Özel Gereksinimli Çocuğu Olan Ailelerin Covid-19 Nedeniyle Karantina Sürecindeki Stresle Başa Çıkma Stratejileri ile Aktivite-Rol Dengeleri Arasındaki İlişki

Öz

Amaç: Bu çalışmanın amacı karantina sürecinde özel gereksinimli çocuk ebeveynlerinin ortaya çıkan stresle baş etme stratejileri ile aktivite-rol dengeleri arasındaki ilişkinin incelenmesidir. Gereç ve Yöntem: Çalışmanın örneklemini 15 Mart-15 Haziran 2020 tarihlerinde karantina dönemi nedeniyle özel eğitim ve tedavilerine ara vermek durumunda olan özel gereksinimli çocuğa sahip 54 ebeveyn oluşturdu. Veri toplama aracı olarak araştırmacılar tarafından oluşturulan bilgi formu, Stresle Başa Çıkma Tutumları Ölçeği (Coping Strategies with Stress Inventory-COPE), Zarit Bakım Veren Yükü Ölçeği (Zarit BVYÖ) ve Aktivite-Rol Denge Anketi kullanıldı. Sonuçlar: Stresle başa çıkma tutumları ile bakım yükü arasında pozitif yönde orta düzeyde (r= 0,536; p=0,000) anlamlı ilişki olduğu bulundu. Stresle başa çıkma tutumları ile aktivite-rol dengesi arasında (r= -0,167; p=0,274) ve bakım yükü ile aktivite-rol dengesi arasında (r= 0,180; p=0,238) anlamlı ilişki bulunmadı (p>0,05). Çalışmaya katılan ebeveynlerin karantina döneminde bakım verme yükleri nedeni ile en fazla rekreasyonel aktivitelerine katılım zorluğu yaşadıkları bulundu (20 kişi, %37,2). Tartışma: Özel gereksinimli çocuğa sahip ebeveynlerde stresle başa çıkma stratejileri ve aktivite-rol dengelerini etkileyebilecek başka parametrelerin incelendiği çalışmalara ihtiyaç vardır. Ayrıca ebeveynlerin algılanan bakım veren yükü arttıkça serbest zaman aktivitelerine katılımda zorluk yaşadıkları sonucu dikkate alınarak yaşam dengesinin düzenlenmesi hedefli ergoterapi programlarının oluşturulması önerilmektedir.

Anahtar Kelimeler

• baş etme becerileri
• ebeveynler
• engelli çocuklar
• koronavirüs hastalığı 2019 virüsü

Relationship Between Stress Coping Strategies and Activity-Role Balances of Families with Children Having Special Needs in the Quarantine Situation Because of Covid-19

Öz

Purpose: This study was conducted to examine the relationship between the stress coping strategies of parents of children with special needs during the quarantine process and their activity-role balances. Material and Methods: The sample of the study consisted of 54 parents with children with special needs who had to interrupt their special education and treatment due to the quarantine period between 15 March and 15 June 2020. Information form created by the researchers, the Coping Strategies with Stress Inventory (COPE), Zarit Caregiver Burden Scale (Zarit BVYÖ) and the Activity-Role Balance Questionnaire were used as data collection tools. Results: It was found that there was a positive moderate (r= 0.536; p=0.000) significant relationship between coping strategies with stress and the burden of care. There was no significant relationship between coping strategies with stress and activity-role balance (r= -0.167; p=0.274), and between care burden and activity-role balance (r= 0.180; p=0.238). It was found that the parents participating in the study had the most difficulty in participating in recreational activities due to their caregiving burden during the quarantine period (20 people, 37.2%). Conclusion: There is a need for studies examining the strategies of coping with stress and other parameters that may affect the activity-role balance of parents with children with special needs. In addition, considering the result that parents have difficulty in participating in leisure time activities as the perceived caregiver burden increases, it is recommended to create occupational therapy programs aimed at regulating life balance.

Anahtar Kelimeler

• Coping skills
• parents
• children with disabilities
• coronavirus disease 2019 virus

Kaynakça

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