Family Burden and Self-Care Skills of Children with Intellectual Disability, Life Satisfaction of Their Mothers and The Effective Factors

Year 2022, Volume: 8 Issue: 2, 18 - 35, 06.07.2022

Özlem Akarsu , Melahat Akgün Kostak

Abstract

Abstract

Aim: This study was conducted in order to determine family burden and self-care skills of the children with intellectual disability, life satisfaction of their mothers, and the effective factors.
Methods: This descriptive, cross‐sectional study was conducted with the participation of 280 mothers. The data were collected by using “Data collection form”, “Family Burden Assessment Scale”, “Satisfaction of Life Scale”, and “Self-care Skills Check List”.
Results: The correlation results showed that as the children’ self-care skills increased, their mothers perception of family burden decreased (p<0.001) and their life satisfaction (p=0.004) increased. There was also a negative correlaton between mothers’ perception of family burden and their life satisfaction (p<0.001).
Conclusion: In this study, it was determined that mothers of children with intellectual disability had high family burden. In decreasing family burden, it is important for families, whose children were diagnosed with intellectual disabled, to receive education in the fields of disability, care and treatment of the child.
Key words: Family burden, Intellectual disability, Life satisfaction, Nursing, Self-care.

Keywords

Family burden, Intellectual disability, Life satisfaction, Nursing, Self-care.

Supporting Institution

Scientific Research Project Unit of Trakya University

Project Number

Project No: 2012-36

Thanks

I would like to extend my thanks to Scientific Research Project Unit of Trakya University for their support to our Project, and the mothers who helped to the data collection process by transferring important experiences in their lives.

Zihinsel Yetersiz Çocukların Aile Yükü, Özbakım Becerileri, Annelerinin Yaşam Doyumu ve Etkileyen Faktörler

Abstract

Özet
Amaç: Bu araştırma, zihinsel yetersiz çocukların aile yükü, öz bakım becerileri, annelerinin yaşam doyumu ve etkileyen faktörleri belirlemek amacıyla gerçekleştirildi.
Yöntem: Tanımlayıcı, kesitsel tipteki bu çalışma 280 anne ile gerçekleştirildi. Veriler, “Veri toplama formu”, “Aile Yükü Değerlendirme Ölçeği”, “Yaşam Doyumu Ölçeği”, “Öz bakım Becerileri Kontrol Listesi” kullanılarak toplandı.
Bulgular: Korelasyon sonuçları, çocukların öz bakım becerileri arttıkça annelerinin aile yükü algısının azaldığını (p<0.001) ve yaşam doyumlarının arttığını (p=0.004) göstermiştir. Annelerin aile yükü algıları ile yaşam doyumları arasında da negatif bir ilişki vardı (p<0.001).
Sonuç: Bu çalışmada zihinsel yetersizliği olan çocuğa sahip annelerin aile yükünün yüksek olduğu belirlenmiştir. Aile yükünün azaltılmasında çocuklarına zihinsel engelli tanısı konan ailelerin engellilik, çocuğun bakımı ve tedavisi konularında eğitim almaları önemlidir.
Anahtar kelimeler: Aile yükü, Zihinsel yetersizlik, Yaşam doyumu, Hemşirelik, Öz bakım.

Keywords

Aile yükü, Zihinsel yetersizlik, Yaşam doyumu, Hemşirelik, Özbakım

Project Number

Project No: 2012-36

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