Investigation of the Relationship Between the Functionality of Children with Cerebral Palsy and Their Parents Musculoskeletal Pain, Fatigue and Quality of Life

Öz

Purpose: The aim of this study is to examine the relationship between the functional level of children with cerebral palsy (CP) and their parents' musculoskeletal pain, fatigue, and quality of life. Material and Methods: Parents' demographic information was recorded. Gross Motor Function Classification System (GMFCS) to classify the functional status of children with CP, Functional Independence Measurement for Children (WeeFIM) to assess functionality, Pediatric Balance Scale (PBS) to assess functional balance in activities of daily living, Timed Up & Go test to assess functional walking time Test (TUG) was used. In parents, the Extended Nordic Musculoskeletal Pain System Questionnaire was used to assess musculoskeletal pain, the Fatigue Severity Scale (FSS) was used to assess fatigue, and the Nottingham Health Profile (NHP) was used to assess quality of life. Results: The mean age of the children participating in the study was 11.48±4.61 years. A negative significant correlation was found between the Functional Independence Measurement for Children and the number of painful areas of the parents (p= 0.039, r= -0.294). There was no significant relationship between the parents number of painful areas, Nottingham Health Profile score and Fatigue Severity Scale score with the children’s Gross Motor Function Classification System score, Timed Up and Go Test duration, Pediatric Balance Score and the age. Discussion: As the functional independence level of the child with CP decreases, it can be said that there is an increase in the number of painful areas in his/her parents. According to the results of this study, it may be beneficial to carry out studies to improve the physical and mental well-being of children with CP, in the rehabilitation of their parents, as well as in treatment planning.

Anahtar Kelimeler

• Pain
• parent
• cerebral palsy
• quality of life
• fatigue.

Serebral Palsili Çocukların Fonksiyonelliği ile Ebeveynlerinin Kas İskelet Sistemi Ağrısı, Yorgunluk ve Yaşam Kalitesi Arasındaki İlişkinin İncelenmesi

Öz

Amaç: Bu çalışmanın amacı serebral palsi (SP)’li çocukların fonksiyonellik seviyesi ile ebeveynlerinin kas iskelet sistemi ağrısı, yorgunluk ve yaşam kalitesi arasındaki ilişkiyi incelemektir. Gereç ve Yöntem: Ebeveynlerin demografik bilgileri kaydedildi. SP'li çocukların fonksiyonel durumlarını sınıflandırmak için Kaba Motor Fonksiyon Sınıflandırma Sistemi (KMFSS), fonksiyonelliğini değerlendirmek için Pediatrik Fonksiyonel Bağımsızlık Ölçümü (PFBÖ), günlük yaşam aktivitelerindeki fonksiyonel dengelerini değerlendirmek için Pediatrik Denge Skalası (PDS), fonksiyonel yürüme süresini değerlendirmek için Süreli Kalk Yürü Testi (SKYT) kullanıldı. Ebeveynlerde ise kas iskelet sistemi ağrısını değerlendirmek için Genişletilmiş Nordic Kas İskelet Ağrı Sistemi Anketi, yorgunluğunu değerlendirmek için Yorgunluk Şiddet Ölçeği (YŞÖ), yaşam kalitesini değerlendirmek için ise Nottingham sağlık profili (NSP) kullanıldı. Sonuçlar: Araştırmaya katılan çocukların yaş ortalaması 11,48±4,61 yıldı. Pediatrik Fonksiyonel Bağımsızlık Ölçeği ile ebeveynlerin ağrıyan bölge sayısı arasında negatif yönde anlamlı ilişki bulundu (r= -0,294, p= 0,039). Ebeveynlerin ağrıyan bölge sayısı, Nottingham Sağlık Profili skoru ve Yorgunluk Şiddet Ölçeği skoru ile çocukların Kaba Motor Fonksiyon Sınıflama Sistemi puanı, Süreli Kalk Yürü Testi süresi, Pediatrik Denge Skoru ve çocuğun yaşı ile anlamlı ilişki bulunmadı. Tartışma: SP’li çocuğun fonksiyonel bağımsızlık düzeyi düştükçe ebeveynde ağrıyan bölge sayısında artış olduğu söylenebilir. Bu çalışmanın sonuçlarına göre SP’li çocukların tedavi planlamalarının yanı sıra ebeveynlerinin de rehabilitasyonunda fiziksel ve ruhsal iyiliklerinin arıttırılmasına yönelik çalışmalar yapılması faydalı olabilir.

Anahtar Kelimeler

• Ağrı
• serebral palsi
• yaşam kalitesi
• Ebeveynler
• Yorgunluk

Kaynakça

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