Spinal Kord Yaralanması Olan Bireylere Bakım Veren Aile Bireylerinin Bakım Yükleri ve Bakım İle İlgili Bilgi Durumlarının Belirlenmesi

Öz

Amaç: Bu araştırmanın amacı spinal kord yaralanması olan bireylere bakım veren aile bireylerinin bakım yükleri ve bakım ile ilgili bilgi durumlarının belirlenmesi amaçlanmıştır. Yöntem: Araştırma, tanımlayıcı türde yapılmıştır. Aralık 2012-Şubat 2015 tarihleri arasında Fırat Üniversitesi Hastanesi Beyin Cerrahi Kliniği’nde spinal kord yaralanması nedeni ile yatan bireylere bakım veren aile bireyleri oluşturmuştur. Örneklemini ise; bu bireyler arasından iletişim kurulabilen, 18 yaşından büyük ve güç analizi ile 93 olarak belirlenmiş sayıya ulaşıncaya kadar seçilen aile bireyleri oluşturmuştur. Veri toplamada hasta tanıtım formu, bakım veren aile bireyleri tanıtım formu, bakım veren aile bireylerinin bakımla ilgili bilgi formu ve Zarit Bakım Verme Yükü Ölçeği (ZBVYÖ) kullanılmıştır. Araştırma için gereken etik izinler alınmıştır. Bulgular: Hastaların tanıtıcı özellikleri ile bakım veren aile bireylerinin ölçek puan ortalamaları karşılaştırılmasında; yaş ve gelir durumunda gruplar arasında istatistiksel olarak önemli bir fark bulunmuştur. Bakım veren aile bireylerinin tanıtıcı özellikleri ile ölçek puan ortalamaları karşılaştırılmasında ise; yaş ve bakım verme süresi ile gruplar arasında istatistiksel olarak önemli bir fark bulunmuştur. Aile bireylerinin ZBVYÖ puan ortalaması 22.76±11.6 olarak bulunmuştur. Sonuç: Türkiye’de, spinal kord yaralanması olan bireyler ve onlara bakım verenler üzerine yapılan çalışmaların sınırlı olması nedeniyle, bu alanda daha fazla araştırmaların yapılması önerilmektedir.

Anahtar Kelimeler

• Spinal Kord
• Aile bireyleri
• Bakım
• Bakım Yükü

Determining The Care Burden and Care-Related Knowledge Status of Family Members Providing Care to Individuals with Spinal Cord Injuries

Öz

Objective: The aim of this study was to assess the caregiving burden and the knowledge about care among family members caring for individuals with spinal cord injury (SCI). Method: This descriptive study was conducted with family members caring for individuals hospitalized in the Neurosurgery Clinic of Fırat University Hospital between December 2012 and February 2015 due to SCI. The sample included family members who were older than 18 years, could be reached for participation, and were selected using power analysis until the target sample size of 93 was met. Data were collected using a patient information form, a caregiver family member information form, and the Zarit Caregiving Burden Scale (ZBI). Ethical approvals were obtained prior to conducting the study. Results: A comparison of the patients' descriptive characteristics with the mean ZBI scores of their caregivers showed a statistically significant difference in terms of patient age and income. Similarly, among the family caregivers, a significant difference was found based on caregiver age and the duration of caregiving. The mean score for caregiver burden was found to be 22.76±11.6. Conclusion: Given the limited number of studies in Turkey focused on individuals with SCI and their caregivers, further research is recommended in this area to better understand caregiving challenges.

Anahtar Kelimeler

• Spinal Cord
• Family Members
• Patient’s care
• Burden of Caregivers.

Kaynakça

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