Alzheimerlı Hastalara Bakım Verenlerin Bakım Yükleri ile Merhamet Düzeyleri Arasındaki İlişki ve Etkileyen Faktörler: Kesitsel ve Tanımlayıcı Bir Çalışma

Yıl 2023, Cilt: 10 Sayı: 3, 96 - 106, 26.09.2023

Meryem Türkan Işık , Meltem Akbaş , Rana Can Özdemir

Öz

Amaç: Araştırma, Alzheimer hastalarına bakım verenlerin bakım yükleri ile merhamet düzeyleri arasındaki ilişkinin ve etkileyen faktörlerin belirlenmesi amacıyla kesitsel olarak yapıldı.
Yöntem: Araştırma Şubat -Mayıs 2018 tarihleri arasında bir ilimizdeki Türkiye Alzheimer Derneği Yaşlı Yaşam Merkezi’nde yapıldı. Araştırmanın evrenini araştırmanın yapıldığı merkeze kayıtlı 58 Alzheimer hastası ve bu hastalara bakım veren bir bakıcı oluşturdu. Veriler, Kişisel Bilgi Formu, Merhamet Ölçeği (MÖ) ve Bakım Verme Yükü Ölçeği (BVYÖ) ile toplandı. Verilerin değerlendirilmesinde ortalama ve standart sapma, medyan [minimum-maksimum], student t testi/Mann Whitney U testi, tek yönlü ANOVA/Kruskal Wallis testi ve Pearson korelasyon analizi kullanıldı. İstatistik karşılaştırmalar p<0,05 anlamlılık düzeyinde değerlendirildi.
Bulgular: Katılımcıların yaş ortalaması 45.53±15.88, hastalara bakım verme süresi ortalaması 3.60±3.19 yıldır. Bakım vericilerin MÖ toplam puan ortalaması 94.60±15.83 ve BVYÖ toplam puan ortalaması 39.14±11.59’dır. Çalışmada BVYÖ ve MÖ alt boyut ve toplam puanları arasında istatistiksel olarak anlamlı bir ilişki saptanmadı (p>0,05).
Katılımcıların öğrenim düzeyi, medeni durum, çocuğa sahip olma, çalışma durumu, akraba olma, yardım alma, korku ve endişe yaşama, sosyal açıdan güçlük yaşama, hastanın temel gereksinimlerini karşılama durumu, hastaya hareket desteği verme durumu, bakımla ilgili bilgiye ihtiyaç duyma durumunun katılımcıların merhamet duygusunu, etkileyen faktör olduğu (p<0.05) belirlendi.
Sonuç: Bakım vericilerin bakım yüklerinin orta düzeyde olmasına rağmen, merhamet düzeylerinin yüksek ve merhamet duygularını etkileyen faktörlerin olduğu belirlendi. Bakım verenlerin bakım yüklerini ve yaşadıkları olumsuz duyguları azaltmaya ve olumlu yönde geliştirmeye yönelik eğitimlerin planlanması önerilir.

Anahtar Kelimeler

Bakım verici, Alzheiimer hastası, Bakım yükü, Merhamet

Destekleyen Kurum

yok

Proje Numarası

yok

Relationship Between Caregiver Burden and Compassion Levels and the Affecting Factors in Caregivers of Patients with Alzheimer’s Disease: A Cross-Sectional Study

Öz

Aim: This cross-sectional study aims to identify the relationship between caregiver burden and compassion levels and the affecting factors in caregivers of patients with Alzheimer's disease.
Methods: The research was carried out in Turkey Alzheimer's Association Elderly Life Center in one of our provinces between February and May 2018. The target population was composed of 58 caregivers of patients with Alzheimer's disease who were registered in the related center. Data were collected through the Socio-demographic Form, the Compassion Scale (CS), and the Caregiver Burden Scale (CBS). Mean and standard deviation, median [minimum-maximum], student t test/Mann Whitney U test, one-way ANOVA/Kruskal Wallis test, and Pearson correlation analysis were used to evaluate the data. Statistical comparisons were evaluated at p<0.05 significance level.
Findings: The average age of the participants was found 45.53±15.88, and the average duration of caregiving was 3.60±3.19 years. The CS total mean score of the caregivers was 94.60±15.83, and their CBS total mean score was 39.14±11.59. No significant relationships were detected between the CBS and CS subscale and total scores (p>0,05). Participants' education level, marital status, having a child, working status, being a relative, getting help, experiencing fear and anxiety, experiencing social difficulties, meeting the basic needs of the patient, providing mobility support to the patient, needing information about care it was determined that there was a factor affecting the sense of compassion (p<0.05).
Conclusion: Although the participants were found to have a moderate-level caregiver burden, their compassion level was high and the compassion towards patients with Alzheimer's disease was affected by some factors. It is recommended to plan trainings to reduce the caregivers' burden of care and the negative emotions they experience and to improve them positively.

Anahtar Kelimeler

Caregiver, patient with Alzheimer, caregiver burden, compassion

Proje Numarası

yok

Kaynakça

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