BEHÇET HASTALARININ YAŞAM KALİTESİ VE SEMPTOMLARLA BAŞETMEDE KULLANDIKLARI TAMAMLAYICI VE İNTEGRATİF SAĞLIK YAKLAŞIMLARI

Öz

Amaç: Bu çalışma, Behçet Hastalığı (BH) olan bireylerde, sık görülen semptomların yaşam kalitesi üzerine etkilerini değerlendirmek ve hastaların bu semptomlarla baş etmek için kullandıkları tamamlayıcı ve integratif sağlık yaklaşımlarını belirlemek amacıyla yapılmıştır. Yöntem: Tanımlayıcı olarak yapılan bu araştırmanın evrenini Behçet ve Ailevi Akdeniz Ateşi Hastaları Derneği’ne kayıtlı, Behçet Hastalığı olan tüm hastalar oluşturmuştur (n:330). Veriler, 30.08.2020- 06.12.2020 tarihleri arasında araştırmacı ve dernek başkanı tarafından online form ile toplanmıştır. Örneklem kriterlerini karşılayan tüm Behçetli hastalar, araştırmanın örneklemini oluşturdu. Veriler Hasta Bilgi Formu, BH Güncel Aktivite Formu (BDCAF) ve Behçet Hastalığı Yaşam Kalitesi Ölçeği (BDQoL) kullanılarak toplanmıştır. Bulgular: Eklem tutulumu, rektal kanama, göz tutulumu, atak sayısı ve hastalık aktivitesi, yaşam kalitesini %42.5 oranında etkileyen faktörlerdir (R2=0.425, p<0.001). BH olan hastaların %37,5'i son 1 yıldır tamamlayıcı ve integratif sağlık yaklaşımlarını kullanmaktadır. Tamamlayıcı ve integratif sağlık yaklaşımlarında ağız yaraları için; karadut pekmezi (%32), kişniş (%9.3) ve kekik suyu gargarası (%4), genital yaralar için; yaş hacamat (%24) ve sarı kantaron yağı (%19) kullanılıyor. Sonuç: BH olanlarda tamamlayıcı ve integratif sağlık yaklaşımları kullanımında belirleyici faktör, kolda his kaybı ya da genital yara olmasıydı. Bu nedenle, bu çalışmanın sonucu, BH olan hastalarda semptomlar için kullanılan tamamlayıcı ve integratif sağlık yaklaşımlarının belirlenmesinde daha ileri deneysel çalışmalara yol göstermesi açısından önemlidir.

Anahtar Kelimeler

• Behçet Hastalığı
• semptom
• tamamlayıcı ve integrative sağlık yaklaşımları
• yaşam kalitesi

The Use of Complementary and Integrative Health Approaches in Patients with Behcet Disease and Its Relationship with Quality of Life

Abstract

Aim: This study aims to determine the effect of common symptoms on Quality of Life (QoL) in patients with Behcet Disease (BD) and complementary and integrative health approaches used by patients to cope with these symptoms. Methods: The population of this descriptive study consisted of all patients with BD (n = 330) who are registered with the Behçet’s Disease and Familial Mediterranean Fever Patients Association. The data were collected by the researcher and the president of the association, via an online form between 31.08.2020-06.12.2020. The sample consisted of all patients with BD who met the inclusion criteria (n=247). The data were collected using the Patient Information Form, BD Current Activity Form (BDCAF) and Behçet's Disease Quality of Life Scale (BDQoL). Findings: Joint involvement, rectal bleeding, eye involvement, number of attacks, and disease activity are determinants of 42.5% in affecting QoL (R2 = 0.425, p <0.001). 37.5% of patients with BD have been using CIHA for the last 1 year. They use black mulberry molasses (32%), coriander (9.3%), and thyme juice mouthwash (4%) for mouth sores, wet cupping (24%), and St. John’s wort oil (19%) for genital wounds among CIHA methods. Conclusion: The decisive factor in the use of CIHA in patients with BD was to have genital wounds or loss of sensation in the arm. Therefore, the results of this study are important in terms of leading to further experimental studies to determine the CIHA to be used for symptoms in patients with BD.

Keywords

• Behçet’s Disease
• symptom
• Complementary and Integrative Health Approaches
• quality of life

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