Analysis of the YouTube Videos About Children with Cerebral Palsy: a research article

Öz

Analysis of the YouTube Videos About Children with Cerebral Palsy: a research article ABSTRACT Purpose: Because cerebral palsy (CP) is a long-term disease, parents need to have information at hand throughout their lives. The videos shown on YouTube, may be inadequate or contain erroneous information since they are not subjected to a process of evaluation and are not regularly updated. In this study, we investigated the scientific content and quality of the YouTube videos related to CP. Material and Methods: The YouTube online library was searched using the term “Children with Cerebral Palsy”. The quality and content of the videos was explored with the GQS (Global Quality Scale) and scientific content with the CPss (Cerebral Palsy Scoring System). The characteristics of the videos (video length, source, date of upload, likes etc.) were recorded. Results: The study was completed with 29 videos. Of the videos, 43.44% included diagnostic information, while 23.3% contained treatment-related information, and 21.18% provided information about associated comorbidities. The mean GQS score was 1.96 ±1.34, the CPss score was 5.75±4.08. According to the quality level of the information content, only 1 video qualified as providing good, 7 videos as moderate, and 21 videos as providing poor information. Conclusion: Health professionals need to be aware of the content available on video-sharing platforms and should be ready to direct their patients to e-information sources that provide accurate and reliable information. Keywords: Cerebral Palsy; children; YouTube; video; quality

Anahtar Kelimeler

• Cerebral Palsy
• children
• YouTube
• video
• quality

Kaynakça

1. Altman, D. G. (1990). Practical statistics for medical research: CRC press. https://doi.org/10.1136/jech.46.5.549-a
2. Atkinson, N., Saperstein, S., & Pleis, J. (2009). Using the internet for health-related activities: findings from a national probability sample. Journal of medical Internet research, 11(1), e1035. https://doi.org/10.2196/jmir.1035
3. Bernard, A., Langille, M., Hughes, S., Rose, C., Leddin, D., & Van Zanten, S. V. (2007). A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. Official journal of the American College of Gastroenterology| ACG, 102(9), 2070-2077. https://doi.org/10.1111/j.1572-0241.2007.01325.x
4. Bicer AY, Zor ZF, Bagcı N, Peker İ. (2021). Evaluation of YouTube Videos on Dental Implant. ADO Journal of Clinical Sciences, 10(3), 186-192. https://dergipark.org.tr/en/download/article-file/1704500
5. Bozkurt, A. P., Gaş, S., & Zincir, Ö. Ö. (2019). YouTube video analysis as a source of information for patients on impacted canine. International Orthodontics, 17(4), 769-775. https://doi.org/10.1016/j.ortho.2019.08.014
6. Buran, C. F., Sawin, K., Grayson, P., & Criss, S. (2009). Family needs assessment in cerebral palsy clinic. Journal for Specialists in pediatric Nursing, 14(2), 86-93. https://doi.org/10.1111/j.1744-6155.2008.00176.x
7. Ceyhan, E., Gurhan, U., Inci, F., ... & Öken, Ö. F. (2020). Evaluation of Turkish Information About Orthopedic Disorders on The Internet: A Pilot Study of Anterior Cruciate Ligament Injury. Med J SDU, 27(3): 323-330. https://doi.org/10.17343/sdutfd.595351
8. Cicchetti, D. V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychological assessment, 6(4), 284. https://doi.org/10.1037/1040-3590.6.4.284

9. Clerici, C. A., Veneroni, L., Bisogno, G., Trapuzzano, A., & Ferrari, A. (2012). Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web. Journal of pediatric hematology/oncology, 34(8), e329-e331. https://doi.org/10.1097/MPH.0b013e31825886f8
10. Desai, T., Shariff, A., Dhingra, V., Minhas, D., Eure, M., & Kats, M. (2013). Is content really king? An objective analysis of the public's response to medical videos on YouTube. PLOS one, 8(12), e82469. https://doi.org/10.1371/journal.pone.0082469
11. Erdem, M. N., & Karaca, S. (2018). Evaluating the accuracy and quality of the information in kyphosis videos shared on YouTube. Spine, 43(22), E1334-E1339. https://doi.org/10.1097/BRS.0000000000002691
12. Furtado, M. A., Sousa Junior, R. R., Soares, L. A., Soares, B. A., Mendonça, K. T., Rosenbaum, P., . . . Leite, H. R. (2022). Analysis of Informative Content on Cerebral Palsy Presented in Brazilian-Portuguese YouTube Videos. Physical & Occupational Therapy In Pediatrics, 42(4), 369-383. https://doi.org/10.1080/01942638.2022.2046677
13. Gliem, J. A., & Gliem, R. R. (2003). Calculating, interpreting, and reporting Cronbach’s alpha reliability coefficient for Likert-type scales. https://doi.org/10.1016/j.encep.2016.05.011
14. Gokcen, H. B., & Gumussuyu, G. (2019). A quality analysis of disc herniation videos on YouTube. World neurosurgery, 124, e799-e804. https://doi.org/10.1016/j.wneu.2019.01.146
15. Hassona, Y., Taimeh, D., Marahleh, A., & Scully, C. (2016). YouTube as a source of information on mouth (oral) cancer. Oral diseases, 22(3), 202-208. https://doi.org/10.1111/odi.12434
16. Hegarty, E., Campbell, C., Grammatopoulos, E., DiBiase, A. T., Sherriff, M., & Cobourne, M. T. (2017). YouTube™ as an information resource for orthognathic surgery. Journal of orthodontics, 44(2), 90-96. https://doi.org/10.1080/14653125.2017.1319010
17. Hesse, B. W., Moser, R. P., Rutten, L. J. F., & Kreps, G. L. (2006). The health information national trends survey: research from the baseline. Journal of Health Communication, 11(S1), vii-xvi. https://doi.org/10.1080/10810730600692553
18. Lim Fat, M. J., Doja, A., Barrowman, N., & Sell, E. (2011). YouTube videos as a teaching tool and patient resource for infantile spasms. Journal of Child Neurology, 26(7), 804-809. https://doi.org/10.1177/0883073811402345
19. Majnemer, A., Shevell, M., Rosenbaum, P., Law, M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. The Journal of pediatrics, 151(5), 470-475. e473. https://doi.org/10.1016/j.jpeds.2007.04.014
20. McMullan, M. (2006). Patients using the Internet to obtain health information: how this affects the patient–health professional relationship. Patient education and counseling, 63(1-2), 24-28. https://doi.org/10.1016/j.pec.2005.10.006
21. Moretti, F. A., Oliveira, V. E. d., & Silva, E. M. K. d. (2012). Access to health information on the internet: a public health issue? Revista da Associação Médica Brasileira, 58, 650-658. https://doi.org/10.1590/s0104-42302012000600008
22. Mukewar, S., Mani, P., Wu, X., Lopez, R., & Shen, B. (2013). YouTube® and inflammatory bowel disease. Journal of Crohn's and Colitis, 7(5), 392-402. https://doi.org/10.1016/j.crohns.2012.07.011
23. O'Neill, S. C., Baker, J. F., Fitzgerald, C., Fleming, C., Rowan, F., Byrne, D., & Synnott, K. (2014). Cauda equina syndrome: assessing the readability and quality of patient information on the Internet. Spine, 39(10), E645-E649. https://doi.org/10.1097/BRS.0000000000000282
24. Oskoui, M., Coutinho, F., Dykeman, J., Jette, N., & Pringsheim, T. (2013). An update on the prevalence of cerebral palsy: a systematic review and meta‐analysis. Developmental Medicine & Child Neurology, 55(6), 509-519. https://doi.org/10.1111/dmcn.12080
25. Oztermeli, A., & Karahan, N. (2020). Evaluation of YouTube video content about developmental dysplasia of the hip. Cureus, 12(8). https://doi.org/10.7759/cureus.9557
26. Ozturk, G., & Gumus, H. (2021). Content Analysis of YouTube ™ Videos on Dental Treatments Under General Anesthesia in Children. Selcuk Dental Journal, 8(1): 140-147. https://doi.org/10.15311/selcukdentj.856093
27. Pamukcu, M., & Izci Duran, T. (2021). Youtube as a Source of Information on Gout Disease: Cross-Sectional Evaluation. Turkiye Klinikleri Journal of Medical Sciences, 41, 461-469. doi:10.5336/medsci.2021-83768. https://doi.org/10.5336/medsci.2021-83768
28. Rosenbaum, P. (2003). Cerebral palsy: what parents and doctors want to know. Bmj, 326(7396), 970-974. https://doi.org/10.1136/bmj.326.7396.970
29. Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., . . . Jacobsson, B. (2007). A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl, 109(suppl 109), 8-14. https://doi.org/10.1111/j.1469-8749.2007.tb12610.x
30. Sadry, S., & Buyukbasaran, E. (2021). Content analysis and reliability of YouTube™ videos on clear aligner. APOS Trends Orthod, 11, 209-217. https://doi.org/10.2319/072419-491.1
31. Sardana, R., Singh, U., & Sumalatha, K. (2016). Family life of caregivers: A descriptive study of disruption of family activities, leisures and interaction of caregivers of children with cerebral palsy. Al Ameen Journal of Medical Sciences, 9(3), 154-161. https://doi.org/10.1177/00469580221121510
32. Saygi, E. K., Giray, E., Cerşit, H. P., ULUTATAR, F., & Aydin, R. (2015). Assessment of family environment and needs of families who have children with cerebral palsy. Turk J Phys Med Rehab, 61, 320-325. https://doi.org/10.5152/tftrd.2015.70745
33. Sellier, E., Platt, M. J., Andersen, G. L., Krägeloh‐Mann, I., De La Cruz, J., Cans, C., . . . Delobel, M. (2016). Decreasing prevalence in cerebral palsy: a multi‐site European population‐based study, 1980 to 2003. Developmental Medicine & Child Neurology, 58(1), 85-92. https://doi.org/10.1111/dmcn.12865
34. Simsek, H., Buyuk, S. K., Cetinkaya, E., Tural, M., & Koseoglu, M. S. (2020). “How I whiten my teeth”: YouTube™ as a patient information resource for teeth whitening. BMC Oral Health, 20, 1-6. https://doi.org/10.1186/s12903-020-01172-w
35. Sørensen, K., Pelikan, J. M., Röthlin, F., Ganahl, K., Slonska, Z., Doyle, G., . . . Uiters, E. (2015). Health literacy in Europe: comparative results of the European health literacy survey (HLS-EU). European journal of public health, 25(6), 1053-1058. https://doi.org/10.1093/eurpub/ckv043
36. Staunton, P. F., Baker, J. F., Green, J., & Devitt, A. (2015). Online curves: a quality analysis of scoliosis videos on YouTube. Spine, 40(23), 1857-1861. https://doi.org/10.1097/BRS.0000000000001137
37. Sucuoğlu, H. (2017). Demographic and clinical characteristics of patients with cerebral palsy. Istanbul Medical Journal. https://doi.org/10.5152/imj.2018.88310 UK, N. G. A. (2017). Cerebral palsy in under 25s: assessment and management. https://doi.org/10.1002/psb.1573
38. Vos, R. C., Becher, J. G., Ketelaar, M., Smits, D.-W., Voorman, J. M., Tan, S. S., . . . Dallmeijer, A. J. (2013). Developmental trajectories of daily activities in children and adolescents with cerebral palsy. Pediatrics, 132(4), e915-e923. https://doi.org/10.1542/peds.2013-0499
39. Yavuz, M. C., Buyuk, S. K., & Genc, E. (2020). Does YouTube™ offer high quality information? Evaluation of accelerated orthodontics videos. Irish Journal of Medical Science (1971-), 189, 505-509. https://doi.org/10.1007/s11845-019-02119-z