Social Experiences of Young Adults with Diabetes: A Qualitative Study on Living with Type 1 Diabetes

Yıl 2026, Sayı: 46, 141 - 160, 26.01.2026

Alkan Üstün , Semih Dübüş

https://doi.org/10.64985/tybakademi.1712249

Öz

This study aims to examine the individual and social experiences of individuals with diabetes, beginning from the pre-diagnosis period and extending throughout the course of the illness. Employing a qualitative research methodology, in-depth, face-to-face interviews were conducted with fifteen young participants diagnosed with diabetes. The data collected were analyzed using thematic analysis. The findings reveal that diabetes constitutes a complex experience that transcends its characterization as merely a metabolic disorder, profoundly impacting individuals’ self-perception, social relationships, and daily life practices. Participants' narratives illustrate stages such as the misinterpretation of symptoms prior to diagnosis, difficulties in accepting the illness following diagnosis, and the gradual adaptation to living with the disease. It was identified that young individuals with diabetes interpret obligatory lifestyle changes—such as dietary restrictions and the requirement for regular physical activity—both as a disadvantage and as a "compulsory health opportunity." Moreover, concerns such as fear of isolation and feeling different in social environments emerged as common experiences among participants. The attitude of the social environment appears as a critical factor in diabetes management; a supportive environment facilitates treatment adherence, whereas negative attitudes may lead to social withdrawal and poor treatment compliance. This research underscores that effective diabetes care must address not only the physiological but also the social dimensions of the illness. Furthermore, the study’s findings render visible the broader societal context within which the experience of diabetes is situated.

Anahtar Kelimeler

Diabetes experience , young adults , social relationships , illness adaptation , qualitative research

Etik Beyan

Ethical approval for this study was obtained from the Ethics Committee for Social and Human Sciences of Bartın University on February 18, 2025, with decision number 2025-SBB-0119.

Destekleyen Kurum

This research received no external funding.

Teşekkür

The authors have no acknowledgments to declare.

Genç Diyabetlilerin Sosyal Deneyimleri: Tip 1 Diyabetle Yaşamak Üzerine Nitel Bir Araştırma

Öz

Bu çalışma, diyabetli bireylerin tanı öncesinden başlayarak hastalık sürecindeki bireysel ve sosyal deneyimlerini incelemeyi amaçlamaktadır. Nitel araştırma metodolojisi kullanılarak, 15 diyabetli katılımcı ile yüz yüze derinlemesine mülakatlar gerçekleştirilmiştir. Elde edilen veriler tematik analiz yöntemiyle değerlendirilmiştir. Bulgular, diyabetin sadece metabolik bir hastalık olmaktan öte, bireylerin benlik algısını, sosyal ilişkilerini ve günlük yaşam pratiklerini etkileyen karmaşık bir deneyim olduğunu göstermektedir. Katılımcıların anlatıları, tanı öncesi semptomların yanlış anlaşılması, tanı sonrası hastalığı kabullenememe ve zamanla hastalığa alışma gibi aşamaları ortaya koymaktadır. Diyabetli genç bireylerin beslenme kısıtlamaları ve düzenli fiziksel aktivite gerekliliği gibi zorunlu yaşam tarzı değişikliklerini hem bir dezavantaj hem de "zorunlu sağlık fırsatı" olarak anlamlandırdıkları tespit edilmiştir. Ayrıca, yalnız kalma korkusu ve sosyal ortamlarda farklı hissetme gibi endişeler, katılımcıların ortak deneyimleri arasında yer almaktadır. Sosyal çevrenin tutumu, diyabet yönetiminde kritik bir faktör olarak öne çıkmaktadır; destekleyici bir çevre tedaviye uyumu kolaylaştırırken, olumsuz tutumlar içe kapanma ve tedavi uyumsuzluğuna yol açabilmektedir. Bu araştırma, etkili diyabet bakımının sadece fizyolojik değil, aynı zamanda sosyal boyutları da ele alması gerektiğini vurgulamaktadır. Çalışmanın sonuçları ayrıca diyabet deneyiminin toplumsal bağlamını görünür kılmaktadır.

Anahtar Kelimeler

Diyabet deneyimi , genç yetişkinler , sosyal ilişkiler , hastalığa uyum , nitel araştırma

Etik Beyan

Bartın Üniversitesi Sosyal ve Beşeri Bilimler Etik Kurulu'ndan 18.02.2025 tarih ve 2025-SBB-0119 sayı ile etik kurul onayı alınmıştır.

Destekleyen Kurum

Bulunmuyor.

Teşekkür

Bulunmuyor.

Kaynakça

• Akar, Z., Bebiş, H., & Özdemir, S. (2014). Diyabetli hastaların bazı sosyo-demografik özellikleri ile sağlık inançları arasındaki ilişki. Ege Üniversitesi Hemşirelik Fakültesi Dergisi, 30(3), 32-46.
• Anderson, B., & Laffel, L. (2013). Behavioral and psychosocial research in diabetes. Diabetes Care, 36(1), 54-62.
• Araia, E., Hendrieckx, C., Skinner, T., Pouwer, F., Speight, J., & King, R. M. (2017). Gender differences in disordered eating behaviors and body dissatisfaction among adolescents with type 1 diabetes: Results from diabetes MILES youth—Australia. International Journal of Eating Disorders, 50(10), 1183-1193. https://doi.org/10.1002/eat.22746
• Austin, S., Senécal, C., Guay, F., & Nouwen, A. (2011). Effects of gender, age, and diabetes duration on dietary self-care in adolescents with type 1 diabetes: A self-determination theory perspective. Journal of Health Psychology, 16(6), 917-928. https://doi.org/10.1177/1359105310396392
• Bakan, G., Azak, A., & Özdemir, Ü. (2017). Diyabet ve sosyo-kültürel yaklaşım. Kesit Akademi Dergisi, 12, 180-195.
• Barnard, K., Thomas, S., Royle, P., Noyes, K., & Waugh, N. (2010). Fear of hypoglycaemia in parents of young children with type 1 diabetes: A systematic review. BMC Pediatrics, 10(1), 50. https://doi. org/10.1186/1471-2431-10-50
• Borus, J. S., & Laffel, L. (2010). Adherence challenges in the management of type 1 diabetes in adolescents: Prevention and intervention. Current Opinion in Pediatrics, 22(4), 405-411. https://doi. org/10.1097/MOP.0b013e32833a46a7
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167- 182. https://doi.org/10.1111/1467-9566.ep11339939
• Çapoğlu, İ., Yıldırım, A., Hacıhasanoğlu Aşılar, R., & Çayköylü, A. (2019). Diyabete eşlik eden ruhsal sorunlar ve diyabet yönetimi. Turkish Journal of Family Medicine and Primary Care, 13(1), 67–74.
• Çelik, S., Kelleci, M., Avcı, D., & Temel, E. (2015). Tip 1 diyabetli genç yetişkinlerin hastalığa psikososyal uyumları ve stresle başa çıkma tarzları. Florence Nightingale Hemşirelik Dergisi, 23(2), 105–115.
• Cengiz, E., Xing, D., Wong, J. C., Wolfsdorf, J. I., Haymond, M. W., Rewers, A., Shanmugham, S., Tamborlane, W. V., Willi, S. M., Seiple, D. L., Miller, K. M., DuBose, S. N., & Beck, R. W. (2013). Severe hypoglycemia and diabetic ketoacidosis among youth with type 1 diabetes in the T1D Exchange clinic registry. Pediatric Diabetes, 14(6), 447-454. https://doi.org/10.1111/pedi.12030
• Chapman, P. E., Aas, A.-M., Bjerkan, K., & Garnweidner-Holme, L. (2023). Experiences of follow-up and dietary guidance among young adults diagnosed with type 1 diabetes as children: A qualitative study. Nordic Journal of Nursing Research, 21(3), 2-10.
• Charmaz, K. (1995). The body, identity, and self: Adapting to impairment. The Sociological Quarterly, 36(4), 657-680. https://doi.org/10.1111/j.1533-8525.1995.tb00459.x
• Dağdelen, Z. A. (2012). Aydın merkezde diyabet bilinci: Diyabetle ilgili bilgi düzeyi ve ilişkili faktörler [Master’s thesis, Adnan Menderes Üniversitesi].
• DiMatteo, M. R. (2004). Social support and patient adherence to medical treatment: A meta-analysis. Health Psychology, 23(2), 207-218. https://doi.org/10.1037/0278-6133.23.2.207
• Fisher, L., Hessler, D., Polonsky, W., Strycker, L., Masharani, U., & Peters, A. (2018). Diabetes distress and glycemic control: The buffering effect of autonomy support from important family members and friends. Diabetes Care, 41(6), 1157-1163. https://doi.org/10.2337/dc17-2396
• Fisher, L., Mullan, J. T., Arean, P., Glasgow, R. E., Hessler, D., & Masharani, U. (2008). Diabetes distress but not clinical depression or depressive symptoms is associated with glycemic control in both cross-sectional and longitudinal analyses. Diabetes Care, 31(12), 2485-2490. https://doi. org/10.2337/dc08-1074
• Freeborn, D., Dyches, T., Roper, S. O., & Mandleco, B. (2013). Identifying challenges of living with type 1 diabetes: Child and youth perspectives. Journal of Clinical Nursing, 22(13-14), 1890-1898.
• Gregg, E. W., Li, Y., Wang, J., Burrows, N. R., Ali, M. K., Rolka, D., Williams, D. E., & Geiss, L. (2013). Changes in diabetes-related complications in the United States, 1990–2010. New England Journal of Medicine, 368(16), 1514-1523. https://doi.org/10.1056/NEJMoa1213829
• Güçlü, İ. (2019). Nitel araştırma teknikleri (1st ed.). Nobel Yayınları.
• Oğuzhan, G., Dünder, E., Ökçün, S., & Koçkaya, G. (2020). Sosyoekonomik durumun diyabet ile ilişkisi ve diyabete etkisinin incelenmesi. Türkiye Diyabet ve Obezite Dergisi, 4(2), 71–78.
• Gürbüz, S., & Şahin, F. (2018). Sosyal bilimlerde araştırma yöntemleri (5th ed.). Seçkin Yayıncılık.
• Hanna, K. M., & Decker, C. L. (2010). A concept analysis: Assuming responsibility for self-care among adolescents with type 1 diabetes. Journal for Specialists in Pediatric Nursing, 15(2), 99-110. https:// doi.org/10.1111/j.1744-6155.2009.00218.x
• Helgeson, V. S., Siminerio, L., Escobar, O., & Becker, D. (2011). Predictors of metabolic control among adolescents with diabetes: A 4-year longitudinal study. Journal of Pediatric Psychology, 36(3), 254-270. https://doi.org/10.1093/jpepsy/jsq093
• Holman, R. R., Paul, S. K., Bethel, M. A., Matthews, D. R., & Neil, H. A. W. (2008). 10-year followup of intensive glucose control in type 2 diabetes. New England Journal of Medicine, 359(15), 1577- 1589. https://doi.org/10.1056/NEJMoa0806470
• Hu, M., Li, B., Yang, T., Yang, Y., & Yin, C. (2024). Effect of household income on cardiovascular diseases, cardiovascular biomarkers, and socioeconomic factors. Clinical Therapeutics, 46(3), 239-245. International Diabetes Federation. (2025). IDF Diabetes Atlas (11th ed.). https://diabetesatlas.org
• Knip, M., Veijola, R., Virtanen, S. M., Hyöty, H., Vaarala, O., & Åkerblom, H. K. (2005). Environmental triggers and determinants of type 1 diabetes. Diabetes, 54(suppl 2), S125-S136. https://doi. org/10.2337/diabetes.54.suppl_2.S125
• Knowler, W. C., Fowler, S. E., Hamman, R. F., Christophi, C. A., Hoffman, H. J., Brenneman, A. T., Brown-Friday, J. O., Goldberg, R., Venditti, E., & Nathan, D. M. (2009). 10-year follow-up of diabetes incidence and weight loss in the Diabetes Prevention Program Outcomes Study. The Lancet, 374(9702), 1677-1686. https://doi.org/10.1016/S0140-6736(09)61457-4
• Marmot, M. (2017). The Health Gap: The Challenge of an Unequal World. Bloomsbury Publishing.
• Nathan, D. M., Davidson, M. B., DeFronzo, R. A., Heine, R. J., Henry, R. R., Pratley, R., & Zinman, B. (2012). Impaired fasting glucose and impaired glucose tolerance: Implications for care. Diabetes Care, 35(2), 364-379. https://doi.org/10.2337/dc11-1157
• Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1-13.
• Peter, M. E., Rioles, N., Liu, J., Chapman, K., Wolf, W. A., Nguyen, H., Basina, M., Akturk, H. K., Ebekozien, O., Perez-Nieves, M., Poon, J. L., & Mitchell, B. (2023). Prevalence of fear of hypoglycemia in adults with type 1 diabetes using a newly developed screener and clinician’s perspective on its implementation. BMJ Open Diabetes Research & Care, 11(4), e003394.
• Peyrot, M., & Rubin, R. R. (2007). Behavioral and psychosocial interventions in diabetes: A conceptual review. Diabetes Care, 30(10), 2433-2440. https://doi.org/10.2337/dc07-1222
• Polonsky, W. H., Fisher, L., & Hessler, D. (2015). What is so tough about self-monitoring of blood glucose? Perceived obstacles among patients with type 2 diabetes. Diabetic Medicine, 32(1), 61-66. https://doi.org/10.1111/dme.12583
• Rees, C. A., Karter, A. J., & Young, B. A. (2010). Race/ethnicity, social support, and associations with diabetes self-care and clinical outcomes in NHANES. The Diabetes Educator, 36(3), 435-445. https://doi.org/10.1177/0145721710364419
• Sağlam, H. (2004). Diyabet ve enfeksiyonlar. Güncel Pediatri. 2(1), 44–52.
• Schmitt, A., Reimer, A., Kulzer, B., Haak, T., Gahr, A., & Hermanns, N. (2014). Assessment of diabetes acceptance can help identify patients with ineffective diabetes self-care and poor diabetes control. Diabetic Medicine, 31(11), 1446-1451. https://doi.org/10.1111/dme.12553
• Scholes, C., Mandleco, B., Roper, S., Dearing, K., Dyches, T., & Freeborn, D. (2013). A qualitative study of young people’s perspectives of living with type 1 diabetes: Do perceptions vary by levels of metabolic control? Journal of Advanced Nursing, 69(6), 1235-1247. https://doi.org/10.1111/ j.1365-2648.2012.06111.x
• Şentürk, S., Bıçak, D., & Akça, D. (2018). Diyabet ve seyahat. Arşiv Kaynak Tarama Dergisi, 27(4), 426-439.
• Sosenko, J. M., Palmer, J. P., Greenbaum, C. J., Mahon, J., Cowie, C., Krischer, J. P., Chase, H. P., White, N. H., Buckingham, B., Herold, K. C., Cuthbertson, D., & Skyler, J. S. (2008). Patterns of metabolic progression to type 1 diabetes in the Diabetes Prevention Trial-Type 1. Diabetes Care, 31(9), 1966-1971. https://doi.org/10.2337/dc08-0280
• Strauss, A., & Glaser, B. (1975). Chronic illness and the quality of life. Mosby. Taşkın, M. Y. (2006). Diyabet hastalarının tedaviye uyumunu etkileyen faktörler [Master’s thesis, Marmara Üniversitesi].
• Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38(11), 1161-1173. https://doi.org/10.1037/0003-066X.38.11.1161
• Trief, P. M., Sandberg, J. G., Dimmock, J. A., Forken, P. J., & Weinstock, R. S. (2013). Personal and relationship challenges of adults with type 1 diabetes: A qualitative focus group study. Diabetes Care, 36(9), 2483-2488. https://doi.org/10.2337/dc12-1718
• Tuomilehto, J., Lindström, J., Eriksson, J. G., Valle, T. T., Hämäläinen, H., Ilanne-Parikka, P., Keinänen- Kiukaanniemi, S., Laakso, M., Louheranta, A., Rastas, M., Salminen, V., & Uusitupa, M. (2001). Prevention of type 2 diabetes mellitus by changes in lifestyle among subjects with impaired glucose tolerance. New England Journal of Medicine, 344(18), 1343-1350. https://doi.org/10.1056/ NEJM200105033441801
• Tuomilehto, J., Schwarz, P., & Lindström, J. (2011). Long-term benefits from lifestyle interventions for type 2 diabetes prevention: Time to expand the efforts. Diabetes Care, 34(Supplement 2), S210- S214. https://doi.org/10.2337/dc11-s222
• Wild, D., von Maltzahn, R., Brohan, E., Christensen, T., Clauson, P., & Gonder-Frederick, L. (2007). A critical review of the literature on fear of hypoglycemia in diabetes: Implications for diabetes management and patient education. Patient Education and Counseling, 68(1), 10-15. https://doi. org/10.1016/j.pec.2007.05.003
• Wolfe, B. H., Watson, O., & Hintz, E. A. (2025). Anticipating, experiencing, and responding to disenfranchising talk: The experiences of people with type 1 diabetes. Social Science & Medicine, 377, 118099.
• World Health Organization. (2024). Diabetes. https://www.who.int/news-room/fact-sheets/detail/diabetes Young-Hyman, D., & Davis, C. L. (2010). Disordered eating behavior in individuals with diabetes: Importance of context, evaluation, and classification. Diabetes Care, 33(3), 683-689. https://doi. org/10.2337/dc08-1077