Examination of Depression and Quality of Life of Parents of Disabled İndividuals With and Without Incontinence- Pilot Study

Yıl 2024, Cilt: 6 Sayı: 2, 58 - 65, 31.12.2024

Bihter Akınoğlu , Aslı Emine Köse , Ayfer Ezgi Yılmaz

https://doi.org/10.51538/intjourexerpsyc.1516379

Öz

This study aimed to investigate and compare the depression and quality of life of parents of disabled individuals with and without urinary and fecal incontinence. The study included 18 disabled individuals aged between 4 and 27 years and their mothers, aged between 27-54 years, who were the primary caregivers of these children. The Urination Disorders Symptom Score (PBSS) was used to determine the presence of urinary incontinence, and the Holschneider Continence Scoring (HKS) was used to evaluate fecal incontinence in the individuals included in the study. Nottingham Health Profile (NSP) was used to assess the quality of life, and the Beck Depression Scale was used to assess the level of depression of parents of disabled individuals. Comparisons of quality of life and depression level according to the presence of incontinence were investigated by the Mann-Whitney U test. The relationships between IBSS and Holschneider score and other measurements were analyzed using Pearson's correlation coefficient for normally distributed data and Spearman's rank number correlation coefficient for non-normally distributed data. As a result of the study, it was determined that the parent's quality of life decreased as the severity of fecal and urinary incontinence increased. There was no difference between the Nottingham health profile score and the Beck Depression Scale score of parents of children with and without incontinence. Although there was no difference between the depression and quality of life of the parents of disabled individuals with and without incontinence, it was observed that the quality of life of the parents decreased as the level of urinary and fecal incontinence increased. Therefore, we suggest that studies should be carried out to improve the quality of life of parents of disabled individuals with incontinence.

Anahtar Kelimeler

disabled individual, urinary incontinence, fecal incontinence, family, parent

İnkontinansı Olan ve Olmayan Engelli Bireye Sahip Ebeveynlerin Depresyon ve Yaşam Kalitelerinin İncelenmesi-Pilot Çalışma

Öz

Bu araştırmanın amacı üriner ve fekal inkontinansı olan ve olmayan engelli bireye sahip ebeveynlerin depresyon ve yaşam kalitelerinin incelenmesi ve karşılaştırılmasıdır. Çalışmaya yaşları 4 ile 27 arasında değişen 18 engelli birey ve bu çocukların primer bakımlarını yapan ve yaşları 27-54 arasında değişen anneleri dâhil edildi. Çalışmaya dâhil edilen bireylerde üriner inkontinans varlığını belirlemek için İşeme Bozuklukları Semptom skoru (İBSS) ve Fekal inkontinansı değerlendirmek için Holschneider Kontinans Skorlaması (HKS) kullanıldı. Engelli bireylerin ebeveynlerinin yaşam kalitesini değerlendirmek için Nottingham Sağlık Profili (NSP) ve depresyon düzeyini değerlendirmek için Beck Depresyon Ölçeği kullanıldı. İnkontinans varlığına göre yaşam kalitesi ve depresyon düzeyi karşılaştırmaları Mann-Whitney U testi ile araştırıldı. İBSS ve Holschneider skoru ile diğer ölçümler arasındaki ilişkilerin incelenmesi normal dağılım gösteren verilerde Pearson’ın korelasyon katsayısı ile normal dağılım göstermeyen durumlarda Spearman sıra sayıları korelasyon katsayısı ile incelendi. Çalışma sonucunda engelli bireylerin fekal inkontinans ve üriner inkontinans şiddeti arttıkça ebeveynlerin yaşam kalitelerinin azaldığı belirlendi. İnkontinansı olan ve olmayan çocukların ebeveynlerinin Nottingham sağlık profili skoru ve Beck depresyon ölçeği skoru arasında fark olmadığı belirlendi. İnkontinansı olan ve olmayan engelli bireye sahip ebeveynlerin depresyon ve yaşam kaliteleri arasında fark olmamasına rağmen, üriner ve fekal inkontinans düzeyi arttıkça ebeveynlerin yaşam kalitesinin azaldığı görülmektedir. Bu nedenle inkontinansı olan engelli bireye sahip ebeveynlerin yaşam kalitelerini arttırmaya yönelik çalışmalar yapılmasını önermekteyiz.

Anahtar Kelimeler

engelli birey, üriner inkontinans, fekal inkontinans, aile, yaşam kalitesi

Etik Beyan

Çalışmaya başlamadan önce, Ankara Yıldırım Beyazıt Üniversitesi Sağlık Bilimleri Etik Kurulu’ndan 16/04/2023 tarih ve 06-262 karar numarası ile onay alındı. Etik kurul onayı alındıktan sonra çalışmanın yapıldığı kurumdan 24/04/2023 tarihinde izin alındı. Engelli bireylerin ailelerine yapılacak değerlendirmeler için gerekli bilgilendirmeler yapıldı ve onam formu imzalatıldı.

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