LINKING PROCESS OF THE REVISED CYSTIC FIBROSIS QUESTIONNAIRE WITHIN THE SCOPE OF THE INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH

Abstract

Purpose: Health outcome measures are standardly linked with the International Classification of Functioning, Disability, and Health (ICF) using a method called "linking rules". This study aims to evaluate the Cystic Fibrosis Questionnaire-Revised (CFQ-R), which is the most commonly used questionnaire to evaluate the quality of life in cystic fibrosis, for children (CFQ-R6-11, CFQ-R12-13), adolescent/adult (CFQ-R14+) and parent (CFQ-Rparent) questionnaires are linked within the scope of ICF. Methods: Each items of the CFO-R child (6-11,12-13), adolescent/adults (14+) and parents forms was linked with the ICF by three independent researchers according to Cieze’s rules. The researchers' degree of agreement was calculated using the kappa coefficient. Results: The CFQ-Rparent form was found to include body functions 46% (n=26), activities and participation 34% (n=19), and environmental factors 11% (n=6). The CFQ-R6-11 form was found to include body functions in 40% (n=19), activities and participation in 34% (n=16), and environmental factors in 19% (n=9). It was found that the CFQ-R12-13 form included body functions in 40% (n=19), activities and participation in 34% (n=16), and environmental factors in 19% (n=9). The CFQ-R14+ form was found to include body functions 43% (n=29), activities and participation 37% (n=25) and environmental factors 7% (n=5). Conclusion: In the CFQ-R child, adolescent/adult, and parent forms, body functions are the category most associated with the ICF. Environmental factors were inadequately identified within the questionnaires. This content comparison showed the content and nature of each questionnaire, providing insight into the scope of the individual's functionality. Additionally, it can be said that criteria that evaluate environmental factors are needed to evaluate CF holistically.

Keywords

• ICF
• Linking Rules
• Cystic Fibrosis
• Quality of Life

YENİDEN DÜZENLENMİŞ KİSTİK FİBROZİS ANKETİNİN İŞLEVSELLİK YETİYİTİMİ VE SAĞLIĞIN ULUSLARARASI SINIFLANDIRMASI KAPSAMINDA İLİŞKİLENDİRME SÜRECİ

Öz

Amaç: Sağlık sonuç ölçümleri, “ilişkilendirme kuralları” olarak adlandırılan bir yöntem kullanılarak standart bir şekilde İşlevsellik, Yetiyitimi ve Sağlığın Uluslararası Sınıflandırması (ICF) ile ilişkilendirilmektedir. Bu çalışmanın amacı kistik fibroziste yaşam kalitesini değerlendirme amacı ile en sık kullanılan anket olan Yeniden Düzenlenmiş Kistik Fibrozis Anketi’nin (CFQ-R) çocuk (CFQ-R6-11, CFQ-R12-13), adölesan/erişkin (CFQ-R14+) ve ebeveyn (CFQ-Rebeveyn) formlarının ICF kapsamında ilişkilendirilmesidir. Yöntem: CFQ-R çocuk (6-11 yaş ve 12-13 yaş), adölesan/erişkin (14+) ve ebeveyn formlarının her bir maddesi üç bağımsız araştırmacı tarafından Cieze’nin kurallarına göre ICF ile ilişkilendirildi. Araştırmacıların anlaşma derecesi kappa katsayısı kullanılarak hesaplandı. Sonuçlar: CFQ-R ebeveyn formunun vücut işlevlerini %46 (n=26), etkinlikler ve katılımı %34 (n=19) ve çevresel faktörleri %11 (n=6) oranında içerdiği bulundu. CFQ-R6-11 formunun vücut işlevlerini %40 (n=19), etkinlikler ve katılımı %34 (n=16) ve çevresel faktörleri %19 (n=9) oranında içerdiği bulundu. CFQ-R 12-13 formunun vücut işlevlerini %40 (n=19), etkinlikler ve katılımı %34 (n=16) ve çevresel faktörleri %19 (n=9) oranında içerdiği bulundu. CFQ-R14+ formunun vücut işlevlerini %43 (n=29), etkinlikler ve katılımı %37 (n=25) ve çevresel faktörleri %7 (n=5) oranında içerdiği bulundu. Anketlerde CFQ-R ebeveyn için %9 (n=5), CFQ-R6-11 için %6 (n=3), CFQ-R 12-13 için %6 (n=3) ve CFQ-R14+ için %12 (n=8) oranında madde ICF kapsamında tanımlanamadı. Tartışma: CFQ-R çocuk, adölesan/yetişkin ve ebeveyn formlarında vücut işlevleri, ICF ile en çok ilişkili kategoridir. Çevresel faktörler anketler kapsamında yetersiz bir şekilde tanımlanmaktadır. Bu içerik karşılaştırması her bir anketin içeriğini ve doğasını göstererek kişinin fonksiyonelliğinin kapsamı hakkında bilgi edinmeyi sağlar. Ayrıca, KF’yi bütüncül değerlendirmek için çevresel faktörlerin değerlendirildiği ölçütlere ihtiyaç olduğu söylenebilir.

Anahtar Kelimeler

• ICF
• İlişkilendirme Kuralları
• Kistik Fibrozis
• Yaşam Kalitesi

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