Araştırma Makalesi

Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity

Cilt: 6 Sayı: 1 31 Ocak 2024
PDF İndir
EN

Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity

Öz

Aim: The purpose of this study is to evaluate the validity and reliability of the Turkish version of the Caregiver Difficulties Scale (CDS). Material and Method: The CDS was translated into Turkish (TR-CDS) and 116 caregivers of children with Cerebral Palsy (CP) (mean age: 37.20±10.36 years) completed the TR-CDS. Impact on Family Scale (IPFAM), World Health Organization Quality of Life–Brief Form (WHOQOL-BREF), Fatigue Severity Scale (FSS), Nottingham Health Profile (NHP), Beck Depression Inventory-II (BDI-II), and subscales and total impact score of TR-CDS were used for the construct validity. The internal consistency was assessed using Cronbach's alpha, and the test-retest reliability was assessed using the Intraclass Correlation Coefficient (ICC). Results: For construct validity, all subscales of TR-CDS showed negative correlation with the WHOQOL-BREF and showed positive correlation with the IPFAM, FSS, NHP, and BDI-II. ICC the results of test-retest reliability analysis were for TR-CDS (total)=0.879, impact on self (CDS-IS)=0.843, support for caregiving (CDS-SC)=0.759, social and economic difficulties (CDS-S&E)=0.827, and concern for the child (CDS-CC)=0.707. A value of 0.936 was found for internal consistency. Conclusion: It was revealed that the TR-CDS was a valid and reliable tool for the caregivers of children with CP.

Anahtar Kelimeler

Etik Beyan

The ethical approval of the study was obtained from XXXXX University Clinical Research Ethics Committee (Decision No:2019/01).

Kaynakça

  1. Ones K, Yilmaz E, Cetinkaya B, Caglar N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehabil Neural Repair. 2005;19:232-7.
  2. Park, E-Y, Nam SJ. Time burden of caring and depression among parents of individuals with cerebral palsy. Disabil Rehabil. 2019;41:1508-13.
  3. Vogts N, Mackey AH, Ameratunga S, Stott NS. Parent-perceived barriers to participation in children and adolescents with cerebral palsy. J Paediatr Child Health. 2010;46:680-5.
  4. Basaran A, Karadavut KI, Uneri S, et al. The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: a comparative study. Eur J Phys Rehabil Med. 2013;49:815-22.
  5. Schaible B, Colquitt G, Caciula MC, et al. Comparing impact on the family and insurance coverage in children with cerebral palsy and children with another special healthcare need. Child Care Health Dev. 2018;44:370-7.
  6. Tuna H, Unalan H, Tuna F, Kokino S. Quality of life of primary caregivers of children with cerebral palsy: a controlled study with Short Form-36 questionnaire. Dev Med Child Neurol. 2004;46:647-8.
  7. Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25:3186-91.
  8. Majnemer A, Shevell M, Law M, et al. Indicators of distress in families of children with cerebral palsy. Disabil Rehabil. 2012;34:1202-7.

Ayrıntılar

Birincil Dil

İngilizce

Konular

Fizyoterapi

Bölüm

Araştırma Makalesi

Yayımlanma Tarihi

31 Ocak 2024

Gönderilme Tarihi

15 Ekim 2023

Kabul Tarihi

24 Ocak 2024

Yayımlandığı Sayı

Yıl 2024 Cilt: 6 Sayı: 1

Kaynak Göster

APA
Adıgüzel, H., Katırcı Kırmacı, Z. İ., Erel, S., & Ergun, N. (2024). Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity. Medical Records, 6(1), 124-131. https://doi.org/10.37990/medr.1375252
AMA
1.Adıgüzel H, Katırcı Kırmacı Zİ, Erel S, Ergun N. Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity. Med Records. 2024;6(1):124-131. doi:10.37990/medr.1375252
Chicago
Adıgüzel, Hatice, Zekiye İpek Katırcı Kırmacı, Suat Erel, ve Nevin Ergun. 2024. “Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity”. Medical Records 6 (1): 124-31. https://doi.org/10.37990/medr.1375252.
EndNote
Adıgüzel H, Katırcı Kırmacı Zİ, Erel S, Ergun N (01 Ocak 2024) Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity. Medical Records 6 1 124–131.
IEEE
[1]H. Adıgüzel, Z. İ. Katırcı Kırmacı, S. Erel, ve N. Ergun, “Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity”, Med Records, c. 6, sy 1, ss. 124–131, Oca. 2024, doi: 10.37990/medr.1375252.
ISNAD
Adıgüzel, Hatice - Katırcı Kırmacı, Zekiye İpek - Erel, Suat - Ergun, Nevin. “Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity”. Medical Records 6/1 (01 Ocak 2024): 124-131. https://doi.org/10.37990/medr.1375252.
JAMA
1.Adıgüzel H, Katırcı Kırmacı Zİ, Erel S, Ergun N. Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity. Med Records. 2024;6:124–131.
MLA
Adıgüzel, Hatice, vd. “Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity”. Medical Records, c. 6, sy 1, Ocak 2024, ss. 124-31, doi:10.37990/medr.1375252.
Vancouver
1.Hatice Adıgüzel, Zekiye İpek Katırcı Kırmacı, Suat Erel, Nevin Ergun. Turkish Version of Caregiver Difficulties Scale for the Children with Cerebral Palsy: A Study of Reliability and Validity. Med Records. 01 Ocak 2024;6(1):124-31. doi:10.37990/medr.1375252