Araştırma Makalesi
BibTex RIS Kaynak Göster

The Quality of Life in Children with Congenital Heart Disease Who Underwent an Intervention

Yıl 2024, Cilt: 11 Sayı: 2, 125 - 131, 31.08.2024
https://doi.org/10.47572/muskutd.1416896

Öz

Congenital heart disease (CHD) is one of the most common chronic pediatric conditions, exerting a substantial impact on the lives of children and families. The assessment of children’s quality of life gained prominence in the 1980s and is now widely used in clinical practice for comparing treatment options and evaluating their efficacy. We applied the Congenital Heart Disease Quality of Life (ConQol) questionnaire, age-appropriate and disease-specific, to 52 children aged 8–16 years with CHD who underwent intervention at the Pediatric Cardiology Unit of Dr. Behcet Uz Children’s Diseases and Surgery Training and Research Hospital. A control group of 52 healthy individuals without CHD was also included. The 8–11 age group consisted of 27 patients and 26 healthy controls. There were 25 patients and 26 healthy controls in the 12–16 age group. There were significant differences in specific areas such as being able to run about, being allowed to do sports and exercise, and being able to do keep up with friends in 8–11-year-old patient group compared to the control group. The ConQol Index Score was statistically significantly different between 12–16-year-old patient and control groups, about being allowed to do sports and exercise, being able to do keep up with friends, and being able to take part in clubs / do activities outside of school. Our findings underscore the impact of CHD on the quality of life in children with CHD, particularly manifesting in reduced physical activity.

Kaynakça

  • 1. Ferenz C, Rubin JD, McCarter RJ. Congenital heart disease: prevalence at live birth. The Baltimore-Washington Infant Study. Am J Epidemiol. 1985;121(1):31-6.
  • 2. Fyler DC, Rothman KJ, Parisi-Buckley L. The determinants of five year survival infants with congenital heart disease. Cardiovasc Clin. 1981;11(2):393-405.
  • 3. Eiser C, Morse R. The measurement of quality of life in children: past and future perspectives. J Dev Behav Pediatr. 2001;22(4):248-56.
  • 4. Sönmez S, Başbakkal Z. Türk çocuklarının pediatrik yasam kalitesi 4.0 envanterinin (PedsQL 4.0) geçerlilik ve güvenilirlik çalışması. Türk Klin J Pediatr. 2007;16:229-37.
  • 5. Orley J, Kuyken W. Quality of life assessment: international perspectives. proceedings of the joint-meeting organized by the World Health Organization and the fondation IPSEN in Paris, July 2 – 3, 1993, page 41-57.
  • 6. Bowling A. Measuring health, a review of quality of life measurement. Open University Press. 1993:1-23.
  • 7. The WHOQOL Group. What quality of life? World Health Organization quality of life assessment. World Health Forum. 1996;17(4):354-6.
  • 8. Testa MA, Simonson DC. Assessment of quality-of-life outcomes. N Engl J Med. 1996;334(13):835-40.
  • 9. Eser E. Yaşam kalitesinin sınıflandırılması ve sağlıkla ilgili yaşam kalitesinin ölçümü. 1. sağlıkta yaşam kalitesi sempozyumu program ve özet kitabı. 2004, sayfa 4-6.
  • 10. Harding L. Children's quality of life assessment: a review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother. 2001;8(2):79-96.
  • 11. Eiser C, Mohay H, Morse R. The measurement of quality of life in young children. Child Care Health Dev. 2000;26(5):401-14.
  • 12. Wallander JL, Schmitt M, Koot HM. Quality of life measurement in children and adolescents: issues, instruments and applications. J Clin Psychol. 2001;57(4):571-85.
  • 13. Kwon EN, Mussatto K, Simpson PM, et al. Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers. Congenit Heart Dis. 2011;6(1):18-27.
  • 14. Janiec I, Werner B, Sieminska J, et al. Quality of life of children with mitral valve prolapse. Qual Life Res. 2011;20(4):537-41.
  • 15. Uzark K, Jones K, Slusher J, et al. Quality of life in children with heart disease as perceived by children and parents. Pediatrics. 2008;121(5):e1060-7.
  • 16. Wray J, Sensky T. Congenital heart disease and cardiac surgery in childhood: effects on cognitive function and academic ability. Heart. 2001;85(6):687-91.
  • 17. Visconti KJ, Saudino KJ, Rappaport LA, et al. Influence of parental stress and social support on the behavioral adjustment of children with transposition of the great arteries. J Dev Behav Pediatr. 2002;23(5):314-21.
  • 18. Nelson W. Παιδιατρική. Επιμέλεια Μετάφρασης Χρούσσος Γ. 15η έκδοση. Εκδ. Πασχαλίδη, Αθήνα, 2004.
  • 19. Nousi D, Christou A. Factors affecting the quality of life in children with congenital heart disease. Health Sci J. 2010;4(2):94–100.
  • 20. Sertçelik T, Alkan F, Sapmaz ŞY, et al. Life quality of children with congenital heart diseases. Turk Pediatri Ars. 2018;53(2):78-86.
  • 21. Wright M, Nolan T. Impact of cyanotic heart disease on school performance. Arch Dis Child. 1994;71(1):64-70.
  • 22. Kendall L, Sloper P, Lewin RJ, et al. The views of young people with congenital cardiac disease on designing the services for their treatment. Cardiol Young. 2003;13(1):11-9.
  • 23. Nakou S. Measurement of quality of life in the health care field. applications in child birth. Arch Helle Med. 2001;18(3):254-66.
  • 24. Macran S, Birks Y, Parsons J, et al. The development of a new measure of quality of life for children with congenital cardiac disease. Cardiol Young. 2006;16(2):165-72.
  • 25. Wotherspoon JM, Eagleson KJ, Gilmore L, et al. Neurodevelopmental and health-related quality-of-life outcomes in adolescence after surgery for congenital heart disease in infancy. Dev Med Child Neurol. 2020;62(2):214–20.
  • 26. Gaynor JW, Stopp C, Wypij D, et al. Neurodevelopmental outcomes after cardiac surgery in infancy. Pediatrics. 2015;135(5):816–25.
  • 27. Noeder MM, Logan BA, Struemph KL, et al. Developmental screening in children with CHD: ages and stages questionnaires. Cardiol Young. 2017;27(8):1447–54.

Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi

Yıl 2024, Cilt: 11 Sayı: 2, 125 - 131, 31.08.2024
https://doi.org/10.47572/muskutd.1416896

Öz

Konjenital kalp hastalıkları çocukların ve ailelerin hayatlarını etkileyen en yaygın kronik çocukluk çağı hastalıklarından birisidir. Çocukların hayat kalitesinin değerlendirilmesi 1980’lerde kullanılmaya başlanmış olup son zamanlarda tedavi seçeneklerinin karşılaştırılmasında ve etkinliklerinin değerlendirilmesinde ve klinik uygulamada yaygın olarak kullanılmaktadır. Çalışmamızda Dr. Behçet Uz Çocuk Sağlığı ve Hastalıkları Eğitim ve Araştırma Hastanesi Çocuk Kardiyoloji Biriminde konjenital kalp hastalığı tanılı ve girişim uygulanmış olan 8-16 yaşları arasındaki 52 hastaya yaş grubuna özgü ve sağlıkla ilgili yaşam kalitesi ölçeği olan Konjenital Kalp Hastalıkları Yaşam Kalitesi (ConQol) anketi uygulanmıştır. 8-11 yaş grubu 27 hasta ve 26 sağlıklı kontrolden oluşuyordu. 12-16 yaş grubunda 25 hasta ve 26 sağlıklı kontrol vardı. 8–11 yaş grubunda koşuşturabilme, spor ve egzersiz yapılmasına izin verilmesi ve arkadaşlara ayak uydurabilme sorularında kontrol grubuna göre anlamlı bir fark olduğu saptanmıştır. 12–16 yaş grubunda spor ve egzersiz yapılmasına izin verilmesi, arkadaşlara ayak uydurabilme ve kulübe gitme veya okul dışında aktivitelere katılma sorularında kontrol grubuna göre anlamlı bir fark olduğu saptanmıştır. Konjenital kalp hastalıklı çocuklarda yaşam kalitesi özellikle fiziksel aktivite kısıtlanmasından etkilenmektedir.

Etik Beyan

The research related to human use has been compliedwith all the relevant national regulations, institutional policies and in accordance the tenets of the Helsinki Declaration, and has been approved by the local İzmir Dr. Behçet Uz Children’s Diseases and Surgery Training and Research Hospital Ethics Committee (Number: 2012/11).

Destekleyen Kurum

None

Teşekkür

The authors are grateful to patients and their parents.

Kaynakça

  • 1. Ferenz C, Rubin JD, McCarter RJ. Congenital heart disease: prevalence at live birth. The Baltimore-Washington Infant Study. Am J Epidemiol. 1985;121(1):31-6.
  • 2. Fyler DC, Rothman KJ, Parisi-Buckley L. The determinants of five year survival infants with congenital heart disease. Cardiovasc Clin. 1981;11(2):393-405.
  • 3. Eiser C, Morse R. The measurement of quality of life in children: past and future perspectives. J Dev Behav Pediatr. 2001;22(4):248-56.
  • 4. Sönmez S, Başbakkal Z. Türk çocuklarının pediatrik yasam kalitesi 4.0 envanterinin (PedsQL 4.0) geçerlilik ve güvenilirlik çalışması. Türk Klin J Pediatr. 2007;16:229-37.
  • 5. Orley J, Kuyken W. Quality of life assessment: international perspectives. proceedings of the joint-meeting organized by the World Health Organization and the fondation IPSEN in Paris, July 2 – 3, 1993, page 41-57.
  • 6. Bowling A. Measuring health, a review of quality of life measurement. Open University Press. 1993:1-23.
  • 7. The WHOQOL Group. What quality of life? World Health Organization quality of life assessment. World Health Forum. 1996;17(4):354-6.
  • 8. Testa MA, Simonson DC. Assessment of quality-of-life outcomes. N Engl J Med. 1996;334(13):835-40.
  • 9. Eser E. Yaşam kalitesinin sınıflandırılması ve sağlıkla ilgili yaşam kalitesinin ölçümü. 1. sağlıkta yaşam kalitesi sempozyumu program ve özet kitabı. 2004, sayfa 4-6.
  • 10. Harding L. Children's quality of life assessment: a review of generic and health related quality of life measures completed by children and adolescents. Clin Psychol Psychother. 2001;8(2):79-96.
  • 11. Eiser C, Mohay H, Morse R. The measurement of quality of life in young children. Child Care Health Dev. 2000;26(5):401-14.
  • 12. Wallander JL, Schmitt M, Koot HM. Quality of life measurement in children and adolescents: issues, instruments and applications. J Clin Psychol. 2001;57(4):571-85.
  • 13. Kwon EN, Mussatto K, Simpson PM, et al. Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers. Congenit Heart Dis. 2011;6(1):18-27.
  • 14. Janiec I, Werner B, Sieminska J, et al. Quality of life of children with mitral valve prolapse. Qual Life Res. 2011;20(4):537-41.
  • 15. Uzark K, Jones K, Slusher J, et al. Quality of life in children with heart disease as perceived by children and parents. Pediatrics. 2008;121(5):e1060-7.
  • 16. Wray J, Sensky T. Congenital heart disease and cardiac surgery in childhood: effects on cognitive function and academic ability. Heart. 2001;85(6):687-91.
  • 17. Visconti KJ, Saudino KJ, Rappaport LA, et al. Influence of parental stress and social support on the behavioral adjustment of children with transposition of the great arteries. J Dev Behav Pediatr. 2002;23(5):314-21.
  • 18. Nelson W. Παιδιατρική. Επιμέλεια Μετάφρασης Χρούσσος Γ. 15η έκδοση. Εκδ. Πασχαλίδη, Αθήνα, 2004.
  • 19. Nousi D, Christou A. Factors affecting the quality of life in children with congenital heart disease. Health Sci J. 2010;4(2):94–100.
  • 20. Sertçelik T, Alkan F, Sapmaz ŞY, et al. Life quality of children with congenital heart diseases. Turk Pediatri Ars. 2018;53(2):78-86.
  • 21. Wright M, Nolan T. Impact of cyanotic heart disease on school performance. Arch Dis Child. 1994;71(1):64-70.
  • 22. Kendall L, Sloper P, Lewin RJ, et al. The views of young people with congenital cardiac disease on designing the services for their treatment. Cardiol Young. 2003;13(1):11-9.
  • 23. Nakou S. Measurement of quality of life in the health care field. applications in child birth. Arch Helle Med. 2001;18(3):254-66.
  • 24. Macran S, Birks Y, Parsons J, et al. The development of a new measure of quality of life for children with congenital cardiac disease. Cardiol Young. 2006;16(2):165-72.
  • 25. Wotherspoon JM, Eagleson KJ, Gilmore L, et al. Neurodevelopmental and health-related quality-of-life outcomes in adolescence after surgery for congenital heart disease in infancy. Dev Med Child Neurol. 2020;62(2):214–20.
  • 26. Gaynor JW, Stopp C, Wypij D, et al. Neurodevelopmental outcomes after cardiac surgery in infancy. Pediatrics. 2015;135(5):816–25.
  • 27. Noeder MM, Logan BA, Struemph KL, et al. Developmental screening in children with CHD: ages and stages questionnaires. Cardiol Young. 2017;27(8):1447–54.
Toplam 27 adet kaynakça vardır.

Ayrıntılar

Birincil Dil Türkçe
Konular Klinik Tıp Bilimleri (Diğer)
Bölüm Araştırma Makalesi
Yazarlar

Havva Yazıcı 0000-0002-2564-7420

Timur Meşe 0000-0002-4433-3929

Yayımlanma Tarihi 31 Ağustos 2024
Gönderilme Tarihi 9 Ocak 2024
Kabul Tarihi 2 Ağustos 2024
Yayımlandığı Sayı Yıl 2024 Cilt: 11 Sayı: 2

Kaynak Göster

APA Yazıcı, H., & Meşe, T. (2024). Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi, 11(2), 125-131. https://doi.org/10.47572/muskutd.1416896
AMA Yazıcı H, Meşe T. Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi. MMJ. Ağustos 2024;11(2):125-131. doi:10.47572/muskutd.1416896
Chicago Yazıcı, Havva, ve Timur Meşe. “Konjenital Kalp Hastalığı Tanılı Ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi”. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi 11, sy. 2 (Ağustos 2024): 125-31. https://doi.org/10.47572/muskutd.1416896.
EndNote Yazıcı H, Meşe T (01 Ağustos 2024) Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi 11 2 125–131.
IEEE H. Yazıcı ve T. Meşe, “Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi”, MMJ, c. 11, sy. 2, ss. 125–131, 2024, doi: 10.47572/muskutd.1416896.
ISNAD Yazıcı, Havva - Meşe, Timur. “Konjenital Kalp Hastalığı Tanılı Ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi”. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi 11/2 (Ağustos 2024), 125-131. https://doi.org/10.47572/muskutd.1416896.
JAMA Yazıcı H, Meşe T. Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi. MMJ. 2024;11:125–131.
MLA Yazıcı, Havva ve Timur Meşe. “Konjenital Kalp Hastalığı Tanılı Ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi”. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi, c. 11, sy. 2, 2024, ss. 125-31, doi:10.47572/muskutd.1416896.
Vancouver Yazıcı H, Meşe T. Konjenital Kalp Hastalığı Tanılı ve Girişim Uygulanmış Olan Çocuklarda Hayat Kalitesi. MMJ. 2024;11(2):125-31.