, Dai FJ, Wang XX, Wang SW, Tian T. Correlation linking illness perception, negative emotions, and the post-operative recovery effect in patients with perianal disease. World J Psychiatry. 2024;14(11):1718–1727.
  • Balck F, Jeszenszky C, Günther KP, Kirschner S, Linke M. The impact of illness perception on functionality, pain, stiffness, and activity of daily living after total hip replacement surgery. J Psychosom Res. 2022;155:110749. doi:10.1016/j.jpsychores.2022.110749.
  • Erkan E, Narin AN. Post-op total diz artroplastili hastalarda Hastalık Algısı Ölçeği ile Hastane Anksiyete ve Depresyon Ölçeği sonuçları. Gevher Nesibe J Health Sci. 2020;5(7):19–23.
  • Kocaman N, Özkan M, Özkan S, Armay Z. Hastalık Algısı Ölçeği’nin Türkçe uyarlamasının geçerlilik ve güvenilirlik çalışması. Anadolu Psikiyatri Derg. 2007;8(4):271-80.
  • Moss-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick D. The revised illness perception questionnaire (IPQ-R). Psychol Health. 2002;17(1):1–16.
  • Colaizzi PF. Psychological research as the phenomenologist views it. In: Valle RS, King M, editors. Existential phenomenological alternatives for psychology. New York: Oxford University Press; 1978. p. 48–71.
  • Cross M, Smith E, Hoy D, et al. The global burden of hip and knee osteoarthritis: estimates from the Global Burden of Disease 2010 study. Ann Rheum Dis. 2014;73(7):1323–30.
  • Knoop J, van der Leeden M, Thorstensson CA, et al. Identification of phenotypes with different clinical outcomes in knee osteoarthritis: data from the Osteoarthritis Initiative. Arthritis Care Res (Hoboken). 2020;72(5):558–66.
  • Hawker GA, Stewart L, French MR, et al. Understanding the pain experience in hip and knee osteoarthritis – an OARSI/OMERACT initiative. Osteoarthritis Cartilage. 2014;22(3):385–92.
  • Stubbs B, Aluko Y, Myint PK, Smith TO. Prevalence of depressive symptoms and anxiety in osteoarthritis: a systematic review and meta-analysis. Age Ageing. 2016;45(2):228–35.
  • Sargent-Cox KA, Anstey KJ, Luszcz MA. The relationship between change in self-perceptions of aging and physical functioning in older adults. Psychol Aging. 2012;27(3):750–60.
  • Nicolson PJ, Holden MA. Patient preferences and osteoarthritis care: what do we know about what patients want from osteoarthritis treatment? Curr Treat Options Rheumatol. 2023;9(1):120–31.
  • Hawker GA. Osteoarthritis is a serious disease. Clin Exp Rheumatol. 2019;37(Suppl 120):3–6.
  • Rosado SE. Osteoarthritis, social role participation, and satisfaction with life: a quantitative study informed by the Social Identity Model of Identity Change (SIMIC) [dissertation]. Tampa (FL): University of South Florida; 2023.
  • Kaptein AA, Bijsterbosch J, Scharloo M, Hampson SE, Kroon HM, Kloppenburg M. Using the common sense model of illness perceptions to examine osteoarthritis change: a 6-year longitudinal study. Health Psychol. 2010;29(1):56–64.
  • van der Kraan, Y. M., Paap, D., Lennips, N., Veenstra, E. C., Wink, F. R., Kieskamp, S. C., & Spoorenberg, A. Patients’ needs concerning patient education in axial spondyloarthritis: a qualitative study. Rheumatology and Therapy.2023;10(5), 1349-68.

Illness perceptions in patients diagnosed with osteoarthritis in light of their personal experiences: a mixed-methods study

Yıl 2026, Cilt: 6 Sayı: 1, 21 - 30, 27.02.2026
https://doi.org/10.54270/atljm.2026.105
https://izlik.org/JA23DA54MB

Öz

This study aimed to evaluate the illness perceptions of individuals diagnosed with osteoarthritis and scheduled for knee replacement surgery, through the lens of their personal experiences. A mixed-methods research design was employed. The quantitative phase included 50 patients, while the qualitative phase involved in-depth individual interviews with 10 patients. Data collection tools included a Personal Information Form, the Illness Perception Questionnaire, and a Semi-Structured Interview Form. Quantitative data were analyzed using SPSS 21.0, employing Mann-Whitney U and Kruskal-Wallis tests. Qualitative data were analyzed using Colaizzi’s phenomenological method, yielding four main themes: Illness Perception, Impact of the Illness, Treatment, and Nature of the Illness. Pain (96%), joint stiffness (96%), fatigue (94%), and loss of strength (86%) were the most commonly reported symptoms. Qualitative findings revealed that participants frequently associated osteoarthritis with aging, experienced significant restrictions in their social lives, and perceived current treatment options as largely inadequate. Patients' perceptions of osteoarthritis significantly influence their treatment adherence, quality of life, and decisions regarding surgical intervention. Accordingly, it is essential for nurses to develop illness perception–oriented assessment and intervention strategies as part of the multidisciplinary care team.

Etik Beyan

The study was approved by the Yeditepe University Clinical Research Ethics Committee (Decision no: 770, Date: 07.12.2017). Informed Consent: The research was conducted in accordance with the principles of the Declaration of Helsinki. The aim, method, and confidentiality principles of the study were explained to all participants, and written informed consent was obtained from each participant.

Destekleyen Kurum

This study did not receive any financial support from any institution, organization, or funding agency.

Teşekkür

We would like to express our sincere gratitude to all patients who voluntarily participated in this research.

Kaynakça

  • Neogi, T. The epidemiology and impact of pain in osteoarthritis. Osteoarthr. Cartil.2013;21(9), 1145–53.
  • Zhang Y, Jordan JM. Epidemiology of osteoarthritis. Clin Geriatr Med. 2010;26(3):355–69.
  • World Health Organization. Osteoarthritis fact sheet [Internet]. Geneva: WHO; 2023 [cited 2025 Jul 10]. Available from: https://www.who.int/news-room/fact-sheets/detail/osteoarthritis.
  • Tschon M, Contartese D, Pagani S, Borsari V, Fini M. Gender and sex are key determinants in osteoarthritis, not only confounding variables: a systematic review of clinical data. J Clin Med. 2021;10(14):3178.
  • Leventhal H, Brissette I, Leventhal EA. The common-sense model of self-regulation of health and illness. In: Cameron LD, Leventhal H, editors. The self-regulation of health and illness behaviour. London: Routledge; 2003. p. 42–65.
  • Hagger MS, Orbell S. A meta-analytic review of the common-sense model of illness representations. Psychol Health. 2003;18(2):141–84.
  • Leventhal H, Phillips LA, Burns E. The Common-Sense Model of Self-Regulation (CSM): A dynamic framework for understanding illness self-management. J Behav Med. 2016;39(6):935–46.
  • Broadbent E, Petrie KJ, Main J, Weinman J. The brief illness perception questionnaire. J Psychosom Res. 2006;60(6):631–7.
  • Ginnerup-Nielsen, E., Christensen, R., Heitmann, B. L., Altman, R. D., March, L., Woolf, A., ... & Henriksen, M. Estimating the prevalence of knee pain and the association between illness perception profiles and self-management strategies in the Frederiksberg cohort of elderly individuals with knee pain: a cross-sectional study. J. Clin. Med. 2021;10(4):668.
  • Xie, X., Kaewthummanukul, T., Mesukko, J., & Lirtmunlikaporn, S. Factors Influencing Care-Seeking Behavior among Chinese Older Adults with Knee Osteoarthritis: A Mixed Methods Study. Pac. Rim Int. J. Nurs. Res. 2025;29(3):573-90.
  • Carmona-Terés, V., Moix-Queraltó, J., Pujol-Ribera, E., Lumillo-Gutiérrez, I., Mas, X., Batlle-Gualda, E., ... & Berenguera, A. Understanding knee osteoarthritis from the patients’ perspective: a qualitative study. BMC Musculoskelet. Disord. 2017; 18(1), 225.
  • Jinks, C., Ong, B. N., & Richardson, J. A mixed methods study to investigate needs assessment for knee pain and disability: population and individual perspectives. BMC Musculoskelet. Disord. 2007 8(1), 59.
  • Pouli N, Nair RD, Lincoln NB, Walsh D. The experience of living with knee osteoarthritis: exploring illness and treatment beliefs through thematic analysis. Disabil Rehabil. 2014;36(7):600–7.
  • Tsianakas, V., Maben, J., Wiseman, T., Robert, G., Richardson, A., Madden, P., ... & Davies, E. A. Using patients’ experiences to identify priorities for quality improvement in breast cancer care: patient narratives, surveys or both?. BMC health services research. 2012;12(1), 271.
  • Hou SX, Dai FJ, Wang XX, Wang SW, Tian T. Correlation linking illness perception, negative emotions, and the post-operative recovery effect in patients with perianal disease. World J Psychiatry. 2024;14(11):1718–1727.
  • Balck F, Jeszenszky C, Günther KP, Kirschner S, Linke M. The impact of illness perception on functionality, pain, stiffness, and activity of daily living after total hip replacement surgery. J Psychosom Res. 2022;155:110749. doi:10.1016/j.jpsychores.2022.110749.
  • Erkan E, Narin AN. Post-op total diz artroplastili hastalarda Hastalık Algısı Ölçeği ile Hastane Anksiyete ve Depresyon Ölçeği sonuçları. Gevher Nesibe J Health Sci. 2020;5(7):19–23.
  • Kocaman N, Özkan M, Özkan S, Armay Z. Hastalık Algısı Ölçeği’nin Türkçe uyarlamasının geçerlilik ve güvenilirlik çalışması. Anadolu Psikiyatri Derg. 2007;8(4):271-80.
  • Moss-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick D. The revised illness perception questionnaire (IPQ-R). Psychol Health. 2002;17(1):1–16.
  • Colaizzi PF. Psychological research as the phenomenologist views it. In: Valle RS, King M, editors. Existential phenomenological alternatives for psychology. New York: Oxford University Press; 1978. p. 48–71.
  • Cross M, Smith E, Hoy D, et al. The global burden of hip and knee osteoarthritis: estimates from the Global Burden of Disease 2010 study. Ann Rheum Dis. 2014;73(7):1323–30.
  • Knoop J, van der Leeden M, Thorstensson CA, et al. Identification of phenotypes with different clinical outcomes in knee osteoarthritis: data from the Osteoarthritis Initiative. Arthritis Care Res (Hoboken). 2020;72(5):558–66.
  • Hawker GA, Stewart L, French MR, et al. Understanding the pain experience in hip and knee osteoarthritis – an OARSI/OMERACT initiative. Osteoarthritis Cartilage. 2014;22(3):385–92.
  • Stubbs B, Aluko Y, Myint PK, Smith TO. Prevalence of depressive symptoms and anxiety in osteoarthritis: a systematic review and meta-analysis. Age Ageing. 2016;45(2):228–35.
  • Sargent-Cox KA, Anstey KJ, Luszcz MA. The relationship between change in self-perceptions of aging and physical functioning in older adults. Psychol Aging. 2012;27(3):750–60.
  • Nicolson PJ, Holden MA. Patient preferences and osteoarthritis care: what do we know about what patients want from osteoarthritis treatment? Curr Treat Options Rheumatol. 2023;9(1):120–31.
  • Hawker GA. Osteoarthritis is a serious disease. Clin Exp Rheumatol. 2019;37(Suppl 120):3–6.
  • Rosado SE. Osteoarthritis, social role participation, and satisfaction with life: a quantitative study informed by the Social Identity Model of Identity Change (SIMIC) [dissertation]. Tampa (FL): University of South Florida; 2023.
  • Kaptein AA, Bijsterbosch J, Scharloo M, Hampson SE, Kroon HM, Kloppenburg M. Using the common sense model of illness perceptions to examine osteoarthritis change: a 6-year longitudinal study. Health Psychol. 2010;29(1):56–64.
  • van der Kraan, Y. M., Paap, D., Lennips, N., Veenstra, E. C., Wink, F. R., Kieskamp, S. C., & Spoorenberg, A. Patients’ needs concerning patient education in axial spondyloarthritis: a qualitative study. Rheumatology and Therapy.2023;10(5), 1349-68.
Toplam 30 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Hemşirelik (Diğer)
Bölüm Araştırma Makalesi
Yazarlar

Damla Bakkallar 0000-0002-0297-674X

Işıl Işık 0000-0001-9315-1139

Gül Ergün 0000-0002-1292-2040

Gönderilme Tarihi 20 Ekim 2025
Kabul Tarihi 12 Aralık 2025
Yayımlanma Tarihi 27 Şubat 2026
DOI https://doi.org/10.54270/atljm.2026.105
IZ https://izlik.org/JA23DA54MB
Yayımlandığı Sayı Yıl 2026 Cilt: 6 Sayı: 1

Kaynak Göster

Vancouver 1.Damla Bakkallar, Işıl Işık, Gül Ergün. Illness perceptions in patients diagnosed with osteoarthritis in light of their personal experiences: a mixed-methods study. ATLJM. 01 Şubat 2026;6(1):21-30. doi:10.54270/atljm.2026.105