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Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi

Year 2021, Volume: 8 Issue: 3, 215 - 219, 28.12.2021
https://doi.org/10.47572/muskutd.1001545

Abstract

Alzheimer Hastalığı (AH) belirli bir nöropatolojiye dayanan ve başlangıcı olan, zaman içerisinde yaşlanmayla birlikte kognitif ve işlevsel kayıp ile seyreden bir hastalığı ifade eder. Demansın en yaygın nedeni olan Alzheimer hastalığı, bireyler ve toplum için büyük etkileri olan, büyüyen bir küresel sağlık sorunudur. Araştırmalar özellikle YouTube ve benzeri kanalların insanların sağlık ilişkili bilgi alışverişinde önemli bir yeri olduğunu göstermektedir. Araştırma için YouTube sayfasında arama çubuğuna Türkçe videolar için “Alzheimer Hastalığı” ve İngilizce videolar için “Alzheimer’s Disease” yazıldı. Türkçe ve İngilizce olarak yayınlanan toplam 120 video iki araştırmacı tarafından izlendi ve değerlendirildi. Videonun yüklenme tarihi, süresi, görüntülenme sayısı, beğenme ve beğenmeme sayısı, videoyu yükleyen, yorum sayısı kaydedildi. Videonun kalitesi ve içeriği Video Power Index (VPI), modifiye DISCERN ölçeği ve Global Quality Scale (GQS) ölçeği kullanılarak değerlendirildi. Videoların kalitesini karşılaştırdığımız ölçeklerde VPI (p<0.001), GQS (p<0.001) ve modifiye DISCERN ölçeği (p<0.001) puanlarının İngilizce yayınlanan videolarda Türkçe yayınlanan videolara göre anlamlı derecede yüksek olduğu tespit edildi. Videoları yayınlayan kaynakları kendi aralarında karşılaştırdığımızda GQS (p=0.008) ve Modifiye DISCERN (p=0.023) puanlarında anlamlı fark olduğunu tespit ettik. Alzheimer Hastalığı ile ilgili olarak hazırlanan ve internet ortamında halka açık olarak Türkçe yayınlanan bilgilendirici videoların konusunda uzman hekimlerin yanı sıra akademik kurumlar tarafından toplumun beklentisini karşılayan, özellikle hasta ve yakınlarının tecrübelerini içerecek şekilde hazırlanmasının daha faydalı olacağını düşünmekteyiz.

References

  • 1. Lopez JS, González HM, Léger GC. Alzheimer's disease. In: Aminoff MJ, Boller F, Swaab DF. Handbook of Clinical Neurology. Chapter 13;2019;167:231-255. Amsterdam: Elsevier.
  • 2. Lane CA, Hardy J, Schott JM. Alzheimer's disease. Eur J Neurol. 2018;25(1):59-70.
  • 3. Alzheimer's Association. 2017 Alzheimer's disease facts and figures. Alzheimers Dement. 2017;13(4):325-73.
  • 4. Kang S, Lee YH, Lee JE. Metabolism-centric overview of the pathogenesis of Alzheimer's disease. Yonsei Med J. 2017;58(3):479–88.
  • 5. Mucke L. Neuroscience: Alzheimer's disease. Nature. 2009;461:895–97.
  • 6. Mayeux R, Stern Y. Epidemiology of Alzheimer Disease. Cold Spring Harb Perspect Med. 2012;2: a006239.
  • 7. Silva MVF, Loures CMG, Alves LCV, et al. Alzheimer’s disease: risk factors and potentially protective measures. J Biomed Sci. 2019;26(1):33.
  • 8. Baumgart M, Snyder HM, Carrillo MC, et al. Summary of the evidence on modifiable risk factors for cognitive decline and dementia: a population-based perspective. Alzheimers Dement. 2015;11(6):718-26.
  • 9. Institute of Medicine. Cognitive aging: progress in understanding and opportunity for action. Washington, DC: The National Academic Press; 2015.
  • 10. Fox S, Purcell K. Chronic disease and the internet. Pew Internet & American Life Project, Washington, DC, March 2010.
  • 11. Singh AG, Singh S, Singh PP. YouTube for information on rheumatoid arthritis—a wakeup call? J Rheumatol. 2012;39(5):899–903.
  • 12. Van den Eynde J, Crauwels A, Demaerel PG, ve ark. YouTube Videos as a Source of Information About Immunology for Medical Students: Cross-Sectional Study. JMIR Med Educ. 2019;5(1):e12605.
  • 13. Bernard A, Langille M, Hughes S, et al. A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. Am J Gastroenterol. 2007;102:2070-7.
  • 14. Health Research Authority. http://www.hra-decisiontools.org.uk/research/ Accessed August 21, 2018.
  • 15. Koçyiğit BF, Akaltun MS, Şahin AR. YouTube as a source of information on COVID-19 and rheumatic disease link. Clin Rheumatol. 2020:1–6.
  • 16. Nason GJ, Kelly P, Kelly ME, ve ark. YouTube as an educational tool regarding male urethral catheterization. Scand J Urol. 2014;49(2):189–92.
  • 17. Azer SA. Are DISCERN and JAMA Suitable Instruments for Assessing YouTube Videos on Thyroid Cancer? Methodological Concerns. J Cancer Edu. 2020;35:1267–77.
  • 18. Şahin A, Şahin M, Türkcü FM. YouTube as a source of information in retinopathy of prematurity. Ir J Med Sci. 2019;188(2):613-17.
  • 19. Fox S. Online health search 2006. Pew Internet and American Life Project. [Internet. Accessed January 26, 2012.] Available from: http://www.pewinternet.org/Reports/2006/Online-Health-Search-2006.aspx.
  • 20. Tang W, Olscamp K, Ki Choi S, et al. Alzheimer’s Disease in Social Media: Content Analysis of YouTube Videos . Interact J Med Res. 2017;6(2):e19.
  • 21. Nestor PJ, Scheltens P, Hodges JR. Advances in the early detection of Alzheimer's disease. Nat Med. 2004;10:34-41.
  • 22. Friedman DB, Laditka JN, Hunter R, et al. Getting the message out about cognitive health: a cross-cultural comparison of older adults' media awareness and communication needs on how to maintain a healthy brain.Gerontologist. 2009;49(1):50-60.
  • 23. Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, et al. Healthcare information on YouTube: A systematic review. Health Informatics J. 2015;21(3):173-94.

Analysing YouTube Videos as a Source for Alzheimer's Disease Information

Year 2021, Volume: 8 Issue: 3, 215 - 219, 28.12.2021
https://doi.org/10.47572/muskutd.1001545

Abstract

Alzheimer's Disease (AD) is the most common cause of dementia, is a growing global health problem for individuals and society. Research indicates that YouTube and similar channels have an important place in people's health-related information exchange. For the research, " Alzheimer Hastalığı" for Turkish videos and "Alzheimer's Disease" for English videos were analysed on the YouTube page. A total of 120 videos were evaluated. The upload date and duration of the video, the number of views, the number of likes and dislikes, the number of uploaders and comments were recorded. The quality and content of the video was assessed using the Video Power Index (VPI), modified DISCERN scale, and Global Quality Scale (GQS). In the scales in which we compared the quality of the videos, it was found that the VPI (p<0.001), GQS (p<0.001) and modified DISCERN scale (p<0.001) scores were significantly higher in the videos published in English compared to the videos published in Turkish. When we compared the sources that published the videos among themselves, we found that there was a significant difference in the GQS (p=0.008) and Modified DISCERN (p=0.023) scores. We think that it would be more beneficial to prepare informative videos about Alzheimer's Disease, which are published in Turkish on the internet, by academic institutions as well as specialist physicians, in a way that meets the expectations of the society and includes the experiences of patients and their relatives.

References

  • 1. Lopez JS, González HM, Léger GC. Alzheimer's disease. In: Aminoff MJ, Boller F, Swaab DF. Handbook of Clinical Neurology. Chapter 13;2019;167:231-255. Amsterdam: Elsevier.
  • 2. Lane CA, Hardy J, Schott JM. Alzheimer's disease. Eur J Neurol. 2018;25(1):59-70.
  • 3. Alzheimer's Association. 2017 Alzheimer's disease facts and figures. Alzheimers Dement. 2017;13(4):325-73.
  • 4. Kang S, Lee YH, Lee JE. Metabolism-centric overview of the pathogenesis of Alzheimer's disease. Yonsei Med J. 2017;58(3):479–88.
  • 5. Mucke L. Neuroscience: Alzheimer's disease. Nature. 2009;461:895–97.
  • 6. Mayeux R, Stern Y. Epidemiology of Alzheimer Disease. Cold Spring Harb Perspect Med. 2012;2: a006239.
  • 7. Silva MVF, Loures CMG, Alves LCV, et al. Alzheimer’s disease: risk factors and potentially protective measures. J Biomed Sci. 2019;26(1):33.
  • 8. Baumgart M, Snyder HM, Carrillo MC, et al. Summary of the evidence on modifiable risk factors for cognitive decline and dementia: a population-based perspective. Alzheimers Dement. 2015;11(6):718-26.
  • 9. Institute of Medicine. Cognitive aging: progress in understanding and opportunity for action. Washington, DC: The National Academic Press; 2015.
  • 10. Fox S, Purcell K. Chronic disease and the internet. Pew Internet & American Life Project, Washington, DC, March 2010.
  • 11. Singh AG, Singh S, Singh PP. YouTube for information on rheumatoid arthritis—a wakeup call? J Rheumatol. 2012;39(5):899–903.
  • 12. Van den Eynde J, Crauwels A, Demaerel PG, ve ark. YouTube Videos as a Source of Information About Immunology for Medical Students: Cross-Sectional Study. JMIR Med Educ. 2019;5(1):e12605.
  • 13. Bernard A, Langille M, Hughes S, et al. A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. Am J Gastroenterol. 2007;102:2070-7.
  • 14. Health Research Authority. http://www.hra-decisiontools.org.uk/research/ Accessed August 21, 2018.
  • 15. Koçyiğit BF, Akaltun MS, Şahin AR. YouTube as a source of information on COVID-19 and rheumatic disease link. Clin Rheumatol. 2020:1–6.
  • 16. Nason GJ, Kelly P, Kelly ME, ve ark. YouTube as an educational tool regarding male urethral catheterization. Scand J Urol. 2014;49(2):189–92.
  • 17. Azer SA. Are DISCERN and JAMA Suitable Instruments for Assessing YouTube Videos on Thyroid Cancer? Methodological Concerns. J Cancer Edu. 2020;35:1267–77.
  • 18. Şahin A, Şahin M, Türkcü FM. YouTube as a source of information in retinopathy of prematurity. Ir J Med Sci. 2019;188(2):613-17.
  • 19. Fox S. Online health search 2006. Pew Internet and American Life Project. [Internet. Accessed January 26, 2012.] Available from: http://www.pewinternet.org/Reports/2006/Online-Health-Search-2006.aspx.
  • 20. Tang W, Olscamp K, Ki Choi S, et al. Alzheimer’s Disease in Social Media: Content Analysis of YouTube Videos . Interact J Med Res. 2017;6(2):e19.
  • 21. Nestor PJ, Scheltens P, Hodges JR. Advances in the early detection of Alzheimer's disease. Nat Med. 2004;10:34-41.
  • 22. Friedman DB, Laditka JN, Hunter R, et al. Getting the message out about cognitive health: a cross-cultural comparison of older adults' media awareness and communication needs on how to maintain a healthy brain.Gerontologist. 2009;49(1):50-60.
  • 23. Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, et al. Healthcare information on YouTube: A systematic review. Health Informatics J. 2015;21(3):173-94.
There are 23 citations in total.

Details

Primary Language Turkish
Subjects ​Internal Diseases
Journal Section Original Article
Authors

Mehmet Tayfun Kaşıkcı 0000-0001-7256-6191

Sinan Yıldırım 0000-0001-8191-168X

Publication Date December 28, 2021
Submission Date September 27, 2021
Published in Issue Year 2021 Volume: 8 Issue: 3

Cite

APA Kaşıkcı, M. T., & Yıldırım, S. (2021). Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi, 8(3), 215-219. https://doi.org/10.47572/muskutd.1001545
AMA Kaşıkcı MT, Yıldırım S. Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi. MMJ. December 2021;8(3):215-219. doi:10.47572/muskutd.1001545
Chicago Kaşıkcı, Mehmet Tayfun, and Sinan Yıldırım. “Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi”. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi 8, no. 3 (December 2021): 215-19. https://doi.org/10.47572/muskutd.1001545.
EndNote Kaşıkcı MT, Yıldırım S (December 1, 2021) Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi 8 3 215–219.
IEEE M. T. Kaşıkcı and S. Yıldırım, “Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi”, MMJ, vol. 8, no. 3, pp. 215–219, 2021, doi: 10.47572/muskutd.1001545.
ISNAD Kaşıkcı, Mehmet Tayfun - Yıldırım, Sinan. “Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi”. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi 8/3 (December 2021), 215-219. https://doi.org/10.47572/muskutd.1001545.
JAMA Kaşıkcı MT, Yıldırım S. Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi. MMJ. 2021;8:215–219.
MLA Kaşıkcı, Mehmet Tayfun and Sinan Yıldırım. “Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi”. Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi, vol. 8, no. 3, 2021, pp. 215-9, doi:10.47572/muskutd.1001545.
Vancouver Kaşıkcı MT, Yıldırım S. Alzheimer Hastalığı Bilgilendirmesinde Kaynak Olarak YouTube Videolarının İncelenmesi. MMJ. 2021;8(3):215-9.