Evaluation of caregiver burdens of caregivers to individuals with chronic heart failure

Abstract

Aim: In this study we aimed to determine the burden of caregiving and the factors affecting the burden of caregiving among caregivers of patients with chronic heart failure (HF). Methods: In this prospective study, the Zarit Care Burden Scale (ZCBS) was applied face-to-face to caregivers of 178 heart failure patients. On the scale scoring, 0-20 points indicate "no care burden", 21-40 points indicate "light care burden", 41-60 points indicate "moderate care burden" and 61-88 points indicate "heavy care burden". Results: The burden of caregivers over 65 years of age with HF was higher (p<0.01). Caregivers with a heavy burden of care were those who had a bad economic situation, did not receive support from family members, had other caregivers, and had a high number of children (p<0.001). There was no significant relationship between the caregiver's age, occupation, education level, place of residence, proximity and CBS (p>0.05). Depression was the most common psychiatric problem in both heart failure patients and caregivers.

Keywords

• heart failure
• caregiving
• depression

Kronik kalp yetmezliği olan bireylere bakım verenlerin bakım verme yüklerinin değerlendirilmesi

Abstract

Amaç: Bu çalışmada kronik kalp yetmezliği (KY) olan hastalara bakım verenlerin bakım verme yükünü ve bakım verme yükünü etkileyen faktörleri belirlemeyi amaçladık. Gereç ve Yöntem: Bu prospektif çalışmada 178 kalp yetmezlikli hastaya bakım verenlere zarit bakım yükü skalası (BYÖ) yüzyüze uygulandı. Ölçek puanlamasında 0-20 puan “bakım yükü yok”, 21-40 puan “hafif bakım yükü”, 41-60 puan “orta bakım yükü” ve 61-88 puan “ağır bakım yükü” anlamına gelmektedir. Bulgular: 65 yaşın üzerindeki kalp yetmezlikli kişilere bakım verenlerin yükü daha fazlaydı (p<0.01). Bakım yükü ağır olan kişiler ekonomik durumu kötü, aile bireylerinden destek almayan, başka baktığı kişi olan ve fazla çocuk sayısın sahip olan kişilerdi (p<0,001). Bakım verenin yaş, meslek, eğitim durumu, yaşadığı yer, yakınlık durumu ile BYÖ arasında anlamlı bir ilişki tespit edilmedi (p>0,05). Hem KY’li hastalarda hem bakım vericilerde ortaya çıkan en sık psikiyatrik problem depresyondu. Sonuç: Kronik KY’li hastalara ve onlara bakım verenlere özellikle ailevi, psikolojik ve ekonomik yönden destek sağlanmalıdır. KY’li kişilerin yaşam standartları iyileştikçe bakım verenlerin yükü de azalmaktadır.

Keywords

• kalp yetmezliği
• bakım verme
• depresyon

References

1. 1. Kılıçkesmez KO, Ökçün B, Küçükoğlu S. Definition and Pathophysiology of Heart Failure. In: Kozan Ö, Zoghi M. Editors. Chronic Heart Failure A to Z. Ankara: Güneş Medical Bookstores; 2010:25-38.
2. 2. Akay B, Akyol AD. Investigation Of The Effect Of Tele Monitoring On The Self Care Agency In Patients With Chronic Heart Failure. Turk Soc Cardiol Turkish Journal of Cardiovascular Nursing 2014; 5(8):75-88.
3. 3. Molloy GJ, Johnston DW, Witham MD. Family caregiving and congestive heart failure. review and analysis. The European Journal of Heart Failure 2005;7:592-603.
4. 4. Özer S. Faiıly/Caregiver Burden In Heart Failure. Turk Soc Cardiol Turkish Journal of Cardiovascular Nursing 2010; 1: 3-7.
5. 5. Atagün MI, Balaban OD, Atagün Z, Elagoz M, Ozpolat AY. Caregiver Burden in Chronic Diseases. Current Approaches in Psychiatry 2011; 3(3):513-552.
6. 6. Küçükgözlü Ö, Esen A, Yener G. The reliability and validity of the caregiver burden ınventory in Turkey. J Neurol Sci 2009;8039(1):15–24.
7. 7. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649-55.
8. 8. İnci F, Erdem M. Validity And Reliability Of The Turkish Version Of The Burden Interview. Journal of Anatolia Nurs Health Sci. 2008;11:85-95.

9. 9. İnci F. Validity And Reliability Of The Turkish Version Of The Burden Interview. (Master's Thesis). Pamukkale University Health Sciences Institute, Denizli.
10. 10. Karabulutlu EY, Akyıl R, Karaman S, Karaca M. Investigation of sleep quality and psychological problems in cancer caregivers. Turkish Journal of Oncology. 2013;28(1):1-9.
11. 11. Bakas T, Pressler SJ, Johnson EA, Nauser JA, Shaneyfelt T. Family caregiving in heart failure. Nursing Research 2006;55(3):180-188.
12. 12. Tanrıverdi O, Yavuzsen T, Turhal S, Kılıç D, Yalçın S, Ozkan A, et al. Depression and socio-economical burden are more common in primary caregivers of patients who are not aware of their cancer: TURQUOISE Study by the Palliative Care Working Committee of the Turkish Oncology Group (TOG). Eur J Cancer Care. 2016; 25: 502–515.
13. 13. Şahin AZ, Polat H, Ergüney S. Determine Burden Care for Caregivers of Cancer Patients Receiving Chemotherapy. Journal of Atatürk University School of Nursing, 2009; 12: 1-8.
14. 14. Yüksel G, Varlıbaş F, Karlıkaya G, Şıpka Y. Caregiver burden in Parkinson's disease. Journal of Parkinson's Disease and Movement Disorders 2007;10:27–8
15. 15. Tel H, Demirkol D, Kara S, Aydın D. Care Burden and Quality of Life Among the Caregivers of Patients with COPD. Turkish Thoracic Journal 2012, 13: 87-92.
16. 16. Tülüce D. Investigation Caregiving Burden Of Patients With Heart Failure Caregivers. Institute of Health Sciences, Department of Nursing. Master Thesis, Gaziantep: Gaziantep University, 2012.
17. 17. Işık K. The Relationship between Life Satisfaction and Care Burden of Home Caregivers of Elderly Patients and Affecting Factors. Institute of Health Sciences, Department of Nursing. Master Thesis, Malatya: İnönü University, 2013.
18. 18. Yazıcı E, Karabulut U, Mustafa Y, Baskan Tekes S, Inan E, Cakir U, et al. Burden on Caregivers of Patients with Schizophrenia and Related Factors. Noro Psikiyatr Ars 2016;53(2):96–101.
19. 19. Iconomou G, Vagenakis AG, Kalofonos HP. The informational needs, satisfaction with communication, and psychological status of primary caregivers of cancer patients receiving chemotherapy. Support Care Cancer 2001;9:591–6.
20. 20. Özdemir KF, Şahin AZ, Küçük D. Determination of burden cares for mothers having children with cancer. Journal of Yeni medicine 2009;26:153–6.
21. 21. Çıtlık Sarıtaş S, Bayır K, Sarıtaş S, Ucuzal M. Caregivers of patients undergoing liver transplantation determination the burden of care. Yıldırım Beyazıt University Journal of Nursing 2014;2:17–25.
22. 22. Jackson JD, Cotton SE, Bruce Wirta S, et al. Burden of heart failure on caregivers in China: results from a cross-sectional survey. Drug Des Devel Ther. 2018;12:1669-1678. Published 2018 Jun 8. doi:10.2147/DDDT.S148970
23. 23. Molloy GJ, Johnston DW, Witham MD. Family caregiving and congestive heart failure. Review and analysis. The European Journal of Heart Failure 2005, 7: 592– 603.
24. 24. Zincir S, Sünbül M, Zincir S, Sünbül EA, Oguz M, Cengiz FF, et al. Burden and depressive symptoms associated with Adult-Child Caregiving for individuals with heart failure. The Scientific World Journal 2014, 2014: 1-6.
25. 25. Scott LD. Caregiving and care receiving among a technologically dependent heart failure population. Advances in Nursing Science 2000, 23: 82-97.
26. 26. Hooley PJD, Butler G, Howlett JG. The relationship of quality of life, depression, and caregiver burden in outpatients with congestive heart failure. Congestive Heart Failure 2005, 11: 303-10
27. 27. Murberg TA, Bru E. Social relationships and mortality in patients with congestive heart failure. Journal of Psychosomatic Research 2001, 51: 521– 7.
28. 28. Luttik ML, Jaarsma T, Tijssen JG, Veldhuisen DJV, Sanderman R. The objective burden in partners of heart failure patients; development and initial validation of the Dutch objective burden inventory. European Journal of Cardiovascular Nursing 2008;7(1):3-9.
29. 29. Türkçapar H. Diagnostic Relationships of Anxiety Disorder and Depression. J Clin Psy 2004; 7(4): 12-16