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A study on the turkish mother's perception of a child with down syndrome and her social adjustment

Yıl 1998, Cilt: 11 Sayı: 3, 156 - 160, 01.07.1998

D. Türkdogan-sozüer F. Aydınoglu D. Daryal A. Turan M.M. Özek

Öz

Objective: This investigation is designed to examine the needs and concerns of the mothers, and the variables that influence their acceptance of their Down Syndrome (DS) children, perception, attitudes and social adjustment.

Methods: Thirty-two mothers (aged 23-50 years) who graduated from primary school (16 cases), high school (11 cases) or university (5 cases) were included. The questionnaire survey that contained three parts of 72 questions was given to the mothers.

Results: The initial feelings when the mothers first learned of their children's condition were regret for the child and/or themselves (78%), disbelief and shock (59%), disappointment (44%), guilt (19%) and/or anger (16%). These feelings were not related to the mothers’ educational level (p>0.05). Twenty-six (81%) of the mothers with different educational levels succeeded in accepting their child and his/her disability after they attributed the responsibility of misfortunes to 'God's will/fate' or genetic causes. The number of spouses who easily accepted their children's condition was higher than that of those who experienced difficulties in accepting (p<0.04).

Eighty-five percent of the mothers believe that Turkish people generally understand their feelings and their child’s condition (p<0.001). The primary concern of the mothers about their children is fear of the future. The majority of the mothers expect the support of the state for their disabled children's needs such as education and employment.

Conclusion: This study showed similarities in the experiences of the mothers with different educational levels in many aspects such as their emotion, reactions and expectations. The first step for planning of any support is the acceptance of the child with DS

at all levels; parents, professionals, government and society.

Anahtar Kelimeler

Down syndrome Quality of life

Kaynakça

  • Thambyayah M, LaBrooy J, Thillainathan K, Flanita AK. Improving the quality of lives of Down syndrome children. 5th Asian and Ocenian Congress of Child neurology Istanbul: 9-11 October 1996,41

Yıl 1998, Cilt: 11 Sayı: 3, 156 - 160, 01.07.1998

D. Türkdogan-sozüer F. Aydınoglu D. Daryal A. Turan M.M. Özek

Öz

Kaynakça

  • Thambyayah M, LaBrooy J, Thillainathan K, Flanita AK. Improving the quality of lives of Down syndrome children. 5th Asian and Ocenian Congress of Child neurology Istanbul: 9-11 October 1996,41
Toplam 1 adet kaynakça vardır.

Ayrıntılar

Konular Klinik Tıp Bilimleri
Bölüm Derleme
Yazarlar

D. Türkdogan-sozüer Bu kişi benim

F. Aydınoglu Bu kişi benim

D. Daryal Bu kişi benim

A. Turan Bu kişi benim

M.M. Özek Bu kişi benim

Yayımlanma Tarihi 1 Temmuz 1998
Yayımlandığı Sayı Yıl 1998 Cilt: 11 Sayı: 3

Kaynak Göster

APA Türkdogan-sozüer, D., Aydınoglu, F., Daryal, D., Turan, A., vd. (1998). A study on the turkish mother’s perception of a child with down syndrome and her social adjustment. Marmara Medical Journal, 11(3), 156-160.
AMA Türkdogan-sozüer D, Aydınoglu F, Daryal D, Turan A, Özek M. A study on the turkish mother’s perception of a child with down syndrome and her social adjustment. Marmara Med J. Temmuz 1998;11(3):156-160.
Chicago Türkdogan-sozüer, D., F. Aydınoglu, D. Daryal, A. Turan, ve M.M. Özek. “A Study on the Turkish mother’s Perception of a Child With down Syndrome and Her Social Adjustment”. Marmara Medical Journal 11, sy. 3 (Temmuz 1998): 156-60.
EndNote Türkdogan-sozüer D, Aydınoglu F, Daryal D, Turan A, Özek M (01 Temmuz 1998) A study on the turkish mother’s perception of a child with down syndrome and her social adjustment. Marmara Medical Journal 11 3 156–160.
IEEE D. Türkdogan-sozüer, F. Aydınoglu, D. Daryal, A. Turan, ve M. Özek, “A study on the turkish mother’s perception of a child with down syndrome and her social adjustment”, Marmara Med J, c. 11, sy. 3, ss. 156–160, 1998.
ISNAD Türkdogan-sozüer, D. vd. “A Study on the Turkish mother’s Perception of a Child With down Syndrome and Her Social Adjustment”. Marmara Medical Journal 11/3 (Temmuz 1998), 156-160.
JAMA Türkdogan-sozüer D, Aydınoglu F, Daryal D, Turan A, Özek M. A study on the turkish mother’s perception of a child with down syndrome and her social adjustment. Marmara Med J. 1998;11:156–160.
MLA Türkdogan-sozüer, D. vd. “A Study on the Turkish mother’s Perception of a Child With down Syndrome and Her Social Adjustment”. Marmara Medical Journal, c. 11, sy. 3, 1998, ss. 156-60.
Vancouver Türkdogan-sozüer D, Aydınoglu F, Daryal D, Turan A, Özek M. A study on the turkish mother’s perception of a child with down syndrome and her social adjustment. Marmara Med J. 1998;11(3):156-60.