Öz
Bu
çalışmanın amacı Multipl Skleroz’lu bireylerin kişisel bakım ve
bağımsızlıklarını geliştirmeleri için günümüz teknolojisinin mevcut
potansiyellerini dünyada kullanılmakta olan iyi örnekleri üzerinden açıklamaya
çalışmaktır. Multipl Skleroz’lu bireyler denge kontrolü, fonksiyon
bozuklukları, bilişsel değişimler, yorgunluk, duyu kayıpları, ağrı, solunum kas
zayıflıkları, ataklar, duygusal bozukluklar, seksüel işlev bozuklukları,
konuşma ve yutma bozuklukları, görme alanı darlığı gibi problemler yüzünden iş
yaşamlarında, ev ortamlarında ve sosyal hayatta erişilebilirlik konusunda
sorunlar yaşamaktadır. Bu bilgiler ışığında Türkiye’de yaşayan Multipl Skleroz’lu
bireylerin değişen teknoloji bağlamında erişilebilirlik konusundaki
farkındalıklarının gelişmesi hedeflenmiş ve öneriler sunulmuştur.
Anahtar Kelimeler
Multipl Skleroz Yapay Zekâ Sağlık Okuryazarlığı Sağlık Bakımı Teknolojisi Sağlık Teknolojisi
Kaynakça
- 10 Promising AI Applications in Health Care, 10 Promising AI Applications in Health Care Harvard Business Review, 201 https://hbr.org/2018/05/10-promising-ai-applications-in-health-care Erişim Tarihi: 18.05.2019
- ADA Standards for Accessible Design, https://www.ada.gov/2010ADAstandards_index.htm Erişim Tarihi: 17.05.2019
- Altındiş, S. (2018). Sağlık Hizmetlerinde Büyük Veri Ömer Halisdemir Üniversitesi İktisadi ve İdari Bilimler Fakültesi Dergisi, Cilt-Sayı:11(2) SS: 257-271 ISSN: 2564-6931, Doı: 10.25287/ohuiibf.366227.
- Ann Marrie, R., Leung, S., Tyry, T., Cutter, G. R, Fox, R. (2019). Use Of EHealth And Mhealth Technology By Persons With Multiple Sclerosis Multiple Sclerosis and Related Disorders 27 13-19
- Clarke, S, Curry, N., Dorning, H. (2018). Improving Care For The People With MS: The Potential Of Data and Technology, MS Society
- Cognitive Behavioral Therapy, Online Therapy; 2018, Erişim Tarihi: 18.05.2019 https://www.online-therapy.com/cbt
- Edwards, C., Edwards, A., Stoll B., Lin, X. (2019). Evaluations Of An Artificial Intelligence Instructor's Voice: Social Identity Theory In Human-Robot İnteractions” Computers İn Human Behavior 90 357–362
- Giunti, G., Fernández, E.G, Zubiete, E.D. (2018). Supply and Demand İn Mhealth Apps For Persons With Multiple Sclerosis: Systematic Search In App Stores and Scoping Literature Review, JMIR Mhealth Uhealth, vol. 6, iss. 5, e10512, p.1
- Güldenpfennig, F., Mayer, P., Panek, P. (2019). An Autonomy-Perspective on the Design of Assistive Technology: Experiences of People with Multiple Sclerosis CHI 2019, May 4–9, Glasgow, Scotland, UK Paper 127
- How Emerging Technology Is Re-Inventing The Medical Profession, Marginalia Dergisi, 2017, http://www.marginalia.online/how-emerging-technology-is-re-inventing-the-medical-profession/ Erişim Tarihi: 18.05.2019
- Human Systems Engineering and Design, Proceedings of the 1st International Conference on Human Systems Engineering and Design (IHSED2018): Future Trends and Applications, October 25–27, 2018, CHU-Université de Reims Champagne-Ardenne, France., 2018
- Jo˜ao Santos, Joel J. P. C. Rodrigues. (2016). Intelligent Personal Assistants Based on Internet of Things Approaches IEEE Systems Journal
- Martinez, D.L., Picard, R. (2019). The Future Role Of Wearable Stress Measurement İn İmproving Quality Of Life Wearable Technologies For Multiple Sclerosis
- National Disability Services, https://www.nds.org.au/about/our-policies-and-strategic-direction Erişim Tarihi: 17.05.2019
- National Multiple Sclerosis Society https://www.nationalmssociety.org/ Erişim Tarihi: 18.05.2019
- NVIDIA TITAN X GPU, NVIVIA, https://www.nvidia.com/en-us/geforce/products/10series/titan-x-pascal/ Erişim Tarihi: 16.05.2019
- Pradhan, A., Mental, K. (2018). Accessibility Came by Accident”: Use of Voice-Controlled Intelligent Personal Assistants by People with Disabilities CHI 2018, April 21–26.18
- RESNA Assistive Technology Standards Board (ATSB), https://www.resna.org/assistive-technology-standards-board-atsb Erişim Tarihi: 19.05.2019
- Sağlık Bakanlığı Kişisel Sağlık Sistemi, https://enabiz.gov.tr/ Erişim Tarihi: 18.05.2019
- Sesame Enable, https://sesame-enable.com/ Erişim Tarihi: 18.05.2019
- Sezgin, Murat, and Lütfiye Talaz. (2016). Bilişim Devrimi, Sibernetik İletişim ve Stratejik Halkla İlişkiler. Karabük Üniversitesi Sosyal Bilimler Enstitüsü Dergisi 6.2; 559-571
- Soydaş Çakır, H. (2018). Kentsel İletişim Perspektifi, Soydaş Çakır, H., Belir Ö. (ed.), Evrensel Tasarıma Farklı Bakışlar içinde, Nobel Akademik Yayıncılık, Ankara, ISBN: 978-605-7928-81-8 s. 19-30
- Sparaco, M., Lavorgna, L. Renata Conforti, R. (2018). The Role of Wearable Devices in Multiple Sclerosis Hindawi Multiple Sclerosis International, https://doi.org/10.1155/2018/7627643
- Squires, Luke A., Williams, N. (2019). Matching And Accepting Assistive Technology In Multiple Sclerosis: A Focus Group Study With People With Multiple Sclerosis, Carers and Occupational Therapists Journal of Health Psychology, DOI: 10.1177/1359105316677293
- Vijayasingham L, Mairami FF. (2018). Employment Of Patients With Multiple Sclerosis: The İnfluence Of Psychosocial–Structural Coping and Context Degener Neurol Neuromuscul Dis. 8: 15–24
- W3C (The World Wide Web Consorsium), https://www.w3.org/WAI/standards-guidelines/wcag/ Erişim Tarihi: 18.05.2019
- Yeroushalmi S, Maloni H, Costello K, Wallin MT. (2019). Telemedicine and Multiple Sclerosis: A Comprehensive Literature Review, J Telemed Telecare
- Zenginler Y, Mutluay F., Multipl Sklerozda Fizyoterapi ve Rehabilitasyon. Mutluay F, (2018). Nörolojik Hastalıklarda Fizyoterapi ve Rehabilitasyon. Ankara: Türkiye Klinikleri; p.28-37
Öz
This
study is aimed to explain the potential of technology on the person with
Multiple sclerosis’ life quality through good examples used around the world.
Problems such as balance control, dysfunction, cognitive changes, fatigue, sensorial
loss, pain, weakness, attacks, emotional disorders, sexual life, speech and
swallowing, impaired vision causes some accessibility problems in work and
social life. The article’s main objective is expanding accessibility awareness
of the people with Multiple Skleroz living in Turkey in the context of changing
technology and making suggestions.
Anahtar Kelimeler
Multiple Sclerosis Artificial Intelligence Health Literacy Health Care Technology Health Technology
Kaynakça
- 10 Promising AI Applications in Health Care, 10 Promising AI Applications in Health Care Harvard Business Review, 201 https://hbr.org/2018/05/10-promising-ai-applications-in-health-care Erişim Tarihi: 18.05.2019
- ADA Standards for Accessible Design, https://www.ada.gov/2010ADAstandards_index.htm Erişim Tarihi: 17.05.2019
- Altındiş, S. (2018). Sağlık Hizmetlerinde Büyük Veri Ömer Halisdemir Üniversitesi İktisadi ve İdari Bilimler Fakültesi Dergisi, Cilt-Sayı:11(2) SS: 257-271 ISSN: 2564-6931, Doı: 10.25287/ohuiibf.366227.
- Ann Marrie, R., Leung, S., Tyry, T., Cutter, G. R, Fox, R. (2019). Use Of EHealth And Mhealth Technology By Persons With Multiple Sclerosis Multiple Sclerosis and Related Disorders 27 13-19
- Clarke, S, Curry, N., Dorning, H. (2018). Improving Care For The People With MS: The Potential Of Data and Technology, MS Society
- Cognitive Behavioral Therapy, Online Therapy; 2018, Erişim Tarihi: 18.05.2019 https://www.online-therapy.com/cbt
- Edwards, C., Edwards, A., Stoll B., Lin, X. (2019). Evaluations Of An Artificial Intelligence Instructor's Voice: Social Identity Theory In Human-Robot İnteractions” Computers İn Human Behavior 90 357–362
- Giunti, G., Fernández, E.G, Zubiete, E.D. (2018). Supply and Demand İn Mhealth Apps For Persons With Multiple Sclerosis: Systematic Search In App Stores and Scoping Literature Review, JMIR Mhealth Uhealth, vol. 6, iss. 5, e10512, p.1
- Güldenpfennig, F., Mayer, P., Panek, P. (2019). An Autonomy-Perspective on the Design of Assistive Technology: Experiences of People with Multiple Sclerosis CHI 2019, May 4–9, Glasgow, Scotland, UK Paper 127
- How Emerging Technology Is Re-Inventing The Medical Profession, Marginalia Dergisi, 2017, http://www.marginalia.online/how-emerging-technology-is-re-inventing-the-medical-profession/ Erişim Tarihi: 18.05.2019
- Human Systems Engineering and Design, Proceedings of the 1st International Conference on Human Systems Engineering and Design (IHSED2018): Future Trends and Applications, October 25–27, 2018, CHU-Université de Reims Champagne-Ardenne, France., 2018
- Jo˜ao Santos, Joel J. P. C. Rodrigues. (2016). Intelligent Personal Assistants Based on Internet of Things Approaches IEEE Systems Journal
- Martinez, D.L., Picard, R. (2019). The Future Role Of Wearable Stress Measurement İn İmproving Quality Of Life Wearable Technologies For Multiple Sclerosis
- National Disability Services, https://www.nds.org.au/about/our-policies-and-strategic-direction Erişim Tarihi: 17.05.2019
- National Multiple Sclerosis Society https://www.nationalmssociety.org/ Erişim Tarihi: 18.05.2019
- NVIDIA TITAN X GPU, NVIVIA, https://www.nvidia.com/en-us/geforce/products/10series/titan-x-pascal/ Erişim Tarihi: 16.05.2019
- Pradhan, A., Mental, K. (2018). Accessibility Came by Accident”: Use of Voice-Controlled Intelligent Personal Assistants by People with Disabilities CHI 2018, April 21–26.18
- RESNA Assistive Technology Standards Board (ATSB), https://www.resna.org/assistive-technology-standards-board-atsb Erişim Tarihi: 19.05.2019
- Sağlık Bakanlığı Kişisel Sağlık Sistemi, https://enabiz.gov.tr/ Erişim Tarihi: 18.05.2019
- Sesame Enable, https://sesame-enable.com/ Erişim Tarihi: 18.05.2019
- Sezgin, Murat, and Lütfiye Talaz. (2016). Bilişim Devrimi, Sibernetik İletişim ve Stratejik Halkla İlişkiler. Karabük Üniversitesi Sosyal Bilimler Enstitüsü Dergisi 6.2; 559-571
- Soydaş Çakır, H. (2018). Kentsel İletişim Perspektifi, Soydaş Çakır, H., Belir Ö. (ed.), Evrensel Tasarıma Farklı Bakışlar içinde, Nobel Akademik Yayıncılık, Ankara, ISBN: 978-605-7928-81-8 s. 19-30
- Sparaco, M., Lavorgna, L. Renata Conforti, R. (2018). The Role of Wearable Devices in Multiple Sclerosis Hindawi Multiple Sclerosis International, https://doi.org/10.1155/2018/7627643
- Squires, Luke A., Williams, N. (2019). Matching And Accepting Assistive Technology In Multiple Sclerosis: A Focus Group Study With People With Multiple Sclerosis, Carers and Occupational Therapists Journal of Health Psychology, DOI: 10.1177/1359105316677293
- Vijayasingham L, Mairami FF. (2018). Employment Of Patients With Multiple Sclerosis: The İnfluence Of Psychosocial–Structural Coping and Context Degener Neurol Neuromuscul Dis. 8: 15–24
- W3C (The World Wide Web Consorsium), https://www.w3.org/WAI/standards-guidelines/wcag/ Erişim Tarihi: 18.05.2019
- Yeroushalmi S, Maloni H, Costello K, Wallin MT. (2019). Telemedicine and Multiple Sclerosis: A Comprehensive Literature Review, J Telemed Telecare
- Zenginler Y, Mutluay F., Multipl Sklerozda Fizyoterapi ve Rehabilitasyon. Mutluay F, (2018). Nörolojik Hastalıklarda Fizyoterapi ve Rehabilitasyon. Ankara: Türkiye Klinikleri; p.28-37
Ayrıntılar
| Birincil Dil | Türkçe |
|---|---|
| Konular | Sağlık Kurumları Yönetimi |
| Bölüm | Derleme |
| Yazarlar | |
| Yayımlanma Tarihi | 15 Ocak 2021 |
| Yayımlandığı Sayı | Yıl 2020 |
Kaynak Göster
Ergoterapi ve Rehabilitasyon Dergisi by Hacettepe University, Faculty of Health Sciences is licensed under Attribution-NonCommercial 4.0 International
