BibTex RIS Kaynak Göster
Yıl 2016, Cilt: 3 Sayı: 2, 36 - 40, 01.05.2016
https://doi.org/10.17220/ijpes.2016.02.004

Öz

Kaynakça

  • Almborg, A. H., Ulander, K., Thulin, A., Berg, S. (2009). Understanding the needs of families discharge planning of stroke patients: the relatives perceptions of participation. Journal of Clinical Nursing, 18, 857–865. doi: 10.1111/j.1365-2702.2008.02600.x.
  • Dinçer, A., Dilek, M., Helvacı, M. A. (2009). Case İn Newborn Diagnosed As A Epidermolysis Bullosa, Turkish Journal Of Family Medicine And Primary Care, 3(4), 18-21.
  • Fine, J. D., Eady, R. A., Bauer, E. A., Bauer, J. W., Bruckner-Tuderman, L., Heagerty, A., et al. (2008).The classification of inherited epidermolysis bullosa (EB): Report of the Third International Consensus Meeting on Diagnosis and Classification of EB. Journal of the American Academy of Dermatology, 58(6), 931-950, doi:10.1016/j.jaad.2008.02.004.
  • Fine, J.D. (2010). Inherited epidermolysis bullosa. Orphanet Journal of Rare Diseases, 5(12), doi:10.1186/1750- 1172-5-12.
  • Greenwood, N., Mackenzıe, A., Cloud, G. C., & Wılson, N. (2008). Informal carers of stroke survivors–factors influencing carers: A systematic review of quantitative studies. Disability and Rehabilitation, 30(18), 1329 – 1349, doi:10.1080/09638280701602178.
  • Hinojosa, M. S., Rittman, M., Hinojosa, R., & Rodriguez, W. (2009). Racial/ethnic variation in recovery of motor function in stroke survivors: Role of informal caregivers. Journal of Rehabilitation Research & Development, 46(2), 223-232.
  • Küçükgüçlü, Ö., Esen, A., & Yener, G. (2009). Bakım verenlerin yükü envanterinin Türk toplumu için geçerlik ve güvenirliğinin incelenmesi. Journal of Neurological Sciences (Turkish), 26(1), 60-73.
  • Mollaoğlu, M., Tuncay, F. Ö., Fertelli, T. K. (2011). Care Burden Of Care Givers Of Stroke Patients And Related Factors. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi, 4(3), 125-130.
  • Qiu, Y., & Li, S.(2008). Stroke: coping strategies and depression among Chinese caregivers of survivors during hospitalisation. Journal of Clinical Nursing, 17, 1563–1573, doi: 10.1111/j.1365-2702.2007.02156.x.
  • Park, Y. H. (2008). Day healthcare services for family caregivers of older people with stroke: needs and satisfaction. Journal of Advanced Nursing, 61(6), 619–630, doi: 10.1111/j.1365-2648.2007.04545.x.
  • Yekta, Ö., Ünal, S., Yılmaz, A., Yıldız, J., Akbaş, A. Y. (2011). Neonatal Case Series With The Diagnosis Of Epidermolysis Bullosa. Turkish Journal of Pediatric Disease. 5(1): 5-10.

The Nursing Care And Education Plan For A Child With Epidermolysis Bullosa A Case Report

Yıl 2016, Cilt: 3 Sayı: 2, 36 - 40, 01.05.2016
https://doi.org/10.17220/ijpes.2016.02.004

Öz

EB is a chronic disease, some types of which may have morbidity and mortality. That is why the patients must receive multidisciplinary care in case any complications arise. Families must be informed about the disease, about home care and receive genetic counselling. The importance of genetic counselling cannot be stressed enough, since both M.C. and his younger brother were diagnosed with EB. If the family had received genetic counselling, this tragic situation could have been prevented. Home care education for the families of EB patients is also of great importance. Relatives of the patient must also be educated about wound care, infection control, patient nutrition and physical treatment. They must also be educated about how to use the medications and about bandaging, dressing, Vaseline bandages, antiseptics, bathing procedures, and the use of antibiotic cream ointment. It was obvious, therefore, that the nursing care given at home enhanced both the patient’s and the family’s quality of life.

Kaynakça

  • Almborg, A. H., Ulander, K., Thulin, A., Berg, S. (2009). Understanding the needs of families discharge planning of stroke patients: the relatives perceptions of participation. Journal of Clinical Nursing, 18, 857–865. doi: 10.1111/j.1365-2702.2008.02600.x.
  • Dinçer, A., Dilek, M., Helvacı, M. A. (2009). Case İn Newborn Diagnosed As A Epidermolysis Bullosa, Turkish Journal Of Family Medicine And Primary Care, 3(4), 18-21.
  • Fine, J. D., Eady, R. A., Bauer, E. A., Bauer, J. W., Bruckner-Tuderman, L., Heagerty, A., et al. (2008).The classification of inherited epidermolysis bullosa (EB): Report of the Third International Consensus Meeting on Diagnosis and Classification of EB. Journal of the American Academy of Dermatology, 58(6), 931-950, doi:10.1016/j.jaad.2008.02.004.
  • Fine, J.D. (2010). Inherited epidermolysis bullosa. Orphanet Journal of Rare Diseases, 5(12), doi:10.1186/1750- 1172-5-12.
  • Greenwood, N., Mackenzıe, A., Cloud, G. C., & Wılson, N. (2008). Informal carers of stroke survivors–factors influencing carers: A systematic review of quantitative studies. Disability and Rehabilitation, 30(18), 1329 – 1349, doi:10.1080/09638280701602178.
  • Hinojosa, M. S., Rittman, M., Hinojosa, R., & Rodriguez, W. (2009). Racial/ethnic variation in recovery of motor function in stroke survivors: Role of informal caregivers. Journal of Rehabilitation Research & Development, 46(2), 223-232.
  • Küçükgüçlü, Ö., Esen, A., & Yener, G. (2009). Bakım verenlerin yükü envanterinin Türk toplumu için geçerlik ve güvenirliğinin incelenmesi. Journal of Neurological Sciences (Turkish), 26(1), 60-73.
  • Mollaoğlu, M., Tuncay, F. Ö., Fertelli, T. K. (2011). Care Burden Of Care Givers Of Stroke Patients And Related Factors. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi, 4(3), 125-130.
  • Qiu, Y., & Li, S.(2008). Stroke: coping strategies and depression among Chinese caregivers of survivors during hospitalisation. Journal of Clinical Nursing, 17, 1563–1573, doi: 10.1111/j.1365-2702.2007.02156.x.
  • Park, Y. H. (2008). Day healthcare services for family caregivers of older people with stroke: needs and satisfaction. Journal of Advanced Nursing, 61(6), 619–630, doi: 10.1111/j.1365-2648.2007.04545.x.
  • Yekta, Ö., Ünal, S., Yılmaz, A., Yıldız, J., Akbaş, A. Y. (2011). Neonatal Case Series With The Diagnosis Of Epidermolysis Bullosa. Turkish Journal of Pediatric Disease. 5(1): 5-10.
Toplam 11 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Bölüm Research Article
Yazarlar

Esra Karaca Çiftçi Bu kişi benim

Selma Kahraman Bu kişi benim

Yayımlanma Tarihi 1 Mayıs 2016
Yayımlandığı Sayı Yıl 2016 Cilt: 3 Sayı: 2

Kaynak Göster

APA Karaca Çiftçi, E., & Kahraman, S. (2016). The Nursing Care And Education Plan For A Child With Epidermolysis Bullosa A Case Report. International Journal of Psychology and Educational Studies, 3(2), 36-40. https://doi.org/10.17220/ijpes.2016.02.004