Araştırma Makalesi

PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY

Cilt: 4 Sayı: 1 29 Haziran 2021
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PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY

Öz

This study aims to explore the main problems that individuals with SCI encounter in daily life during the COVID-19 outbreak in Turkey based on their own experiences. A field study in phenomenological research design is planned for this purpose. In this article, in accordance with the themes determined for the research, the experiences of 19 adult individuals with SCI and 4 caregivers living in Istanbul are conveyed. The key findings were evaluated with thematic analysis within the framework of the main problematic of "The main problems that individuals with SCI face in daily life during the COVID-19 pandemic". The main themes of the research are determined as impact COVID-19 on daily life, access to health, rehabilitation and social services, and their participation in social life. When the findings obtained from the research are evaluated, the most significant problems that the participants encountered during the COVID-19 pandemic are found as: 1. Stress, fear, and anxiety about infection and transmission of the virus, 2. Deprivation from proper care and treatment for their secondary health conditions, 3. Economic difficulties caused by unemployment, loss of income and increasing costs, 4. Difficulties because of the interruption of rehabilitation and care services, 5. Changes in daily routine such as eating and sleeping patterns, leisure activities; communicational and psychological problems, 6. Difficulties in following current information about public health. The COVID pandemic has deepened the problems people with SCI that they encounter in social life and about social support, and increased their dependence on someone. Considering that the epidemic continue and can occur again, there is a need for new multidisciplinary studies on the social services and social support models that can be applied in the pandemic for people with SCI and their families.

Anahtar Kelimeler

Teşekkür

We would like to thank TOFD Association staff, individuals with SCI and their families who contributed to the field study of this research. We gratefully commemorate TOFD president Ramzan Baş, who recently passed away due to COVID-19.

Kaynakça

  1. Barclay, L., McDonald, R. and Lentin, P. (2015). Social and Community Participation Following Spinal Cord Injury: A Critical Review. International Journal of Rehabilitation Research, 38 (1), 1-19. doi:10.1097/MRR.0000000000000085.
  2. Barclay, L., McDonald, R., Lentin, P., & Bourke-Taylor, H. (2015). Facilitators and barriers to social and community participation following spinal cord injury. Australian Occupational Therapy Journal, 63(1), 19-28. doi:10.1111/1440-1630.12241
  3. Campbell, V. A., Gilyard, J. A., Sinclair, L., Sternberg, T., & Kailes, J. I. (2009). Preparing for and Responding to Pandemic Influenza: Implications for People With Disabilities. American Journal of Public Health, 99(S2), S294-S300. doi:10.2105/ajph.2009.162677
  4. Creswell, J. W. (2012). Qualitative Inquiry and Research Design: Choosing Among Five Approaches. CA: Sage.
  5. Çelik, H. D. (2006). Omurilik Felçlilerinde Engellilik Durumunun ve Yaşam Kalitesinin Değerlendirilmesi. Yayınlanmamış Uzmanlık Tezi. Şişli Etfal Eğitim ve Araştırma Hastanesi, İstanbul.
  6. Keleher, C. A., Dixon, D. R., Holliman D. & Vodde, R. (2003) Spinal Cord Injury, Journal of Social Work in Disability & Rehabilitation, 2(1), 57-77. DOI: 10.1300/J198v02n01_04
  7. Korupolu R, Stampas A, Gibbons C, Hernandez Jimenez I, Skelton F, Verduzco-Gutierrez M. (2020). COVID-19: Screening and Triage Challenges in People with Disability due to Spinal Cord Injury. Spinal Cord Series Cases, 6(35) https://doi.org/10.1038/s41394-020-0284-7
  8. Matter, B., Feinberg, M., Schomer, K., Harniss, M., Brown, P., & Johnson, K. (2009). Information Needs of People With Spinal Cord Injuries. The Journal of Spinal Cord Medicine, 32(5), 545–554. doi:10.1080/10790268.2009.11754556

Ayrıntılar

Birincil Dil

İngilizce

Konular

Sosyoloji (Diğer)

Bölüm

Araştırma Makalesi

Yayımlanma Tarihi

29 Haziran 2021

Gönderilme Tarihi

16 Mayıs 2021

Kabul Tarihi

4 Haziran 2021

Yayımlandığı Sayı

Yıl 2021 Cilt: 4 Sayı: 1

Kaynak Göster

APA
Urhan, G., Kayın, İ., & Nalbantoğlu, İ. (2021). PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY. Turkish Journal of Applied Social Work, 4(1), 40-56. https://izlik.org/JA64EG24NE
AMA
1.Urhan G, Kayın İ, Nalbantoğlu İ. PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY. Turkish Journal of Applied Social Work. 2021;4(1):40-56. https://izlik.org/JA64EG24NE
Chicago
Urhan, Gülcan, İnci Kayın, ve İsmail Nalbantoğlu. 2021. “PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY”. Turkish Journal of Applied Social Work 4 (1): 40-56. https://izlik.org/JA64EG24NE.
EndNote
Urhan G, Kayın İ, Nalbantoğlu İ (01 Haziran 2021) PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY. Turkish Journal of Applied Social Work 4 1 40–56.
IEEE
[1]G. Urhan, İ. Kayın, ve İ. Nalbantoğlu, “PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY”, Turkish Journal of Applied Social Work, c. 4, sy 1, ss. 40–56, Haz. 2021, [çevrimiçi]. Erişim adresi: https://izlik.org/JA64EG24NE
ISNAD
Urhan, Gülcan - Kayın, İnci - Nalbantoğlu, İsmail. “PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY”. Turkish Journal of Applied Social Work 4/1 (01 Haziran 2021): 40-56. https://izlik.org/JA64EG24NE.
JAMA
1.Urhan G, Kayın İ, Nalbantoğlu İ. PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY. Turkish Journal of Applied Social Work. 2021;4:40–56.
MLA
Urhan, Gülcan, vd. “PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY”. Turkish Journal of Applied Social Work, c. 4, sy 1, Haziran 2021, ss. 40-56, https://izlik.org/JA64EG24NE.
Vancouver
1.Gülcan Urhan, İnci Kayın, İsmail Nalbantoğlu. PHYSICALLY DISABLED ADULTS IN TURKEY DURING THE COVID-19 OUTBREAK: A PHENOMENOLOGICAL RESEARCH ON THE EXPERIENCES OF PEOPLE WITH SPINAL CORD INJURY. Turkish Journal of Applied Social Work [Internet]. 01 Haziran 2021;4(1):40-56. Erişim adresi: https://izlik.org/JA64EG24NE