Assessment of Factors Related to Caregiver Burden, Musculoskeletal Problems, Quality of Life and Anxiety in Caregivers of Children with Cerebral Palsy

Abstract

Purpose: To investigate factors associated with caregiver burden, musculoskeletal problems (MSPs), quality of life (QoL), and caregivers’ anxiety levels of children with cerebral palsy (CCP). Material and Methods: Age, gender, body mass index (BMI), and presence of cognitive problems were evaluated in 70 CCP. Gross Motor Function Measure-88, Gross Motor Function Classification System, The Manual Ability Classification System, Communication Function Classification System, Sleep Disturbance Scale for Children, Faces Pain Scale-Revised, Functional Independence Measure for Children (WeeFIM) were applied. Family factors were recorded as siblings’ number, income status, and residence. Caregiver burden, MSPs, anxiety, and QoL of the caregivers were measured by Zarit Caregiver Burden Scale, Örebro Musculoskeletal Screening Questionnaire-12-TR, Beck Anxiety Inventory (BAI), and EuroQOL-EQ5D5L, respectively. Results: Caregivers’ MSPs were moderately associated with CCP’s cognitive impairments (r=0,461), WeeFIM (r=-0,304), and caregivers’ BMI (r=0,380) (p<0.05). The EuroQOL-EQ5D5L index was weakly correlated with the gender (r=-0.273) and cognitive problems (r=-0.270) of the CCP; the EuroQOL-EQ5D5L VAS was moderately correlated with the caregivers’ BMI (r=-0.337) (p<0.01). The caregivers' BAI score had a weak relationship with CCP’s cognitive impairments (r=0,249) and pain severity (r=0,244) (p<0.05). Conclusion: Improving caregivers' MSPs, enhancing quality of life, and reducing anxiety levels, attention should be focused on relevant factors.

Keywords

• Cerebral palsy
• caregiver burden
• musculoskeletal diseases
• quality of life
• anxiety

Serebral Palsili Çocuklara Bakım Verenlerin Bakım Yükü, Kas İskelet Sistemi Problemleri, Yaşam Kalitesi ve Anksiyetesiyle İlişkili Faktörlerin Değerlendirilmesi

Abstract

Amaç: Serebral palsili çocuklara (SPÇ) bakım verenlerin bakım yükü, kas iskelet sistemi problemleri (KİSP), yaşam kalitesi ve anksiyete düzeyleriyle ilişkili faktörleri incelemektir. Gereç ve Yöntem: Çalışmada 70 SPÇ’nin yaşı, cinsiyet ve vücut kitle indeksi (VKİ) ve kognitif problemin varlığı değerlendirildi. Kaba Motor Fonksiyon Ölçütü-88, Kaba Motor Fonksiyon Sınıflandırma Sistemi, El Becerileri Sınıflandırma Sistemi, İletişim Fonksiyon Sınıflandırma Sistemi, Çocuklar İçin Uyku Bozuklukları Ölçeği, Revize Yüz Ağrı Skalası, Çocuklar için Fonksiyonel Bağımsızlık Ölçeği (ÇFBÖ) uygulandı. Aileye ait faktörler kardeş sayısı, gelir durumu ve yaşanılan yer olarak kaydedildi. Bakım verenlerin bakım yükleri, KİSP, anksiyete ve yaşam kalitesi sırasıyla Zarit Bakım Yükü Ölçeği, Örebro Kas İskelet Sistemi Tarama Anket-12-TR, Beck Anksiyete Envanteri (BAE) ve EuroQOL-EQ5D5L ile ölçüldü. Sonuçlar: Bakım verenlerin KİSP ile SPÇ’nin kognitif problemi (r=0,461), ÇFBÖ (r=-0,304) ve bakım verenin VKİ’si (r=0,380) orta düzeyde ilişkiliydi (p<0,05). EuroQOL-EQ5D5L indeks puanı ile SPÇ’nin cinsiyeti (r=-0,273) ve kognitif problemi (r=-0,270) zayıf ilişkiliyken; EuroQOL-EQ5D5L VAS puanı ile bakım verenin VKİ’si (r=-0,337) orta düzeyde ilişkiliydi (p<0,01). Bakım verenin BAE puanı ile SPÇ’nin kognitif problemi (r=0,249) ve ağrı şiddeti (r=0,244) arasında zayıf bir ilişki vardı (p<0,05). Tartışma: Bakım verenlerin KİSP’sini iyileştirmek, yaşam kalitesini artırmak ve anksiyete düzeyini azaltmak için ilişkili faktörlere odaklanılmalıdır.

Keywords

• Serebral palsi
• bakıcı yükü
• kas-iskelet hastalıkları
• yaşam kalitesi
• anksiyete

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