Yıl 1998, Cilt 11 , Sayı 3, Sayfalar 156 - 160 1998-07-01

A study on the turkish mother's perception of a child with down syndrome and her social adjustment

D. Türkdogan-Sozüer [1] , F. Aydınoglu [2] , D. Daryal [3] , A. Turan [4] , M.M. Özek [5]


Objective: This investigation is designed to examine the needs and concerns of the mothers, and the variables that influence their acceptance of their Down Syndrome (DS) children, perception, attitudes and social adjustment.

Methods: Thirty-two mothers (aged 23-50 years) who graduated from primary school (16 cases), high school (11 cases) or university (5 cases) were included. The questionnaire survey that contained three parts of 72 questions was given to the mothers.

Results: The initial feelings when the mothers first learned of their children's condition were regret for the child and/or themselves (78%), disbelief and shock (59%), disappointment (44%), guilt (19%) and/or anger (16%). These feelings were not related to the mothers’ educational level (p>0.05). Twenty-six (81%) of the mothers with different educational levels succeeded in accepting their child and his/her disability after they attributed the responsibility of misfortunes to 'God's will/fate' or genetic causes. The number of spouses who easily accepted their children's condition was higher than that of those who experienced difficulties in accepting (p<0.04).

Eighty-five percent of the mothers believe that Turkish people generally understand their feelings and their child’s condition (p<0.001). The primary concern of the mothers about their children is fear of the future. The majority of the mothers expect the support of the state for their disabled children's needs such as education and employment.

Conclusion: This study showed similarities in the experiences of the mothers with different educational levels in many aspects such as their emotion, reactions and expectations. The first step for planning of any support is the acceptance of the child with DS

at all levels; parents, professionals, government and society.

Down syndrome, Quality of life
  • Thambyayah M, LaBrooy J, Thillainathan K, Flanita AK. Improving the quality of lives of Down syndrome children. 5th Asian and Ocenian Congress of Child neurology Istanbul: 9-11 October 1996,41
Konular Tıp
Bölüm Derleme
Yazarlar

Yazar: D. Türkdogan-Sozüer
Ülke: Turkey


Yazar: F. Aydınoglu
Ülke: Turkey


Yazar: D. Daryal
Ülke: Turkey


Yazar: A. Turan
Ülke: Turkey


Yazar: M.M. Özek
Ülke: Turkey


Tarihler

Yayımlanma Tarihi : 1 Temmuz 1998

Bibtex @araştırma makalesi { marumj268007, journal = {Marmara Medical Journal}, issn = {1019-1941}, eissn = {1309-9469}, address = {}, publisher = {Marmara Üniversitesi}, year = {1998}, volume = {11}, pages = {156 - 160}, doi = {}, title = {A study on the turkish mother's perception of a child with down syndrome and her social adjustment}, key = {cite}, author = {Türkdogan-Sozüer, D. and Aydınoglu, F. and Daryal, D. and Turan, A. and Özek, M.M.} }
APA Türkdogan-Sozüer, D , Aydınoglu, F , Daryal, D , Turan, A , Özek, M . (1998). A study on the turkish mother's perception of a child with down syndrome and her social adjustment. Marmara Medical Journal , 11 (3) , 156-160 . Retrieved from https://dergipark.org.tr/tr/pub/marumj/issue/25403/268007
MLA Türkdogan-Sozüer, D , Aydınoglu, F , Daryal, D , Turan, A , Özek, M . "A study on the turkish mother's perception of a child with down syndrome and her social adjustment". Marmara Medical Journal 11 (1998 ): 156-160 <https://dergipark.org.tr/tr/pub/marumj/issue/25403/268007>
Chicago Türkdogan-Sozüer, D , Aydınoglu, F , Daryal, D , Turan, A , Özek, M . "A study on the turkish mother's perception of a child with down syndrome and her social adjustment". Marmara Medical Journal 11 (1998 ): 156-160
RIS TY - JOUR T1 - A study on the turkish mother's perception of a child with down syndrome and her social adjustment AU - D. Türkdogan-Sozüer , F. Aydınoglu , D. Daryal , A. Turan , M.M. Özek Y1 - 1998 PY - 1998 N1 - DO - T2 - Marmara Medical Journal JF - Journal JO - JOR SP - 156 EP - 160 VL - 11 IS - 3 SN - 1019-1941-1309-9469 M3 - UR - Y2 - 1998 ER -
EndNote %0 Marmara Medical Journal A study on the turkish mother's perception of a child with down syndrome and her social adjustment %A D. Türkdogan-Sozüer , F. Aydınoglu , D. Daryal , A. Turan , M.M. Özek %T A study on the turkish mother's perception of a child with down syndrome and her social adjustment %D 1998 %J Marmara Medical Journal %P 1019-1941-1309-9469 %V 11 %N 3 %R %U
ISNAD Türkdogan-Sozüer, D. , Aydınoglu, F. , Daryal, D. , Turan, A. , Özek, M.M. . "A study on the turkish mother's perception of a child with down syndrome and her social adjustment". Marmara Medical Journal 11 / 3 (Temmuz 1998): 156-160 .
AMA Türkdogan-Sozüer D , Aydınoglu F , Daryal D , Turan A , Özek M . A study on the turkish mother's perception of a child with down syndrome and her social adjustment. Marmara Med J. 1998; 11(3): 156-160.
Vancouver Türkdogan-Sozüer D , Aydınoglu F , Daryal D , Turan A , Özek M . A study on the turkish mother's perception of a child with down syndrome and her social adjustment. Marmara Medical Journal. 1998; 11(3): 160-156.