Review

Descriptive analysis of findings related to the family experiences of individuals with autism

Volume: 14 Number: 1 March 29, 2026
EN

Descriptive analysis of findings related to the family experiences of individuals with autism

Abstract

This study aims to identify the issues faced by families of children with autism spectrum disorder in education and daily life, and to suggest ways to address these issues. The research findings were analyzed using descriptive content analysis, focusing on qualitative research conducted with children with ASD and their families. Within this scope, 21 postgraduate theses identified from the National Thesis Centre of the Council of Higher Education that met the specified criteria were included in the analysis. The theses were examined in terms of descriptive data, including the research method, design, data collection tool, type of analysis, characteristics of the participants, the university, and the year. Then, the results obtained were analyzed thematically. The analysis identified five main themes: 'Family participation', 'challenges of autism', 'initial recognition of ASD', 'support process', and 'parents' positive views'. The findings revealed that families attempted to participate in the educational process but encountered limitations regarding cooperation and support services. This study highlights the need for future qualitative research involving fathers and other family members of individuals with ASD, as well as doctoral-level research.

Keywords

Ethical Statement

Ethical approval was not required for this study as it is a review study and did not involve human participants or animal subjects

References

  1. Akkuş, P. Z., Saygan, B. B., Bahadur, E. İ., Cak, T., & Özmert, E. (2021). Otizm spektrum bozukluğu tanısı ile yaşamak: Ailelerin deneyimleri [Living with a diagnosis of autism spectrum disorder: Families’ experiences]. Turkish Journal of Pediatric Disease, 15(4), 272–279. https://doi.org/10.12956/tchd.731752
  2. Akmaniş, B. (2010). Otistik çocuğu olan annelerin algıladıkları sosyal desteğe göre umutsuzluk düzeylerinin incelenmesi [The examination of hopelessness levels according to perceived social support of mothers with autistic children] [Master’s thesis, Maltepe University]. YÖK Tez Merkezi. https://tez.yok.gov.tr
  3. Alagözoğlu, E. (2016). Otizm spektrum bozukluğundan etkilenmiş kardeşi olan bireylerin aileleri ile ilgili duygu ve düşünceleri [Feelings and thoughts of individuals who have a sibling affected by autism spectrum disorder] [Master’s thesis, Anadolu University]. YÖK Tez Merkezi. https://tez.yok.gov.tr
  4. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5) (5th ed.). Arlington, VA: American Psychiatric Publishing.
  5. Ardıç, A. (2010). Özel eğitimde aile eğitimi ve rehberliği [Family education and guidance in special education]. Maya Akademi Yayın Dağıtım Eğitim Danışmanlık.
  6. Aslan, C., & Özkubat, U. (2019). Ulusal özel eğitim kongresi bildirilerindeki araştırma eğilimleri: Bir içerik analizi [Research trends in papers presented at the national special education congress: A content analysis]. Türkiye Sosyal Araştırmalar Dergisi, 23(2), 535–554.
  7. Aslanoğlu, M. (2004). Otistik, zihinsel, işitme, görme ve bedensel engelli çocuğu bulunan ebeveynlerin aile içi ilişkilerinin incelenmesi [Examination of family relations of parents with autistic, intellectually disabled, hearing impaired, visually impaired, and physically disabled children] [Master’s thesis, Dokuz Eylül University]. YÖK Tez Merkezi. https://tez.yok.gov.tr
  8. Avcıl, A. (2021). Aile uygulamasına derin bir bakış: Alternatif ve destekleyici iletişim sisteminin aile tarafından evde uygulanma sürecinin incelenmesi [A deep look at family practice: Examination of the implementation process of the augmentative and alternative communication system by the family at home] [Master’s thesis, İstanbul Medeniyet University]. YÖK Tez Merkezi. https://tez.yok.gov.tr

Details

Primary Language

English

Subjects

Autism and Spectrum Disorder Education

Journal Section

Review

Publication Date

March 29, 2026

Submission Date

July 7, 2025

Acceptance Date

November 1, 2025

Published in Issue

Year 1970 Volume: 14 Number: 1

APA
Yağcioğlu Has, Ö., & Yetkin, A. İ. (2026). Descriptive analysis of findings related to the family experiences of individuals with autism. International Journal of Turkish Education Sciences, 14(1), 376-400. https://doi.org/10.46778/goputeb.1736748