Kanser Hastalarına Bakım Verenlerin Sosyal Destek Düzeyleri ve Yaşam Kalitesi

Öz

Amaç: Bu çalışmanın amacı Akdeniz Üniversitesi Hastanesi Kemoterapi Ünitesi’nde tedavi gören kanser hastalarına bakım verenlerin algılanan sosyal destek düzeyleri ve yaşam kalitelerini belirlemektir. Gereç ve Yöntemler: Araştırma verileri Mart-Temmuz 2016 tarihleri arasında Akdeniz Üniversitesi Hastanesi Tıbbi Onkoloji bölümünde tedavi gören kanser hastalarına bakım veren 235 hasta yakınının çalışmaya katılmasıyla toplanmıştır. Veri toplama aracı olarak; sosyo-demografik özellikler için hasta ve bakım veren tanıtım formu, hasta semptomlarını belirlemek için Edmonton Semptom Tanılama Ölçeği, bakım verenler için Çok Boyutlu Algılanan Sosyal Destek Ölçeği ve Kanserli Hastalara Bakım Verenlerde Yaşam Kalitesi Ölçeği kullanılmıştır. Bulgular: Çalışma kapsamına alınan bakım verenlerin orta düzeyde sosyal desteğe sahip oldukları ve en büyük destekçilerinin aileleri olduğu belirlenmiştir. Erkek bakım verenlerin yaşam kalitesinin kadın bakım verenlerden daha iyi olduğu ve aralarındaki farkın istatistiksel olarak anlamlı olduğu görülmüştür. Ayrıca, ekonomik düzey azaldıkça bakım verenlerin yaşam kalitesinin de benzer bir şekilde azaldığı saptanmıştır. Sonuç: Kronik ve uzun süreli tedavi gerektiren kanser hastalığı yalnızca hastaları değil, bakım verenleri de etkilemektedir ve bakım verenlerin de güçlendirilmeye ihtiyacı vardır. Bu nedenle bütüncül bakımın gereği olarak kanser hastalarına bakım verenlerin yaşam kalitelerini artırmaya yönelik girişimlerin yapılması gerekmektedir

Anahtar Kelimeler

• Bakım verenler, Kanser, Sosyal destek, Yaşam kalitesi

Level of Social Support and Quality of Life of Caregivers of Cancer Patients

Abstract

Objective: The aim of this study was to determine the perceived social support levels and quality of life of caregivers of cancer patients who were treated at the Akdeniz University Chemotherapy Unit.Material and Methods: The study data was collected from 235 patients’ caregivers who were diagnosed with cancer at the Akdeniz University Chemotherapy Unit between March and July of 2016. As a data collection tool, the patient and caregiver personal information form was used for socio-demographic features and the Edmonton Symptom Scale for determining patients’ symptoms, while the Multidimensional Perceived Social Support Scale and the Caregiver Quality of Life Index Cancer Scale were used for caregivers. Results: Caregivers included in the study were found to have a moderate level social support and the families were the most important supporter of caregivers. The quality of life of male caregivers was better than that of female caregivers and the difference was statistically significant. Moreover, it was found that the quality of life of caregivers decreased as the economic level decreased. Conclusion: Cancer is a chronic disorder and the required long-term treatment affects not only the patients’ life, but also the caregivers’. Because of holistic care approach, it is necessary to develop new interventions to increase the quality of life of cancer patients caregivers

Keywords

• Caregivers, Cancer, Social support, Quality of life

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